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Vicky844

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  1. Hi all...It's June 21, and I have an update. My oncologist took scans of my brain an lungs. The cancer tumor on my diapham has shrunk for 12 centimeters ti about 1 centimeter./ All but one of the lesions has disappeared from my brain and the radiation oncologist says my progress is further ahead for the amount of time I have been in treatment...he called me an overachiever. I have 2 more chemo treatments and will be able to see what the doctor wants to to do. Thanks for your continued support. Vicky Hey everyone, Thanks for all the support. I go for CT scans on my head and lungs on June 1st to see what, if any, good the radiation and chemo has done. I got the markers back and do not qualify for Keytruda. They require 50 in the PD-L1 and mine came back with a 4! Figures! Anyway. the doctor is still pretty positive. I just need some good news from the doctor like some damn procedure has worked.Thanks for listening all...hopefully I will get some good news soon. Vicky
  2. Hi Susan and Tom, I am trying not to let this consume my life, but it is difficult to do this. I have suggested to my hubby to go to support groups but he won't do it...not his style.It is also hard to look to the future sice I have no control and don't even know at this point what is going on. I am waiting for a cat scan to see if they got all the spots of cancer that were mets in my brain. I am also waiting for the markers to see if I can do the Keytruda. In the meantime I am getting full doses of chemo which causes me to sleep most of the day away...lol. I appreciate you guys listening and replying. Nice to know I am not crazy. It is hard to be strong for one's family and friends 24/7.
  3. Susan, I know what you are going thru and want you to hang in there. I went thru 15 sessions of daily radiation and am going thru chemo once a week (3 on 1 off) for 12 weeks while I wait to see if I can do the targeted therapy. I totally understand and sympathize with you. Hang in there Susan....just concentrate on the end! vicky
  4. Hi all! Just an update. I have finished 15 sessions of radiation to my brain to get rid of any lesions that were still there. I will find out in 6 weeks if it was successful. I am on chemo once a week...3 weeks on 1 week off and am waiting to send out for the markers to see if I can do the targeted therapy. I sleep a good part of the day and don't want to eat a whole lot. My husband is struggling with the additional things he has t do since I am so weak. I am trying to do more so he won't be too upset, especially with the dogs. Cancer has taken over my life. It is the first thing I think of when I wake up and the last thing when I go to bed. I can't dream of the future...only things that have happened in the past...funny huh? I know I have a long fight ahead. Just wish I had more infor on how I am doing so far,
  5. Thanks for the responses, the roller coaster i am on is crazy. It appears that I have innumerable nodules in my right lung. I was told Stage 4. It spread to my brain where I have a large lesion which was removed last Sunday. It was smaller than they thought and while there are about 4-5 spots, the radiation oncologist is excited about doing a whole brain radiation. My oncologist had a biopsy done on my right lung and has sent out for additional marker tests. CThe cells are positive for TTF1 and CK7 and negative for CK20 and CDX2 (whatever that means...Lung Cancer 101 here I come). She has spoken about using baby chemo until the 3rd marker comes back and has spoken about the therapy (she seems very optimistic)where the medication only targets the cancer cells. She is one of the top 50 specialists in the country according to Newsweek in 2015 and I feel she wants to destroy all of this. I will know more next week but the loss of control is daunting. I was just released from the hospital the day before yesterday and the stats from the other websites were very depressing, especially when being positive is an intergral part of treatment. There is so much to learn and my emotions are running the gambit...as well as trying to stay strong for family and friends. Again, thank you all for your quick responses. I have never been so scared in my life. Vickky844
  6. Hi, My name is Vicky and I was told 10 days ago I had lung cancer. They found secondary cancer in my brain and I had surgery last Sunday to remove the largest one. I am freaking out, positive one minute and crying the next. I have visits scheduled with radiologist oncologists and regular oncologist. I am trying to learn as much as I can, but have researched the stats and know the 5 year survival rate is less than 10%...which scares the hell out of me. I am hoping to find support and advice on how to cope with this. I am also worried about my husband who is as devasted by this as I am.
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