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Judy M.

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  1. Like
    Judy M. reacted to BridgetO in Hospice Questions   
    I agreee with Tom that what the doctor appeared to be saying was very confusing. It's ;my understanding also that to get hospice the doctor has to say that you have less than 6 months to live, and that you have to give up curative treatments. It sounds like you've decided to do the chemo and also the radiation, You have a palliative care doc who is presumably doing what can be done to relieve your pain as well as work with you on quality of life. It almost sounds like the doc is confusing hospice and palliative care. 
    Hang in there, Judy
    Bridget O
  2. Thanks
    Judy M. reacted to Tom Galli in Hospice Questions   
    Judy,
    For insurance purposes, I’ve been told a doctor needs to project one will die within six months. At least, that is what my insurance benefit counselor told me. 
    Stay the course. 
    Tom
  3. Like
    Judy M. reacted to Tom Galli in cancer, not cancer, cancer   
    Marilyn,
    I'm glad you include vacation as one of your treatment methods.  Great, no WONDERFUL MRI news!
    "Get on the bus Gus, make a new plan Stan, Just get yourself free!"
    Stay the course.
    Tom
  4. Like
    Judy M. reacted to Susan N. in Newly joined.   
    Hi Cannedy,
    Thanks for asking. I am feeling a lot better than a few weeks ago, no more fever and cough.
    I am taking Tagrisso. After 45 days of taking it, my tumor went down from 2.5cm to 1.5 cm.
    Susan.
  5. Like
    Judy M. got a reaction from hope16 in 24yo SCLC   
    Hi Dan
    As others have said I'm sad for your diagnosis, but glad you've found us. I'm a stage IV Adenocarcinoma patient diagnosed January, 2017. This community had been of great help to me, and I'm sure will be to you also. 
    As far as dealing with your diagnosis that pretty much throws all of us for a loop in the beginning. Good for you that you're already seeking how to regroup mentally and emotionally. I listened to a talk by a woman who had survived 7 years with an aggressive breast cancer early on after I was first diagnosed. Something one of her doctors said to her helped her and has helped me also. He said, "The cancer is going to do what the cancer does, the doctors are going to do what the doctors do, and God is going to do what God does. All you have to do is mind your joy." I can tell you from my experience of the last almost 2 years that cancer may shorten our lives, but can also give us great joy in the day by day. So, my advice is to mind your joy. 
    Judy M. 
  6. Like
    Judy M. got a reaction from Tom Galli in efficacy linear accelerator radiation   
    Marilynn
    I have not had SBRT for brain Mets, but did have it for 3 separate lung tumors at one time. All were treated at the same time on the same day consecutively. Later had SBRT on my left adrenal. All worked very well and I had no side effects but perhaps a bit of tiredness. Have also not had any later problems after more than a year. Oh, I almost forgot. I did have a mild case of pneumonitis right after the SBRT on my lungs. It was easily cleared up with Prednisone for 7 days. I'm a big fan of this type of radiation. 
    Judy M. 
     
     
  7. Like
    Judy M. got a reaction from Tom Galli in 24yo SCLC   
    Hi Dan
    As others have said I'm sad for your diagnosis, but glad you've found us. I'm a stage IV Adenocarcinoma patient diagnosed January, 2017. This community had been of great help to me, and I'm sure will be to you also. 
    As far as dealing with your diagnosis that pretty much throws all of us for a loop in the beginning. Good for you that you're already seeking how to regroup mentally and emotionally. I listened to a talk by a woman who had survived 7 years with an aggressive breast cancer early on after I was first diagnosed. Something one of her doctors said to her helped her and has helped me also. He said, "The cancer is going to do what the cancer does, the doctors are going to do what the doctors do, and God is going to do what God does. All you have to do is mind your joy." I can tell you from my experience of the last almost 2 years that cancer may shorten our lives, but can also give us great joy in the day by day. So, my advice is to mind your joy. 
    Judy M. 
  8. Like
    Judy M. got a reaction from LexieCat in 24yo SCLC   
    Hi Dan
    As others have said I'm sad for your diagnosis, but glad you've found us. I'm a stage IV Adenocarcinoma patient diagnosed January, 2017. This community had been of great help to me, and I'm sure will be to you also. 
    As far as dealing with your diagnosis that pretty much throws all of us for a loop in the beginning. Good for you that you're already seeking how to regroup mentally and emotionally. I listened to a talk by a woman who had survived 7 years with an aggressive breast cancer early on after I was first diagnosed. Something one of her doctors said to her helped her and has helped me also. He said, "The cancer is going to do what the cancer does, the doctors are going to do what the doctors do, and God is going to do what God does. All you have to do is mind your joy." I can tell you from my experience of the last almost 2 years that cancer may shorten our lives, but can also give us great joy in the day by day. So, my advice is to mind your joy. 
    Judy M. 
  9. Like
    Judy M. reacted to Dan_theman84 in Just new here   
    Hey everyone.
    Im Dan, not really sure what to say. Im 24 years old and was recently diagnosed with small cell neroendocrine carcinoma of the lungs, extensive stage. 
    Just trying to talk and relate with people with the same diagnosis and maybe see what type of treatments they've tried.
    Anyways i appreciate y'all. 
     
