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  1. Like
    RandyW got a reaction from bjacksontex in My Grandmother has left recently but I'm doing okay...   
    You know my old remedy fro when your missing someone really bad and want to talk???? LOL... take a drink or something you can enjoy outside or if it is too cold and go near a window... open the blinds if your indoors and look up and have a long talk with the one your missing ..... and not too yourself if you don't want to....have a long talk and say everything on your mind.. this is lots more fun when it is warm outdoors and relaxing but it helps if you can not get outside... in time you will get a sign or a response from then...then every time you se or smell or hear that sign your knowing they are there answering you...
  2. Like
    RandyW got a reaction from Nana01OK in Mom was just diagnosed and so glad I found this site   
    Many of us here remember Dean Carl.Many newer members mabe don't.Dean was one of our very supportive and inspirational members here and was blessed with much wisdom.We lost Dean a while back but his wisdom still exists here in the Path Less Traveled Forum.This is a poem he wrote himself back in March2004.
    Oh, how we fear that word!
    I say to you, "I have cancer"
    And I watch you,
    refuse to hear.
    I say to you, "I have cancer"
    And I watch you,
    bury me with your eyes.
    Yes, I have CANCER.
    Please hear the word.
    But do not lay me in my grave,
    At least,
    Not just yet.
    Oh, I know this disease
    Will someday take my life.
    The chances of that are,
    Shall we say,
    Rather high.
    Yes, I know that which will take me,
    From this world.
    But not today!
    But then again,
    That's all I've ever had.
    And to tell the truth,
    (which I've been known to do at times)
    That's all any of us ever have.
    So today, I think,
    I'll get up early,
    And watch the sun set fire to the sky.
    Today, I think,
    I'll tell my wife,
    "I love you", at least a hundred times.
    Today, I think,
    I'll find a way to laugh so hard,
    I'll give myself a stomach ache.
    Today, I think,
    I'll go to the cliffs above the ocean
    And ask old man Ocean what he knows that I don't.
    Today, I think,
    I'll climb down into the abyss,
    And spit in the Devil's eye.
    Today I'll do so many wonderful things.
    And those I don't get done today.
    I'll do tomorrow when tomorrow becomes today.
    Yes, I have cancer
    Yes, I will die from it someday.
    But not today.
    Not today.
  3. Like
    RandyW got a reaction from meme13 in Lost my mother NSCLC Nov 4th 2015   
    it is a hard road ahead of course... one of the things I used to do and still do when the weather is nicer is go outside at night under the stars and talk... discuss anything and everything on your mind....fuss and curse if your mad and apologize when your done of course for that.. it is ok.... you have to get the bad energy and the bad grief off your mind and soul.. this gives you somewhat of a break form the normal routine.. Now your thinking how do I know she heard me talking? in time you will get a sign... be it a smell a vision of something you both enjoyed... Mine is bunny rabbits in the yard... I was my wifes honey bunny so that is my sign to this day...a friend of mine who lost his son sees butterflies and thunderstorms as their sign..
  4. Like
    RandyW got a reaction from rermjmt in stage 3b non small cell/ my story   
    When a doctor tells you how much time you have do not listen to him.. he is not god and only god knows when er are leaving this earth....if you get a chance , take a look in the good news and the Inspiration forums for some upbeat stories of survival... there are many written in there and lots to grow from...I am not a survivor but consider myself a survivor caregiver so..
  5. Like
    RandyW got a reaction from CindyA in Side Effects after Treatment   
    have you tried or thought about smoothies maybe? with some protein powder mixed in?? will help with weight loss and possibly avoid cachexia by gaining some mass back to your frame because of appetite conditions??
  6. Like
    RandyW reacted to michellep in What Nodule?!?!?   
    I can imagine how scared you must have felt when you heard that but I agree with Randy......don't panic!  I recently had pneumonia followed by a CT scan where a couple nodules were found.  I was told that we ALL develop nodules as we age, it doesn't always mean lung cancer.  My doctor plans to keep and eye on them and follow up with another scan in three months just to be safe.  Please let us know how you're doing ((hugs))
  7. Like
    RandyW reacted to BlueWolf6457 in Being my sisters keeper   
    Merry Christmas and Happy 2016 everybody    
  8. Like
    RandyW got a reaction from Tom Galli in Merry Christmas to all my friends old and new !!!   
    Merry Christmas to all my friends and I hope the new year finds you better than the old year!!!! old Friends and new Friends!!
  9. Like
    RandyW got a reaction from KatieB in Merry Christmas to all my friends old and new !!!   
    Merry Christmas to all my friends and I hope the new year finds you better than the old year!!!! old Friends and new Friends!!
  10. Like
    RandyW reacted to Bruce u in Old Friends   
    Hey Randy, Katie
    I'm doing good and just staying busy.
