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Fred G

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  1. Like
    Fred G got a reaction from DrBee in Trying immunotherapy now   
    Wow, thanks so much for the uplifting info regarding Opdivo.  To give you a little background on my adventure, I was first diagnosed with Stage 2 NSCLC in January of 2017. I went through radiation (36 treatments) and chemotherapy (6 treatments); and was cleared and active treatment was ended.  At the time of completing treatment, it was decided that I would have a CT scan after 6 weeks to ensure that all remained clear. The first CT scan remained clear; then it came time for CT #2.  CT#2 indicated some fluid showing up in the right lung, which is the lung which had the cancer. My Oncologist contacted my Pulmonologist to perform a bronchoscopy to ffing out what was going on. Well, the bronchoscopy indicated some moisture and the pulmonologist's took several tissue samples which came back okay.  Then after my most recent CT scan, it was detected that the NSCLC had come back and was now at Stage 4. It was determined at that time that, we would initiate immunotherapy using Opdivo, since on the last CT they were able to identify some PL-D1 markers.  So beginning tomorrow (06/18/2018), I will be undergoing training on the Opdivo program, and hope to start with the infusion process on Thursday (06/19/2018).
  2. Like
    Fred G got a reaction from Roz in Trying immunotherapy now   
    Wow, thanks so much for the uplifting info regarding Opdivo.  To give you a little background on my adventure, I was first diagnosed with Stage 2 NSCLC in January of 2017. I went through radiation (36 treatments) and chemotherapy (6 treatments); and was cleared and active treatment was ended.  At the time of completing treatment, it was decided that I would have a CT scan after 6 weeks to ensure that all remained clear. The first CT scan remained clear; then it came time for CT #2.  CT#2 indicated some fluid showing up in the right lung, which is the lung which had the cancer. My Oncologist contacted my Pulmonologist to perform a bronchoscopy to ffing out what was going on. Well, the bronchoscopy indicated some moisture and the pulmonologist's took several tissue samples which came back okay.  Then after my most recent CT scan, it was detected that the NSCLC had come back and was now at Stage 4. It was determined at that time that, we would initiate immunotherapy using Opdivo, since on the last CT they were able to identify some PL-D1 markers.  So beginning tomorrow (06/18/2018), I will be undergoing training on the Opdivo program, and hope to start with the infusion process on Thursday (06/19/2018).
  3. Like
    Fred G got a reaction from Mally in Trying immunotherapy now   
    Wow, thanks so much for the uplifting info regarding Opdivo.  To give you a little background on my adventure, I was first diagnosed with Stage 2 NSCLC in January of 2017. I went through radiation (36 treatments) and chemotherapy (6 treatments); and was cleared and active treatment was ended.  At the time of completing treatment, it was decided that I would have a CT scan after 6 weeks to ensure that all remained clear. The first CT scan remained clear; then it came time for CT #2.  CT#2 indicated some fluid showing up in the right lung, which is the lung which had the cancer. My Oncologist contacted my Pulmonologist to perform a bronchoscopy to ffing out what was going on. Well, the bronchoscopy indicated some moisture and the pulmonologist's took several tissue samples which came back okay.  Then after my most recent CT scan, it was detected that the NSCLC had come back and was now at Stage 4. It was determined at that time that, we would initiate immunotherapy using Opdivo, since on the last CT they were able to identify some PL-D1 markers.  So beginning tomorrow (06/18/2018), I will be undergoing training on the Opdivo program, and hope to start with the infusion process on Thursday (06/19/2018).
  4. Like
    Fred G got a reaction from Tom Galli in Trying immunotherapy now   
    Wow, thanks so much for the uplifting info regarding Opdivo.  To give you a little background on my adventure, I was first diagnosed with Stage 2 NSCLC in January of 2017. I went through radiation (36 treatments) and chemotherapy (6 treatments); and was cleared and active treatment was ended.  At the time of completing treatment, it was decided that I would have a CT scan after 6 weeks to ensure that all remained clear. The first CT scan remained clear; then it came time for CT #2.  CT#2 indicated some fluid showing up in the right lung, which is the lung which had the cancer. My Oncologist contacted my Pulmonologist to perform a bronchoscopy to ffing out what was going on. Well, the bronchoscopy indicated some moisture and the pulmonologist's took several tissue samples which came back okay.  Then after my most recent CT scan, it was detected that the NSCLC had come back and was now at Stage 4. It was determined at that time that, we would initiate immunotherapy using Opdivo, since on the last CT they were able to identify some PL-D1 markers.  So beginning tomorrow (06/18/2018), I will be undergoing training on the Opdivo program, and hope to start with the infusion process on Thursday (06/19/2018).
  5. Like
    Fred G got a reaction from Michele in NED again   
    Susan - Congrats on your Great News! Got my GOOD REPORT after PET Scan and 6 chemo & 35 Radiation treatments, September 26th! Keeping my port cath, just in case.......
  6. Like
    Fred G got a reaction from LaurenH in NED again   
    Susan - Congrats on your Great News! Got my GOOD REPORT after PET Scan and 6 chemo & 35 Radiation treatments, September 26th! Keeping my port cath, just in case.......
  7. Like
    Fred G got a reaction from Susan Cornett in NED again   
    Susan - Congrats on your Great News! Got my GOOD REPORT after PET Scan and 6 chemo & 35 Radiation treatments, September 26th! Keeping my port cath, just in case.......
  8. Like
    Fred G got a reaction from ViviAnn in My new cancer journey   
    wwroam - I agree with Tom on getting the port, I have already had 1 chemo treatment and I am sincerely thankful that my "cutter" and my chemo doctor made it happen!

