Judy M.
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Judy M. got a reaction from LexieCat in Brand New
SO happy to hear you finally got some good news and are headed to surgery. Will be praying for you the rest of today and in the morning. I'm an early riser and prayer, so I got you covered going into that surgery. An R.N. Once told me surgeons will scare you to death with all the dire possibilities so that they appear even more brilliant when all turns out fine. Made me think of it when I read your post about what the surgeon said. My husband had the same dire possibilities list with surgery to remove a tumor from his spine years ago. Freaked us both out. But he's fine. And we do believe his surgeon is brilliant so I guess it worked. Lol.
Judy M
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Judy M. got a reaction from Mally in Just Passing It On
Had some mouth sores from chemo crop up. Biotene and salt/baking soda rinse are healing them up pretty quickly. Have since read that Cisplatin, part of my chemo cocktail, is notorious for that. Also that if I'll munch I've or popsicle through chemo treatment it will stop them. And that chemo tends to go to your mouth. Given the nasty taste experience I can believe this. Suppose it's along the same line as cold caps to spare your hair. Planning to take a bag of popsicles to infusion next round. It's a learning experience. Just Passing that on to any of you who haven't yet started or are dealing with the same issue.
Judy M
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Judy M. got a reaction from Tom Galli in Just Passing It On
Had some mouth sores from chemo crop up. Biotene and salt/baking soda rinse are healing them up pretty quickly. Have since read that Cisplatin, part of my chemo cocktail, is notorious for that. Also that if I'll munch I've or popsicle through chemo treatment it will stop them. And that chemo tends to go to your mouth. Given the nasty taste experience I can believe this. Suppose it's along the same line as cold caps to spare your hair. Planning to take a bag of popsicles to infusion next round. It's a learning experience. Just Passing that on to any of you who haven't yet started or are dealing with the same issue.
Judy M
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Judy M. reacted to Tom Galli in Chemo Underway
Judy,
Another forum member told me, in jest, that I was a survivor of the "Jurassic Era". I was one of the first lung cancer patients in the Dallas areas to receive my SBRT, then called Cyber Knife.
No doubt, technology has advanced to eliminate the need for gold fiducials and aim it in real time using a scan. Regardless, it worked for me and I hope it works for you.
Stay the course.
Tom
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Judy M. got a reaction from Tom Galli in Chemo Underway
Thank you, Tom. Glad to hear it's about the same each time rather than becoming more difficult. My S.B.R.T. Didn't use the gold fiducials you had. The machine was a Varian TrueBeam and used C.T. to actually see my tumors each time. An elastic band was placed around my diaphragm as part of the planning and used to track my breathing.
Judy M.
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Judy M. got a reaction from Fred G in Chemo Underway
Yet Another Question
Day 7 after chemo and getting my energy back. Have 3 more rounds to go. So my question is whether recovery will be about the same each time or do progressive rounds take longer each time to recover from. Tom, after just one round my hat's off to you for surviving 18 rounds in 3 years. Chemo isn't for wimps.
Judy M
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Judy M. got a reaction from Mally in Chemo Underway
Tom
Thanks so much. Glad to hear that Chemo brain will end. Since I have 3 weeks between treatments was hoping this horrible taste would end some time before my next treatment, but maybe not. Everything except sugary things tastes extremely bitter like a bitter pill.
I do want to share with you that even though I don't have the results on my scans I'm experiencing the results of the S.B.R.T. My shortness if breath that I thought was C.O.P.D. has definitely improved. So I'm supposing that was the result of the tumors. Explains why my C.O.P.D. diagnosis went from mild to severe all of a sudden.
Judy M
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Judy M. got a reaction from Mally in Chemo Underway
Chemo Questions
Does chemo brain last at all or is it only temporary? And is there a time limit on how long food tastes nasty? Or is all this just individual? Thanks for any input.
Just M
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Judy M. got a reaction from Mally in Ct scan results
That's,great! I'm so happy for you!
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Judy M. reacted to Mally in Ct scan results
I had my end of chemo scans done yesterday and was getting the results next Wednesday but went to my gp to get some scripts and he had a copy of my results so IM CANCER FREE ....i was so happy i was crying walking around the supermarket trying to text my kids through watery eyes ...