    I haven't seen Alex in awhile Randy and no I don't watch Ice Road Truckers. LOL There is another show similar to that being filmed in Yellowknife as well. That one is living on a houseboat. Are you still working hard in the food industry?
    Katie I read a little about you every now and then on here. Still doing alot of public speaking and traveling? How are the kids ?
  11. Like
    RandyW reacted to rose.vining in anxious newbie   
    Wonderful news that it is not lung cancer, Chet !
    Sent from my iPad using Tapatalk
  12. Like
    RandyW reacted to BlueWolf6457 in Being my sisters keeper   
    PET scan revealed no active cancer anywhere in her body.  Nothing lit up, not even the old tumor.  Next task is to get rid of this "lung specialist".
  13. Like
    RandyW got a reaction from michellep in Friend of mine   
    still hanging  in there!!!
  14. Like
    RandyW got a reaction from CindyA in My mum was diagnosis with NSCLC adenocacinoma stage 4   
    keep us posted and we can see if we can help out somehow for ya!!! tell mom good luck on getting into the trial... the trick is to stay alive until the cure is found... we have lots who have beat their doctors your going to live predictions so do not buy into that too much if you can.. no one knows how long we have!!!  but please keep us posted and we can se what we can come up with to help out some how for ya!!!
  15. Like
    RandyW reacted to Xingxing in My mum was diagnosis with NSCLC adenocacinoma stage 4   
    Thanks for your suggestion... Right now we are waiting for the result... The trail that we are applying will pay all th cost for her of she pass the test... It is Ceritinib which cost 10000$SGD... We hoping to pass... Because we are not rich... So i hope we can make it... The doctor said that the result is around this week.... M praying for good news... Thanks
  16. Like
    RandyW got a reaction from CindyA in Very New and Concerned   
    if you are curious as to what this forum offers on alternative treatment just type in alternative treatment into the search bar above. lots of great info in there about that treatment... we used to have an entire forum dedicated to that type of treatment but do not see it now... I think your doing the right thing and if you go that route let us know and keep usp osted on how things are going please.. might be an inspiration to someone else down the road!!! .
  17. Like
    RandyW reacted to CindyA in Move Every Day   
    This is a great piece on ‪#‎lungcancer‬ survivor Jane Elterman. Jane participates in LUNGevity's Breathe Deep DFW event every November. Read and share!
    Move Every Day Exercise can improve quality of life and decrease the odds of cancer diagnosis or recurrence. 
    By Heather Stringer
    After 28 chemotherapy infusions, Jane Elterman could not even imagine integrating exercise into her life, despite gentle encouragement from her care team at Cancer Treatment Centers of America® (CTCA) in Tulsa, Oklahoma.
    At 49, Jane had been diagnosed with stage IV adenocarcinoma in late 2008 after going to the doctor for a simple neck ache. Jane, who lives in Carrollton, Texas, was in disbelief when she learned that cancer had spread to her lymph nodes, jugular vein and all five lobes of her lungs.
    Initially told that she had three to five months to live, Jane sought a second opinion at CTCA®
    Learning to be a survivor, however, has presented its own set of challenges. A year after she completed chemotherapy, Jane still suffered from neuropathy (tingling and numbness in her toes and fingers) and severe pain, she was exhausted by simple tasks like loading the washing machine or driving to the store and she needed at least two naps per day.
    Then, in 2013, she heard something that completely changed her mindset about the importance of overcoming these barriers to become more active: a naturopath at CTCA mentioned that exercising 30 minutes per day five days per week could reduce the risk of cancer recurrence.
    “It was a lightning bolt for me,” says Jane, now 56. “I knew I could not get rid of the cancer that was still in my lungs, but it was really important to reduce the risk of metastasis. I wanted to do whatever I could to be around for the major life events like births, weddings and graduations for the people I loved.”
    Inspired, she started by swimming a few laps in her pool. Although it was intensely painful to walk down the steps of the pool into the water, Jane kept swimming every day. After a month she noticed her endurance improving, and eventually she could swim continuously for 30 minutes. Next she braved the elliptical machine at the local gym. She cried most days during the first week from the neuropathic pain, but slowly that decreased. She then worked up to 30 minutes of walking on the treadmill, and now she looks forward to walking outside three to four miles per day with her two dogs. Her energy level is higher than ever, and she has even started job hunting for work in the nonprofit sector.
    Defining Exercise
    Although Jane’s journey included visits to the local gym, Physical Therapist Kelly Prater Whitmore, PT, CLT, is quick to remind patients that exercise can include a wide variety of activities beyond typical gym options. “Many people think they can’t exercise because it means lifting weights at the gym and running on a treadmill,” says Whitmore, who works at CTCA in Newnan, Georgia. “But exercise can be marching your feet, tapping your toes or doing exercises in a chair. It really depends on your level of strength and endurance.”
