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taxmeless

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    Miami Beach
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    FLORIDA
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  1. Dear Mommy's girl, Sorry for your mom's illness. Here is a link on reviews that may cheer you up. https://www.drugs.com/comments/erlotinib/tarceva.html
  2. Sorry Mally about your news. Basically you have your type of cancer and stage. Try to enjoy each day and stay the course.
  3. Ok, against all odds my ebus on the PET SUv Max 4, 1,3 cm hilar R lymph nodes came back negative (Thoracic surgeon was nearly certain I was going to be positive and stage 2a or worse). That followed my ct that showed my SPN in lung declining in size from 7.2mm to 6mm in 45 days on its own (in volume terms that is a significant 42% deciline).. But I know every time I think I am ok, some bad report comes my way so I am still fearful. Will follow with another CT in 45 days. In the interim, I still feel like my ride side is sore from my neck to my lung and cant help but be reminded of my problem each day. Draining on me. We watch and wait. But I will take that over confirmed cancer any day..
  4. Meloni, Checking in to see how you are doing. You sound so nice, wishing you the best,
  5. My prayers are with you today. I hope your surgery was a complete success and your recovery is relatively painless. May G-D look after you and your family.
  6. Meloni, your response was funny and very appreciated. Diet, exercise, sleep, and lack of stress is key to keeping disease away. I hope you join me in changing your diet . The difference in just 30 days for me was amazing. Eating from the earth without processing or chemicals and avoiding red meat will extend your life. Love....
  7. Mally, sorry you had the unfortunate experience you are going through. My prayers are that your surgery and treatment will eliminate any future problems. Thanks for the support and response and wish you all the best.
  8. OK, I have posted before about having a low dose CT scan on 2/15 showing a 7.2mm solid nodule with GG attenuation in my RUL peripheral. Followed by a PET that showed MILD 1.5 SUV MAX uptake on nodule and a HIGH 4 uptake SUV MAX on my right lung Hilar lymph nodes . (The radiologist in Miami Beach had it incorrectly labeled a 8mm nodule, and failed to find the Hilar uptake in his report and the resident and radiologist at the Mayo Clinic in Rochester upon review updated the information correctly). While at Mayo on 3/28 I did a 2nd CT scan with and without contrast and the 7.2mm solid portion nodule reduced in size to 6MM and the GG attenuation largely disappeared. In volume terms that is a 42% reduction in 41 days plus the GG. So I went from despair about learning my lymph nodes were PET positive to relief my nodule was becoming much smaller. I departed Mayo feeling like it was infectious or a reactionary nodule and I didn't have lung cancer. I am returning on June 23rd for another scan to determine the progress. My concern is that reading online it is reported that 20% of lung cancers have shown a decline in size before growing and cancer diagnosis. When I look at studies like the Nelson study, that exceeds the percentage of nodules that show decline in general. So now I feel it has no impact on my potential diagnosis. Any insights? Does anybody has any research to support that a reduction in nodule size is a good thing and not insignificant? Please help me feeling sad now.
  9. Tom, does the chances of it being benign go up dramatically if the nodule declines from 7.2mm to 6mm and the ground glass attenuation fades dramatically in 45 days? I am Still confused and looking for a pro survivior to help me analyze . They did report with the Full CT vs the LDCT that I have other nodules in the lobe including a 3mm central nodule.
  10. OK, my last day at Mayo went much better. The doctor ordered a CT scan with contrast a day before the planned biopsy procedure for the Hilar lymph node. It showed that my 7.2MM (The miami beach hospital radiologist mislabeled the nodule 8MM twice and missed the uptake on the hilar lymph node on pet scan and in my opinion should be fired for incomptence, thankfully Mayo Clinic is a world class hospital and identified it all properly) nodule had shrunk to 6mm since my 1st scan 45 days earlier. What's more the ground glass attenuation surrounding the nodule had largely disappeared. He reassured me that the 4 uptake on the hilar nodule is most like an infection. A study done in Japan showed cases like mine with a subcentimeter nodule, with a uptake of 4 (mean) in the hilar nodule for stage 1 cancer diagnosed patients proved to be benign infections in over 80% of the cases. So even if the shrinking nodule is cancerous it would not likely preclude me from surgery once we confirm the lymph node to be benign and that would likely happen when tested. But considering the shrinking nodule, he suggested we wait 90 days and retake the ct scan to determine if it continues to shrink and therefore cancer would be further unlikely. So with a little more good news, I may be on these boards for moral support vs being a paid member of the society of hard knocks.
  11. Unfortunately Tom my doctor said if ithe nodes are malignant surgery probably will not be an option due to hilar nodes location , any advice on treatments? Types of chemo, alternatives. Also, should I travel long distances to go to the best and fly like here at Mayo or just stay local for convenience and wear and tear on my body , or drive three hours for some thing in between. What have you been though physically over those 13 years? What challenges did you face, when was the last time you had any cancer cells? Did you have lymph nodes that were cancerous? Best regards
  12. I posted before about a 8mm nodule found by lung screen ct. Then had a petct that showed only minimal uptake on the nodule without any furher findings as per the radiologist at Mount Sinai in Miami Beach. Told to wait 90 days and retake the CT scan. Feeling nervous I consulted with a pulmonologist and flew out to Mayo Clinic in Rochester mn based on my GP recommendation. They immediately told me the petCT showed an uptake in my right 2 hilari lymph nodes with highest being 4 uptake and the radiologist completEly missed it back in Miami . Heading for a bronchial biopsy of the lymph node tomorrow morning. Feeling dejected to say the least. Very unusual for a 8mm nodule to infect the lymph node. Feeling sunk. Any inight would be appreciated. Also what can I expect going forward with stage 3a (at bestl )lung cancer? Thanks
  13. Rose, Cindy, Tom and Bridget, Thank you for your insight. My brother in law is my GP but he is a cardiologist. He works at a very small general hospital that specializes in cardiac care with limited cancer experience. I have an appointment with a Pulmonologist at Univ of Miami on the 28th on his reco. (it took 3 weeks to schedule one). I also sent my CDS to a pulmonologist at Sloane and am awaiting am appointment date. The Thoracic surgeon at Sloane wont see me until it reaches 1 centimeter or until the pulmonologist gives him a push I guess. I was thinking of calling Moffitt in the morning, since it is closer to home but prefer Sloane as it is labeled the best cancer hospital in America. I gave up the smokes and changed my diet to fruit, vegetables, fish, chicken, nuts, ginger root, green juices, lots of water. I exercise 2 hours a day now trying to get in shape. I am so scared. Thanks for the support
  14. Hi, I am hoping for some insight and advice. 30 days ago I went for low dose smoker CT scan as I just turned 55 and smoked for 40 years (stupid me). The scan showed I had a 8mm solid nodule with minimal ground glass attenuation ( I guess from reading online that means part solid with very little GGO and that's the worse kind of nodule?). My GP followed that up with a PET CT 1 week later that came back with zero uptake anywhere. Reading online a 8mm nodule has a very bad prognostication with PET CT due to its limited size. What's more, my blood tests came back with elevated liver enzymes and elevated calcium levels. I read online that high levels of these on blood tests reflect a potential malignancy that is now sending cancer cells throughout my body. I was following the Fleisher guideline and waiting 90 days from my first cat scan to see if it maintained its size. Then head to a cancer center for wedge biopsy if it didnt clear. Now I wonder if its too late. That I am doomed. I am so scared. Please help me. Should I just go to Sloane or Moffitt now and get a VAT wedge biopsy or wait? Am I headed for death?
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