Jump to content

Mally

Members
  • Content Count

    278
  • Joined

  • Last visited

  • Days Won

    5

Reputation Activity

  1. Like
    Mally reacted to Punky in Stage IIIA Lung Cancer   
    I also had stage 3a.  Surgeon wouldn't operate at 1st because the operation would have left me with too much pain.  Had 4 chemo sessions along with a month of radiation.  My tumor shrunk over 70% after the radiation and the radiologist said it might even be dead.   Surgeon thought he would have to take it out in pieces because of the location and was planning a 8 hr operation.  He ended up doing a vats and said when he took a hold of the tumor it all  came out in one piece.   The margins were clear.  He said to me you have a chance of beating this.  I am now on adjuvant therapy hopefully if any small tumors are left they will be  and killed.  Hang in there, I live everyday praying the surgeon is right and I can beat this.   
  2. Like
    Mally reacted to BridgetO in Kate7617   
    For treatment of the adverse effects, as well as help coordinating treatment by all those doctors, you might seek a palliative care specialist. (yes, one more doc!). Some people think that palliative care is only for end-of-life situations, but it isn't. It's goal is to help with symptoms of both illness and treatment side effects and help improve your quality of life while you're getting treatment.  I wish you all the best.
  3. Like
    Mally reacted to Isabelle49 in Radiation plan to start 10/21   
    Plans are to start radiation on 10/21. I have one node under the right clavicle, a node near the tracheoesophageal area, a large one below the carina (where the right and left bronchus split off) and the mass located in the middle lobe. The Varian Trilogy will be used. Radiation onc. feels pneumonitis will almost certainly occur and may well have esophagitis. I have read that the side effects of radiation can be more extensive or have more effects when given concurrently with chemotherapy and that given together does not have much effect on outcome.  If this is the case I would rather complete chemo then go on too radiation therapy. Trivial as it sounds, my greatest worry is that I am in as good shape possible for my granddaughter’s wedding November 9, 2019. I told the radiation oncologist and he said I should have no problem if Radiation started 10/21. I have read that esophagitis often starts to be a problem about 3 weeks after radiation starts and this puts me a point very close to the wedding. If I were imminently dying from this condition I would agree to anything, but I am not. I’m dead set on this wedding as it will most likely be the only granddaughter whose wedding I will attend in my lifetime. Your thoughts? Blessings to all
  4. Like
    Mally reacted to Tom Galli in Radiation plan to start 10/21   
    Isabelle,
    My thoughts. Lung cancer is also a disease of life and your rationale is a prime example. Delay to experience life events would be my choice also. 
    Stay the course. 
    Tom
  5. Like
    Mally reacted to Kate7617 in Radiation plan to start 10/21   
    Isabelle49
    Wishing you the very best with your radiation treatments and of course best wishes to your granddaughter on her up coming marriage! 
    Welcome to the new "normal" living life with lung cancer. I pray that your have a successful journey and stay as healthy as you possibly can! Most importantly eat right, get plastic fork spoons and some baking soda with salt and water for rinsing mouth before you have a bite to eat. A very soft toothbrush, and oraline toothpaste, or burtsbee. Only suggestions that were helpful to me. While being radiated think only of healing, My best to you.
    Kate7617
  6. Like
    Mally reacted to Isabelle49 in Radiation plan to start 10/21   
    Thanks Tom, I’m sure Olive oil can’t hurt. I have read that there is a drug called Ethyol that is an injectable and can be given prior to each treatment to decrease the risk/severity of esophagitis.  I need to talk to Radiation/onc about it. Blessings.
  7. Like
    Mally reacted to Tom Galli in Radiation plan to start 10/21   
    Isabelle,
    I was at a LUNGevity Lunch and Learn in Atlanta and a radiation oncologist told us his way of managing esophagitis. His patients take a tablespoon of high quality olive oil 3 times a day and his patients don’t develop esophagitis symptoms. 
    I normally shy away from food-based remedies but asked several other oncologists attending and they confirm the results. 
    Stay the course. 
    Tom
  8. Like
    Mally reacted to Tom Galli in Radiation plan to start 10/21   
    Isabelle,
    I was at a LUNGevity Lunch and Learn in Atlanta and a radiation oncologist told us his way of managing esophagitis. His patients take a tablespoon of high quality olive oil 3 times a day and his patients don’t develop esophagitis symptoms. 
    I normally shy away from food-based remedies but asked several other oncologists attending and they confirm the results. 
