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Mally

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  1. Thanks
    Mally reacted to Curt in Mally   
    I’m sorry to hear that Mally.  Recurrence is a really tough part of this disease.  Your treatment plans sounds like a good one and it sounds like the recurrence was caught early.  Hang in there.  
  2. Thanks
    Mally reacted to Steff in Mally   
    Hi Mally,
    I too am sorry to hear of your recurrence.  I hope this doesn't get you down too much - it's just another bump in the road that you will get through.
  3. Thanks
    Mally reacted to Tom Galli in Mally   
    Mally,
    So very sorry to learn of this news!
    If by situation you mean recurrence, then yes; many of us have experienced one or several -- advice: treat and repeat!  Lung cancer is unfortunately persistent and in battling it, we need to become more persistent.  I think the precision radiation is a good thing and I hope your treatment plan is established quickly.
    Stay the course.
    Tom 
  4. Sad
    Mally got a reaction from Tom Galli in Mally   
    Hello my fellow survivors I'm just updating my journey and had a biopsy on 1 lymph node and it is cancer in it so I'll be having radiotherepy for 5 days if the radiotherapy oncologist agrees that he can get to it otherwise he may add a chemo to my opdivo...so just when I think I'm doing really well this happens but I am grateful I have no other cancer masses anywhere ...so has anyone had this type of situation ? Or some advice ? Thankyou..
  5. Like
    Mally reacted to Diana in Non-small Cell - 4.5 years later small cell - anybody?   
    I had a really good day yesterday and am feeling pretty good today as well.  I got a lot done yesterday as I felt more energetic than I have for about a month or so.  Tomorrow is all day chemo again followed by half days both Tuesday and Wednesday.  Last round three weeks ago really hit me hard.  I was severely dehydrated and had to get IV fluids, my white cell and platelet counts were down so they had to stop radiation until they came up, I had extreme nausea and I was pretty sluggish overall.  I am hoping this round goes better.  I am drinking lots and lots of water today and will do so for the next few days.  I sure don't want to get dehydrated again.  I could hardly move!  I am getting a CT scan Tuesday to see if the radiation and chemo have shrunk my tumor any so that they can narrow their field for radiation. 
    Thank you all for your responses, positive thoughts and prayers.  I keep all of you in my prayers as well.
  6. Like
    Mally reacted to Laurel in Our journey with STAGE III-C non small cell (inoperable) LUNG cancer..   
    I am sorry your surgery was so painful and didn't presents the results you deserved.  I hope you can try some followup therapies that might help.  Get your best care. Hugs
  7. Sad
    Mally got a reaction from Rower Michelle in Our journey with STAGE III-C non small cell (inoperable) LUNG cancer..   
    Hi Laurel,After diagnosis and biopsy were done I was offered radiotherepy OR surgery and I picked surgery because 4 yrs prior to this I had 5 weeks of radiotherepy and follow up scans 3 monthly and 6 monthly for a separate cancer so I felt I'd had enough radiation so went with surgery thinking I just wanted the cancer cut away and that followed with chemo because traces of cancer had already escaped into 7 nodes so surgery was a very painful experience but was told I was at a cure stage but they were wrong unfortunately..
  8. Like
    Mally reacted to Rower Michelle in Introduction - Isabelle49   
    Eeek.  I read in one of Bernie Siegel MD’s books the trick is to get up way early to get most of your food supply in before the 6hr cut off.  One of his patients got up at 4am to avoid any issues.  Could that work for you?  
  9. Like
    Mally reacted to Isabelle49 in Introduction - Isabelle49   
    Thanks so much Irwin. One of my daughters has been through a lot in her life, including Hurricane Katrina,  but recently things are looking great. She is an RN also, and her daughter has been an RN as well for the past year. The daughter, my granddaughter is getting married in November of this year and there is much happiness and excitement. I am praying that I my problems don’t affect the happiness they are experiencing so this is a major reason for me to be holding back. Appreciated hearing from you and everyone else.
     
