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Fred G

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  1. Like
    Fred G reacted to Tom Galli in Updating   
    Judy,
    Here is how you blog on this forum.
    On the LUNGevity forum main page, there are 3 top line tabs: Browse -- Activity -- Go to LUNGevity home page.  The default tab is Browse.  Notice that below the top line of tabs is Forums -- Gallery -- Blogs -- Calendar -- Staff -- Online Users.  Choose Blogs.  On the upper right side of the page, there is Create a new blog.  Click on that.
    A new Create a blog page opens.  
    Name - I suggest you type Stage IV Treatment With SBRT. Or you could title it something catchy like Two Tumors Fried By SBRT!  My blog is titled Stay the Course.  
    For Description - I suggest you type "A blog by Judy M." (quotes indicate what you should type.)  Then click Continue in the lower right side of the page. That creates your blog.
    Then select Add Blog Entry.
    A new page called Create Blog Entry opens.
    Title: "My Stage IV SBRT Treatment Experience" (again quotes indicate suggested title - you don't need to put quotes in your title).
    Tags:  These are very important and become pointers for anyone searching for information on a particular subject.  Each tag is one or two relevant words that describe your blog.  I suggest (again quotes are suggested entries - you don't need to type quotes in the tags) "new SBRT Stage IV treatment", (a comma captures the tag) "lung cancer radiation", "lung cancer and SBRT radiation", (the tags all print out in lower case).
    Content: I'd start with explaining your diagnosed condition (your first post) and your radio oncologist idea to treat your Stage IV tumors (one in each lung) with SBRT.  Mine this information from your previous posts. Then I'd copy your very good explanation of your treatment from the post above and include it in your blog.
    Click on Submit Entry on the bottom of the page.  Now your very precise description of your unique treatment method is available for all to review and folks now have the information to ask about SBRT treatment for multiple tumors if their diagnosis is similar to yours.
    Stay the course.
    Tom
  2. Like
    Fred G reacted to Judy M. in Updating   
    Tom
    Just don't see the things you directed me to either on my Tapatalk app or when I go online to the Lungevity site. But I did find a place to submit my story and ask for help getting a blog started. So maybe that will work out. Thank you for listening and for all that you do to help us all.

    Sent from my SM-J100VPP using Tapatalk


  3. Like
    Fred G reacted to Judy M. in Updating   
    Thank you do much Tom. I'll give it a try. Only have my phone. Will that work?

    Sent from my SM-J100VPP using Tapatalk


  4. Like
    Fred G reacted to Jephkay23 in Countdown to Monday morning surgery   
    Thinking of you.
  5. Like
    Fred G got a reaction from LexieCat in Countdown to Monday morning surgery   
    You've got this!!!

    Sent from my SM-G935U using Tapatalk


  6. Like
    Fred G reacted to Bruce u in Countdown to Monday morning surgery   
    Surgery will be over before you know it and within a couple days will be up going around.
    All the best for on your results
  7. Like
    Fred G reacted to Judy M. in Countdown to Monday morning surgery   
    Said a prayer for you. So far with this cancer thing the one thing that has made me irritable sometimez is waiting. And there's plenty of that on this road. So I can relate.

    Sent from my SM-J100VPP using Tapatalk


  8. Like
    Fred G reacted to Susan Cornett in Countdown to Monday morning surgery   
    I spent the weekend before my surgery taking cooking classes so as not to think about it.  I am sending good vibes!
  9. Like
    Fred G reacted to LexieCat in This wasn't supposed to happen.   
    With an attitude like that, how can Dawn not feel encouraged?
    And that's terrific that you are bringing her some better clothes to come home in.  Right before my nodules were found, I indulged in some heavy retail therapy to celebrate a significant (non-health-related--I WORKED for every half pound that came off) weight loss, and I think having some nice clothes to wear is a real boost.  I love my comfy laying-about clothes, too, but nice to have something that fits and looks good on me.
    I hope she gets a good treatment plan going--I always feel better when there's a plan and a path forward.  Keep us posted!
     
