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Robert Macaulay

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Posts posted by Robert Macaulay

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    Hi Everyone

    Just quick update met with both docs yesterday and this afternoon and from my CT last week radiation is off the table as he said it would do more damage than it would do good as i have had two previous doses.There is still progression from the last scan in August to the one last week.So the new treatment starting later this month will Carboplatin and Gemcitabine on separate daysevery three week for four cycles, Then as usual the Ct scan.Glad to be back (OUCH) In the treatment cycle although she did give me some strong warnings on the Gemcitabine side effects  as  blood transfusion is possible  if Anemia gets bad. 

    Treatment #3 here i come😎

    Bob

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    Kleo

    I seem to be fortunate so far it cannot find my brain.😎

    Have CT scheduled for first week in November and then the following week meet with Dr Zapper for his schedule and the next day with the Onc for the cocktail schedule, Will be intrested to hear what it entails give me something to do till the end of the year. lol

    Take care  Bob

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    Tom

    She mentioned  radiation option in that area again and she will discuss that option with the team next week, If i get anymore radiation i might be candidate for Los Alomos  New Mexico. I am fine with what ever plan they come up with and that the cancer has never spread thanks to Durvalumab and feel in very good health as the side effects are in decline from that drug. .Seven hours straight sleep last night.

    Bob

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    Opal

    My thoughts are the Durvalumab done one excellent job of stopping any progression and they have caught this possible  recurrence at the original site early so i have no concerns there and from what i read there are lots of treatment options for recurrence at the original site.Thinking her plan is to let this settle take another CT then needle Biopsy  followed by pet scan and then hopefully targeted therapy depending on the results, Those decisions are up to the doc and as long as the are giving me treatment i am happy. The break is just fine by me.

    Bob

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    Well i just returned from my meeting with the Onc this morning and the news is there seems to be a possible reccurence at the original tumor site since the last scan in April this year.She is going to discuss this next week with the team and most likely a pet scan to and do further checks and she will put me in touch with a Pulmonologist. Sound familiar. All the other pictures taken except that one area were fine on the ct scan.I was well aware of the odds with taking Durvalumab and onward we go with plan C in the near future. Que Sera Sera

    Bob

     

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    Tom

    Is that valid at Wallmart for discount. lol

    I would like to take this opportunity to thank Imfinzi for supplying me the drug and clinic at no charge. I never thought this thread would become so popular this last year thanks to the people on this forum who contributed and all those that viewed over this time.

    Special thanks to Kleo  who was a great support in the beginning of this journey and alas had to stop the drug.I believe it was because she did not receive the Durvalumab goody bag.😎 Thank you Kleo and all the best on your new path.

    Going forward thanks to everyone and it is my hope we all can benefit from this drug in the coming months and years. Going to take a break now and will update on my future scans ,The  word is it could take up to eight weeks for the side effects of the drug to wear off.

    Bob

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    BC JOE

    Welcome aboard on your duvalumab  journey nice to have a fellow Canadian from across the straits any questions fire away and it is worth the time to read all the posts on this thread..

     

    Bob

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    Tom

    That was another point in posting that a individual was NED after seventeen infusions with Durvalumab and was very pleased sadly she had to discontinue which can happen anytime during the drug as the doctor pointed out to me last September.

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    1 hour ago, Tomm said:

    Robert.. Did I read this correctly? Ned!!  WOW!!    this is great news to hear our scout found the way.

    enjoy the rest of your journey 

     

    Tomm

    No this was post from another site today does not relate to me, The point was side effects can occur at any time.

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    Barb

    This is intresting post today on thread i follow  be aware of side effects at any time during treatment.

    As I mentioned a while ago, I was taken off the Imfinzi due to nephritis....Creatine soared to 3.1... Kidney seriously inflamed; treated for 6 weeks with mega doses of steroids, starting at 80mg per day, down to 10 over about 6 weeks, and then finally none. I am happy to say that the kidney has recovered from its injury...but still oncologist here (CT - summer location) doesn't want me to have any more immunotherapy. The steroids have created all kinds of horrible side effect....dropped foot and now apparently either an ulcer or gastritis...(I have an endoscopy planned for Tuesday to see what's going on... at one point, the docs suspected I might be diabetic (from the roids), but that turned out not to be the case.... just pre-diabetic.... gotta watch that! 

    But in all of this.... the good news I am happy to report from the August 8 PET scan is that both lungs are clear. NED. So, the big picture, the big issue has a good story so far..... But none the less.... all my warrior buddies that are on Imfinzi.... keep an eye out for symptoms... my kidney issues had symptoms which I didn't recognize ---- upset stomach and almost complete loss of appetite. Good luck to all still on Imfinizi...I made it to 17 treatments, and clearly that has helped...that's two PET scans (over the past 6 months or so,) that have been NED. God bless you all and keep you safe.

    https://www.inspire.com/groups/american-lung-association-lung-cancer-survivors/discussion/duravalumab-imfinzi-patients-support-group/?page=last#replies

    Bob

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    Tomm

    That might be the best $3.99 you ever spent, and this  thread should reach 25,000 views before my journey ends on Durvalumab next Wednesday the 14th of August.

    Now i keep asking myself What is Next, Right now a needed break and then back to Que Sera Sera for the next chapter.

    Bob

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    Opal

    There big concern is if someone has serious reaction by having both on the same day they do not know what one to treat.Getting  the flu shot in between infusions should be no concern but i am going to wait till i finish my infusions before i get my flu shot this year.  lol

    Bob

    Durvalumab

    in IMMUNOTHERAPY

    Posted

    Opal

    I mentioned last year on this subject of flu shots and Durvlumab. The concern is getting the flu shot on the same day as your infusion. The problem is they do not know at this stage what causes the reaction in some people. The solution is not to get your flu shot on the same day as the infusion. And all should be good.

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