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Roz

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Posts posted by Roz

  1. Hi MaryLou,

    I'm happy to hear that you are feeling pretty well after having undergone a lobectomy. My guess is that little by little you will start to feel better, breathe better, and cough less. I'm sure it feels great to be out of the hospital. Just remember to take it slowly at first and give your body time to heal.

     

    Best,

    Ro

  2. Sajid,

    It sounds like your wife is doing so much better with the targeted treatment. 

    The weight loss can be scary. Hoping that the dietician will give you suggestions to help. Sometimes having 6 small meals a day that are high in calories can help, especially if she feels full after eating.  The fact that her cough is better is positive.

    I hope her targeted treatment continues to work and that her upcoming scans in July show reduction in her cancer!

     

    Best,

    Ro

  3. Hi Salem,

    I don't like when the medical community says something is not curable. I choose not to believe that and its so much better that way. Who know what treatments will be available with research? I never give up hoping for a treatment.

    Hard to answer your questions yet as you don't have results of the biomarker testing. 

    So glad you found our Lungevity community.

    Best,

    Ro

  4. Hi LilyMir,

    It's devastating to learn that you have lung cancer no matter what the stage. 

    I'm so sorry that your stage is different than you initially thought. 

    Once you get the results of your biomarker testing, there may be a targeted therapy.

    If not, your team will hopefully have other treatment options for you. I totally understand your feelings of fear and sadness. There are many long term cancer survivors on this forum and as you hear from each of them you will realize that HOPE is alive and well in our community.

    We are here for you.

    Please ask any questions too!

    Best,

    Ro

     

  5.  Tom,

     I can ask my doc again. Last time I asked, she said that it would be like  getting a needle biopsy for every one and where I have more than ten nodules that are varying from 1-1.8 cm in the lower right lobe, and then two more in the lower left lobe area..radiation wouldn't be an option that would work. Still waiting for a phase 1 trial at this point.

    Good luck to everyone out there!

     

    Ro

  6. Kleo,

    I'm hanging in there! Sorry to hear about your muscle pains but it sounds like good news that the docs are attributing what they saw on the scan as inflammation!!

    Thinking of you,

     

    Ro

     

  7. Kleo,

    I had a bunch of different procedures done before my two surgeries. The first was a bronchoscopy, the next was a transthoracic lung biopsy where you are basically awake enough so they can give you directions, but you don't really feel anything, and then and endobronchoscopy where they go in with the navigational type camera..I think they were all considered day surgery procedures..So, I don't think I've experience the needle biopsy yet. I'll be waiting to here from you about what that experience is like..

    Take care,

     

    Ro

  8. Kleo,

    I was asking because I have been told that the 5 new nodules in my lower right lobe are too small to biopsy. I was curious about the size of yours. Sure wish there was a way to keep these nodules from popping up..How are you doing otherwise? You and Bob certainly have a great sense of humor!!

     

    Ro

  9. Kleo,

    I don't think there are any words that really help when dealing with all of this. Just know that there's a whole group of us here that are routing for you and continuing to send positive vibes and support your way. Waiting for your update after you see the onc...

     

    Best,


    Ro

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