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Roz

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Posts posted by Roz

    Phase I Clinical Trial

    in KRAS

    Posted

    So, on December 1, I started a Phase I clinical trial (RMC 4630 + Cobimetinib) in the hopes of stabilizing or slowing the growth of my Stage IV NSCLC KRAS G12D mutation.

    However, after 8 weeks, the CT showed accelerated growth of the cancer in both lungs so I'm now off the trial.

    There don't seem to be viable options for KRAS G12D.. The onc is suggesting Taxotere.

    Anyone know of anything that is working with KRAS G12D?

     

    Thanks,

    Ro

    NED by Email....

    in MEMBER UPDATES

    Posted

    Tom,

    I also did an NED dance for you!

    I wanted you to know that I took your advice and will see a radiation oncologist on Thursday on zoom for a consult.

    I'll let you know if there's anything he suggests!!

    I most likely won't be on the Friday night zoom this week because my son is coming in for the weekend. But I'll fill everyone in at the one after that.

    Best,

    Ro

    scans tomorrow

    in MEMBER UPDATES

    Posted

    I met with my oncologist (virtually) and the scans show that the cancer has continued to grow in both lungs.

    It's also becoming more solid and the size of the multiple nodules is of concern.

    We are waiting until the end of September to see if I get a slot in the just activated clinical trial that I have been waiting for.

    However, she told me that she has no way of knowing who would get the slots. Apparently only 3 slots will open? She also thinks a Clinical trial is risky, without data on humans, and thinks I should consider different chemo drugs than I had in 2018. Since I have KRAS G12 D which to my knowledge hasn't been overly responsive to chemo, I'm extremely hesitant. 
    So, that's where things stand at this point.

    Take care everyone,

     

    Ro

    Not great news on PET CT

    in MEMBER UPDATES

    Posted

    Hi Teri,

    If there's one thing to be sure of, there is nothing about lung cancer to be sure of. It seems like there are so many exceptions to what typically happens.

    Sounds like you have a great oncologist given the approval of your surgeon! As the options for treatment are presented, I know you will make the best decision for you and your particular cancer. It's so scary and the fact that 6 months ago everything looked okay is even more frightening. 

    I'm thinking of you and hoping there's a treatment plan put together soon!

     

    Best,

    Ro

    VATS or Thoracotomy for 2 lobes at same time

    in INTRODUCE YOURSELF!

    Posted

    Hi Martha,

    I had my lower left lobe removed with VATS surgery in Sept 2017 and my upper right lobe was removed October 2017 by Thoracotomy because the mass was 9.7cm big and the surgeon couldn't do it with VATS. Sometimes when they get in there, they have to be ready to switch from VATS to thoracotomy. So, I have 3 lobes now. Recovery was definitely harder with the thoracotomy but there really wasn't a choice as it was decided during the surgery. I did fly the end of Dec. 2017 to the Bahamas prior to beginning chemo. I don't remember there being an issue with flying!

    Best of luck,

     

    Ro

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