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Roz

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  1. Like
    Roz got a reaction from Tom Galli in NED by Email....   
    Thanks everyone!
    Good luck Lin Wiki!
    LexieCat-thinking of you!!
     
    I'll update as soon as I have news!
     
    Best,
    Ro
  2. Like
    Roz got a reaction from Lin wilki in NED by Email....   
    Thanks everyone!
    Good luck Lin Wiki!
    LexieCat-thinking of you!!
     
    I'll update as soon as I have news!
     
    Best,
    Ro
  3. Like
    Roz got a reaction from GaryG in NED by Email....   
    Thanks everyone!
    Good luck Lin Wiki!
    LexieCat-thinking of you!!
     
    I'll update as soon as I have news!
     
    Best,
    Ro
  4. Like
    Roz reacted to Lin wilki in NED by Email....   
    Being able to see family is the thing I live for!!  Ro I’m sure hoping you get a direction from radiologist
    Please update here!  I keep trying to get on the Zoom but last week I was wiped out from pulmonologist test and this week PET. After that the most dreaded test- biopsy. This will be my 3 rd. Under conscience sedation. That’s not the bad part. It’s waiting HOURS after for follow X-ray. No eating no drinking!  Dread it!  As well as what they find after and if I have any options. Trying not to think ahead 
  5. Like
    Roz reacted to LexieCat in NED by Email....   
    Good luck, Ro--got my fingers crossed for you! And have a great visit with your son--I was so thrilled to see my kiddos this summer. It was a real upper.  
  6. Like
    Roz got a reaction from Tom Galli in NED by Email....   
    Tom,
    I also did an NED dance for you!
    I wanted you to know that I took your advice and will see a radiation oncologist on Thursday on zoom for a consult.
    I'll let you know if there's anything he suggests!!
    I most likely won't be on the Friday night zoom this week because my son is coming in for the weekend. But I'll fill everyone in at the one after that.
    Best,
    Ro
  7. Like
    Roz reacted to Susan Cornett in NED by Email....   
    Tom - 
    I'm so happy for you! I've over here doing my NED dance just for you. Woo hoo!!!
  8. Like
    Roz reacted to Judy M2 in NED by Email....   
    Congratulations Tom! 
  9. Like
    Roz reacted to Lin wilki in NED by Email....   
    Such a long term survivor!  Gives us all hope
    Hope you have a wonderful connection with your new oncologist 
  10. Like
    Roz reacted to Babs in NED by Email....   
    Super good news Tom!  Hope you’re celebrating 🥳🎉
    Babs
  11. Like
    Roz reacted to DebM in NED by Email....   
    Great News Tom!   I am so happy for you!!!!
  12. Like
    Roz reacted to Steff in NED by Email....   
    FABULOUS news, Tom (about the scan anyway)!  Your news made my day!!!
  13. Like
    Roz reacted to JerseyRose in NED by Email....   
    Great news Tom. I am so happy for you
  14. Like
    Roz reacted to ColleenRae in NED by Email....   
    Tom - You post so often helping others, I'm ashamed I did not even know you recently had a scan yourself. This IS excellent news.  Couldn't happen to a better guy! Very happy for you.
    Sorry your oncologist is retiring, but I'm sure he was happy to give you this, his final report, with such good news.
    Okay, now that you and Teri have your trademark sign-off, the rest of us are going to have to get creative...!
  15. Like
    Roz reacted to LexieCat in NED by Email....   
    GREAT news! Heck, I'll take good news if it comes by friggin' carrier pigeon. 
    Since you've co-opted "stay the course," I'm adopting "rock on." 😎
  16. Like
    Roz reacted to GaryG in NED by Email....   
    Great news Tom. NED is good even if it arrives on the back of a camel. You deserve the best.
  17. Like
    Roz reacted to Sabacat in NED by Email....   
    👍👍👍👍👍
  18. Like
    Roz reacted to Rower Michelle in NED by Email....   
    Always good to get the all clear! Our best friend NED!   Rock on.  
  19. Like
    Roz reacted to Tom Galli in NED by Email....   
    I had my consultation at 1 pm with my oncologist today but the good news came by email this morning: "Tom, I just reviewed your CT scan from 8/31/2020 and there was nothing new on it. Everything appeared to be stable so no evidence for recurrent cancer. I thought you'd like to know."
    So we had a pro forma consultation that unfortunately included news that he's retiring from practice and we discussed who I'd like to see when he retires.
    A number of us were getting scans today and I hope everyone's news is as good as mine.
    Stay the course.
    Tom
  20. Like
    Roz reacted to Lin wilki in scans tomorrow   
    Roe I don’t know if you’ve been doing the Friday zooms. I haven’t because I’ve been feeling too crappy and fatigued. So I have scans next week and either Kadcyla isn’t working or I just can’t tolerate it. I don’t really get a break from side effects
    I haven’t seen an update from you  Did you get into the trial?   Or are you on another chemo?   Wishing the best for you
     
  21. Like
    Roz got a reaction from Lisa Haines in I’m new here-NSCLC   
    Hi Mam12198,
    I don't think it's necessarily a benefit to have the lung lobes removed. Everyone's case is unique. I had my lower left lobe removed in 9/2017 and my upper right lobe removed 10/2017. They got all the cancer and the masses were 8+ and 9+ cm in size. I had chemo and then the cancer recurred. They tried a phase I clinical trial with the personal cancer vaccine plus Tecentriq in May-June 2019 but it was stopped because I had 35% progression in the cancer. So, basically I have been waiting for a slot in a Phase I trial for a long time. There is no treatment for my kind of cancer (NSCLC-mucinous adenocarcinoma KRAS G12D)...So, waiting is all part of this process. My cancer has continued to grow and is in both sides of my lungs but it's considered a more gradual growth and I'm asymptomatic. Let me know if you have any questions and best of luck to you!
     
    Take care,

    Ro
  22. Like
    Roz got a reaction from Lin wilki in scans tomorrow   
    Hi Lin Wiki,
    I'm sorry to hear that your treatment isn't working.
    I'm hoping your oncologist finds a trial for you.
    That's good about your lymph nodes!
    Hang in there! Seems like we just get used to waiting and waiting! 
    Best,
    Ro
  23. Like
    Roz got a reaction from GaryG in scans tomorrow   
    Hi Lin Wiki,
    I'm sorry to hear that your treatment isn't working.
    I'm hoping your oncologist finds a trial for you.
    That's good about your lymph nodes!
    Hang in there! Seems like we just get used to waiting and waiting! 
    Best,
    Ro
  24. Like
    Roz got a reaction from Tom Galli in scans tomorrow   
    Hi Lin Wiki,
    I'm sorry to hear that your treatment isn't working.
    I'm hoping your oncologist finds a trial for you.
    That's good about your lymph nodes!
    Hang in there! Seems like we just get used to waiting and waiting! 
    Best,
    Ro
  25. Like
    Roz reacted to Lin wilki in scans tomorrow   
    That’s still a wait!  Hope you get in the trial!   Good luck and keep us posted
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