Jump to content

Roz

Members
  • Content Count

    344
  • Joined

  • Last visited

  • Days Won

    8

Reputation Activity

  1. Like
    Roz reacted to Susan Cornett in Ready for yet another new normal   
    I had an appointment with Super Doc on Thursday. He said to stay home as long as my job will allow me too - he said the risk of exposure is just too high. He's hopeful a vaccine will make some impact but that won't be a reality for 6 to 12 months, so I'm home until then. I told him I was more scared of the virus than a lung cancer recurrence because I felt sure the virus would kill me. He said it would.  He also quashed my trip - I knew he would and I knew it was the right thing to do. Still sucks.
    Hope you all continue to stay safe!
  2. Like
    Roz reacted to Tom Galli in Ready for yet another new normal   
    Susan,
    I had a similar conversation with my doctor Friday with the same prognosis--about of COVID-19 will put me in the grave. He says to stay inside (or well socially distanced in my front yard) and do not mix with the public under any circumstances. He's not even sure if a vaccine is enough protection and suggests I'll need to wait till herd immunity develops. That could be several years.
    So I am homebound and down to watching birds, answering forum message boards, and writing my novel.  Yes, I'll rig up my camera and get some photos of the "boss cardinal" and post them up.
    Stay the course.
    Tom
  3. Like
    Roz reacted to PaulaC in Ready for yet another new normal   
    Hey guys its been awhile since I've posted. It's really a different world right now. 
    I'm like the rest of you staying at home or going to one of my sons and watching a granddaughter.  My husband still works but was furloughed until last week which makes us both nervous. He's 72 and works at the airport. The only good thing about his job is it's not around a lot of people. We've been talking and have pretty much decided that when I go on medicare he'll retire. Medicare is another thing that worries me. 
     I'm lucky to see one of the grand babies because they were quarantined and working from home. We haven't seen my other son, his wife and their kids since January.  My daughter moved to Las Vegas for work in January so not only is she in a new city by herself we can go see her.
    I'm nervous about things opening up the virus getting worse. You guys stay safe and take care.
  4. Like
    Roz got a reaction from Tom Galli in Ready for yet another new normal   
    I've been thinking of all of you!! It's not easy to have the "lifting" of the precautions in the air and various phases for Covid.
    I have been to the beach but with at least 6-8 feet between me and anyone else. 
    But people are now onto outdoor dining with the 6 foot distance in place. I decided I should just email my Oncologist to find out what she thinks.
    So far, just staying in the house, or my car to go to the beach....
    Be well everyone!!
     
    Best,
    Ro
  5. Like
    Roz got a reaction from Tom Galli in 4 years!   
    Congratulations Susan!!!
     
    Best,

    Ro
  6. Like
    Roz got a reaction from Tom Galli in Cursin' On a Sunday Afternoon....   
    Tom,
    Enjoy every cruising moment!!!!
     
    Ro
  7. Like
    Roz reacted to PaulaC in Cursin' On a Sunday Afternoon....   
    My husband and I fellow cruisers and for us it’s just being on the ship. I’d love to to a transatlantic cruise one day. We missed cruising last year with the cancer stuff but won’t miss again. Have fun and enjoy!!🛳
  8. Like
    Roz reacted to ColleenRae in Taking a page from Tom's book   
    Loved seeing this Susan... Sorry for being late in congratulating you. I admire you and want you to know that it does inspire others, like me...
  9. Like
    Roz got a reaction from Moname3D in There are days....   
    Susan,
    Since receiving the lung cancer diagnosis last summer, I have come to realize that no matter what I feel on the inside, it really is inside me. People do not look at me and see differences, because the scars are hidden. Sharing information with others who are dealing with difficult situations, and/or responding on these forums, has been extremely beneficial. I try to live my life with a smile on my face and recognize that there are many people in the world who need support because their situation is even more difficult than mine. When I go about my day, I can function in my "new normal" and feel quite well physically and emotionally. It's leading up to that next scan that the anxiety sets in..but as Tom said in his post, to stay the course is so important. I wish I knew what else to say. As KatieB said, we did not choose cancer, but once faced with it, we have to figure out how to beat it, stay strong, and move forward. I'm with you and your struggles!!!
     
    Ro
  10. Like
    Roz got a reaction from Tom Galli in Another recurrence, another call to Mom and Dad   
    Susan,
    I'm sorry I didn't see this sooner as I would have responded right away. So happy to hear that today is a better day. I hope that the treatment starts as soon as possible and completely understand your frustration and feelings of anxiety. Here's to many more sunrises and sunsets ahead!!
     
    Ro
  11. Like
    Roz got a reaction from Susan Cornett in Another recurrence, another call to Mom and Dad   
    Susan,
    I'm sorry I didn't see this sooner as I would have responded right away. So happy to hear that today is a better day. I hope that the treatment starts as soon as possible and completely understand your frustration and feelings of anxiety. Here's to many more sunrises and sunsets ahead!!
     
