PaulaC
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Posts posted by PaulaC
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8 hours ago, Vonirish55 said:
Hello All,
I recently started having the same problem a few months ago and I've noticed it's getting worse. Whether I'm laying down,sitting up, Wide Awake, going to sleep, or waking up in the middle of the night, I experience short bursts of involuntary expiration. Oftentimes I get these bursts during normal exhalation. Sometimes it's mild sometimes it's moderate. Sometimes just once,or multiple times over the course of minutes. I have scoured the internet on breathing issues and GI issues that could cause this but cannot find any concrete diagnosis. This is the only post that I could find minus one more that mentions this symptom. My pulmonologist is stumped as well he has never heard of anything like this.
I would love for someone to offer some insight if there is any thank you
It’s been a couple of years since I posted my response and I personally don’t think it was figured out. With me I think it was recovering from my surgery. I hope you get it figured out.
paula -
Bob, you’ve got this! I’m sending positive thoughts your way.
Take Care
Paula
- Robert Macaulay and DFK
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Katum31 welcome and I don’t have anything to add other than I love your attitude and drive for answers.
I’m like Lexi I want control but my kids have been my backup. They’re just has involved in all steps of my treatment and health.
Continue to let her know how strong she is.
Take Care
Paula
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Good to hear your doing good!
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Good morning,
I hope you were able to get some rest last night. Your trip to the er sounded terrible. I’ll remember your advice and take stuff with me if I have go. Take care of yourself and get better.
Paula
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1 hour ago, Robert Macaulay said:
Heading down to the clinic this morning pretty sure i have Pheumonitis and yesterdays infusion just confirmed, as the cough was getting worse over the last two weeks. No big deal in the big picture. lol
Bob
Prayers Bob
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On 11/18/2018 at 11:01 AM, Robert Macaulay said:
I went up to 208 pounds prior to my treatment in March this year on purpose. During the treatment stayed at 200 pounds.The last two full doses of chemo in July i lost all my hair and dropped to 172 pounds. Now steady at the 200 pounds mark since late August when starting durvalumab and decided to keep my hair short less grey hairs that way lol.
Bob
I also had put on weight between stress eating and not being as active so my weight is fine right now.
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Great news!
- Tom Galli and Robert Macaulay
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Justin
in INTRODUCE YOURSELF!
Posted · Edited by PaulaC
Hello Justin, it’s been a bit since I’ve been in here but was reading through your post. I wanted to let you know that I went through the same diagnosis. Diagnosed on Feb 13, 2018. They found the spot during a X-ray Dec 29, 2017. It does take a while to get things going.
Stage 3b and told no chance for surgery. The main tumor was in my left upper lobe and 3 lymph nodes in the center of my chest.
I was given a cocktail of Carbo/Toxal and 28 days radiation. My esophagus was a huge problem and I actually had to go see a digestive health dr to help me swallow. I went in twice for her to stretch my esophagus. They challenge was keeping my strength up. I drank a lot of ginger ale and water. I tried every type of ice cream, anything to get my calories.
Like you I had no markers.
I went through the whole treatment only missing one chemo day due to low white count. I finished radiation and remember being so weak I thought I was hiking a mile into the center.
I know it was a long story but the end results were they were able to shrink the tumor and the radiation took care of the lymph nodes. I was able to have the surgery which removed my upper left lobe and the effected lymph nodes. I’ve been NED since Oct 2018.
the biggest thing for you is figure out what you can swallow and if you have any questions just ask me.
sending positive and healing thought your way
Paula