    The American Cancer Society recommends that adults get at least 150 minutes of moderate intensity or 75 minutes of vigorous intensity activity each week. Moderate intensity is defined as anything that “makes you breathe as hard as you do during a brisk walk,” which could include mowing the lawn, dancing, walking and golfing. Vigorous activities cause a noticeable increase in heart rate, faster breathing and sweating, which could include jogging, singles tennis and swimming.
    “For patients who have been diagnosed with cancer and are in some stage of treatment, it is best to meet with a medical professional before starting an exercise routine,” Whitmore says. “We evaluate their strength deficits and can tailor the program accordingly.”
    A typical program includes cardiovascular, strength and flexibility exercises with a physical therapist and a home exercise program to build on this, Whitmore explains. She typically offers several options for home exercises and suggests that patients pick the ones that work best for them. For example, someone could walk the aisles of a grocery store for 15 minutes before shopping for food, or complete 10 to 20 repetitions of an exercise during television commercial breaks.
    Although some patients express fear that exercising will increase their level of pain and fatigue, Whitmore teaches them that usually the opposite is true. A study published in the Journal of Clinical Oncology in April 2015 found that exercise decreased pain in breast cancer patients who were suffering from joint pain while taking aromatase inhibitors. The participants who increased their exercise time to approximately 160 minutes per week experienced nearly a 30 percent decrease in their pain levels, while women who did not exercise experienced a 3 percent increase in pain.
    Joints are more prone to become stiff, achy and painful when people are not moving because the muscles become weaker, which can cause more stress on the joints, Whitmore says. In addition to lessening pain, exercise can decrease other side effects from treatment, such as fatigue, bone loss, scar tissue, shortness of breath, insomnia, diarrhea, constipation, anxiety and depression, Whitmore says.
    An increasing number of studies also suggest that staying active can be an effective preventive strategy. According to the American Cancer Society, poor diet and inactivity are two key factors that can increase a person’s cancer risk. These factors have the potential to increase an individual’s amount of excess weight, which causes the body to produce and circulate more estrogen and insulin—hormones that can stimulate cancer growth.
    A French study published in 2014 found that postmenopausal women who exercised moderately for four hours per week in the previous four years had a 10 percent lower risk of breast cancer than women who exercised less than that. The researchers also found that risk-reducing benefits quickly disappeared if women stopped exercising.
    Now Is the Time
    Although it may be tempting to procrastinate when it comes to exercising, Whitmore encourages people at any stage of life—regardless of whether they have cancer—that any movement is better than no movement. When she graduated from physical therapy school 25 years ago, patients were discouraged from exercise during treatment, and the consequences of this became evident. “People would get so deconditioned that they felt it was harder to become active again than to overcome the side effects of chemotherapy and radiation,” Whitmore says.
    She acknowledges that cancer treatment has many phases, and consequently exercise routines will likely need to be modified as patients go through these phases. For Jane, moving every day has become an essential part of life that gives her serenity despite an uncertain future.
    “After feeling betrayed by my body, it was truly empowering to see myself continue to get stronger,” Jane says. “That sense of accomplishment helped me regain my confidence, and I even sleep better because I am not worrying about whether I will be around for the next special milestone.”
    No case is typical. You should not expect to experience these results.
    Research is ongoing into the role of exercise in cancer prevention and wellness during treatment. If you’d like to learn more, take a look at the following references cited in this article:
    1. Irwin, M. L., Cartmel, B., Gross, C. P., Ercolano E., et al. (2015). Randomized exercise trial of aromatase inhibitor–induced arthralgia in breast cancer survivors. Journal of Clinical Oncology, 33, 1104–1111. doi: 10.1200/JCO.2014.57.1547
    Abstract online: http://jco.ascopubs.org/content/early/2014/12/01/JCO.2014.57.1547.short?rss=1
    2. Fournier, A., Dos Santos, G., Guillas, G., Bertsch, J., et al. (2014). Recent recreational physical activity and breast cancer risk in postmenopausal women in the E3N cohort. Cancer Epidemiology, Biomarkers & Prevention, 23, 1893–1902. doi: 10.1158/1055-9965.EPI-14-0150
    Abstract online: http://cebp.aacrjournals.org/content/early/2014/07/31/1055-9965.EPI-14-0150.abstract

  18. Like
    RandyW got a reaction from CindyA in My mum was diagnosis with NSCLC adenocacinoma stage 4   
    my most sincere apologies... not used to seeing that area of the world in the forums here! once the treatments start up the effects of cancer should lessen and improve her condition... will have to se about the coughing...I think that wil go away with treatment also.... hoping for the best with the trials !! Not sure also if you cang et asistance with medical treatment costs or not over there!! some compnies offer financial assistance to the patients... let us know what treatment and what kind of costs and we can see what links and info we can find for you!!!
    found a couple of suggestions to try .. keep water on hand to lubricate the throat when whe feels a couging spell coming on... also halls LEmon cough drops or any kind of lemon cough rops might help.. the cough will go away when the treatment starts. if you can, also a mister to sleep near helps keep dry air out of the system at night. these are pain med free options for now so you do not have to deal with meds and prescriptions..
