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Posted May 21
Thanks Tom. 😊
I am new to the Durva club. It is a club I would not have thought of six months ago, but my reality has changed since then.
Barb, I was done with radiation on the twelfth of March and chemo on the 15th of March and now started on durvalumab a couple of weeks ago. I had a rough time of it with chemo and radiation and was like you, I just wanted to go somewhere and not think about cancer. We live in NC and was able to go to Myrtle beach when it reopened and it was wonderful. Take a little weekend and go somewhere it is good for the soul I think.
Shane, I have a tumor in the right lung , and two mediastinal lymph nodes involved. I developed severe esophagitis midway through radiation.I was also having chemo at the same time, which made for double trouble. The pain is so bad. I discribed it as a lava pit pluse someone squeezing the middle of my chest and blocking what ever I tried to swallow including my own saliva. Ask for sucralfate and there is also a steroid liquid that you can take twice a day. Online you can get 500 calorie boost. I lived on it for two months. I had lost so much weight because there was no way to swallow without excruciating pain. I finished March 12th and I am finally able to eat with only a little of the esophageal spasms left if I eat to big of a bite. It will get better. Tell him to hang in there. I was also doing cisplatin and otopaside. I’m sure that is the wrong spelling. 😆 I know how he feels and it will get better. Prayers.
Thanks for your welcome into the club. Not a club I would have thought to be in 6 months ago, but that’s how it goes sometimes. I have started reading the post starting in 2018 and am in 2019 right now. Very interesting and helpful. The weight gain you have just warned me about is not good. I spent several months loosing tones of weight from severe esophagitis and not being able to eat, to now eating everything in sight because I can!! I must stop the madness. Lol Thanks again for your response .
Posted May 20
That is charred burn pile lol
Thanks Tom for the info on the Durva club. I will check that out. What is your thoughts on the tumor shrinkage? Is that cancer dead or will it die. She says she is still treating with the intent to cure, but when I read the results it says it has shrunk not grown and it has not spread. That seems different than charted burn pile. Just confused. Thanks again.
Posted May 19
I have been away for awhile. I did not do so well with cisplatin. In the hospital 4 times with infections, non existent blood counts and blood transfusions. Oh yeah I cant possibly leave out esophagitis. I am now done with chemo and radiation and started on a year of durvalumab. I have had first set of scans post treatment. I have a marked interval decreased size of cavitary nodule in the lateral segment middle lobemessuring 1.9 x 1.7 cm previously 2.8 x 2.2 and subcarinal lymph node now measures 1.4 x 1.7 from 1.8 x1.9 and mediastinal lymph node is 1,2 x 1.7 from 1.2 x 1.8. DR says this is great and that it will be like a burn pile in the yard. the charred remains will still be there. I am just confused, is the cancer dead or alive. She seemed happy, but I still see tumors. Am I wrong? I need some experienced advice.
Posted January 2
Good for you!!! May this year be the best for you and your family.
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Posted January 1
Happy New Years to everyone. I pray for health for all in the new year.
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Posted December 31, 2019
Welcome G.A.M, I am sorry to hear you are having a bad time of it. Everyone here is great and are a great source of information and support. I am just starting my own journey, so I do not have a lot to offer in the form of cancer information, but I gladly give you my support and a sympathetic ear. I also have a mixed bag of good ol cancer. Lung tumor is squamous, lymph node has traces of small cell so they will treat for small cell. Wishing you success in treatment
Welcome Valerie. When you see hay y’all on my post you will know I am not from NJ Lol. I wish you all the luck on your treatment. You will find a lot of experienced, kind, and helpful people here.
Posted December 29, 2019
I was told 5 days a week for six weeks radiation, 3 days a week every 3 weeks chemo and after that 2x a month immuno. This is for Stage 3 lung cancer with a 2.7 centimeter tumor and the lymph node in the middle of chest. First biopsy showed squamous and trace of sclc . Second biopsy just showed nsclc. The Dr. still wants to treat as if there was some small cell there. I found out from Radiologist that my pdl1 was low. I haven’t had another dr. appointment since second biopsy. With low lpd1 will I still be able to do the immunotherapy?I know that was a lot of info for one question. I thought I would fill y’all in.😁
I know NED is what you want, but that is still great news. God is good.
