Robert Macaulay

Now mine was for a male ! lol

Did you get the goody bag for your first infusion?

Can that port be used for blood work and CT scans.?

Kleo….. I have two more infusions this month before my CT scan on the 29th And then one more before I meet with my oncologist on Nov-9 to discuss how the treatment is going. There is very good chance we could be getting our infusions in the same arm. lol Bob

That is good news funny I go for my fourth on October-10 and not in the least nervous. It takes them longer to prepare the drug as they have to weigh you prior to mixing the concoction not many nurses are sure yet of the process. Bob

Kleo The last two full doses of chemo were not very pleasant glad it was only two lost all my hair and two days with very bad fatigue and weight loss in the past now. With this new drug I still cannot pick the winning lotto numbers, maybe with more infusions it might help.. Bob

I go for my third infusion on September-27 and only feel tired the day after the infusion. Everyone has different reactions to any drug and for me I had none during chemo except for the usual fatique. What I have read if you can stay with it the results are very promising for some individuals who have posted there results, So for my markers glad to be on it. There is also a combination out there using this drug also. Bob

Kleo I meet with Oncologist November- 8th to review the results and make a decision to continue or cancel this treatment I will have had five infusions prior to the scan on October-29. I like quick results one way or another. Bob

Funny had my CT July-25 Four weeks later August-27 had first treatment.

And the clinic I use is Bayshore just a coincidence I doubt it. Just buy good laxative and your good to go. lol

This compassionate drug use is available in the USA .

ust had my Bi weekly checkup and blood work done prior to my second infusion of Durvalumab, I asked the nurse why I was getting the infusions at private clinic and not at the cancer clinic in the hospital which is five minute drive away to the private clinic, She said good question I will ask the doctor for you. Doctor came in had the usual how are you any effects. I said none at all. He said to answer your question about private clinics. You are getting this drug Durvalumab under compassionate drug use and is not funded under the public health in Canada yet and the treatment is fully paid by the drug company.This compassionate drug use in what I read this can be applied if no trials are in the patients area, And must be referred by treating doctor under compassionate drug use rules . Intresting Bob

Hi Kleo The infusion took one hour and then the usual 15minute flush. I was in private clinic for the first time and the paper work and also the mixing of the drug for the infusion as it does not come in bag that took about another hour and that looks like the norm in and out two hours. No other drugs or medication as far as i know. Felt bit tired this afternoon exactly 24 hours after the infusion other than that if Wednesday is good with no side effects piece cake. They require I get blood work done and meet with doctor prior to each new infusion same as the last Chemo treatment, And I also have CT scan scheduled for October -29 and meet with the Oncologist November-8 That will tell the story if it is working or not. The life of a cancer patient Appointments. lol

Hi Kleo I Do not worry about wonders I will be very happy to complete the full year of treatment as planned. Right now CT scan in November and meet the doctor so go from there, They were happy with my previous treatment so I see no reason this will be any different but each individual can be very different in this game of medicine. I am very fortunate as all the treatment cost are covered at no charge to me and that is very substantial over the course of this type of treatment. The doctor did go over the side effects and seem no different from the previous chemo so the way I look at it Que sera sera lol Bob

I start on August 27 and my doctor said last week they were very pleased with previous results of the drug. She also said in the same breath if it does show any progression after three months of treatment we will stop the infusions . Bob

Just found out the new drug I will be receiving shortly and wonder if anyone is presently on this type of treatment.