I just joined after having found this site thanks to JayJay's posts on Inspire. I have been on 40 mg Gilotrif for 5 weeks now after having been diagnosed in Sept with cancer in right lung and mets to liver and brain. I had surgery to remove the largest of the brain mets and gamma knife on the other two, followed by 2 rounds of chemo while waiting for the mutation report. I've been really lucky (its about time :)) in that I have had really mild side effects from the Gilotrif and those that I have had are starting to improve. I had my first CT scan since starting Gilotrif on Friday and am just waiting for the results and as we all know the waiting is really hard. It seems I spend half my time scouring the internet for any tidbit of information, so I am glad to have found this site.