    Sent from my SM-G935U using Tapatalk


  9. Like
    Fred G reacted to Tom Galli in Updating   
    Judy,
    Here is how you blog on this forum.
    On the LUNGevity forum main page, there are 3 top line tabs: Browse -- Activity -- Go to LUNGevity home page.  The default tab is Browse.  Notice that below the top line of tabs is Forums -- Gallery -- Blogs -- Calendar -- Staff -- Online Users.  Choose Blogs.  On the upper right side of the page, there is Create a new blog.  Click on that.
    A new Create a blog page opens.  
    Name - I suggest you type Stage IV Treatment With SBRT. Or you could title it something catchy like Two Tumors Fried By SBRT!  My blog is titled Stay the Course.  
    For Description - I suggest you type "A blog by Judy M." (quotes indicate what you should type.)  Then click Continue in the lower right side of the page. That creates your blog.
    Then select Add Blog Entry.
    A new page called Create Blog Entry opens.
    Title: "My Stage IV SBRT Treatment Experience" (again quotes indicate suggested title - you don't need to put quotes in your title).
    Tags:  These are very important and become pointers for anyone searching for information on a particular subject.  Each tag is one or two relevant words that describe your blog.  I suggest (again quotes are suggested entries - you don't need to type quotes in the tags) "new SBRT Stage IV treatment", (a comma captures the tag) "lung cancer radiation", "lung cancer and SBRT radiation", (the tags all print out in lower case).
    Content: I'd start with explaining your diagnosed condition (your first post) and your radio oncologist idea to treat your Stage IV tumors (one in each lung) with SBRT.  Mine this information from your previous posts. Then I'd copy your very good explanation of your treatment from the post above and include it in your blog.
    Click on Submit Entry on the bottom of the page.  Now your very precise description of your unique treatment method is available for all to review and folks now have the information to ask about SBRT treatment for multiple tumors if their diagnosis is similar to yours.
    Stay the course.
    Tom
  10. Like
    Fred G reacted to Judy M. in Updating   
    Tom
    Just don't see the things you directed me to either on my Tapatalk app or when I go online to the Lungevity site. But I did find a place to submit my story and ask for help getting a blog started. So maybe that will work out. Thank you for listening and for all that you do to help us all.

    Sent from my SM-J100VPP using Tapatalk


  11. Like
    Fred G reacted to Judy M. in Updating   
    Thank you do much Tom. I'll give it a try. Only have my phone. Will that work?

    Sent from my SM-J100VPP using Tapatalk


  12. Like
    Fred G reacted to Jephkay23 in Countdown to Monday morning surgery   
    Thinking of you.
  13. Like
    Fred G got a reaction from LexieCat in Countdown to Monday morning surgery   
    You've got this!!!

    Sent from my SM-G935U using Tapatalk


  14. Like
    Fred G reacted to Bruce u in Countdown to Monday morning surgery   
    Surgery will be over before you know it and within a couple days will be up going around.
    All the best for on your results
  15. Like
    Fred G reacted to Judy M. in Countdown to Monday morning surgery   
    Said a prayer for you. So far with this cancer thing the one thing that has made me irritable sometimez is waiting. And there's plenty of that on this road. So I can relate.

    Sent from my SM-J100VPP using Tapatalk


  16. Like
    Fred G reacted to Susan Cornett in Countdown to Monday morning surgery   
    I spent the weekend before my surgery taking cooking classes so as not to think about it.  I am sending good vibes!
  17. Like
    Fred G reacted to LexieCat in This wasn't supposed to happen.   
    With an attitude like that, how can Dawn not feel encouraged?
    And that's terrific that you are bringing her some better clothes to come home in.  Right before my nodules were found, I indulged in some heavy retail therapy to celebrate a significant (non-health-related--I WORKED for every half pound that came off) weight loss, and I think having some nice clothes to wear is a real boost.  I love my comfy laying-about clothes, too, but nice to have something that fits and looks good on me.
    I hope she gets a good treatment plan going--I always feel better when there's a plan and a path forward.  Keep us posted!
     