     
     
  10. Like
    Judy M. reacted to LexieCat in Just new here   
    Hi, Dan, and welcome!  I believe we have one new member, cashby, who has large cell neuroendocrine carcinoma, which, based on a quick bit of googling, appears to be similar to small cell neuroendocrine carcinoma.  I believe these are relatively rare forms of lung cancer, so it might be tough to find others with the same diagnosis.  
    Still, we are all sort of in this together and face (or may face) similar challenges.  What kind of treatment are you getting (or considering) right now?  There may be others on the forum who can share their experience with the treatments, to give you an idea what to expect.  Everyone responds a bit differently, even to the same treatments, but you might get some ideas about managing side effects.  This is a great place for support, too.  
  11. Like
    Judy M. got a reaction from LaurenH in Wife Stage 2 Adenocarcinoma - post lobectomy   
    Congratulations on NED status. Thanks for sharing and encouraging the rest of us. Like you, I hope she sees many more of these in the years to come. 
    Judy M. 
  12. Like
    Judy M. got a reaction from Kleo in Durvalumab   
    We do also have compassionate care drugs available in the U. S that have not yet been approved. I know because my last Oncologist who wanted to try the Opdivo/Yervoy combo next said that was the way he could get that. 
    Judy M. 
  13. Like
    Judy M. got a reaction from LexieCat in Durvalumab   
    We do also have compassionate care drugs available in the U. S that have not yet been approved. I know because my last Oncologist who wanted to try the Opdivo/Yervoy combo next said that was the way he could get that. 
    Judy M. 
  14. Like
    Judy M. got a reaction from Tom Galli in A Lot Going On   
    Thank you, Tom. 
  15. Like
    Judy M. reacted to Tom Galli in A Lot Going On   
    Judy,
    You can do this thing!  Get a paper calendar. Mark your infusion days on the calendar. As you complete each, cut out the calendar square and burn it!  As it goes up in smoke, imagine the thousands of cancer cells screaming as they are destroyed by the drugs. 
    Bring on the drugs. Smoke that cancer. 
    Stay the course. 
    Tom
  16. Like
    Judy M. got a reaction from Tom Galli in Tagrisso side effects   
    Tom
    I think of you as our illustrious leader out there ahead cutting the way through for us. It's said in respect and affection. But I can hang that up if it bothers you 
    Judy M. 
  17. Like
    Judy M. got a reaction from Tom Galli in A Lot Going On   
    Received answer from Oncology APN this morning. She says they presented my case to 5 Oncologists and all agreed that Carboplatin+Taxol/Avastin is the best route for me. I wonder if I can survive such a rough chemo after all the treatment I've had and I know my quality of life won't be good. Tom survived more, but I'm not Tom. It's a hard decision. Will just keep praying and hope the nih gives me their opinion fairly soon. 
    Judy M. 
  18. Like
    Judy M. got a reaction from Steff in A Lot Going On   
    Sent the letter to the nih and an email to the APN that worked with my previous Oncologist and now works with this one also. She actually knows me and my illness and treatments better than any one else. Now we will see what we will see. 
    Tom, I do have joy. Have had a number of good days recently in spite of healing from surgery and lung issues. I'm not like some of you. I have no desire to travel or go to concerts. Have no bucket list of things I'd like to do. And that's good because we couldn't afford those things anyway. I'm really very simple. I enjoy my quiet life in the country with my husband, having my children and grandchildren come to visit, Journaling, Bible study, drawing and painting, reading. I enjoy being able to fix dinner for my husband and clean my kitchen and do laundry. Which seemed almost impossible to my librarians when I shared that with them. Lol. I told them if they were ever unable to do those things for a time they might be surprised and enjoy them also. This disease gives you the gift of really being able to appreciate the time you do have at the same time it shortens that time possibly. Don't know that any of that matters as far as being helpful to anyone. Just felt like sharing more of where I'm at mentally and emotionally today. 
    Judy M. 
  19. Like
    Judy M. got a reaction from hope16 in A Lot Going On   
    Sent the letter to the nih and an email to the APN that worked with my previous Oncologist and now works with this one also. She actually knows me and my illness and treatments better than any one else. Now we will see what we will see. 