    Ro
  12. Like
    Roz reacted to Tom Galli in Another recurrence, another call to Mom and Dad   
    Susan,
    SBRT is good stuff. It fried my non-cooperating tumor and resulted in my long tenured NED. I've done a lot of reading on the Abscopal Effect and this is reflective of what I've learned. We both share NSCLC that is resistant to targeted therapy and perhaps even immunotherapy, but my chemo-resistant tumor stopped growing and spreading after but three - 15 minute treatments by CyberKnife in early 2007.  I've had quarterly, then bi-annual scans since and all have been NED.
    Tell super rad-doc to lock and load and blast that son of a b&#*& into scar tissue!
    Stay the course.
    Tom
  13. Like
    Roz reacted to Susan Cornett in Another recurrence, another call to Mom and Dad   
    I meet with Super Radiation Doc on Wednesday - but it will likely be SBRT. 
  14. Like
    Roz got a reaction from Susan Cornett in Another recurrence, another call to Mom and Dad   
    Susan,
    I totally agree that explaining and discussing this with our parents is one of the most difficult parts of the process. I see the pain in their eyes and feel so badly to be putting them through all the worry. No matter how we say it, they will be scared...I don't blame them as I would feel the same if it were my children.
    What is super doc's plan for treating this recurrence?
     
    Best,
     
    Ro
  15. Like
    Roz got a reaction from Tom Galli in There are days....   
    Still feel that way Susan-every single day!!
     
    Ro
  16. Like
    Roz got a reaction from Susan Cornett in There are days....   
    Still feel that way Susan-every single day!!
     
    Ro
  17. Like
    Roz got a reaction from Susan Cornett in There are days....   
    Susan,
    Since receiving the lung cancer diagnosis last summer, I have come to realize that no matter what I feel on the inside, it really is inside me. People do not look at me and see differences, because the scars are hidden. Sharing information with others who are dealing with difficult situations, and/or responding on these forums, has been extremely beneficial. I try to live my life with a smile on my face and recognize that there are many people in the world who need support because their situation is even more difficult than mine. When I go about my day, I can function in my "new normal" and feel quite well physically and emotionally. It's leading up to that next scan that the anxiety sets in..but as Tom said in his post, to stay the course is so important. I wish I knew what else to say. As KatieB said, we did not choose cancer, but once faced with it, we have to figure out how to beat it, stay strong, and move forward. I'm with you and your struggles!!!
     
    Ro
  18. Like
    Roz reacted to Susan Cornett in There are days....   
    Thank you all for your thoughtful comments.  I guess, after two years, I'm still adjusting to the dreaded "new normal".  There are many aspects of this site that I enjoy, but coming here to write what is on my mind is probably the best.  My husband understands but you all really understand.  
    Wishing you a happy day!
  19. Like
    Roz reacted to KatieB in There are days....   
    I know many lung cancer survivors who feel this way too.  As a survivor- I also feel this way a lot. It's surreal.  The what-ifs are dangerous...and comparing this life with the one you used to have is also a bad thing to do.  
    I guess it's about taking things a day at a time until this life becomes your new normal.  The struggle is that cancer happened to you...it wasn't a choice you made...but now you're tasked with surviving it and making life good again.
    Many hugs for you.  Hope today is a better day.
     
  20. Like
    Roz got a reaction from Tom Galli in The Cadence of Scan Days   
    So true and well written Tom!
     
    Ro
  21. Like
    Roz got a reaction from Tom Galli in There are days....   
    Susan,
    Since receiving the lung cancer diagnosis last summer, I have come to realize that no matter what I feel on the inside, it really is inside me. People do not look at me and see differences, because the scars are hidden. Sharing information with others who are dealing with difficult situations, and/or responding on these forums, has been extremely beneficial. I try to live my life with a smile on my face and recognize that there are many people in the world who need support because their situation is even more difficult than mine. When I go about my day, I can function in my "new normal" and feel quite well physically and emotionally. It's leading up to that next scan that the anxiety sets in..but as Tom said in his post, to stay the course is so important. I wish I knew what else to say. As KatieB said, we did not choose cancer, but once faced with it, we have to figure out how to beat it, stay strong, and move forward. I'm with you and your struggles!!!
     
    Ro
  22. Like
    Roz reacted to Tom Galli in There are days....   
    Susan,
    Unfortunately, I still get hit right between the eyes.  Case in point, I've had a nagging congested chest condition with a "dry patch" in my throat since mid May.  My GP ordered and ENT endoscope consult followed by an MRI.  So alarm bells are ringing in my head!  Recurrence, even after long periods of NED is common.  Living with the threat is partly finding one's new normal, but the threat is always hanging around my mind and effects my day to day life.  For example, I pay close attention to medical expense and medical evacuation benefits on the travel insurance policy I now purchase for every international vacation.  And, I still have that scanziety drill for my two scheduled oncology consultations a year.
    Lung cancer really is part of my life.  It is ever present in my mind.  Sometimes, I am overwhelmed by its reality.  My only solutions is to....
    Stay the course.
    Tom
  23. Like
    Roz got a reaction from eric byrne in Hope? Sure, let's talk about hope! Hope is...well, what is it, exactly?   
    Tom-
    The words you have written here are beautiful!! Thank you for taking the time to write it and to share it!
     
    Ro
  24. Like
    Roz got a reaction from DanielleP in Hope? Sure, let's talk about hope! Hope is...well, what is it, exactly?   
    Tom-
    The words you have written here are beautiful!! Thank you for taking the time to write it and to share it!
     
    Ro
  25. Like
    Roz got a reaction from Tom Galli in Hope? Sure, let's talk about hope! Hope is...well, what is it, exactly?   
    Tom-
    The words you have written here are beautiful!! Thank you for taking the time to write it and to share it!
     
    Ro
×
×
  • Create New...