Lisa66

Thanks Tom. 😊

Hi all, I am new to the Durva club. It is a club I would not have thought of six months ago, but my reality has changed since then. Barb, I was done with radiation on the twelfth of March and chemo on the 15th of March and now started on durvalumab a couple of weeks ago. I had a rough time of it with chemo and radiation and was like you, I just wanted to go somewhere and not think about cancer. We live in NC and was able to go to Myrtle beach when it reopened and it was wonderful. Take a little weekend and go somewhere it is good for the soul I think. Lisa

Shane, I have a tumor in the right lung , and two mediastinal lymph nodes involved. I developed severe esophagitis midway through radiation.I was also having chemo at the same time, which made for double trouble. The pain is so bad. I discribed it as a lava pit pluse someone squeezing the middle of my chest and blocking what ever I tried to swallow including my own saliva. Ask for sucralfate and there is also a steroid liquid that you can take twice a day. Online you can get 500 calorie boost. I lived on it for two months. I had lost so much weight because there was no way to swallow without excruciating pain. I finished March 12th and I am finally able to eat with only a little of the esophageal spasms left if I eat to big of a bite. It will get better. Tell him to hang in there. I was also doing cisplatin and otopaside. I’m sure that is the wrong spelling. 😆 I know how he feels and it will get better. Prayers. Lisa

Hi Rower, Thanks for your welcome into the club. Not a club I would have thought to be in 6 months ago, but that’s how it goes sometimes. I have started reading the post starting in 2018 and am in 2019 right now. Very interesting and helpful. The weight gain you have just warned me about is not good. I spent several months loosing tones of weight from severe esophagitis and not being able to eat, to now eating everything in sight because I can!! I must stop the madness. Lol Thanks again for your response . Lisa

That is charred burn pile lol

Thanks Tom for the info on the Durva club. I will check that out. What is your thoughts on the tumor shrinkage? Is that cancer dead or will it die. She says she is still treating with the intent to cure, but when I read the results it says it has shrunk not grown and it has not spread. That seems different than charted burn pile. Just confused. Thanks again. Lisa

Helloooo All, I have been away for awhile. I did not do so well with cisplatin. In the hospital 4 times with infections, non existent blood counts and blood transfusions. Oh yeah I cant possibly leave out esophagitis. I am now done with chemo and radiation and started on a year of durvalumab. I have had first set of scans post treatment. I have a marked interval decreased size of cavitary nodule in the lateral segment middle lobemessuring 1.9 x 1.7 cm previously 2.8 x 2.2 and subcarinal lymph node now measures 1.4 x 1.7 from 1.8 x1.9 and mediastinal lymph node is 1,2 x 1.7 from 1.2 x 1.8. DR says this is great and that it will be like a burn pile in the yard. the charred remains will still be there. I am just confused, is the cancer dead or alive. She seemed happy, but I still see tumors. Am I wrong? I need some experienced advice.

Good for you!!! May this year be the best for you and your family. Prayers Lisa

Welcome G.A.M, I am sorry to hear you are having a bad time of it. Everyone here is great and are a great source of information and support. I am just starting my own journey, so I do not have a lot to offer in the form of cancer information, but I gladly give you my support and a sympathetic ear. I also have a mixed bag of good ol cancer. Lung tumor is squamous, lymph node has traces of small cell so they will treat for small cell. Wishing you success in treatment Prayers Lisa

Welcome Valerie. When you see hay y’all on my post you will know I am not from NJ Lol. I wish you all the luck on your treatment. You will find a lot of experienced, kind, and helpful people here. Prayers Lisa

D iane, I am glade to hear you had a good holiday. I am sorry ya’ll are having to go through this. I don’t have the knowledge or experience some on here do, but I do know some who seemed not to have much chance is still going strong. Never give up. I will be praying. Prayers Lisa

Hi Freddy, I just had needle biopsy yesterday. The procedure itself only last for about 30 minutes, but they kept you 3 to 4 hours to make sure there are no complications. You will be put in a ct scan, looks like a donought and they take pics while asking you not to breath. The dr will insert a needle, you will feel some pressure, but no real pain, plus they give you some really nice meds in your IV that helps with nerves. I also felt slight pinches as they took biopsy, but no horrible pain. And it’s really quick. You will be out eating a sandwich in no time. Worst is hanging around so long. Best of luck to you. Stage one is good. Should be very treatable. Prayers Lisa

Thanks Jane, I truly hope and pray that your new treatment goes well. Best of luck to you. Lisa

I will start radiation 5 days a week for 5 weeks soon. I am trying to get battle ready. I see where honey has helped Tomm. Anyone else have any tried and true weapons for esophagitis or mucositis?

Wow !!!!! I thought North Carolina had a problem making up its mind, but New Jersey might be worse.