  19. Like
    RandyW got a reaction from CindyA in Being my sisters keeper   
    post deleted and for now Member reported and blocked from posting...
  20. Like
    RandyW reacted to BlueWolf6457 in Being my sisters keeper   
    The last CT scan showed no change in the size or shape of the tumor but two small white areas which the Oncologist thinks are evidence of a lung infection on that side. She was put on 2 weeks worth of antibiotics and will see the Oncologist for follow-up on August 3rd.
  21. Like
    RandyW got a reaction from Cheryncp123 in They're calling it "Chemo Fog"   
    Follow this link and give it a read through.. Dr Jack west is our resident oncologist from Swedish INstitute in Seattle and specializes in Lung Cancer treatment!! might be worth asking about possibly.... might find some info in this post also!! but remeber hospital is not a bad thing in case!!!! these are thoughts and ideas that have worked in past for other folks here.... 
    Since my mom will only eat a 1/2 of a small Mc.D burger a day and sometimes some applesauce one thing I found was to hide Organic Flaxseed Oil in her burger. Is very good for the heart (and I think can help reduce/prevent edema) and adds extra 45 calories per teaspoon. Also Vit A, C and E have all been recommended for pulmonary/cancer issues. Mom sometimes will drink the Orange-Orange Vitamin Water from Glaceau and I add a pack of Emergen-C Super Orange to it for extra Vit C and nutrients. She always says she feels a bit better after having some of it. Sometimes I add Polycose to some applesauce to help give her a few extra calories as well. I am no doctor, so check with your mom's nurse/doctor first to make sure no alternative measures (extra vitamins, certain foods, etc) interact badly with your mom's specific condition.

    I have enclosed a few links below that have helped me some. I too am also looking for other alternatives (especially ones you can hide in foods/drinks for those stubborn parents that only like Mc.D's!) so I look forward to reading others responses.

    * http://www.aicr.org/... ... foods_home
    * http://www.curezone....fatspercent.asp
    * http://www.cancure.o...hting_foods.htm
    * http://www.metromedicalonline.com (currently has cheapest offers on Enlive, Polycose and Ensure. Can buy a case or individual)
    * http://www.preventio... ... -0,00.html
    * http://www.lungcance... ... ments.html
    * http://www.drugs.com... ... -diet.html
    * http://www.caregiver... ... nodeid=344
    * http://www.lungusa.o...LUK9O0E&b=22547
    * http://www.hospicefo...iceInfo/faq.asp
  22. Like
    RandyW got a reaction from Cheryncp123 in They're calling it "Chemo Fog"   
    Make sure sister gets plenty of fluids.. the culprit almost sounds like dehydration ... the fogginess and the muscle spasms could be dehydration related.... A trip to the hospital for fluids is not fun.... not sure on the eating .. my advice is to eat when you wnat to eat not whaen your supposed to eat..... need to get protein in body to fight Cachexia which is loss of muscle mass.... I know it is scary and trying to be as big of help as possible.. thanks!!!
  23. Like
    RandyW got a reaction from Cheryncp123 in They're calling it "Chemo Fog"   
     you might find something usefull here also!!! try this link I found above!!
    also good info
    Moderators 883 posts 0 warning points US State: ILLINOIS Status: Yes Posted 31 August 2009 - 12:15 PM
    When my hubby was released from his last trip to the hospital he only weighed 160 pds from his original weight of 200. At first I just gave him "healthy foods" and avoided sugar. I learned that sugar isn't a fuel for cancer at all since then so I began giving him anything he wanted. I take him food four times a day (small meals) and include the ensure plus. Sometimes I'll blend the ensure with bananas, peanut butter and protein powder. He has actually gained 20 lbs back and I'm thrilled. He's still picky but at least he'll eat and the pounds are coming back on. Good luck and let us know how it goes for you.
  24. Like
    RandyW got a reaction from Cheryncp123 in They're calling it "Chemo Fog"   
    have you tried smoothies by chance ? add some muscle and protein powder from a GNC or health food store like body builders take??? some frozen fruit strawberries yogurt and milk and it should be whole or heavy cause needs the fat in it.. Not sure bout the cheom fog situation though.... will see who I can get to chime in and help!!! A friend of mine suggests Carnation instant High protein Breakfast with ice cream to a  milk shake consistency and also very imporrtant is eat and feed when your hungry not on a schedule!!!
  25. Like
    RandyW got a reaction from BlueWolf6457 in Being my sisters keeper   
    post deleted and for now Member reported and blocked from posting...
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