  10. Like
    Fred G reacted to Tom Galli in This wasn't supposed to happen.   
    Jephkay,
    I'm so very sorry to hear of your wife's diagnosis and I well understand you feeling alone and trapped.  My wife felt the same way when I was diagnosed with lung cancer on February 4, 2004.  But after the mayhem of 3 failed surgeries and 18 infusions of Taxol and Carboplatin chemotherapy.  I'm still here and if I can live, so can you wife.
    Doctors are formulating your wife's treatment plans that may include both radiation and chemotherapy.  I advise you take the time to read into the disease so you are prepared to help your wife make the right treatment choices.  Here is some introductory information on radiation and chemotherapy you may find interesting.  Has your wife's cancer been biopsied?  I ask because you didn't disclose her type of cancer and various types have different treatment approaches including newly discovered advanced treatments called targeted therapy and immunotherapy.
    You'll have a ton of questions as her treatment plan is established and this is a good place to ask.
    Stay the course.
    Tom
  11. Like
    Fred G reacted to Susan Cornett in This wasn't supposed to happen.   
    Good morning.  Go ahead and be mad and frustrated and speechless; get it out and then get ready to fight.  My first bit of advice? Don't look too closely at the statistics.  They do not consider your wife's overall health.  They are an aggregate of patients diagnosed 5 years ago, before we had all of the additional treatment options that we have now.  They don't reflect the individuals who opted out of treatment during the process, or never took the treatment.  Besides, if any of us gave any credence to the statistics, we'd all be in our respective corners crying.  You'll find many long term survivors on this forum.  Some of them should have died, statistically speaking, 10+ years ago.
    Given the location of your wife's tumors, do her docs have a plan for treatment? My oncologist tells me that they are having great success with radiation for the brain.  Any chemo or surgery on the horizon?
    Let us know how we can help you.  We're here.
  12. Like
    Fred G reacted to LexieCat in This wasn't supposed to happen.   
    Well, don't go heaping guilt on yourself.  Neither one of you could have prevented your wife's cancer.  
    I'm very new to this myself (surgery next week), so I can't give you any helpful cancer-related information or advice.  I CAN tell you, though, that if you want to be there for your wife, it's critical for you to take good care of yourself, too.  Make sure you stay on top of your work with your therapist and do whatever is recommended to maintain your own stability.  There are so many advances in cancer treatment she could be around for a long time to come.  
    Sending support and hugs.
  13. Like
    Fred G reacted to Pearl in Just told I had a 1 cm spot on my lung   
    They did tell me I could see the nurse practitioner but I didn't think that was a good idea I thought seeing a doctor was best so they did offer for me to see the nurse practitioner


    Sent from my iPhone using Tapatalk
  14. Like
    Fred G reacted to Pearl in Just told I had a 1 cm spot on my lung   
    I will call them tomorrow to see what can be done sooner


    Sent from my iPhone using Tapatalk
  15. Like
    Fred G reacted to CIndy0121 in Just told I had a 1 cm spot on my lung   
    I'll "weigh in". Pearl, Your doctor may have a medical situation in her family, but that should not put your medical situation on hold. Another doctor or nurse practitioner should order the needle biopsy at the hospital they are associated with. It's an outpatient procedure done by an interventional radiologist. Or they should schedule you for a PET scan at the facility they work with for those, but only a biopsy can confirm cancer. If they refer you to a thoracic surgeon, they can order the biopsy. If it is cancer and operable, that's who would do it. This is when you need to advocate for yourself and tell them what you need. If it is positive, you wouldn't be going back to a pulmonologist anyway. You would work with the surgeon or radiational or medical oncologist depending what treatment is decided upon. I know it's awful to be stuck in the unknown and scared and confused...and it's a holiday weekend. My center is open tomorrow even though they're closed Tuesday, but calling tomorrow is worth a try. Definitely Wednesday. Then let us know where things stand. You need to know that something else is scheduled sooner than another office visit at the no of the month. We'll be thinking of you.
    Cindy
  16. Like
    Fred G reacted to LexieCat in Just told I had a 1 cm spot on my lung   
    I'd see if there isn't somebody she uses as backup coverage when she is not available.  Have you checked with her office?
  17. Like
    Fred G reacted to Pearl in Just told I had a 1 cm spot on my lung   
    No they have taken the Ct watching for blood clots because I have a history of them I'm told that because it wasn't there the first two years it almost sure it's gonna be cancer 95% but they won't say 100% until they do the test my mom and dad both had lung cancer so that doesn't help matters it just puts me at a higher risk for having it I'm scared yet try to be strong


