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Lisa Haines

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  1. Like
    Lisa Haines got a reaction from Lahalsa in 10 Steps to Surviving Lung Cancer from a Survivor   
    Great Info Tom !  Thanks for posting, I'm going to Bookmark this for future use and to share with other Newbies!   This is the type of information I WISH I had known back and the time of my diagnosis.  
  2. Like
    Lisa Haines got a reaction from Tom Galli in Facts are stubborn things, but statistics are pliable   
    Thank you for sharing, I’m happy to say that I have never fit and use the statistics for lung cancer and have never really tried to focus on them. I am now at 7 1/2 with Stage IV and despite starting out with a very grim prognosis I am doing well and have now been off treatment for almost 6 years. I do remember looking briefly at the statistics when I was first diagnosed and it was depressing and overwhelming so from that point on I was determined to beat them !  🤍
  3. Like
    Lisa Haines got a reaction from LilyMir in Facts are stubborn things, but statistics are pliable   
    Thank you for sharing, I’m happy to say that I have never fit and use the statistics for lung cancer and have never really tried to focus on them. I am now at 7 1/2 with Stage IV and despite starting out with a very grim prognosis I am doing well and have now been off treatment for almost 6 years. I do remember looking briefly at the statistics when I was first diagnosed and it was depressing and overwhelming so from that point on I was determined to beat them !  🤍
  4. Like
    Lisa Haines reacted to Roz in Facts are stubborn things, but statistics are pliable   
    Great and informative blog, Lily!
    I don't ever look at statistics because I just try to do the best I can each day. I don't believe that the statistics apply to me.
    We are all on our own individual journey and no one can tell you how long you may have, etc.
    I continue to hope for new treatments for all of us!
    Congratulations on your blog. I also wrote one in case you want to read it
    Mine is called, The Roscopal Effect.
     
    Best,
    Ro
  5. Like
    Lisa Haines got a reaction from Susan Cornett in LexieCat, Esquire Rests Her Case   
    Tom,
      This is very endearing and so well written !  ❤️  Thanks for sharing with us all!   May Teri now forever be free and at peace!  
  6. Like
    Lisa Haines got a reaction from LouT in LexieCat, Esquire Rests Her Case   
    Tom,
      This is very endearing and so well written !  ❤️  Thanks for sharing with us all!   May Teri now forever be free and at peace!  
  7. Like
    Lisa Haines got a reaction from Tom Galli in LexieCat, Esquire Rests Her Case   
    Tom,
      This is very endearing and so well written !  ❤️  Thanks for sharing with us all!   May Teri now forever be free and at peace!  
  8. Like
    Lisa Haines reacted to Roz in LexieCat, Esquire Rests Her Case   
    Teri and I connected on the forums after my diagnosis in August, 2017. I always looked forward to her intelligent and thoughtful responses, as well as the humor she paired with her postings. She will be missed by so many and I am proud that I got to attend many zooms with her. May her memory be a blessing to all!
    Ro
  9. Like
    Lisa Haines reacted to BridgetO in Eighteen Years but No Toes   
    Congratulations, Tom!  i second everything Lisa, Lennie and Lou have said!  Yay for you!
  10. Like
    Lisa Haines got a reaction from Susan Cornett in Eighteen Years but No Toes   
    Congratulations on such a wonderful milestone!  18 years as a Stage IV Lung Cancer Survivor is fantastic!  Something we all HOPE and want for all!  May you have many more years and hope you are safe and warm.   Snow and Freezing Rain here too and after last week's blizzard I'm sick of winter!!  
     
  11. Like
    Lisa Haines got a reaction from Tom Galli in Eighteen Years but No Toes   
    Congratulations on such a wonderful milestone!  18 years as a Stage IV Lung Cancer Survivor is fantastic!  Something we all HOPE and want for all!  May you have many more years and hope you are safe and warm.   Snow and Freezing Rain here too and after last week's blizzard I'm sick of winter!!  
     
  12. Like
    Lisa Haines got a reaction from LouT in Eighteen Years but No Toes   
    Congratulations on such a wonderful milestone!  18 years as a Stage IV Lung Cancer Survivor is fantastic!  Something we all HOPE and want for all!  May you have many more years and hope you are safe and warm.   Snow and Freezing Rain here too and after last week's blizzard I'm sick of winter!!  
     
