Jump to content

Patkid

Members
 View Profile  See their activity

  • Posts

    2,785

  • Joined

  • Last visited

 Content Type 

Posts posted by Patkid

    okay if I post here?

    in MEMBER UPDATES

    Posted

    Thanks, all.

    Gastro tomorrow

    Rhuematologist on July 2.

    I know my troubles are just not close to what many of you face and am so grateful for all the love and support.

    I am okay w/ whatever they find, but they need to find it soon as all the steroid drops are beginning to affect eyesight. Each time they try to start weaning me off the inflammation begins to worsen and that is unacceptable. Such a balancing act. Inflammation, pressure, and infection due to lower immunity to passing bugs from the steroids.....

    This is crazy.

    Judy, Love that you have an angel! We all need one and am so glad yours has manifested!! Hope he/she has a friend for me!

    Love

    P

    update re my new birthday

    in MEMBER UPDATES

    Posted

    my long time friend,

    WHAT?????!!!!!!!!!!

    and yet you post a reply to my whiney post about my eyes.............with encouragement and love.

    You are my inspiration at this point.

    I think of you moment by moment and in my head sing "Happy Birthday" each time.

    You are a wonder.

    so very very glad to hear about such great progress.

    Enjoy your grandchild and your new life approach............

    I honestly love you, Geri.

    Whattawoman!

    Pat

    okay if I post here?

    in MEMBER UPDATES

    Posted

    Hi, Connie!

    My current eye dx is: anterior bilateral uveitis...........systemic ...........unknown origins.

    Thanks for the link, tho. I think a different part of my eye is affected.

    Hi, Nonni!

    Love you guys.

    P

    okay if I post here?

    in MEMBER UPDATES

    Posted

    I am reading the HIPPA laws as I can and am finding some comfort in them..............the only possible loophole I see for BC/BS regarding my situation is that my company was based in MI, so I have BC/BS of MI and I reside in IL. 'they' say I have to buy insurance from the BC/BS of IL.............and they won't even offer paperwork, application or conversation before 45 days from end of COBRA. MI doesn't seem to care and all they will say is that they will send me paperwork as end of coverage approaches. So much for being proactive....................

    I guess I will just continue to pray and trust

    fillese: thanks for your kind offer!

    Sue, I have you in prayer and thought everyday...........just can't 'do' facebook much anymore as I save my reading strength.........

    KB, thanks, as always..............

    All...........your words are such a comfort and your support so much appreciated.

    Hugs

    P

    okay if I post here?

    in MEMBER UPDATES

    Posted

    Thanks, to all.............TS, I will expand my search/thinking on insurance. I surely do hope IL is similar to WA.

    I love you guys and reading your posts ... each of them....has made me feel so much less alone.

    P

    okay if I post here?

    in MEMBER UPDATES

    Posted

    Hi friends, old and new!

    When I need support I come 'home'.

    Over 4 years since Brian died and I am still having difficulty.

    I have some medical issues of my own at this time and would appreciate prayer and/or good vibes.

    I have been fighting inflamation in my eyes since Jan. I have it in both eyes and it is raging. ( They say it is quite rare to have it bilateraly and for it not to clear up w/ steroid drops) Docs think I have some inflammatroy disease somewhere in my body that is triggering this problem.

    I have been tested and found to be negative for:

    Sarcoidosis

    Lyme Diseae

    Syphilis (good grief)

    Lupus

    RA

    and the list goes on.

    currently 'they' are looking at liver, pancreas and gallbladder. Tests not back yet

    I had a bit of a scare when chest x-ray was a bit off, but that was determined to be 'okay' after recheck.

    anyway, I am miserable and miss my eyesight as it is hard to type or watch TV..........I can see, it just hurts ~ A LOT ~.

    My COBRA runs out in Sept............so am facing insurance issues, as well. That is the most scary part.

    Brian would know how to make this a bit better.........I miss him so so so so much.

    Please know I have each of you in prayer daily and that I have never forgotten one of you or your kindness and support.

    Thanks for any extra prayer or positive thought.

    Much love

    Pat

    Love You Forever

    in GRIEF

    Posted

    Nick,

    Hugs from here.

    From the mom side of things...........................what a gift!! I am so glad you had this experience. I just pray the sadness doesn't disguise the gift.

    Love

    Pat

    Monday's Air

    in JUST FOR FUN

    Posted

    Good morning............It is still cold and I am still under that weather........

    love football

    anyone have the link to the blog about Andrea's Kettleball Camp?

    Thanks

    More when I feel better. YUCK

    Sunday's Air

    in JUST FOR FUN

    Posted

    Judy, bet you are so relieved to hear from your friend, Will. Nice to meet you, Will.

    9 degrees right now, but we are promised a warm up for this week. It will be most welcomed.

    Still fighting my cold so looking forward to a couch day with football, FB and my Kindle.

    Hugs all around.

    Pat

    Saturday's Air

    in JUST FOR FUN

    Posted

    I have never gone to this forum in 5 years...........

    Guess I have been missing something...................always thought it was jokes or something.

    anyway

    -3 here

    PJ wore his balloon boots and we went for a big walk anyway.

    Hugs all around.

    Talking thru funk and new saddness

    in GENERAL

    Posted

    My dear friend and neighbor,

    Your load is heavy. You are understandably tired. You care about everyone.

    Life can be so very unfair. It is unfair for you to have so much going on. I admire so much your concern for all of us and for your cancer group friends. You even care about my cold.

    Sometimes the mundane crapt (like garbage cans and refrigerators) is just overwhelming when your heart is consumed w/ truly huge feelings and thoughts.

    Frank and his family are in my fervent prayer.

    You are on my mind and in my heart.

    Please know how much you are loved and respected.

    Give yourself a big REST and a big deep sigh and a soft look into your head and heart. Be assured of your value and recognize your strength. Even if you don't feel it, we see it and feel it and love it.

    Many hugs and much love.

    Pat

    Four Years ago today

    in GRIEF

    Posted

    Beth,

    You are on my mind always, especially today.........Remember when we emailed pics of our guys w/ Tarceva side effects so we could compare possible remedies? A comforting memory of kindred souls.

    You and Bill were very important in Brian's journey. I will always love you both.

    I am sorry for your pain today.

    Pat

×
×
  • Create New...

Important Information

By using this site, you agree to our Terms of Use.

  I accept