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Judy M.

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Posts posted by Judy M.


  1. Rita

    Have not had regular radiation to my chest, but did have SBRT. Noticed shortly after that those areas were tender and felt like a bruise if pressed on. Noticed because my Oncologist was checking my for breast tumors(my cancer before the lung cancer) and those small areas were VERY tender to the touch. 

    Judy M


  2. I've had this a few times. It was about 2 punts. First pint in the first hour then second pint in second hour. I'm guessing a pint since it came in tall plastic containers. They had various flavors. Receptions told me vanilla was the least nasty, so I've stuck with that. The colder I could get it the easier it was for me to get down

    Judy M. 


  3. Asked today if I am still receiving SBRT on my hip and knee or if I'd been changed to another type because of the pain limiting the time I could lay still on the table. I know a standard radiation treatment doesn't take as long as an SBRT treatment. Glad to learn I'm still receiving my originally planned SBRT. My sweet radiation techs have just gotten a lot faster and worked as quickly as they could. I was among the first if not the first SBRT patient they had. They've become much faster since then. They said they first worked to become very accurate because it's important in SBRT. Then they worked to become faster. As I've said before, radiation techs rock, and I'm a big fan of SBRT. 

    Judy M. 


  4. Steff

    Thanks for the encouragement regarding the pleural effusion and hospice. I needed that after today. And I was also keeping in mind that Tom said somewhere he'd once only been given 6 months to live. The battle is certainly rough right now, but I'm not giving up. I believe the Lord will come for me when it's His time. Until then it's up to me to trust Him, keep praying, and keep choosing to live every day with thanks and joy. You guys are such an inspiration and help in doing that. 

    Judy M. 


  5. Thanks everyone. Now it makes a little more sense to me. Since I'd seen her last I've had a pleural effusion of my left lung where a quart of fluid was drained. Even though the effusion showed no cancer cells and has not returned I did read that someone who has a pleural effusion generally has 6 months or less to live. And also since I last saw her I've been put on full time oxygen. This is, according to my Pulmonologist, the result of a COPD flare up. This is the second time this has happened in recent months. The previous brain scan I had showed sinusitis. Sinusitis resulted in COPD flare up which resulted in oxygen use. Sinusitis getting cleared up and a course of steroids enabled me to get off the oxygen. Latest CT showed no mets, but again the sinusitis. Pulmonologist has given me  Antibiotic and steroids, but obviously from the CT the sinusitis is still there. Plus, my temp was just slightly high today and white blood cells were high. Plan to see my PCP. She will treat the sinusitis aggressively which seems to be needed. Especially before I start the chemo.  The Pulmonologist was simply guessing I had an infection and didn't treat aggressively. And will be much easier to see my PCP than to try to see my Pulmonologist again. Oncologist had ask when I'd again see my Pulmonologist. Perhaps Oncologist was responding to seeing a sicker patient than she saw on our first visit. 

    Judy M


  6. Tom

    Glad to learn I wasn't wrong to be confused. She did not suggest stopping my forthcoming treatment and is in fact setting it up for the first of October. I have radiation the next two weeks. And my son and grandson are coming in to visit the 22-26. Told her I didn't want to start chemo until after then because I don't want to be sick for their visit. And it's only a matter of a few days delay. Perhaps my daughter was the one who was confused. I thought she was simply telling me I qualified for it and giving me a choice. Either way plan is in place. Radiation this week and next and chemo starting Oct. 1. This will be a rough chemo and I have wondered how my body will stand up to it after all the treatment I've had, especially recently. She actually seems to think the chemo will make me feel better if we can shrink the tumors. She may be right. Nothing but radiation has ever shrunk my tumors. And I did feel better when that happened. 

    I did have to give a lot of thought and prayer to whether I wanted to do this chemo, and they knew that. Talked about that elsewhere. perhaps that's why she brought it up. And she ask about my pain. I do have some level of pain all the time now in spite of pain meds. Thus, the radiation. 

    For now plan to do radiation. They shortened my treatments to 10 minutes because I could not lay still on that metal table for the 40 minutes plsnneed for the first SBRT on the metal table because of my pain level in my left hip and knee even with pain meds. So, I'm wondering if I'm no longer getting SBRT. Will ask next treatment tomorrow. Still waiting to hear from email I sent to nih. Hoping they may have something new up their sleeve. 

    Good news is I had CT to check for brain Mets today and still no brain Mets. 

    How does one qualify for hospice? Do you know? I thought it was simply a choice at any point. 

    Judy M. 


  7. Saw my new Oncologist today and talked about coming chemo and she brought up hospice. It seemed to me that she was offering me hospice or going ahead with the chemo. She said I qualify for it whatever that means. My daughter was with me and said she was also saying I could have hospice along with my chemo to address my symptoms and quality of life. I've never heard of that. Has anyone else? And I already have a Palliative Care doctor so what would hospice do that she doesn't. I find this a bit confusing. 