Posted December 24, 2019
Hey Brian, I will start my radiation chemo the 6th or the 8th I believe. I can’t give you any advice because I haven’t been there yet, but I have watched my Dad go through both and he made it through. There are some people here that may have constipation advice. I just wanted to reach out and let you know I am wishing you well.
Posted December 20, 2019
D iane, I am glade to hear you had a good holiday. I am sorry ya’ll are having to go through this. I don’t have the knowledge or experience some on here do, but I do know some who seemed not to have much chance is still going strong. Never give up. I will be praying.
Thank you so much for the tips. Anything is helpful. I wish I had some good tips for you, but unfortunately I don’t have lots of experience.I pray for nothing but good reports for you both.
Posted December 19, 2019
I got results from brain scan that says no evidence of disease of any kind there other than something about 2T and white matter, and the comment normal for her age lol. I will take an old brain any day. Now I wait to see if they got good samples on second biopsy. Oncology called with an appointment with Dr and then labs on Jan2nd. I have had enough experience with my dad to know that shortly after I should start treatment. Nervous especially radiation. My dad had hard time with throat and skin blisters. Nervous about chemo too, it’s just the burns on radiation looks so bad. If it kills my cancer though I can do this. As always I hope all here are doing well and getting good new.
Posted December 18, 2019
Hi Freddy, I just had needle biopsy yesterday. The procedure itself only last for about 30 minutes, but they kept you 3 to 4 hours to make sure there are no complications. You will be put in a ct scan, looks like a donought and they take pics while asking you not to breath. The dr will insert a needle, you will feel some pressure, but no real pain, plus they give you some really nice meds in your IV that helps with nerves. I also felt slight pinches as they took biopsy, but no horrible pain. And it’s really quick. You will be out eating a sandwich in no time. Worst is hanging around so long. Best of luck to you. Stage one is good. Should be very treatable.
Posted December 17, 2019
Thanks to both of you for your encouragement. To answer your question Michelle a bronchoscopy was done and it showed a mixed bag. I have a rapid growth tumor that grew so aggressively that it collapsed in upon itself. That I think is squamos she said, but there was traces of small cell so they did a needle biopsy today.Hopefully it will be enough.
Prayers to all
Posted December 16, 2019
Waiting to go for a needle biopsy. Everything is new to me so it all makes me nervous. I know there is a whole lot worse coming, but I still worry. I hope everyone here having scans or procedures will find piece of mind and good news.
Posted December 15, 2019
I am so glad that your results are wonderful. I am just starting the whole process, waiting for brain MRI to make sure my newly diagnosed lung cancer has not spread to the brain. I hope I get good results also.
Posted December 14, 2019
Thank you Michelle, first let me say that I am sorry to hear about your mother and you. You are so right about being the caregiver. I have been my dads driver to chemo house cleaner grocery store delivery and for 9 month, unfortunately a bedside companion as my mother faded from this life. It will take some getting used to. I’m not that good at letting people do for me and I have watched my dad battle and know what is coming up for me and will have to get used to needing help. Having said that, I am going to get battle ready because I do know. I would also like to be part of that prayer posse. Thanks for telling me about it. Prayer to you both.
Curt, I am glad they caught yours early, prayers for clean scans.
Thanks Kristin. I have, but at least I have a little knowledge to start this fight. Fighting for Mom and Dad has allowed me to become familiar with a lot of the terminology I would have otherwise never had.
Thanks Jane, I truly hope and pray that your new treatment goes well. Best of luck to you.
Posted December 13, 2019
I will start radiation 5 days a week for 5 weeks soon. I am trying to get battle ready. I see where honey has helped Tomm. Anyone else have any tried and true weapons for esophagitis or mucositis?