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Mally

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  1. Like
    Mally reacted to TJM in Slow growing lung nodule   
    Thanks Mally. Not the best of nights last night but should be better tonight.
  2. Like
    Mally got a reaction from TJM in Slow growing lung nodule   
    I understand how you feel Tom as I had the same thing happen to me but looking back and getting told it's a dormant nodule made me feel relieved and the idea of getting it out didnt cross my mind then roll on a few years and it's gone and hopefully for good and I wish you all the best too ...
  3. Like
    Mally got a reaction from Tom Galli in Mally   
    Thankyou everyone for your replies ...
  4. Like
    Mally reacted to BridgetO in Mally   
    Whoo hoo Mally! May you and NED have a long and happy relationship.
  5. Like
    Mally reacted to Tom Galli in Mally   
    Hey everybody, Mally is NED -- AGAIN!  How about that.
    Stay the course.
    Tom
  6. Like
    Mally reacted to Rower Michelle in Mally   
    A very Happy Birthday Mally!  Wonderful news!
  7. Like
    Mally reacted to LUNGevityKristin in Mally   
    So great!  What a wonderful way to celebrate your birthday!
  8. Like
    Mally reacted to Robert A. in Mally   
    Great news.
     
  9. Like
    Mally reacted to Curt in Mally   
    Awesome!
  10. Like
    Mally reacted to Steff in Mally   
    Great news!
  11. Like
    Mally got a reaction from Tom Galli in Mally   
    Well I got my results of my scan today and all is good with no new spots anywhere so NED is feeling pretty good right now and I hope you are all doing well too ...my only problem is this inflammatory pain which is not comfortable but a common side effect and if I use my cold pack on my shoulder and neck it soon settles so forward march and I'm planning a holiday for my birthday in march and my 4 kids and partners and lots of my grandkids are coming for a trip down memory lane to the little town I lived my first 10 yrs of life in and i cant wait to watch my grandkids swim in the same swimming pool that i swam in all those years ago and to visit the school that i started in ....sorry about the ramble but makes me feel good ...
  12. Like
    Mally got a reaction from Curt in Mally   
    Well I got my results of my scan today and all is good with no new spots anywhere so NED is feeling pretty good right now and I hope you are all doing well too ...my only problem is this inflammatory pain which is not comfortable but a common side effect and if I use my cold pack on my shoulder and neck it soon settles so forward march and I'm planning a holiday for my birthday in march and my 4 kids and partners and lots of my grandkids are coming for a trip down memory lane to the little town I lived my first 10 yrs of life in and i cant wait to watch my grandkids swim in the same swimming pool that i swam in all those years ago and to visit the school that i started in ....sorry about the ramble but makes me feel good ...
  13. Like
    Mally got a reaction from Steff in Mally   
    Well I got my results of my scan today and all is good with no new spots anywhere so NED is feeling pretty good right now and I hope you are all doing well too ...my only problem is this inflammatory pain which is not comfortable but a common side effect and if I use my cold pack on my shoulder and neck it soon settles so forward march and I'm planning a holiday for my birthday in march and my 4 kids and partners and lots of my grandkids are coming for a trip down memory lane to the little town I lived my first 10 yrs of life in and i cant wait to watch my grandkids swim in the same swimming pool that i swam in all those years ago and to visit the school that i started in ....sorry about the ramble but makes me feel good ...
  14. Like
    Mally reacted to Curt in Happy New Year - 308 Days Post Lobectomy   
    It’s been 308 days since I had an upper right lobe lobectomy.   I’m spending this New Years Eve with my wife and three sons (7, 9 and 11) at an indoor water park.  Walking the stairs probably isn’t like it would have been last year but I’m able to do it and here to enjoy it.   I’ll add making it easier to climb stairs to the list of resolutions (I’ve got a few).   Another year in the books.  I hope 2020 is a little healthier, a littler easier and a lot happier for everyone here.  ❤️🌟💫💪🏼🥊💥🥂
  15. Sad
    Mally got a reaction from Tom Galli in Mally   
    It looks at times like the whole country is on fire and the sad part is that so many have been deliberately lit and I hope these people get punished severely because hundreds of houses have been lost and over a million animals have perished so it is a sad time for Australia at the moment ....thankyou for thinking of me ..
  16. Like
    Mally got a reaction from Rower Michelle in Mally   
    It looks at times like the whole country is on fire and the sad part is that so many have been deliberately lit and I hope these people get punished severely because hundreds of houses have been lost and over a million animals have perished so it is a sad time for Australia at the moment ....thankyou for thinking of me ..
  17. Like
    Mally reacted to Rower Michelle in Mally   
    Hey Malloy,
    I was thinking of you this morning where the newspaper is reporting about those horrible fires.   
    Your report of immunotherapy side effects is quite common. Take a peek at the postings in the Durva feed @DFK wrote a really nice cheat sheet of common side effects and how to manage them.  
    Congrats on the three year mark!! Many more to come.  Let us know how the scans turn out.  Prayers for continued NED.  
    Michelle
  18. Like
    Mally reacted to Tom Galli in How slow growing is NSCLC?   