    Judy M. 


  8. Marilynn

    I have not had SBRT for brain Mets, but did have it for 3 separate lung tumors at one time. All were treated at the same time on the same day consecutively. Later had SBRT on my left adrenal. All worked very well and I had no side effects but perhaps a bit of tiredness. Have also not had any later problems after more than a year. Oh, I almost forgot. I did have a mild case of pneumonitis right after the SBRT on my lungs. It was easily cleared up with Prednisone for 7 days. I'm a big fan of this type of radiation. 

    Judy M. 

     

     


  9. Hi Dan

    As others have said I'm sad for your diagnosis, but glad you've found us. I'm a stage IV Adenocarcinoma patient diagnosed January, 2017. This community had been of great help to me, and I'm sure will be to you also. 

    As far as dealing with your diagnosis that pretty much throws all of us for a loop in the beginning. Good for you that you're already seeking how to regroup mentally and emotionally. I listened to a talk by a woman who had survived 7 years with an aggressive breast cancer early on after I was first diagnosed. Something one of her doctors said to her helped her and has helped me also. He said, "The cancer is going to do what the cancer does, the doctors are going to do what the doctors do, and God is going to do what God does. All you have to do is mind your joy." I can tell you from my experience of the last almost 2 years that cancer may shorten our lives, but can also give us great joy in the day by day. So, my advice is to mind your joy. 

    Judy M. 


  10. Received answer from Oncology APN this morning. She says they presented my case to 5 Oncologists and all agreed that Carboplatin+Taxol/Avastin is the best route for me. I wonder if I can survive such a rough chemo after all the treatment I've had and I know my quality of life won't be good. Tom survived more, but I'm not Tom. It's a hard decision. Will just keep praying and hope the nih gives me their opinion fairly soon. 

    Judy M. 


  11. Sent the letter to the nih and an email to the APN that worked with my previous Oncologist and now works with this one also. She actually knows me and my illness and treatments better than any one else. Now we will see what we will see. 

    Tom, I do have joy. Have had a number of good days recently in spite of healing from surgery and lung issues. I'm not like some of you. I have no desire to travel or go to concerts. Have no bucket list of things I'd like to do. And that's good because we couldn't afford those things anyway. I'm really very simple. I enjoy my quiet life in the country with my husband, having my children and grandchildren come to visit, Journaling, Bible study, drawing and painting, reading. I enjoy being able to fix dinner for my husband and clean my kitchen and do laundry. Which seemed almost impossible to my librarians when I shared that with them. Lol. I told them if they were ever unable to do those things for a time they might be surprised and enjoy them also. This disease gives you the gift of really being able to appreciate the time you do have at the same time it shortens that time possibly. Don't know that any of that matters as far as being helpful to anyone. Just felt like sharing more of where I'm at mentally and emotionally today. 

    Judy M. 


  12.  

    Lexie

    Yes, this is a hospital where all of these doctors practice together. All of my care other than having the rods put in by Orthopedic surgeon in Little Rock has been done at this hospital. And this isn't the first time I've run into this. They will eventually let you see the doctor you want but will grumble and drag feet. Looks like they've found a way to stop it this time by simply saying he's booked until January.  May try going up the ladder but getting tired. Having to fight the disease, the insurance company, and now my hospital. I may just get that email sent to nih then sit down with some chocolate chip cookies my husband is bringing home and have a good cry. Nah! "The Lord who can move mountains is better than chocolate chip cookies. Need to cry out to Him. 

    Judy M. 


  13. Had 4 rounds of Cisplatin/Alimta. Lost about 1/3 of my hair. So, it just thinned and the texture became finer. Finished a year ago and same as it always was now. I believe it's the Taxol drugs that cause you to lose all your hair although everyone IS different. There are various side effects and you won't know yours until your first round. They will remain the same each time, but I did have a cumulative effect where each round was more intense version of the same. Once you know what yours are there will be those on here who have had them, gotten through them, and will be glad to do all they can to help you do the same. There have actually been some who barely experienced any side effects at all on strong chemo. Just a roll of the dice. You don't know til they land. 

    Judy M


  14. Thanks so much Lexie. Just having you to give some understanding helps. Just called the Oncology office. They said my sister-in-law's Oncologist is booked until January and they aren't wanting to let them do that anyway. After telling me I could see both doctors and make a choice when mine left. This internal political stuff should not be happening. It's like the hospital simply wants to push so many patients into each little doctor niche no matter the fit for the patient. But anyway that's one idea tried and shot down. On to the next. What I want to try is simply what my previous Oncologist suggested, but now he's gone and this one is not on board with it. On to the nih. Will get that out today. 

    Judy M. 

     

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