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Shoosy1

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Everything posted by Shoosy1

  1. Shoosy1

    xrays

    Hi Bes- I'm sorry for your husband's missed diagnosis. My husband too had been going to hospital since November of last year and we have lost count of the number of CT scans and xrays. NO ONE found his 7 mm mass that is now in his chest wall and rib until mid August. My husband and I are both new here too, out of sad necessity, but everyone here has been ver supportive and kind. We found out from our new oncologist last week that he is not a candidate for surgery as there would be too much tissue loss, and it would kill him. Radiation isn't an option at this point either, why I don't know. The doctor told us this is incurable, but treatable. So we are only left with chemo. He starts his first cycle on 10/9. We meet again with the oncologist this coming Friday to go over stuff, and hopefully to find out the genetic marker tests. Perhaps he will be a candidate for Keydtuda or Optiva or Immunotherapy. We just have to keep faith in our superb team of medical professionals, in our ability to stay strong fight and in God's grace. In the meantime I have purchased 2 books regarding cancer and supportive adjunctive therapies and practices such as radically changing his diet, clearing out our house of all synthetic and chemical cleaners, soaps etc. Most days I find it hard to breathe (my own anxiety) on the way home from work, but at least I will be focusing on the positive now and forcibly keeping negative thoughts away from my panicked brain. I know my husband needs me to stay level-headed, which I normally am. He needs me to be just as strong as he is, and we will get through this, no matter what. We both have been totally blind-sided by this diagnosis, but it is what it is, and we will FIGHT this beast. Just keep breathing......and notice that your husband doesn't have an expiration date stamped on his forhead! I have made a joke of this, and will peek at hubby's bottom.......NOPE- not there today! Or look at the soles of his fee!-----nope, not there today either! It focuses our attention to LIVE today and to keep breathing and moving and loving each other. Peace and love to you all.....HOLD on Bes! Shoo2
  2. Hello everyone I am a new member and I have to thank my darling wife for finding this site. She is my rock!!! Since October of 2016 I have been backwards and forwards to the hospital with recurring abdominal pains, bloating, nausea and vomiting. I have lost count of the MRI's, CAT scans and x-rays that I have been through. The majority of ER docs have gone down the road of diverticulosis and have viewed the scans with concentration on the GI track. They keep me in hospital for a couple of days, feed me drugs via IV then send me home. A few days or weeks later I'm back again with the same symptoms!! Nobody seemed to know exactly what was going on. Early August I was back again and was lucky enough to have a gastroenterologist on duty in the ER. He ordered yet another MRI, endoscopy, colonoscopy and barium swallow. Apart from removing a couple of polyps during colonoscopy he found nothing! Mid August I was back again and yet another MRI. I thank the good Lord that this particular ER doc did not just concentrate on the GI track but went above and beyond to study the whole picture. Then it came, "I'm sorry to tell you Sir, but we've found a mass on your left lung." I went cold and couldn't think of a thing to say. All I could think of was how the heck do I break this to my dearest wife? Ultimately there was only one way, direct and straightforward and draw our battle plans! The next step was a needle guided biopsy. I was informed that the results would be back in 48 hours. Two days later I was informed that the local path lab could not be certain and had sent the specimen to a more specialized lab and this would take a further 5 days! I guess I don't have to tell the majority of you guys that the wait is horrendous! Eventually the report came back and I took it to my Primary Doc for translation. After all the waiting I braced myself for the worst but no, here we go again!!! It turns out that the lab did not receive enough tissue for complete analysis!!!!!! But hey, I am blessed with having an absolutely wonderful primary and he immediately referred me to an oncologist and a PET scan. I waited a week for the PET scan which was 2 days ago and now have to wait until Monday for the oncologist appointment. My wife is a little nervous that this doc is not board certified but at least we are hoping for some definitive answers. If it turns out that we get the worst news then my wife insists that we find a board certified oncologist. Any thoughts on this??????? Thanks in advance for listening and we'll post developments as they occur.
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