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AskBelieveReceive

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  1. Tom, Thanks so much for your reply, information & honesty. Like you, my Mom doesn't want to pass connected to tubes & suffering. I will ask the oncologist for a good in-home hospice care provider. I have one more question, I'm hoping you can help with. I hope I am not being out of line or disrespectful by asking this, as that is definitely not my intent. Do you know or can you point me in the direction to some info regarding what we are facing in the upcoming months. I completely understand the gravity of the situation, I just want to know (if possible) what to expect as the disease progresses. We are blessed that, when she is up for it, my Mom can still go for walks, go to the store, cook a meal....pretty much she is virtually fully functioning. I know this isn't always going to be the case & am hoping for, if possible, some insight as to what is coming. Thanks again for your information & your time. I wish you many blessings & strength throughout your fight with this terrible disease. Many thanks, Christine
  2. Hello, my name is Christine. In Nov 2016, my Mom was diagnosed w/ Stage IV metastatic adenocarcinoma NSCLC (primary: right lung, spread to both adrenal glands, brain & right proximal tibia). She had surgery to remove the tumor in her right tibia, which they filled with bone cement to stabilize the bone. She has completed whole brain radiation, radiation to the right tibia, 2 rounds of chemo: Paraplatin (Carboplatin), Alimta (Pemetrexed) & Avastin (Bevacizumab) & 6 Opdivo (Nivolumab) treatments. The chemo & Opdivo were both unsuccessful. Since her last scans 3 months ago, the cancer is spreading/growing in the bones (spine, hip, both tibia, left fibula, & sacrum) in her lung, adrenal glands (lung tumor & adrenals mets doubled) & possible spot on the liver. The good news is the WBR radiation helped, out of the 13 mets only 1 is left. It seems as her cancer is receptive to radiation but not chemo or immunotherapy. The remaining treatment options are becoming scarce. The Oncologist offered 3 options: 1- Do nothing. See her once a month, if possible treat pain/issues as they arise. The Oncologist estimates life expectancy to be 3-6 months. 2- Chemo: Docetaxel 1x every 3wks. 3- Chemo: Gemcitabine 1x every week for 3 weeks per month. Estimated life expectancy for both chemo options is 6-12 months. However, based off her chemo history her QOL will be severely impacted. My Moms primary goal is quality of life & has chosen to treat issues as they arise. Tomorrow, her 72nd birthday, she will have her 1st of 5 radiation treatments to mets in her right tibia & fibula b/c they are causing severe pain. Sorry for the excessive details, I'm emotional, confused & scared. My main objective in writing tonight is to ask the tough question, what generally happens when treatment is basically stopped. I know everyones situation is different, so there wont be a cookie cutter answer. I'm looking for honest, straight forward, even blunt info as to what we are facing as this disease keeps spreading.
  3. Hello, my name is Christine. My, 71 yr old, Mother was diagnosed in Nov 2016 w/ Stage IV metastatic adenocarcinoma NSCLC (primary: right lung, spread to both adrenal glands, brain & right proximal tibia). At diagnosis she was given an estimate of 6-12 months to live, which was quickly adjusted to 6 months after they discovered 13 brain mets opposed to the 3 they originally saw. She had surgery to remove the tumor in her right tibia, which they filled with bone cement to stabilize the bone. She has completed whole brain radiation, radiation to the right tibia & 2 rounds of chemo: Paraplatin (Carboplatin), Alimta (Pemetrexed) & Avastin (Bevacizumab). The chemo was unsuccessful. The cancer spread to multiple bones in her left leg, her pelvis & spine. They stopped chemo & started Opdivo last week. It is too soon after completing whole brain radiation to do another brain scan to know if it helped. I'm sorry for the information overload....I'm just trying to give as much info as possible to see if anyone here has a similar situation & could offer some words of wisdom, offer a glimpse of hope or suggest ways I can help her. Thank you in advance for your help.
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