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Judy M. got a reaction from LaurenH in SBRT
Suzanne
Sry I didn't see this post sooner. For some reason I don't always get notifications on my phone even for people I'm following like you. I certainly do know about SBRT for stage IV lung cancer. I just had my second SBRT treatment yesterday. And I'm thrilled to have the opportunity to have this treatment. From all I've read this has better outcomes than either chemo alone or chemo/radiation concurrently. I'm scheduled for 5 total treatments. So 3 more to go and so far I've had no troublesome side effects. I have 1 nodule in my left lung and 2 in my right lung. They are treating all 3 each session. Had standard radiation for breast cancer last year. The difference as far as the experience goes is that standard radiation was 5 days a week for 6 1/2 weeks and the sessions themselves only lasted a couple of minutes each time. With the SBRT I only go twice a week for 5 total sessions, but they are much longer. Took about an hour and forty five minutes for the first one because they were still working on lining up perfectly. Yesterday took an hour or so. The only difficulty is having to lay absolutely still with my arms over my head the entire time. But no big deal. It's not like I'm in terrible pain or anything. And, in my opinion and also that of my Medical Oncologist, this is my best chance of good results long term. I've written all about the process of getting to finally have this treatment and how it's going in other places on here. Let us know what you decide.
Judy M
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Judy M. reacted to BridgetO in 6 months
Hi Michele,
My situation is similar to yours Adenocarcinoma, 1A, VATS surgery in November. I had my 6 months CT scan a couple of weeks ago, so I understand scanxiety. Mine was NED. There's every reason to believe yours will be, too, as Tom said. Hang in there and enjoy every day.
Bridget
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Judy M. reacted to Tom Galli in 6 months
Michele,
Wow, break a chop stick to stop the bad news of cancer raining on your family.
Let's start with you. From my recollection of your diagnosis and surgery, you have every reason to believe you are NED - no evidence of disease. Likely the little back pain results from scanziety and I know of no cure for that problem.
How was your husband's shadow discovered? X-ray? Has he had a bad chest cold? I am really hoping these are the cause. One lung cancer survivor in the family is more than enough.
Now you are dealing with your brother's diagnosis. The old adage is bad luck comes from three bad events. But I'm betting you'll have a NED scan, so break that chop stick and stop the mayhem at two!
And, yes, by all means, stay the course.
Tom
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Judy M. got a reaction from Tom Galli in Chemo Underway
Tom
Thanks so much. Glad to hear that Chemo brain will end. Since I have 3 weeks between treatments was hoping this horrible taste would end some time before my next treatment, but maybe not. Everything except sugary things tastes extremely bitter like a bitter pill.
I do want to share with you that even though I don't have the results on my scans I'm experiencing the results of the S.B.R.T. My shortness if breath that I thought was C.O.P.D. has definitely improved. So I'm supposing that was the result of the tumors. Explains why my C.O.P.D. diagnosis went from mild to severe all of a sudden.
Judy M
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Judy M. reacted to Fred G in Chemo Underway
Just wanted to thank all for this valuable information regarding what I may expect during my treatment phase, as I began my 3D Radiation on my right lung yesterday and I am now receiving my first chemo treatment (Paclitaxel, Carboplatin) this morning.
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Judy M. got a reaction from Fred G in Chemo Underway
Tom
Thanks so much. Glad to hear that Chemo brain will end. Since I have 3 weeks between treatments was hoping this horrible taste would end some time before my next treatment, but maybe not. Everything except sugary things tastes extremely bitter like a bitter pill.
I do want to share with you that even though I don't have the results on my scans I'm experiencing the results of the S.B.R.T. My shortness if breath that I thought was C.O.P.D. has definitely improved. So I'm supposing that was the result of the tumors. Explains why my C.O.P.D. diagnosis went from mild to severe all of a sudden.
Judy M
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Judy M. got a reaction from Fred G in Chemo Underway
Lemon water helps also. Both have backed it off for now
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Judy M. got a reaction from Fred G in Chemo Underway
Had scans last Wednesday and started chemo on Thursday. Doc is wanting to keep scans his little secret until I see him on Wed. I may let him. Lol. Not too bad until this morning when nausea hit in spite of meds. Lemon water and peppermint candy is helping, so thought I'd pass that along. Hope all you guys are doing well.
Judy M
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Judy M. reacted to Mally in Chemo Underway
The nausea is the pits ...i feel for you... and i might have to try the peppermint candy because same here that i take the nausea meds but still have to put up with it for a couple of days ...
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Judy M. got a reaction from Mally in Chemo Underway
Lemon water helps also. Both have backed it off for now
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Judy M. got a reaction from Julie in SoCal in Chemo Underway
Lemon water helps also. Both have backed it off for now
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