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Ktamdgirl

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  • US State (if applicable)
    MARYLAND
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    Usa
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  1. Hi All, I am new here. Hoping to take a break from googling and actually get some advice and hear stories from those who have actually been through this before:) My mom was diagnosed with stage IIIa adenocarcinoma yesterday at Johns Hopkins. She was originally told about 1.5 months ago that the mass she had(less then 1 cm) was operable and stage 1. Had PET scan to confirm no additional metastasis. She went to thoracic surgeon to schedule surgery and was told he had to do a bronchoscopy and medianoscopy to "confirm" there was no cancer spread in lymph nodes. Well, results came back and there were microscopic cancer cells in one out of 6 lymph nodes in her mediastinum. This is considered single station lymph node involvement from what I understand. So her dx went from 1A to 3A which has been really hard. But we are moving forward and she had her second opinion appt yesterday at Hopkins and that is where we will stay. They are recommending chemo (carboplatin and Alimta) once every 3 weeks for four rounds. After that she will have scans to confirm the cancer has responded appropriately and then they will move forward with a lobectomy. If the samples they send off after surgery contain cancer cells, they will then do radiation. The reason they are unwilling to start w radiation right off the bat in conjunction with chemo is because she has a history of autoimmune disease and radiation can be really rough on people with preexisting AI disease. They did say afterwards if there is cancer remaining, at that point the benefits of doing radiation would outweigh the cons. Wow, that was long winded! I apologize. I was wondering a few things. First, if any of you had a similar diagnosis (stage 3A with microscopic single stage locally advanced spread). Second, if you did, what was your treatment plan. Third, even if you didn't have same diagnosis, has anyone done things in the same order? I would appreciate any and all comments:) This has been tough on all of us but we are grabbing the bull by the horns and moving forward!
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