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Spagano5

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Everything posted by Spagano5

  1. She was majorly dehydrated and had high levels of calcium - ONC thinks these were making her feel so bad/confused. Got fluids and zometa today. Hoping it will help Sent from my iPhone using Tapatalk
  2. My mom also received what they considered palliative radiation on her lung mass (10 days as well) This procedure helped her pain tremendously. I am hopeful it will do the same for your brother. Keep us posted Sent from my iPhone using Tapatalk
  3. I understand that feeling of being punched in the gut with each test result and doctor visit. The dread is the hardest part for me. My mother was diagnosed in June with the same disease. Words matter and the doctor's approach to delivering this information seems so unfair. He is young and strong and otherwise healthy. It's very possible that he will have a mutation, in which case there is a lot of hope. I will pray for him and your family. No matter what there is always a plan. Keep us posted Sent from my iPhone using Tapatalk
  4. Jennifer thank you for taking the time to reply and share your story! Such great results. I hope it continues to keep progression at bay and that you can do all the things you enjoy. Very best to you Stephanie Sent from my iPhone using Tapatalk
  5. Your story offers inspiration! Did you have any mutations? Thank you Sent from my iPhone using Tapatalk
  6. Thank you and I wish you the very very best. My mom is sleeping pretty much all day long. We had to increase her morphine to 180mg per day recently. So unclear if this is related to meds, the disease or the keytruda. Likely a combination. She's also sweating a lot. I just hope we can get in three infusions to see if it's actually working. Sending you my best energy. Sent from my iPhone using Tapatalk
  7. Hi all and thank you in advance for the information and support. My 74 year old mother was diagnosed in June 2016 with stage 4 NSCLC. (Adeno-C, no mutations) upper left lobe tumor with a small lesion in the brain. Because the objective of care was palliative she did not take platinum based chemo and instead went on Alimta (only). She had targeted radiation to the brain (cyberknife) Oct scans were stable, additional scans in December showed progression. Lungs and now liver. She just started keytruda this week. Her pDL =80% She's quite frail and sleeping a ton. I would be interested in hearing from others on Keytruda. I have done all the research and hear promising things but fear her cancer has spread too much/too far. Just looking for any hope or inspiration here. Thank you all so much stephanie
  8. KatieB my mother had her first keytruda infusion this week. She's stage 4 NSCLC, adeno, no mutations. pdl =80% can you help me connect to other keytruda patients? let me know how best to do that thank u
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