Tomm

This was the 1st time I got to wait 6 months to get my CT and results are NED. I get to wait 6 months again. My 6 year cancerversary is in two days. This is 2 1/2 years after Durva treatment is finished. 
2 jokes bonus
Q: Why don’t oysters share their pearls?
A: Because they’re shellfish!
Q: What kind of candy do you get at the airport?
A: Plane chocolate!
 

This was the 1st time I got to wait 6 months to get my CT and results are NED. I get to wait 6 months again. My 6 year cancerversary is in two days. This is 2 1/2 years after Durva treatment is finished. 
2 jokes bonus
Q: Why don’t oysters share their pearls?
A: Because they’re shellfish!
Q: What kind of candy do you get at the airport?
A: Plane chocolate!
 

RonH... Great news!!  You earned you Duva membership ...
Q: What travels all around the world but stays in one corner?
A: A postage stamp!
 

This must be CT season. Even though I didn't "graduate from the Durva club" by only making it to 18 Infusions before being shipped off to the ALK+ mutant gang and started on a Targeted Therapy drug, ALECTINIB, I had my quarterly CT yesterday. Although I don't see my ONC till Thursday, I read the Radiologists report this morning. 
IMPRESSION: Stable exam without evidence of local recurrence or thoracic metastatic disease.
😃

Yay Tomm. This was my first 6 month wait as well. We are blazing trails!

This was the 1st time I got to wait 6 months to get my CT and results are NED. I get to wait 6 months again. My 6 year cancerversary is in two days. This is 2 1/2 years after Durva treatment is finished. 
2 jokes bonus
Q: Why don’t oysters share their pearls?
A: Because they’re shellfish!
Q: What kind of candy do you get at the airport?
A: Plane chocolate!
 

Hey all you gals and guys NED!! So happy to hear...hugs and kisses.
Yep, Rower..luv ya and think of my contact with you that dreadful day often. My heart still sad for my hubby. He was a real good guy and never once complained thru that long PanCan "journey". 
TX for your support.  
Anyway, I'm not on site too often as I'm caregiving for my Mom. Last 6-7 years and been one thing after another. And oh yes, I got a puppy who is now 2 and keeps me crazy busy. 
Happy for ya all.. Barb, Jersey girls, Tomm and the entire Durva club.  Wondering does anyone get to stretch scans out to 6 months or annually now??
Rower, 4 years!?   Really??  You always gave me hope!! Thank you. My heart is singing! (Corny but true)
I guess we're part of the new stats now, huh??
Love you all!!
Ps:. Wondering if anyone else has other health blips now going on and wonders/worries if it's the C, radiation or treatment result?  I now have a Cardio doc.
Opal
 
 

Barb..I remember  when we started at the  same time just a week apart great news to hear you are still NED!! In what state does the Willamette River flow?… Liquid

Barb and Rower I'm on the same train your two are. Scan this friday, 2 1/2 years since last durva...   Scanxiety time until results are known... 
What did the beach say to the tide when it came in?
Long time, no sea.

Still NED here too!   

Barb and Rower I'm on the same train your two are. Scan this friday, 2 1/2 years since last durva...   Scanxiety time until results are known... 
What did the beach say to the tide when it came in?
Long time, no sea.

Barb..I remember  when we started at the  same time just a week apart great news to hear you are still NED!! In what state does the Willamette River flow?… Liquid

Barb..I remember  when we started at the  same time just a week apart great news to hear you are still NED!! In what state does the Willamette River flow?… Liquid

Barb and Rower I'm on the same train your two are. Scan this friday, 2 1/2 years since last durva...   Scanxiety time until results are known... 
What did the beach say to the tide when it came in?
Long time, no sea.

Tom-we ended Durva about the same time. I’m thrilled to report that I am still NED!!!  I’m sure you will do well too!
michelle-how was yours?

Kelvin ... My only side effect was fatigue, when Durva was new my oncologist was not checking my thyroid and my tsh went up to 139, I needed a cane in my house. When he did check it I was given Levothyroxine and that fixed it.  It turns out Durva effects most peoples thyroid and the doctors now know this. No others side effects, I ate well, slept well and my hair grew fast.
Joke  Q: How are people during a heat wave like clothes?
A: Their sweaters.

Hi Kelvin...  Here is my story that I posted last September.
After all the tests I was diagnosed with Stage 3a lung cancer in September 2016. The oncologist's prognosis was 6-18 months. I didn't know if I could go into remission and  added a Naturopath oncologist to my team. She helped me to use the correct supplements with chemo , I got the standard taxol-carboplatin and 30 days of radiation to 4 targets at the same time. I also used a lot of pure oil, 1 gram of CBD in the morning, 1 gram half THC and half CBD at dinner and a gram of THC at bedtime. I went into total remission for two years and then had a recurrence putting me at Stage 3c. I did a repeat, same chemo-radiation and oil. I went into remission again and  lucky me after that I got to take Durva. I have been in remission for 3 1/2 years now.  When I got my Durvalumab infusions I called it my picnic day and brought my ipad, earbuds and a nice lunch with a chocolate bar. I try to only eat Organic food. 
A joke...
How do we know that the ocean is friendly?
It waves!
 

