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Robert Macaulay

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Everything posted by Robert Macaulay

  1. Hi Everyone Just quick update met with both docs yesterday and this afternoon and from my CT last week radiation is off the table as he said it would do more damage than it would do good as i have had two previous doses.There is still progression from the last scan in August to the one last week.So the new treatment starting later this month will Carboplatin and Gemcitabine on separate daysevery three week for four cycles, Then as usual the Ct scan.Glad to be back (OUCH) In the treatment cycle although she did give me some strong warnings on the Gemcitabine side effects as blood transfusion is possible if Anemia gets bad. Treatment #3 here i come😎 Bob
  2. Kleo Could it be one location of the tumor from different angles.?
  3. Ron Thanks for the info this might be similar in my situation also, as it looks like SBRT is on the cards for me at this time in November.?
  4. Kleo I seem to be fortunate so far it cannot find my brain.😎 Have CT scheduled for first week in November and then the following week meet with Dr Zapper for his schedule and the next day with the Onc for the cocktail schedule, Will be intrested to hear what it entails give me something to do till the end of the year. lol Take care Bob
  5. Intresting update on Durvalumab this week https://www.astro.org/News-and-Publications/News-and-Media-Center/News-Releases/2019/PACIFIC-survival-rates-explained-Lung-cancer-sprea
  6. Tom She mentioned radiation option in that area again and she will discuss that option with the team next week, If i get anymore radiation i might be candidate for Los Alomos New Mexico. I am fine with what ever plan they come up with and that the cancer has never spread thanks to Durvalumab and feel in very good health as the side effects are in decline from that drug. .Seven hours straight sleep last night. Bob
  7. Tomm I have no idea what my PDL-1 expression is, Have heard it mentioned numerous times over last year but never bothered as such.
  8. Opal My thoughts are the Durvalumab done one excellent job of stopping any progression and they have caught this possible recurrence at the original site early so i have no concerns there and from what i read there are lots of treatment options for recurrence at the original site.Thinking her plan is to let this settle take another CT then needle Biopsy followed by pet scan and then hopefully targeted therapy depending on the results, Those decisions are up to the doc and as long as the are giving me treatment i am happy. The break is just fine by me. Bob
  9. Well i just returned from my meeting with the Onc this morning and the news is there seems to be a possible reccurence at the original tumor site since the last scan in April this year.She is going to discuss this next week with the team and most likely a pet scan to and do further checks and she will put me in touch with a Pulmonologist. Sound familiar. All the other pictures taken except that one area were fine on the ct scan.I was well aware of the odds with taking Durvalumab and onward we go with plan C in the near future. Que Sera Sera Bob
  10. Tom Is that valid at Wallmart for discount. lol I would like to take this opportunity to thank Imfinzi for supplying me the drug and clinic at no charge. I never thought this thread would become so popular this last year thanks to the people on this forum who contributed and all those that viewed over this time. Special thanks to Kleo who was a great support in the beginning of this journey and alas had to stop the drug.I believe it was because she did not receive the Durvalumab goody bag.😎 Thank you Kleo and all the best on your new path. Going forward thanks to everyone and it is my hope we all can benefit from this drug in the coming months and years. Going to take a break now and will update on my future scans ,The word is it could take up to eight weeks for the side effects of the drug to wear off. Bob
  11. Thanks Michelle Just heading out the door for the last one, Twenty six consecutive infusions and now Durvalumab will be a thing of the past. What next.😎 Que Sera Sera Bob
  12. To Cathy Macaulay from Michigan (No Relative) Thank you for the phone call last weekend and you will get the meaning on my favourite Duvalumab tune for the last year. https://www.youtube.com/watch?v=-v7XSLY_jhc Bob
  13. Joe Do you get your blood work done at Life labs.?
  14. BC JOE Welcome aboard on your duvalumab journey nice to have a fellow Canadian from across the straits any questions fire away and it is worth the time to read all the posts on this thread.. Bob
  15. Tom That was another point in posting that a individual was NED after seventeen infusions with Durvalumab and was very pleased sadly she had to discontinue which can happen anytime during the drug as the doctor pointed out to me last September.
  16. Tomm No this was post from another site today does not relate to me, The point was side effects can occur at any time.
  17. Barb This is intresting post today on thread i follow be aware of side effects at any time during treatment. As I mentioned a while ago, I was taken off the Imfinzi due to nephritis....Creatine soared to 3.1... Kidney seriously inflamed; treated for 6 weeks with mega doses of steroids, starting at 80mg per day, down to 10 over about 6 weeks, and then finally none. I am happy to say that the kidney has recovered from its injury...but still oncologist here (CT - summer location) doesn't want me to have any more immunotherapy. The steroids have created all kinds of horrible side effect....dropped foot and now apparently either an ulcer or gastritis...(I have an endoscopy planned for Tuesday to see what's going on... at one point, the docs suspected I might be diabetic (from the roids), but that turned out not to be the case.... just pre-diabetic.... gotta watch that! But in all of this.... the good news I am happy to report from the August 8 PET scan is that both lungs are clear. NED. So, the big picture, the big issue has a good story so far..... But none the less.... all my warrior buddies that are on Imfinzi.... keep an eye out for symptoms... my kidney issues had symptoms which I didn't recognize ---- upset stomach and almost complete loss of appetite. Good luck to all still on Imfinizi...I made it to 17 treatments, and clearly that has helped...that's two PET scans (over the past 6 months or so,) that have been NED. God bless you all and keep you safe. https://www.inspire.com/groups/american-lung-association-lung-cancer-survivors/discussion/duravalumab-imfinzi-patients-support-group/?page=last#replies Bob
  18. Tomm That might be the best $3.99 you ever spent, and this thread should reach 25,000 views before my journey ends on Durvalumab next Wednesday the 14th of August. Now i keep asking myself What is Next, Right now a needed break and then back to Que Sera Sera for the next chapter. Bob
  19. DFK If there is one book that anyone with cancer should read it is this one. One outstanding book on the subject and hard to put down. https://www.amazon.ca/Emperor-All-Maladies-Biography-Cancer/dp/1439170916 Bob
  20. Opal This is intresting article to read on eye problems during immunothraphy https://labblog.uofmhealth.org/rounds/ophthalmologists-link-immunotherapy-a-serious-eye-condition
  21. Opal There big concern is if someone has serious reaction by having both on the same day they do not know what one to treat.Getting the flu shot in between infusions should be no concern but i am going to wait till i finish my infusions before i get my flu shot this year. lol Bob
  22. Opal I mentioned last year on this subject of flu shots and Durvlumab. The concern is getting the flu shot on the same day as your infusion. The problem is they do not know at this stage what causes the reaction in some people. The solution is not to get your flu shot on the same day as the infusion. And all should be good.
  23. RonH Strange the nurse at the hospital every month and the nurse at the infusion center check my Blood O2 levels with a Fingertip Pulse Oximeter every time
  24. Ron H Your treatment plan is identical to mine except for the 24/26 infusions. Have you tried Biotene mouth wash works for me
  25. DFK In Canada Doctors not A Gp as he can only order x-rays. The specialists have full control at any time to order any type. Bob
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