    Ok, now this PET Scan I’m having on Monday. Scheduled for 2 pm, fasting for 6 hours before the test and I am a hypoglycemic. This should be interesting.  I normally have breakfast about 11 and must eat again by 3 or 4 or I get the shakes and very rapid heartbeat, so will see how it goes. I tried to get it scheduled earlier, but no go.
  10. Like
    Mally reacted to Irwin1 in Introduction - Isabelle49   
    I am a lot younger when my father dealt with this. Both my dad and I were ex smokers for several decades. I quit 20 years ago and when my father got it he was in his early 80. I am 63 and still waiting for the thoracic surgeon to get a definitive biopsy after a negative needle biopsy and positive PET scan. 
        Having given you my background, my father chose to hold back his diagnosis from my mom and also from us. But he led his own life together with my mom. I don't know if he was in denial and kept the diagnosis from my mom or because he didn't want to upset her. But holding it back seemed to a bad idea. 
        Since our family all live in Florida using the example of the way we handle hurricanes is a good analogy. If we can track a hurricane it is best to learn of the hurricane when it is in an early stage of development along with alerting the public as soon as possible. This is because many times the hurricane never reaches hurricane stregnth and fizzles out. But if the hurricane starts to develop quickly into a major hurricane we are all prepared for it before it hits. 40 years ago we got little warning of a major hurricane and of course it made things worse because it hit with little time to work together to minimize damage.
         Same exact thing with the diagnosis. To hold back until you show signs of illness maybe from side effects of treatment it may cause more emotional distress. I think everyone in the family would be better off preparing together. In the end when you show signs of the illness it may cause more harm than good.
         However you are the one who knows your family best. So hopefully the feedback we are giving you will help you make your decision. I chose to tell my wife everything I had learned about staging and the two main types of cancer so that she could break the news to her side of the family in the best way.
        I am sorry that you have to deal with cancer thing at this time in your life. I am new to this myself and am learning more and more about this situation every day reading from here from the veterans. 
          God bless 🙏
                  Irwin
  11. Like
    Mally reacted to Isabelle49 in Introduction - Isabelle49   
    Good to hear. Glad you had a good scan Lou. I’m hoping that since I only had one lymph node in the mediastinum that was positive that it hasn’t spread far. Can only pray. Thanks
  12. Like
    Mally reacted to LouT in Introduction - Isabelle49   
    Isabelle 
    A Pet scan was part of my diagnostic process and it's a pretty good tool in the arsenal of nailing down the treatment plan. It's easy; an injection of radioactive sugar, a bit of a rest (90 minutes) to let it circulate and a scan. In my case it showed that, from head to groin, I had no growths other than my lung nodule. 
    It's a good test to get done and can answer questions about what is going on in other parts of your body. 
    Praying it will be positive for you. 
    Lou
  13. Like
    Mally reacted to Isabelle49 in Introduction - Isabelle49   
    Update: also found out I am scheduled for PET Scan on Monday coming up. Oh my!!!
  14. Like
    Mally reacted to Isabelle49 in Introduction - Isabelle49   
    I did a little research on the oncologist and he has been in the field for 20 years and is very heavy into research related to neuroendocrine tumors as well as other forms of lung cancer and seems to be published quite a bit. Very much into tumor/medication sensitivity. So I may have a really lucky strike!!! Thanks all.
  15. Like
    Mally reacted to Tom Galli in Introduction - Isabelle49   
    Isabelle,
    DOs (Doctors of Osteopathic Medicine) and MDs all take the same state board exam to get a medical license to practice. Moreover, internal medicine and hemotology-oncology programs often have DOs and MDs side by side. So I wouldn’t worry. My general practitioner is a DO and his intervention in my treatment saved my life. 
    Stay the course. 
    Tom
  16. Like
    Mally reacted to Steff in Mally   
    Mally-
    Glad to hear your doc sees no new cancer in your scans, congrats!  It's easy to overthink something like an enlarged lymphnode.  Like you said, there are many things that can cause a lymphnode to become enlarged, cancer only being 1 of them.  I wish I could answer your questions or give you some relief while awaiting your further testing, but I cant.  I'm sorry you have more of the waiting game and I hope that someone can provide some assurance sooner than later.
    Take Care,
    Steff
     
  17. Like
    Mally reacted to PaulaC in Mally   
    Mally it sounds like good news to me and praying the lymph node is nothing. 
  18. Like
    Mally reacted to Irwin1 in Mally   
    Maly,
          I'm not sure about how things work here. I am in another forum that I am dealing with Valium addiction. There we start a thread with our name. And we call this a blog. Is this how it works here?
       Hoping for good news from your doctor 🙏
  19. Like
    Mally reacted to Rower Michelle in Mally   
    How’s life down under?  Lymph nodes can be mysterious. My rowing team mate is being treated for a different type of cancer. He’s had a few nodes light up on the PET that were surgically removed. Turned out to be just fatty tissue.  Keep us posted. Know that you’re in our prayers! 
    Michellw
  20. Like
    Mally got a reaction from Brenda F in Our journey with STAGE III-C non small cell (inoperable) LUNG cancer..   
    Hi Brenda I was diagnosed with stage 3A nsclc November 2016 and January 2017 I had a lobectomy followed by chemotherepy for 4 rounds because they found cancer in 7/20 lymphnodes so next scan was all clear but fast forward to end of 2017 I had 3 enlarged lymphnodes and was started on opdivo immunotherepy and the nodes shrunk to almost non visible and the treatment is a piece of cake compared to normal chemo because its once a fortnight for half hour and no nausea or hair loss so hang in there because there is always hope with new treatments happening all the time ..
  21. Like
    Mally reacted to Curt in Mally   
    Lymph nodes do swell for all types of reasons.  Yo can do a lymphatic massage to relieve some fluid and inflammation.  I would check with your doctor first before doing one. 
  22. Like
    Mally reacted to Tom Galli in Mally   
    Mally,
    Time to plan another vacation to celebrate your NED scan.
    Lymph nodes swell all the time and for a myriad of reasons. Therefore, go some where and enjoy NED life.
    Stay the course.
    Tom
  23. Like
    Mally got a reaction from Tom Galli in Our journey with STAGE III-C non small cell (inoperable) LUNG cancer..   
    Hi Brenda I was diagnosed with stage 3A nsclc November 2016 and January 2017 I had a lobectomy followed by chemotherepy for 4 rounds because they found cancer in 7/20 lymphnodes so next scan was all clear but fast forward to end of 2017 I had 3 enlarged lymphnodes and was started on opdivo immunotherepy and the nodes shrunk to almost non visible and the treatment is a piece of cake compared to normal chemo because its once a fortnight for half hour and no nausea or hair loss so hang in there because there is always hope with new treatments happening all the time ..
  24. Thanks
    Mally reacted to Rower Michelle in Mally   
    Prayers for you Mally!   
  25. Thanks
    Mally reacted to Isabelle49 in Mally   
    Praying it’s an inflammatory condition that’s causing the enlarged lymph node.
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