Another CT tomorrow to see if all is still good. 2 1/2 years since last Imfinzi. 
hey Jersey girls, great to see you both still going strong. We are a tough breed. 
hugs and kisses 😘 

OPAL!!!!! 
So nice to hear that you are doing well.  We "walked" side by side through the scariest of times (plus the pandemic was rearing it's ugly head).    Yes, you are the perfect example that there is life on the other side of this.  Jersey girls are tough!!!   Love and hugs... Michelle 

Hi Kelvinn, I read about your Mom and had to post as Tomm did. I was 3a and went thru the chemo, rad and 26 weeks of Durva finishing in Nov 2019 (if I remember correctly...I try to put that past behind me tho thankful for the treatment and wonderful doctors etc. And this forum for sure!!)
Anyway like Tomm, I'm almost 3 years NED.  Yay! Due for next 6 mos CT in September. 
Please tell your Mom to have faith and hope.  At time of diagnosis, I was a zombie fearing how could I ever get thru that regiment of treatmemt!?  I did it and survived (without a port no less).  At this time, my husband was going on 3 years in doing treatments for PanCan.  Life was a B_ _ _ _! 
My Rad doc was great! He told me "attitude is everything", keep smiling, and eat eat eat! So I did. 
Fatigue was a side effect and I still do not sleep as I did before treatments. I recently learned I have broncheiastasis and I have an annoying cough.  If that's what I must deal with now, I feel blessed. 
The best to your Mom and you. 
 

Kelvin ... My only side effect was fatigue, when Durva was new my oncologist was not checking my thyroid and my tsh went up to 139, I needed a cane in my house. When he did check it I was given Levothyroxine and that fixed it.  It turns out Durva effects most peoples thyroid and the doctors now know this. No others side effects, I ate well, slept well and my hair grew fast.
Joke  Q: How are people during a heat wave like clothes?
A: Their sweaters.

Hi Kelvin..  The good news is your mother is getting the 1st new lung cancer treatment in decades.  Before Durva the only treatment after Chemo/Radiation was wait and see (when the cancer returns). It came out of clinic trials in May 2017 and is given the  best chance for long-term survival in a curative intent setting. I have been cancer free for over two years since my treatment. Don't look at old information about survival rates as most are from 5+ years ago. Be here now. Eat healthy and know that it works for most people.  Ask or vent anything here.  
best wishes for you mom 
 
and now a joke...      
“Thoughts are great, but Ativan and pot are better.”

Hi Kelvin..  The good news is your mother is getting the 1st new lung cancer treatment in decades.  Before Durva the only treatment after Chemo/Radiation was wait and see (when the cancer returns). It came out of clinic trials in May 2017 and is given the  best chance for long-term survival in a curative intent setting. I have been cancer free for over two years since my treatment. Don't look at old information about survival rates as most are from 5+ years ago. Be here now. Eat healthy and know that it works for most people.  Ask or vent anything here.  
best wishes for you mom 
 
and now a joke...      
“Thoughts are great, but Ativan and pot are better.”

Hello All...
I thought I'd visit this really quiet support forum. I don't see questions coming from new Durva people or anyone telling us how their infusions are going and if they are having any side effects or questions.  How is your blood work, fatigue? Are you having your TSH checked? Mine went up to 139 with no one testing, normal is .3 to 5 mU/L.  Get your Pd-L1 checked too.
I want to share my good news with my fellow travelers. Today is my 5 year canceranniversary. After all the tests I was diagnosed with Stage 3a lung cancer. The oncologist's prognosis was 6-18 months. I didn't know if I could go into remission and  added a Naturopath oncologist to my team. She helped me to use the correct supplements with chemo. I got the standard taxol-carboplatin and 30 days of radiation to 4 targets at the same time. I also used a lot of pure oil, 1 gram of CBD in the morning, 1 gram half THC and half CBD at dinner and a gram of THC at bedtime. I went into total remission for two years and then had a recurrence putting me at Stage 3c. I did a repeat, same chemo-radiation and oil. I went into remission again and  lucky me after that I got to take Durva. I have been in remission for 3 years now.
I want people to know there is hope and Durva does work for many. 
Stay safe.
old joke   ....My aunt’s star sign was cancer, pretty ironic how she died. – She was eaten by a giant crab

Hello Fellow Travelers on the Cancer Train.
I was treated for stage 3 lung cancer 5 years ago and one of the targets was next to my esophagi's. The radiologist was sure I would get a sore throat, have trouble eating and swallowing. My naturopathic oncologist told me to eat a spoon full of Manuka honey on the way to radiation, a spoonful after treatment and one before bed. I had no sore throat, no trouble swallowing and no trouble eating (didn't loose an ounce). The radiologist was very surprised. This link is from a clinical trial from NIH.   https://clinicaltrials.gov/ct2/show/NCT01262560     The honey only comes from New Zeland and comes in different strengths but any honey will help. I hope this is some help to people on their journey.
Manuka honey may prevent or reduce esophagitis-related pain caused by chemotherapy and radiation therapy.
What do you call a snowman that tells tall tales?
A snow-fake!
Why did the girl keep her trumpet out in the snow?
She liked playing cool jazz.
enjoy the season,  Tomm