  18. Like
    Fred G reacted to Tom Galli in This wasn't supposed to happen.   
    Jephkay,
    I'm so very sorry to hear of your wife's diagnosis and I well understand you feeling alone and trapped.  My wife felt the same way when I was diagnosed with lung cancer on February 4, 2004.  But after the mayhem of 3 failed surgeries and 18 infusions of Taxol and Carboplatin chemotherapy.  I'm still here and if I can live, so can you wife.
    Doctors are formulating your wife's treatment plans that may include both radiation and chemotherapy.  I advise you take the time to read into the disease so you are prepared to help your wife make the right treatment choices.  Here is some introductory information on radiation and chemotherapy you may find interesting.  Has your wife's cancer been biopsied?  I ask because you didn't disclose her type of cancer and various types have different treatment approaches including newly discovered advanced treatments called targeted therapy and immunotherapy.
    You'll have a ton of questions as her treatment plan is established and this is a good place to ask.
    Stay the course.
    Tom
  19. Like
    Fred G reacted to Susan Cornett in This wasn't supposed to happen.   
    Good morning.  Go ahead and be mad and frustrated and speechless; get it out and then get ready to fight.  My first bit of advice? Don't look too closely at the statistics.  They do not consider your wife's overall health.  They are an aggregate of patients diagnosed 5 years ago, before we had all of the additional treatment options that we have now.  They don't reflect the individuals who opted out of treatment during the process, or never took the treatment.  Besides, if any of us gave any credence to the statistics, we'd all be in our respective corners crying.  You'll find many long term survivors on this forum.  Some of them should have died, statistically speaking, 10+ years ago.
    Given the location of your wife's tumors, do her docs have a plan for treatment? My oncologist tells me that they are having great success with radiation for the brain.  Any chemo or surgery on the horizon?
    Let us know how we can help you.  We're here.
  20. Like
    Fred G reacted to LexieCat in This wasn't supposed to happen.   
    Well, don't go heaping guilt on yourself.  Neither one of you could have prevented your wife's cancer.  
    I'm very new to this myself (surgery next week), so I can't give you any helpful cancer-related information or advice.  I CAN tell you, though, that if you want to be there for your wife, it's critical for you to take good care of yourself, too.  Make sure you stay on top of your work with your therapist and do whatever is recommended to maintain your own stability.  There are so many advances in cancer treatment she could be around for a long time to come.  
    Sending support and hugs.
  21. Like
    Fred G reacted to Pearl in Just told I had a 1 cm spot on my lung   
    They did tell me I could see the nurse practitioner but I didn't think that was a good idea I thought seeing a doctor was best so they did offer for me to see the nurse practitioner


    Sent from my iPhone using Tapatalk
  22. Like
    Fred G reacted to Pearl in Just told I had a 1 cm spot on my lung   
    I will call them tomorrow to see what can be done sooner


    Sent from my iPhone using Tapatalk
  23. Like
    Fred G reacted to CIndy0121 in Just told I had a 1 cm spot on my lung   
    I'll "weigh in". Pearl, Your doctor may have a medical situation in her family, but that should not put your medical situation on hold. Another doctor or nurse practitioner should order the needle biopsy at the hospital they are associated with. It's an outpatient procedure done by an interventional radiologist. Or they should schedule you for a PET scan at the facility they work with for those, but only a biopsy can confirm cancer. If they refer you to a thoracic surgeon, they can order the biopsy. If it is cancer and operable, that's who would do it. This is when you need to advocate for yourself and tell them what you need. If it is positive, you wouldn't be going back to a pulmonologist anyway. You would work with the surgeon or radiational or medical oncologist depending what treatment is decided upon. I know it's awful to be stuck in the unknown and scared and confused...and it's a holiday weekend. My center is open tomorrow even though they're closed Tuesday, but calling tomorrow is worth a try. Definitely Wednesday. Then let us know where things stand. You need to know that something else is scheduled sooner than another office visit at the no of the month. We'll be thinking of you.
    Cindy
  24. Like
    Fred G reacted to LexieCat in Just told I had a 1 cm spot on my lung   
    I'd see if there isn't somebody she uses as backup coverage when she is not available.  Have you checked with her office?
  25. Like
    Fred G reacted to Pearl in Just told I had a 1 cm spot on my lung   
    No they have taken the Ct watching for blood clots because I have a history of them I'm told that because it wasn't there the first two years it almost sure it's gonna be cancer 95% but they won't say 100% until they do the test my mom and dad both had lung cancer so that doesn't help matters it just puts me at a higher risk for having it I'm scared yet try to be strong


    Sent from my iPhone using Tapatalk
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