    Stay the course. 
    Tom
  9. Thanks
    Mally reacted to PaulaC in Mally   
    Awesome news congratulations!
  10. Like
    Mally got a reaction from PaulaC in Mally   
    Hello everyone I just want to let you know that I had my 44th dose of opdivo yesterday and got my scan results which were NED and i feel so happy. Tom you were right when you said the radiotherapy would fry the lymph node in my neck and it did just that ...I start on monthly infusions now so that will feel more like a normal life than every fortnight ...I wish everyone on here the best of luck and keep positive because treatments are getting better every day 
  11. Thanks
    Mally reacted to Steff in Mally   
    Awesome, congrats!
  12. Like
    Mally got a reaction from Steff in Mally   
    Hello everyone I just want to let you know that I had my 44th dose of opdivo yesterday and got my scan results which were NED and i feel so happy. Tom you were right when you said the radiotherapy would fry the lymph node in my neck and it did just that ...I start on monthly infusions now so that will feel more like a normal life than every fortnight ...I wish everyone on here the best of luck and keep positive because treatments are getting better every day 
  13. Like
    Mally got a reaction from BridgetO in Mally   
    Hello everyone I just want to let you know that I had my 44th dose of opdivo yesterday and got my scan results which were NED and i feel so happy. Tom you were right when you said the radiotherapy would fry the lymph node in my neck and it did just that ...I start on monthly infusions now so that will feel more like a normal life than every fortnight ...I wish everyone on here the best of luck and keep positive because treatments are getting better every day 
  14. Haha
    Mally got a reaction from Tom Galli in Mally   
    Tom I'll skip the shrimp and put a snag on the barbie....lol
  15. Like
    Mally reacted to Rower Michelle in Mally   
    Whoo hoo Mally!  Great news, so happy for you!  Time for a Vegemite sandwich!!  
    Michelle 
  16. Like
    Mally got a reaction from Robert Macaulay in Mally   
    Hello everyone I just want to let you know that I had my 44th dose of opdivo yesterday and got my scan results which were NED and i feel so happy. Tom you were right when you said the radiotherapy would fry the lymph node in my neck and it did just that ...I start on monthly infusions now so that will feel more like a normal life than every fortnight ...I wish everyone on here the best of luck and keep positive because treatments are getting better every day 
  17. Like
    Mally got a reaction from LUNGevityKristin in Mally   
    Hello everyone I just want to let you know that I had my 44th dose of opdivo yesterday and got my scan results which were NED and i feel so happy. Tom you were right when you said the radiotherapy would fry the lymph node in my neck and it did just that ...I start on monthly infusions now so that will feel more like a normal life than every fortnight ...I wish everyone on here the best of luck and keep positive because treatments are getting better every day 
  18. Like
    Mally reacted to Tom Galli in Mally   
    Mally,
    Simply wonderfull news! I do love the sound of NED from down under. Time for some shrimp on the barbi? 
    Stay the course. 
    Tom
  19. Like
    Mally got a reaction from Curt in Mally   
    Hello everyone I just want to let you know that I had my 44th dose of opdivo yesterday and got my scan results which were NED and i feel so happy. Tom you were right when you said the radiotherapy would fry the lymph node in my neck and it did just that ...I start on monthly infusions now so that will feel more like a normal life than every fortnight ...I wish everyone on here the best of luck and keep positive because treatments are getting better every day 
  20. Like
    Mally got a reaction from Tom Galli in Mally   
    Hello everyone I just want to let you know that I had my 44th dose of opdivo yesterday and got my scan results which were NED and i feel so happy. Tom you were right when you said the radiotherapy would fry the lymph node in my neck and it did just that ...I start on monthly infusions now so that will feel more like a normal life than every fortnight ...I wish everyone on here the best of luck and keep positive because treatments are getting better every day 
  21. Like
    Mally reacted to Lin wilki in Scanziety Season.   
    Best news. Enjoy the glow
  22. Like
    Mally reacted to Deb W in Scanziety Season.   
    Fantastic news!
  23. Like
    Mally reacted to Lisa L in Scanziety Season.   
    Fantastic 
  24. Like
    Mally reacted to ale in Scanziety Season.   
    Well, very well!!! Kiss from Italy
  25. Like
    Mally reacted to Moonbeam in Scanziety Season.   
    Fantastic!!! So thrilled for you, Tom!!! Hubby finds out tomorrow morning of chemo/immunotherapy is working. 🙏🏻 
    Xx 
×
×
  • Create New...