    Sent from my iPhone using Tapatalk
  18. Like
    Fred G reacted to LexieCat in Just told I had a 1 cm spot on my lung   
    Hi, Pearl!  I love that name--my mom was Pearl.
    I'm sort of in a similar boat, though it looks a little more certain that mine will turn out to be cancer--slight growth since last year in a nodule they've been monitoring, and PET scan had that nodule "light up."  I'm scheduled for surgery in a week.  
    Were you in a screening program with your annual CT's?  That's how mine was picked up.  I have a few other very small nodules elsewhere in my lungs, which have remained stable and didn't light up on the PET scan.  I was told there would be no point to a biopsy, because given what has been observed, the recommendation would be to remove it anyway.  I'm having the upper left lobe removed, assuming they determine during surgery that it is cancer.
    I'm trying to look at it as something to be grateful for that it is small, evidently isolated at this point, and hopefully completely treatable with this surgery.  I know I will remain nervous about recurrences, but that's really something I have no control over other than to be diligent in keeping an eye on things.  Certainly I would be happier if I weren't dealing with any of this, but I'm trying to hit that sweet spot between appropriately educating myself and freaking myself out.  So far no freakout, but that could be subject to change in the future.
    Teri
  19. Like
    Fred G got a reaction from Tom Galli in Updating   
    Thank you for the info on Prunelax. Can we buy it over-the-counter?

    Sent from my SM-G935U using Tapatalk


  20. Like
    Fred G got a reaction from LaurenH in Hi Everyone   
    Hey Carol - As a "rookie" in this fight with cancer, I have also got many questions, but I can promise you this, not only do you have a vast amount of knowledge within this site; But, asking us to hold you and yours up in
    PRAYER, well, let me tell you this, you have now jumped into "Daniel and his Lion's Den" for the prayer warriors to become engaged!

    Sent from my SM-T350 using Tapatalk


  21. Like
    Fred G got a reaction from Mally in Hi Everyone   
    Hey Carol - As a "rookie" in this fight with cancer, I have also got many questions, but I can promise you this, not only do you have a vast amount of knowledge within this site; But, asking us to hold you and yours up in
    PRAYER, well, let me tell you this, you have now jumped into "Daniel and his Lion's Den" for the prayer warriors to become engaged!

    Sent from my SM-T350 using Tapatalk


  22. Like
    Fred G got a reaction from Suzanne in Hi Everyone   
    Hey Carol - As a "rookie" in this fight with cancer, I have also got many questions, but I can promise you this, not only do you have a vast amount of knowledge within this site; But, asking us to hold you and yours up in
    PRAYER, well, let me tell you this, you have now jumped into "Daniel and his Lion's Den" for the prayer warriors to become engaged!

    Sent from my SM-T350 using Tapatalk


  23. Like
    Fred G got a reaction from LaurenH in Introducing myself   
    JWH - I am a Cancer "rookie" with Stage 2 non-small cell adenocarcinoma, so all of this is "new" territory for me. Based on that information, I am sitting here listening to all of the info like a "sponge", and trying to retain as much as I can. But I can honestly say, and I do firmly believe that you have joined the finest forum on this subject; additionally, you have already spoken to (via writing) to two of the most knowledgeable and caring individuals on this subject that there are, but I also want you to know that in the short period that I have been a member of this "family", you will find many, many, many more members that will be contributing to your new "bump in the road" and WE are all cheering for each other to have a positive testimonial when it is all said and done. Lastly always be positive and faithful in your healing process.

    Sent from my SM-T350 using Tapatalk


  24. Like
    Fred G got a reaction from JWH in Introducing myself   
    JWH - I am a Cancer "rookie" with Stage 2 non-small cell adenocarcinoma, so all of this is "new" territory for me. Based on that information, I am sitting here listening to all of the info like a "sponge", and trying to retain as much as I can. But I can honestly say, and I do firmly believe that you have joined the finest forum on this subject; additionally, you have already spoken to (via writing) to two of the most knowledgeable and caring individuals on this subject that there are, but I also want you to know that in the short period that I have been a member of this "family", you will find many, many, many more members that will be contributing to your new "bump in the road" and WE are all cheering for each other to have a positive testimonial when it is all said and done. Lastly always be positive and faithful in your healing process.

    Sent from my SM-T350 using Tapatalk


  25. Like
    Fred G reacted to Donna G in Adeno-Carcenoma stage III A.   
    Hello Richard.
    I was diagnosed with Stage 3B in December 1997.  I started my treatment with 2 chemo drugs and daily radiation. 
    Later I was able to have a lobe on lung removed followed by more chemo.  As you may figure out this December it
    will be 20 years ago.  I am NED since the Spring of 1998.   Keep us posted on your progress.
    Donna G
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