  13. Like
    Lisa Haines got a reaction from LouT in Scanziety Builds Character   
    I feel the same!  I'm not sure I'll ever be convinced that having Scanxiety is character building...so me it's stress building...PERIOD!  
  14. Like
    Lisa Haines got a reaction from Tom Galli in Scanziety Builds Character   
    I feel the same!  I'm not sure I'll ever be convinced that having Scanxiety is character building...so me it's stress building...PERIOD!  
  15. Like
    Lisa Haines reacted to LexieCat in Scanziety Builds Character   
    LOL, no matter what ever crappy thing happened to me, my mom's go-to response was: "It builds character."
    Yeah, ticked me off no end. 
  16. Like
    Lisa Haines got a reaction from Roz in The Roscopal Effect   
    Ro,
      I am so happy that this worked well for you and also HOPE it will continue.   I first learned about the abscopal effect when I was on Immunotherapy which I had just after radiation (after progression) and there were studies that also showed that it can happen when you do Immunotherapy right after or in conjunction with radiation.  Not sure if that is WHY I had such a good result, but I did and I am so thankful to my Oncologist for being such a great researcher!   I truly believe she saved my life!  
         Lisa
    PS:  Very creative to call this the Roscopal effect!  💜
  17. Like
    Lisa Haines reacted to LexieCat in The Roscopal Effect   
    LOL, I'm just envisioning the puzzled look on the oncologist's face when somebody asks about the "Roscopal effect" and the ensuing argument when they ask if they meant "abscopal." You may have to register that trademark!
  18. Like
    Lisa Haines reacted to LexieCat in The Roscopal Effect   
    Thanks for sharing this, Ro. I've just had my first experience with post-chemo/immunotherapy progression (so far mild) and am looking into clinical trials. There are at least three worth consideration at this point, I think--each with a slightly different approach or twist. Two are where I'm currently being treated and the third is where I was first diagnosed (and had my lobectomy and subsequent second diagnosis of Stage IV). I'm waiting for someone there to get back to me to discuss. 
    I've sort of skimmed over people's stories about clinical trials, focusing on what was most relevant for me at the time. Now I'm playing a bit of catch-up. Amazing how the perspective changes when something suddenly becomes deeply relevant to your life! 
    Really happy you're having success with the radiation--hope it continues!
  19. Like
    Lisa Haines reacted to ColleenRae in Covid and me   
    Thank you for sharing your story, Lisa...
  20. Like
    Lisa Haines got a reaction from LouT in Social Security Disability by Disapproval   
    There can be a lot of confusion regarding the two programs offered by Social Security for those who become disabled.
    SSDI (Social Security Disability Insurance) is for those who worked and paid into the system and then become disabled and meet the SS's criteria to be considered disabled.  Generally, you need to be considered unable to work for a least one year.   IN my case my Disability date was the last day I worked.  I was approved in about 2 months, but needed to wait for the sixth month to start receiving my monthly benefit.   My understanding is that Stage IV Lung Cancer is approved quickly, but again, you'll still have to meet your waiting period before benefits start.    
     SSI  (Social Security Income) is also a program for the disabled and provides additional funds for those who have very limited assets and income.  In most cases if you are married and have a working spouse, you would be denied, because they look at "family income".   The asset level is very low, under $3,000 and that is also based on family assets.    It's basically for those at poverty level.   If however you are eligible there is not waiting period, so you'll start benefits much sooner.   In many States this also makes the recipients eligible for Medicaid (low income insurance programs that each State offers).     Check the rules for your State to see what you may be eligible for.  
    I always share this link https://www.ssa.gov/benefits/disability/ to the SS website, which has many more details.  You can apply online and/or call your local SS office for more specifics, especially now with Covid, as I would assume many of the offices may not be staffed.   
    Good Luck!
     
  21. Like
    Lisa Haines got a reaction from Tom Galli in Social Security Disability by Disapproval   
    There can be a lot of confusion regarding the two programs offered by Social Security for those who become disabled.
    SSDI (Social Security Disability Insurance) is for those who worked and paid into the system and then become disabled and meet the SS's criteria to be considered disabled.  Generally, you need to be considered unable to work for a least one year.   IN my case my Disability date was the last day I worked.  I was approved in about 2 months, but needed to wait for the sixth month to start receiving my monthly benefit.   My understanding is that Stage IV Lung Cancer is approved quickly, but again, you'll still have to meet your waiting period before benefits start.    
     SSI  (Social Security Income) is also a program for the disabled and provides additional funds for those who have very limited assets and income.  In most cases if you are married and have a working spouse, you would be denied, because they look at "family income".   The asset level is very low, under $3,000 and that is also based on family assets.    It's basically for those at poverty level.   If however you are eligible there is not waiting period, so you'll start benefits much sooner.   In many States this also makes the recipients eligible for Medicaid (low income insurance programs that each State offers).     Check the rules for your State to see what you may be eligible for.  
    I always share this link https://www.ssa.gov/benefits/disability/ to the SS website, which has many more details.  You can apply online and/or call your local SS office for more specifics, especially now with Covid, as I would assume many of the offices may not be staffed.   
    Good Luck!
     
  22. Like
    Lisa Haines reacted to LouT in Covid and me   
    What a wonderful story and frankly a lesson to us and our society about what we should be doing during this time.  Like you, I first stayed locked in the house; working on project after project until I ran out of things to do.  Now, I'm careful when I go out.  I take precautions but I meet people for lunches, visit with my daughter and get out to enjoy the autumn weather.  Locking ourselves in our home is hard on us physically and psychologically and we really need to work on a balance in our life.  You seem to have found it and I applaud you for it.  Thanks again for sharing your story with us.
    Lou
  23. Like
    Lisa Haines reacted to Deb W in Covid and me   
    Thanks, Lisa.  Your story inspires me.
    Deb
  24. Like
    Lisa Haines got a reaction from Tom Galli in Covid and me   
    Two are my round trip to Hope Summit 💜 !
  25. Like
    Lisa Haines got a reaction from Tom Galli in 10 Steps to Surviving Lung Cancer from a Survivor   
    Great Info Tom !  Thanks for posting, I'm going to Bookmark this for future use and to share with other Newbies!   This is the type of information I WISH I had known back and the time of my diagnosis.  
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