Jump to content

Oneblessedmother

Members
  • Posts

    4
  • Joined

  • Last visited

Everything posted by Oneblessedmother

  1. Thank you Mary. As you stated its great to hear from survivors like Tom. It just astonishes me that this isn't something broadcasted more. I've seen the medications on commercials but making people more aware is just as important. I'm praying daily that these medications will work and mom can have a longer enjoyable life. We're still in the beginning stages of treatment specifically for fighting the many areas of cancer in her body. Sadly, mom found out she had cancer and it was already Stage 4 and in both lungs, spine, both femurs, ribs, pelvic area, and one tumor in her brain with many lesions too. It'sdevastating to see her suffer knowing and the pain it causes mentally and physically. My goal is to keep mom happy, and fighting. We originally were against Chemo but when they recommended the chemo pill it gave us a little more hope because most say it doesn't affect the body like traditional chemo. At this point we just pray! I can't wait to see better days for mom!!!
  2. Tom Thank you for the information and encouragement for mom. She will begin Zometa on Tuesday next week. Depression seeps in every now and again but we are doing everything possible to keep mom encouraged. It's so surprising that there isn't more research but I will definitely begin my research to contact elected officials to start the conversations. I'll keep updates after mom starts Gilotrif and Zometa next week. Thanks again looking forward to hearing from those that use/used Gilotrif.
  3. Tom Thank you for the information and encouragement for mom. She will begin Zometa on Tuesday next week. Depression seeps in every now and again but we are doing everything possible to keep mom encouraged. It's so surprising that there isn't more research but I will definitely begin my research to contact elected officials to start the conversations. I'll keep updates after mom starts Gilotrif and Zometa next week. Thanks again looking forward to hearing from those that use/used Gilotrif.
  4. Hi - I'm joining this forum to find out more about Adenocarcinoma and Women that never smoked. My mom was diagnosed on 11/29/2016. That day changed our lives. My mother fell and broke her femur and once we rushed her to ER the doctor reviewed her x-ray and said her femur should never break that way. From there he ordered a CAT scan which showed lesions on the femur. The next response from the doctor was it didn't start there, so he ordered an upper body scan which found it in her lung (source) however it was also in her spine, and ribs. Mom has had surgery since to repair the femur but recovery is not the only obstacle. The emotions of knowing you have cancer in so many places are overwhelming. In early December they determined she had it in her brain as well. They did WBRT for 10 sessions and she didn't have any side effects until a week after, where she lost her hair in one night and her scalp became very tender. Doctors recommended Aloe Vera and Aquaphor to soothe the skin. We just applied it yesterday so we're hoping it helps. Mom was informed that she does have the EGFR mutation which allows her to have the chemo pill rather than standard chemo. We're hoping the side effects won't be as extreme as traditional chemo. Has anyone taken Gilotrif and had positive (or not so extreme effects)? Can you give me some background or suggestions? Background on Mom: Mom is only 72. Thankfully, mom is a very strong woman she has pain but tries not to complain. She was semi-active before the fall and only noticed what she thought was arthritis pain or osteo pain from aging. She hasn't lost a pound she still has an appetite and after WBRT some of the cognitive thinking and some memory patterns returned, but depression keeps creeping in from time to time. I'm confused about a few things. I read a lot on this version of cancer and it's astonishing to me that one article stated it is now the #1 cancer for women. Why hadn't I heard of this before? Why aren't women warned? We're warned not to smoke but this cancer affects those that don't smoke. What kind of warning could people that don't smoke have received? I'm devastated that my mom is going through this. We have to keep our faith in God and sometimes we won't understand until later. Any suggestions about anything helps. Thanks for reading!!
×
×
  • Create New...

Important Information

By using this site, you agree to our Terms of Use.