Roz
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Everything posted by Roz
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Great news Charles!! Best, Ro
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Shelkay, Such fantastic news!! I'm really happy for you!! Best, Ro
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Tom, Enjoy every cruising moment!!!! Ro
- 4 comments
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- enjoying life with lung cancer
- importance of vacations
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Kleo, I'm hanging in there! Sorry to hear about your muscle pains but it sounds like good news that the docs are attributing what they saw on the scan as inflammation!! Thinking of you, Ro
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Kleo, I had a bunch of different procedures done before my two surgeries. The first was a bronchoscopy, the next was a transthoracic lung biopsy where you are basically awake enough so they can give you directions, but you don't really feel anything, and then and endobronchoscopy where they go in with the navigational type camera..I think they were all considered day surgery procedures..So, I don't think I've experience the needle biopsy yet. I'll be waiting to here from you about what that experience is like.. Take care, Ro
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Kleo, I was asking because I have been told that the 5 new nodules in my lower right lobe are too small to biopsy. I was curious about the size of yours. Sure wish there was a way to keep these nodules from popping up..How are you doing otherwise? You and Bob certainly have a great sense of humor!! Ro
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Kleo, Where is your new nodule located? Only 6 days to go for your biopsy! Hoping all goes as smoothly as possible! Ro
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Kleo, So you are having a biopsy on the 27th? How large did they think your mass is that they are going in with a needle biopsy? I hope you get some answers. What is your specific cancer mutation? Ro
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Bob, You are such a funny guy!! Glad you are in our corner!! Ro
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Kleo, I don't think there are any words that really help when dealing with all of this. Just know that there's a whole group of us here that are routing for you and continuing to send positive vibes and support your way. Waiting for your update after you see the onc... Best, Ro
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Bob, I hope you feel better soon!! You certainly have a great sense of humor and attitude!! Be well, Ro
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Kleo, That's tomorrow!!! Good luck with the scan!! Ro
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Great news Bob! Hoping it continues to go smoothly!! Ro
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Kleo, Sounds like all went well! Sending healing thoughts your way! Ro
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Another recurrence, another call to Mom and Dad
Roz commented on Susan Cornett's blog entry in Susan Cornett
Susan, I'm sorry I didn't see this sooner as I would have responded right away. So happy to hear that today is a better day. I hope that the treatment starts as soon as possible and completely understand your frustration and feelings of anxiety. Here's to many more sunrises and sunsets ahead!! Ro -
Another recurrence, another call to Mom and Dad
Roz commented on Susan Cornett's blog entry in Susan Cornett
Susan, I totally agree that explaining and discussing this with our parents is one of the most difficult parts of the process. I see the pain in their eyes and feel so badly to be putting them through all the worry. No matter how we say it, they will be scared...I don't blame them as I would feel the same if it were my children. What is super doc's plan for treating this recurrence? Best, Ro -
Still feel that way Susan-every single day!! Ro
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Susan,
I'm sorry to hear that you have had another recurrence. You have been an inspiration to me!
Even though we have never met, I feel as if we are connected somehow. I send you strength and continued support.Ro
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So true and well written Tom! Ro
- 3 comments
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- scanziety
- waiting for scan results
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Susan, Since receiving the lung cancer diagnosis last summer, I have come to realize that no matter what I feel on the inside, it really is inside me. People do not look at me and see differences, because the scars are hidden. Sharing information with others who are dealing with difficult situations, and/or responding on these forums, has been extremely beneficial. I try to live my life with a smile on my face and recognize that there are many people in the world who need support because their situation is even more difficult than mine. When I go about my day, I can function in my "new normal" and feel quite well physically and emotionally. It's leading up to that next scan that the anxiety sets in..but as Tom said in his post, to stay the course is so important. I wish I knew what else to say. As KatieB said, we did not choose cancer, but once faced with it, we have to figure out how to beat it, stay strong, and move forward. I'm with you and your struggles!!! Ro
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You bring hope and inspiration to those of us living with Stage 4 adenocarcinoma! My situation was similar to yours in that I was in excellent physical shape, no history of smoking, etc..age 61..Shock to everyone, etc.. Unfortunately, I have been hearing that this is happening more often. Stay strong!!
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Hope? Sure, let's talk about hope! Hope is...well, what is it, exactly?
Roz commented on DanielleP's blog entry in Caregivers Connection
Tom- The words you have written here are beautiful!! Thank you for taking the time to write it and to share it! Ro- 2 comments
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- hope
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Bill and Heather, You are both so inspiring! Thank you for everything you are doing to spread the word!!
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Susan,
It was so encouraging for me to read that you are a Stage 4 adenocarcinoma survivor. You are the first person that I have connected with who shares this diagnosis with me. I know there are others out there, but I have not crossed their paths. I have had my lower left lung lobe removed (VATS) and my upper right lung lobe removed (open chest surgery), and then three rounds of chemo. My follow-up CT in March was clear. I will have CT's every 3 months for two years. I would really like to connect to other survivors and also people who have had the thoracotomy surgery. Thanks for being willing to share your knowledge and encouragement.
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This site was my beacon of hope in a very dark moment of my life. Donna and Tom are both LONG term survivors, and they were treated years ago when we didn't have the options we have now.
I'm also on the 3 month protocol for CTs; my next scan is next week. I made it a year after surgery before my recurrence, so I'm hoping i'm good for a while longer.
I'm on here (usually) on a daily basis. Glad you found us.
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Tom-How did your body respond to complete removal of the lung? How have you adapted?
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Roz,
How did my body respond to my lung removal? I was well on the way to surgical recovery until about 5 days after hospital discharge. Then I started running a high fever and was back in the ICU and that started a year's worth of surgical complication. Once this resolved, tumors were found in my left lung so I went from surgical mayhem to chemotherapy mayhem that lasted 2 years. I have chronic pain because the surgeon had to re-enter my chest in incision area for 3 operations and I've suffered substantial nerve damage. That is unusual. Most I know only have one procedure and recover quite quickly.
How have I adapted with one lung? Well -- I can walk enough to enjoy touring though cities while on vacation. I can't run very far. I get winded climbing moderate hills but managed all the steps to get to the Edinburgh Castle from street level. I hope this helps.
Stay the course.
Tom
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