    Tom, I do have joy. Have had a number of good days recently in spite of healing from surgery and lung issues. I'm not like some of you. I have no desire to travel or go to concerts. Have no bucket list of things I'd like to do. And that's good because we couldn't afford those things anyway. I'm really very simple. I enjoy my quiet life in the country with my husband, having my children and grandchildren come to visit, Journaling, Bible study, drawing and painting, reading. I enjoy being able to fix dinner for my husband and clean my kitchen and do laundry. Which seemed almost impossible to my librarians when I shared that with them. Lol. I told them if they were ever unable to do those things for a time they might be surprised and enjoy them also. This disease gives you the gift of really being able to appreciate the time you do have at the same time it shortens that time possibly. Don't know that any of that matters as far as being helpful to anyone. Just felt like sharing more of where I'm at mentally and emotionally today. 
    Judy M. 
  20. Like
    Judy M. reacted to Tom Galli in A Lot Going On   
    Judy,
    There is no recipe for joy. I'm so happy you are finding your own version.
    Stay the course.
    Tom
  21. Like
    Judy M. got a reaction from LexieCat in A Lot Going On   
    Sent the letter to the nih and an email to the APN that worked with my previous Oncologist and now works with this one also. She actually knows me and my illness and treatments better than any one else. Now we will see what we will see. 
    Tom, I do have joy. Have had a number of good days recently in spite of healing from surgery and lung issues. I'm not like some of you. I have no desire to travel or go to concerts. Have no bucket list of things I'd like to do. And that's good because we couldn't afford those things anyway. I'm really very simple. I enjoy my quiet life in the country with my husband, having my children and grandchildren come to visit, Journaling, Bible study, drawing and painting, reading. I enjoy being able to fix dinner for my husband and clean my kitchen and do laundry. Which seemed almost impossible to my librarians when I shared that with them. Lol. I told them if they were ever unable to do those things for a time they might be surprised and enjoy them also. This disease gives you the gift of really being able to appreciate the time you do have at the same time it shortens that time possibly. Don't know that any of that matters as far as being helpful to anyone. Just felt like sharing more of where I'm at mentally and emotionally today. 
    Judy M. 
  22. Haha
    Judy M. reacted to LexieCat in A Lot Going On   
    OK, I suggest you enlist that husband and/or your daughter or any other kids and let THEM argue with the doctors.  
    And the Lord is indeed powerful, but don't underestimate those cookies!  
  23. Like
    Judy M. reacted to RobK in Wife Stage 2 Adenocarcinoma - post lobectomy   
    LexiCat, 
    Diane and I have been married for 28 years, in my humanness nothing short of her being cured is desired by me.  We are researching to make the best human decision.  Having said that, we know God is sovereign and His plan will ultimately succeed.  If she beats me to heaven she still wins!
     
  24. Like
    Judy M. reacted to LexieCat in Radiation and sore throat   
    I think you should call your doc and ask about an alternative antibiotic.  You don't want to mess with infection.  Pain relief is one issue but the infection itself has to be addressed.
    Hope you feel better soon!
  25. Like
    Judy M. got a reaction from Robert Macaulay in Chemo Questions   
    Had 4 rounds of Cisplatin/Alimta. Lost about 1/3 of my hair. So, it just thinned and the texture became finer. Finished a year ago and same as it always was now. I believe it's the Taxol drugs that cause you to lose all your hair although everyone IS different. There are various side effects and you won't know yours until your first round. They will remain the same each time, but I did have a cumulative effect where each round was more intense version of the same. Once you know what yours are there will be those on here who have had them, gotten through them, and will be glad to do all they can to help you do the same. There have actually been some who barely experienced any side effects at all on strong chemo. Just a roll of the dice. You don't know til they land. 
    Judy M
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