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Woodburn9

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  1. Like
    Woodburn9 got a reaction from Tom Galli in Ct scan   
    Hi, after about a year on opdivo , I had a new 5mm nodule come up. We continued opdivo, next scan it was gone.
     
  2. Like
    Woodburn9 got a reaction from LaurenH in Ct scan   
    Hi, after about a year on opdivo , I had a new 5mm nodule come up. We continued opdivo, next scan it was gone.
     
  3. Like
    Woodburn9 got a reaction from MaryTD777 in Travelling out of country with Terminal LC?   
    Hi, I have traveled several times after being diagnosed with lung cancer. Make sure his blood counts are good then help him pack. Does he require oxygen? If so you have to arrange to have it available where he lands, you can't take your tanks with you. If no oxygen then you travel like you always have using precautions not to pick up any bugs along the way. Have a wonderful trip!
  4. Like
    Woodburn9 got a reaction from Spagano5 in Introduction and gratitude - looking for keytruda users   
    Hi, I have no treatable mutations. 
    Your mothers sweating may be due to the morphine. Alot of pain meds can cause sweating.
  5. Like
    Woodburn9 got a reaction from Jennifer.LP in From Nothing to IV in one day   
    They normally wait a period of time between chemo and radiation. Mutation testing adverages 2-4 weeks for results.


    Sent from my iPad using Tapatalk
  6. Like
    Woodburn9 got a reaction from Jennifer.LP in From Nothing to IV in one day   
    Have they talked about starting chemo? The quicker they start that the better but they won't do that till the radiation is over.    once they get the testing back they can figure out the best plan of treatment. Until then they will follow the standard protocol that is proven to work the best with no mutations. People with worse tumor burden have survived so he can to. Keep us posted
  7. Like
    Woodburn9 reacted to Jennifer.LP in From Nothing to IV in one day   
    Good morning all,
    My brother was diagnosed with cancer last week right after Christmas. He is a 48 year old healthy, strong man who never smoked or drank, but took care of his body and ate healthy. In Oct. 2016, while at the gym, he thought he hurt his shoulder while lifting weights. He had muscle pain so he went to the doctor and was prescribed pain medicine and physical therapy. He did all of that and it didn't work. Then the pain started to run down his spine and lower back and all around his neck. He went to the doctor again and they prescribed stronger pain medication and it also didn't work. He then insisted that his doctor do an MRI. The doctor then called my brother on the phone Dec. 28th and told him it looked like cancer. Dec. 29th went to the oncologist and on Dec. 30th he did a MRI and PET. On Jan. 3, oncologist confirmed it was cancer and metastasized to his bones and specifically his spine. That's what was causing the pain. We checked him into the hospital to get the process started immediately and that day they did a full body MRI and MRI of the brain. That very same night they told us that it had spread to his brain and all along his spine. On Jan. 4, they did the biopsy of the lung tumor which is about the size of a quarter. Yesterday we found out it was non small adenocarcinoma of the lung stage 4 and it's very aggressive. They sent off a sample to see if there is any mutation. Today we received news that it has spread to his liver and they will begin target radiation on the tumor in his spine on Monday so he could at least walk without pain. He has never had any medical problems and he was fine last month and now he's in a hospital and the doctors are saying that his days are numbered. This has been the hardest news ever but if anyone out there could give us some hope, we would greatly appreciate it. I know we can fight this horrible disease. I will update and let everyone know of the treatments and hope there could be wise counsel for us since this disease doesn't run in our family. Thank you. 
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