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Ann Cronin

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Everything posted by Ann Cronin

  1. Thanks, ladies, I sent an e-mail to the nurse.... you guys are the best!
  2. Hi, all, I had my second chemotherapy treatment last Thursday. Just starting today I feel bruised all over, like I've been beat up. Is this a common side effect? I'm on Cisplatin & Alitma. Thanks in advance for input! Ann
  3. Thanks so much Ro, Tom, all! Sharon, completely forgot to mention... the clothing on skin thing.... YES!!! I can validate how you're feeling! It's not 24/7 for me but often times I am pulling my shirt away from my torso for relief! Yours is the first post I've read in relation to this and I'm grateful I'm not the only one in the world that feels this way. If you're walking 5 miles........ I feel like you're way ahead of the game! Best of the best wishes to you for full recovery! Ann
  4. Hi, Roz, I had upper right lobe removed and my pre-surgery pulmonary eval was excellent. Really had no symptoms of cancer, a bout with pneumonia showed disease.
  5. Hi, Sharon, It's been almost 6 weeks since my traditional open lobectomy. I am also discouraged but I'm told time and again "It's a big surgery". I've also learned from folks, as others have stated here, everyone and every surgery is different so the recovery is different for each of us. I've learned that some will recover within a month or two and others could take a year or more.... so like you, I'm pretty discouraged. I was put on Gabapentin and it works "ok" though I found that it made me very emotional and my legs felt like jelly so I went off. Well, I'm back on because of the
  6. Thanks, all, very much appreciate input and advice as always. The nausea is mostly controlled today... mostly..... already treatment weary and I've only just begun. You all amaze & inspire me, Ann
  7. The only med that is specific is the Dexamethasone (which states 2 tablets on days 2, 3 and 4 of treatment cycle) - the other two are "as needed every 4-6 hours".
  8. Also.... I've been drinking water to stay hydrated. I feel like drinking the water is making me more nauseous, is it terrible if I don't drink a ton of water tonight? Thanks, all...
  9. All, Had chemotherapy today. For some reason I was under the impression that nausea began day 2 or 3. I'm feeling pretty nauseous right now (7 hours after chemo drugs administered). For some reason I can't remember if my doctor addressed if it is safe to take anti nausea meds so soon? Anti nausea meds were given intravenous today prior to the cisplatin & pemetrexed. Is it safe to take this evening? I have Compazine and Zofran. I know the Dexamethasone I can't take until tomorrow. Appreciate feedback!! Ann
  10. Great news! I'm 4 weeks out of an open lobectomy (not as invasive as yours) but a big surgery just the same. Try not to get discouraged in the healing process, it will come. It seemed like each week I turn a corner in regards to not as much pain and the ability to do more. I try to describe it to my daughter, all that's going on in my torso... "It's like a pulling, burning, bruised feeling in addition to zings, zangs and spasms.." SO much going on - apparently all normal. So glad they got it all, keep us posted!
  11. Thanks for the replies, all! Being that chemotherapy tends to bring those white cells down, I would think it would be standard to give the Neulasta (or Neupogen) instead of waiting for a potentially dangerous situation. I'll be inquiring next week.... Thanks, Ann
  12. Hi, All, Has anyone been given Neulasta after chemotherapy treatment? As I understand it, it's to boost your white blood cells. I'm going to ask at my chemo teaching session but I've not seen anyone mention this drug. My co-worker went through nclc treatment last year, she said she was given the drug 24 hours after each treatment. Thanks, Ann
  13. Wow! Thanks for that info.... any fever at all including low grade?
  14. Yikes! 7 sticks! Guess I will see how it goes, there wasn't any mention of a port... I started taking the folic acid today orally. I had asked on my other post about the steroid and wondering why my Doc doesn't have me taking it prior to treatment - only after treatment. I was prescribed the 2 additional nausea meds (same ones you mention) to take as needed. Thanks for the web site reference - I'll check it out!
  15. Hi, Roz, thanks for the response. I will be having treatments closer to home at the Seacoast Cancer Center in Dover NH. Why did they switch your meds from Carboplatin to Cisplatin?
  16. My prescription for the Dexatrone states to take once daily on days 2,3 & 4 of chemo cycle. Didn't realize it was for nausea, that means I have 3 nausea meds.. yikes!! I need to somehow get my mind ready for this because right now I want to run as far away as possible You all are so brave....
  17. Thanks, Judy, really not looking forward to this..... I was hoping I wouldn't need a port? I don't usually have an issue with finding a vein so I guess I'm confused as to why one would benefit. I thought they were used when chemo treatments were more frequent than once every 21 days. The steroid & gaining weight.... wondering what the purpose of that is? In addition to feeling like crap, hair thinning.... now they want to pack a few pounds on us? Dang..... Ann
  18. Hi, all, I'll be starting chemotherapy next Thursday. The chemotherapy drugs are Cisplatin & Pemetrexed. I'm not seeing any references to these 2 drugs in this forum, I'm seeing Cisplatin and Paclitaxel. If anyone out there has any experience with the combo that will be used on me I would appreciate some feedback! I've briefly googled what the differences are in the two combos - not finding much except perhaps the Cisplatin causes more nausea? Thanks in advance for input! Ann
  19. I will be praying for you, Marc! You're not alone, we are all pulling for you and will be anxiously waiting to hear from you as you recover.
  20. Good morning, Mike.... John? I'm a newbie as well so I can't speak to all the medical lingo described from your PET scan. I feel like I've learned quite a bit on some topics since Jan 14th (my D day). Unless I'm completely misinformed, many things can cause areas to "light up" on a PET scan. Infections can cause lymph nodes to swell and light up. I've also learned that the only proof positive way to diagnose cancer is with a pathology report of an actual biopsy. With everything you describe in regards to your GI issues/procedures I would almost expect the PET to reveal something goin
  21. Sounds about right but be sure to let them know you’re available if they get a cancellation! That squeaky wheel got my PET rescheduled 7 days early and also got me scheduled for this second biopsy a whole month sooner... Just keep swimming!!
  22. You sound just like me, I wanted everything done yesterday!! Apparently it is normal although I don't know why. I have found that the squeaky wheel does get the grease! I was a pest, I didn't wait for calls when I thought the call should have come in already. Also, for any appointment or procedure, I made sure they knew that I wanted a call if they had a cancellation, told them I was available no matter what time they gave me even if it was last minute. By nature I am not like this, I'm never pushy so this is new for me. Being diagnosed with cancer gives me a sense of urgency..... geeee..
  23. Thanks for replies, every case sure is unique! I'm under the impression that my nodules are in a place not easy to get to (upper right back of lung). I'm intrigued by the different initial techniques the different doctors navigate to. At this time I'm feeling I would want a confirmation through pathology report before opting for surgery but as you all well know, what we think today does not determine what we think tomorrow!! I actually have another question. If it turns out I need surgery, treatments etc., I will need to apply for short term disability through my employer because I've alr
  24. Good morning, The journey... just updating and I have a couple of questions. I had a PET on Thursday and a Bronchoscopy/EBUS on Friday. They biopsied 2 lymph nodes, Doc states they got plenty of tissue for pathology. I have an appointment scheduled with Doc on Thursday to go over results of both. Prior to the procedure, the Doc said that they do a rapid test here and now and can sometimes confirm the presence of cancer cells but no detail of type etc. He asked if I wanted to know the results of the rapid test, saying 50% of people do want the information and 50% do not. I chose not t
  25. WoW, Tom!! Just read your treatment history, just wow...... I would also like to thank you for your service to our country and I do thank you very much!
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