    Liveurlife,
    A long while ago, my medical oncologist told me their practice would no longer use the word "cure" for any stage or type of lung cancer. Part of what makes our disease so dangerous is its propensity to recur.  I had four and each was a kick in the teeth. Therefore, I get your anger and powerlessness but ask you to think a while about weakness.  Your husband is going to look to you for strength. He'll need to lean on you and gain courage to sustain the treatment battle. While you may not have power or control over his cancer, treatments or outcome, you absolutely are in charge of your attitude.  I say: stand up, put your battle rattle on, lock and load, and proceed to decisively engage his lung cancer! You must have faith his treatment will work and once you have faith, you'll find hope.
    Stay the course.
    Tom
  19. Like
    Mally reacted to Steff in How slow growing is NSCLC?   
    Liveurlife,
    I understand the shock. My mom went from Stage 1 before surgery to a 3a during surgery (they found more cancer during surgery).  It was a punch to the gut.  But with today's advancements in treatment, a late stage diagnosis does not carry the death sentence it once did a few years ago.  My mom is 4 years out of her original diagnosis.  Yes it came back, and yes she had to have more treatment, but she is out of treatment and is NED (no evidence of disease).  
    I can't venture to guess what the cause of your husband's pleural effusion was, my mom had a few bouts with pleural effusions although none were found to have cancers cells in them.  
    I totally get your anger and feeling of powerlessness.  I think we all feel it whether we are the one with cancer or the caregiver.  It's a normal part of the process of being diagnosed with a serious condition.  But as I said before, there has been great advancements in treatment which gives us all HOPE.  The good news is that your husband will benefit from these treatment advances.  It sounds like your husband will receive the current standard of care for late stage diagnoses. It was just 3 years ago when my mom was told her best bet for treating her lung cancer recurrence was Keytruda + carbo + alimta (it has just been "approved" 1 month prior to her diagnosis).  Many, many people have benefited from this treatment combo, including my mom.  She responded so well that she only had to receive 6 doses of keytruda + chemo before she went to keytruda only.  Her treatment was not a walk in the park, but she regularly says that when her lung cancer comes back, she would definitely do it all again.  I kept track of my mom's story here on the forums. You can read it  here.
    I came here looking for HOPE and I found it.  I hope you are able to do the same.  
    Take Care,
    Steff
  20. Like
    Mally reacted to Pattymac in Question regarding future scans?   
    Thanks Tom and Curt for replying, I had no idea that they would continue to scan for so long, but I am going to change my way of thinking and be grateful for the scans, as they would surely catch lung cancer early if it becomes that!
  21. Like
    Mally reacted to Pattymac in Question regarding future scans?   
    My latest CT scan showed no new changes in size or density, recommended another Ct in 6 months, my “second opinion” Thoracic Surgeon” told me that I will probably be scanned for the rest of my life??? Does that make sense?? I thought after a few years of no change it would be ok???
  22. Like
    Mally reacted to Tom Galli in Question regarding future scans?   
    Patty Mac,
    In February I’ll celebrate my 16th year of survival. Five years ago, I moved from 2 scans a year to one. My doc tells me I’ll have at least one scan a year for the rest of my life. It is a minor inconvenience compared to the alternative. 
    Stay the course. 
    Tom
  23. Like
    Mally reacted to Punky in Stage IIIA Lung Cancer   
    I also had stage 3a.  Surgeon wouldn't operate at 1st because the operation would have left me with too much pain.  Had 4 chemo sessions along with a month of radiation.  My tumor shrunk over 70% after the radiation and the radiologist said it might even be dead.   Surgeon thought he would have to take it out in pieces because of the location and was planning a 8 hr operation.  He ended up doing a vats and said when he took a hold of the tumor it all  came out in one piece.   The margins were clear.  He said to me you have a chance of beating this.  I am now on adjuvant therapy hopefully if any small tumors are left they will be  and killed.  Hang in there, I live everyday praying the surgeon is right and I can beat this.   
  24. Like
    Mally reacted to BridgetO in Kate7617   
    For treatment of the adverse effects, as well as help coordinating treatment by all those doctors, you might seek a palliative care specialist. (yes, one more doc!). Some people think that palliative care is only for end-of-life situations, but it isn't. It's goal is to help with symptoms of both illness and treatment side effects and help improve your quality of life while you're getting treatment.  I wish you all the best.
  25. Like
    Mally reacted to Isabelle49 in Radiation plan to start 10/21   
    Plans are to start radiation on 10/21. I have one node under the right clavicle, a node near the tracheoesophageal area, a large one below the carina (where the right and left bronchus split off) and the mass located in the middle lobe. The Varian Trilogy will be used. Radiation onc. feels pneumonitis will almost certainly occur and may well have esophagitis. I have read that the side effects of radiation can be more extensive or have more effects when given concurrently with chemotherapy and that given together does not have much effect on outcome.  If this is the case I would rather complete chemo then go on too radiation therapy. Trivial as it sounds, my greatest worry is that I am in as good shape possible for my granddaughter’s wedding November 9, 2019. I told the radiation oncologist and he said I should have no problem if Radiation started 10/21. I have read that esophagitis often starts to be a problem about 3 weeks after radiation starts and this puts me a point very close to the wedding. If I were imminently dying from this condition I would agree to anything, but I am not. I’m dead set on this wedding as it will most likely be the only granddaughter whose wedding I will attend in my lifetime. Your thoughts? Blessings to all
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