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Ann Cronin

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Posts posted by Ann Cronin


  1. Every 21 days. I'm on Cisplatin which is known for excess nausea. I think you had previously shared that you are on Carboplatin?? Carboplatin, apparently, does not cause as severe nausea as the Cisplatin. I've read different comments on the differences in the 2 drugs so I'm not entirely sure what the true differences are. I've read that Cisplatin is a cheaper med and also read that Cisplatin is more aggressive. I guess I should ask my Oncologist what the difference is..... I do know that if someone can't tolerate the Cisplatin, they are often then prescribed the Carboplatin.


  2. Glad you are finally on the treatment path, Paula! Hopefully you continue to tolerate the chemo, it's great news that so far you are not having any side effects. How many radiation treatments will you be getting? I initially thought I was going to be doing 5 weeks, found out yesterday that they want to do 6. Let us know how those treatments go, I'm not doing the chemo and radiation simultaneously - probably 3-4 weeks after I complete the chemotherapy I will begin the radiation. I'll be thinking of you & sending hugs!!

    Ann


  3. Thanks so much Ro, Tom, all!  

    Sharon, completely forgot to mention... the clothing on skin thing.... YES!!! I can validate how you're feeling! It's not 24/7 for me but often times I am pulling my shirt away from my torso for relief! Yours is the first post I've read in relation to this and I'm grateful I'm not the only one in the world that feels this way. If you're walking 5 miles........ I feel like you're way ahead of the game! Best of the best wishes to you for full recovery!

    Ann


  4. Hi, Sharon,

    It's been almost 6 weeks since my traditional open lobectomy. I am also discouraged but I'm told time and again "It's a big surgery". I've also learned from folks, as others have stated here, everyone and every surgery is different so the recovery is different for each of us. I've learned that some will recover within a month or two and others could take a year or more.... so like you, I'm pretty discouraged. 

    I was put on Gabapentin and it works "ok" though I found that it made me very emotional and my legs felt like jelly so I went off. Well, I'm back on because of the discomfort, using that and Advil regularly.

    One thing that is a comfort.... at first I thought that there was something wrong, perhaps I wasn't healing properly. Now I am pretty comfortable in knowing that what is needed is time... to heal.

    Tom - Hopefully you see this! I get a general sense that being that I had the traditional, open lobectomy, I could be dealing with the burning/pulling/pain for a solid12-18 months.... would you say that is accurate? (If I'm lucky, I should say, as your experience has been quite the rough road in regards to pain, it seems). It's pretty constant, tolerable sometimes but at other times it's truly painful! A friend of mine who had the surgery told me to expect the 12-18 months.... Also, I understand that having shortness of breath is normal, could you comment on how long that could go on? I'm having shortness of breath even just having a lengthy conversation - can you say if that is normal?? 

    Thanks,

    Ann


  5. All,

    Had chemotherapy today. For some reason I was under the impression that nausea began day 2 or 3. I'm feeling pretty nauseous right now (7 hours after chemo drugs administered). For some reason I can't remember if my doctor addressed if it is safe to take anti nausea meds so soon? Anti nausea meds were given intravenous today prior to the cisplatin & pemetrexed. Is it safe to take this evening? I have Compazine and Zofran. I know the Dexamethasone I can't take until tomorrow. Appreciate feedback!!

    Ann


  6. Great news! I'm 4 weeks out of an open lobectomy (not as invasive as yours) but a big surgery just the same. Try not to get discouraged in the healing process, it will come. It seemed like each week I turn a corner in regards to not as much pain and the ability to do more. I try to describe it to my daughter, all that's going on in my torso... "It's like a pulling, burning, bruised feeling in addition to zings, zangs and spasms.."  SO much going on - apparently all normal. So glad they got it all, keep us posted!


  7. Hi, All,

    Has anyone been given Neulasta after chemotherapy treatment? As I understand it, it's to boost your white blood cells. I'm going to ask at my chemo teaching session but I've not seen anyone mention this drug. My co-worker went through nclc treatment last year, she said she was given the drug 24 hours after each treatment.

     

    Thanks,

    Ann


  8. Yikes! 7 sticks! Guess I will see how it goes, there wasn't any mention of a port... I started taking the folic acid today orally. I had asked on my other post about the steroid and wondering why my Doc doesn't have me taking it prior to treatment - only after treatment. I was prescribed the 2 additional nausea meds (same ones you mention) to take as needed. Thanks for the web site reference - I'll check it out!


  9. Quote

     

    Hi Susan,

    I had the traditional, open lobectomy, unfortunately! Four weeks ago today and yes, still feeling the pain but not near what it was those first two weeks post surgery. There is SO much going on in regards to discomfort, numbness and pain. So many areas feel like internal road rash. Have bruising all over. Pulling and aches all over. The intermittent zings, jabs and spasms.... crazy!! 

    They advised radiation because of the one lymph node containing cancer cells - out of the 28 nodes they took/tested. They are using radiation to sterilize the area.

    I have a couple of questions, perhaps you or someone else reading this might have some insight...

    First - My doctor said I can continue taking Advil while having treatment - all websites state to refrain from taking Advil while going through chemotherapy? I am depending on Advil due to post surgery pain...

    Second -  I was prescribed Dexamethasone to be taken on days 2,3 & 4 of chemotherapy. The websites state that it should be taken BEFORE and after treatment??

    I do have a teaching session Monday and I will ask these questions but would love to hear from you and others in this group.

    I've seen a lot lately on "chemo-brain"...  how bad is it? Will I have issues at work?? I kind of depend on my memory lol

    I pray your scans come back with nothing to discuss!! "Thank you, Lord, for Susan's complete healing!!"

    Do keep us posted!

    Ann

     


  10. Thanks, Judy, really not looking forward to this..... I was hoping I wouldn't need a port? I don't usually have an issue with finding a vein so I guess I'm confused as to why one would benefit. I thought they were used when chemo treatments were more frequent than once every 21 days.

    The steroid & gaining weight.... wondering what the purpose of that is? In addition to feeling like crap, hair thinning.... now they want to pack a few pounds on us? Dang.....

    Ann


  11. Hi, all,

    I'll be starting chemotherapy next Thursday. The chemotherapy drugs are Cisplatin & Pemetrexed. I'm not seeing any references to these 2 drugs in this forum, I'm seeing Cisplatin and Paclitaxel. If anyone out there has any experience with the combo that will be used on me I would appreciate some feedback! I've briefly googled what the differences are in the two combos - not finding much except perhaps the Cisplatin causes more nausea?

    Thanks in advance for input!

    Ann

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