Mally
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Posts posted by Mally
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Welcome here and im sorry you are going through this and alot of people on here have a load of experience in treatments and the disease so if you have questions then fire away and someone will try to give you answers
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Ktamdgirl hi and welcome here ...i am nearly 4 months post surgery for a lobectomy and a wedge resection and like your mum i was told stage 1a and the surgery would be all i needed but after the pathology results which they tested 20 lymph nodes and 7 had cancer cells i became a stage 111a and now im having chemo and over half way through and mine is carboplatin/gemcitabine combo and ill get a scan at the end of treatment ..im 62 yrs old so we are very similar
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I too have gained weight Judy about 4 kgs since starting chemo in February.....sometimes eating something while feeling nauseous seems to settle it slightly but being told not to lose weight is an invite to eat what i like subconsciously of course ...and i am overweight and had been doing low carb for 12 months prior to dx and lost 27 kgs but thats creeping back on and i crave the comfort foods now .
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Great advice tom and i can relate to both of you because i smoked for almost 30yrs (started very young at 14 ) then many yrs later my mum got adenocarcinoma and had a lobectomy and had many complications including collapsed lung twice and needed a breathing tube put in her throat and put in an induced coma so she wouldnt move and she smoke up to that point ...i gave it up 17 yrs before my diagnosis and i think that helped me heal quickly so do it now and you will benefit from it and its true that you have to want to stop and not because you should ...you can do this we are all behind you
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Thankyou and i guess too many scans can put us at risk of other health problems .so im going to stay positive until i have a reason not to and enjoy the fact that i feel well
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And i have a combination of chemo Gemsitabine and Carboplatin on day 1 and day 21 and just gemcitabine on day 8 and the 2 weeks off is great because no nausea in that 2 weeks but i havent seen anyone mention gemcitabine since ive been on this forum so is it new or specific to my cancer cells ?
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Thanks tom its just worrying that the lymph node cancer cells could be off and growing somewhere else and the chemo im on may not touch it .the pathology nurse taking the blood said they test for red and white cell regeneration and liver kidney and electrolytes and full blood picture so im telling myself if all weren't good something would look wrong surely and i havent lost my hair and its been 2 months of chemo and the dr said i probably wont lose it but maybe some thinning so does that make it a weak chemo ? And i dont get fatigued a lot which is normally a common side affect of treatment so while im grateful for this lack of severe side affects it leaves me worrying that its not working on the escaped cells through lymph nodes ...sorry for the rant ...
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Just wondering if anyone had scans midway thru chemo treatment ? I had a lobectomy and a wedge taken from my left lung and they found 7/20 lymph nodes had cancer in them so i worry that things could be worse and the oncologist said ill have a full body ct scan on completion of the chemo ....and also i have a blood test before each chemo treatment and thats checked for kidney and liver function and white / red blood cells and other things so i wonder if that would give an idea how im going ? I see the oncologist every 3 weeks and he doesnt talk a lot
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Im new to this and dont understand any of the radiology reports or shrinking nodes etc but some on here will know exactly what these things mean so hang in there taxmeless and im sure you will get some sound advice ...my nodule size was stable for 2 yrs while being scanned for surveillance of a different cancer from 5 yrs ago and it had grown by 1.7 mm this time so then biopsy and pet scan followed and its a nsclc adenocarcinoma measuring 13mm which has been surgically removed along with a smaller nodule and now chemo so i know the fear and sadness of living with this monster called cancer but i like to think im living with cancer and not dying from cancer and that keeps me in a much better frame of mind so hugs to you and hang in there it may not be as bad as you are dreading .
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Thanks LindaD im going to check out this milk of magnesia because ive heard its good but im in my 2 weeks off at the moment but want to be prepared for my next 2 chemo day
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Can anyone give me some advice on the best way to handle this ....after my combined chemo my bowel seems to shut down and create cement ( sorry for the description ) but 4 days trying to manage this is getting to a depressive state and i noticed the last cycle i had the same problem so im wondering if its the steroid med for nausea or the chemo itself causing this issue ? Ive got the ducalax and movitol sachets but didnt work ...so the nausea is enough to put up with without added gi stresses ..thanks for reading
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I feel so lucky to have the medical system we have in australia because anything found wrong by your gp is referred to a cancer team at a major hospital and its all at a one stop shop whether its surgeons or scans radiation chemo and follow ups ...when my first cancer was seen by ultrasound which was a sarcoma soft tissue type my gp was calling me in to see him before i got home from radiology and referal done that day and a phone call from the surgeon 2 days later to get a full body scan done so they could see if the sarcoma had spread from my leg which lucky for me it hadnt
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Thanks judy i wish you all the best too ..
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I certainly wouldnt take the wait and see approach so get busy with your gp and see if he can get you on your way to tests ...im only new to this lung cancer thing but during this time i realize just how common it is so it doesnt surprise me that you know of 2 in your church but there are alot of very knowledgeable people with long term experience on here Andrew and some will give you more advice than i can so keep checking in ok ...i wish you well ..
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Judy im only out 5 yrs from 2 surgically removed basil cell skin cancers and the sarcoma but im half way thru chemo for my lung cancer and things seem to be going well so far because hair loss is only minimal and nausea is under control
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Ive had 3 cancers but different to you ladies and it was on surveillance scans for my sarcoma cancer that they saw a nodule that had grown in my lung and it turned out to be a primary cancer so ive had surgery and now chemo and the sarcoma was treated with radiation for 5 weeks and then 2 surgeries and that was going on 5 yrs ago so ill still be checked up to 10 yrs for sarcoma because its notorious for recurrence
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I feel i was left too long between ct scan showing a nodual that had grown slightly that had been stable for 2 yrs before and was seen on 13th oct last yr and had a pet scan in early november and a biopsy late november and told it would be just surgery and curable so surgery on jan 5th showed clear borders from the lobectomy and the small wedge resection on same lung and then i got a phone call telling me that there were cancer cells in 7/20 lymph nodes so i started chemo on feb 16th ...i often think if the surgery was done sooner after the biopsy that it may not have spread to the nodes.but i guess ill never know ......and i wonder if the biopsies set cells loose to metastasize ...
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Hi jeffrey i hope you find alot of information and support here as i have ..
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Hi skmcornett i was just asking about the chemo combo of carboplatin and Gemsitabine because i dont recall anyone mentioning Gemsitabine and was wondering if its new or not used a lot
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I must be doing something right but i asked about my chemo combination a couple of days ago and no one responded so i thought i must have been doing something wrong
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Welcome here and you will get some great answers from very knowledgeable people so just ask away
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