Kleo

I have officially been infused. LOL I was pretty nervous. I ate a bag of cheesy poofs during the infusion....nervous snacking I guess. I got the orange cheesy powder all over everything. On the blanket and the chair....the nurse. It was even in my hair.🤣  Picture Pigpen from Charlie Brown..only orange. LOL
Infusion was an hour, prep was an hour...so not too bad. Kinda nice to only get ONE bag-o-drugs after all the bags of stuff they had to give with chemo before!
They didn't weigh me prior though. But I'd been weighed the week before. Recommended dosage of this stuff is 10 mg per kg.... I got 475 mg so that sounds about right I guess!
So far so good...🤞
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Nope. I think it COULD be...but seems like the nurses that aren't working in the infusion center aren't comfortable accessing them. They will use it for my pre-infusion blood tests though.

Haahaa!!...if I didn't have a port- I totally think that would happen. 😜

Soooo...Bob, not only are we on the same treatment schedule, we are actually getting our infusions on the same days now!?🤣
 

That is good news funny I go for my fourth on October-10 and not in the least nervous. It takes them longer to prepare the drug as they have to weigh you prior to mixing the concoction not many nurses are sure yet of the process.
Bob

Good for you Robert.
Stay the course.
Tom

Yay!  It will be great to get the show on the road.
And really, you and Bob need to take YOUR show on the road--you guys crack me up.
 

Got my start date finally! This Wed October 10. Eeep! Excited but nervous. LOL
 

Got my start date finally! This Wed October 10. Eeep! Excited but nervous. LOL
 

I still haven't started mine. 😕 Gotta wait for the CT scan this week. Bob you didn't have side effects for chemo?! Wish I could say the same!
Why do they always gotta have the icky side effects? Nausea, vomiting, neuropathy, hair loss, fatigue, etc. I wanna discover one that has some cool side effects. WARNING: May cause the sudden ability to fly, enhanced telepathy, increased speed and agility, night vision, extreme intelligence, etc. LOL
I think I watch too many X-Men movies..😄

Kleo
The last two full doses of chemo were not very pleasant glad it was only two lost all my hair and two days with very bad fatigue and weight loss in the past now.
With this new drug I still cannot pick the winning lotto numbers, maybe with more infusions it might help..
Bob

I still haven't started mine. 😕 Gotta wait for the CT scan this week. Bob you didn't have side effects for chemo?! Wish I could say the same!
Why do they always gotta have the icky side effects? Nausea, vomiting, neuropathy, hair loss, fatigue, etc. I wanna discover one that has some cool side effects. WARNING: May cause the sudden ability to fly, enhanced telepathy, increased speed and agility, night vision, extreme intelligence, etc. LOL
I think I watch too many X-Men movies..😄

I go for my third infusion on September-27 and only feel tired the day after the infusion. Everyone has different reactions to any drug and for me I had none during chemo except for the usual fatique. What I have read if you can stay with it the results are very promising for some individuals who have posted  there results, So for my markers glad to be on it.
There is also a combination out there using this drug also.
 
Bob

Bob I think we are treatment twins here...😁😁 
 
Just got my CT appt for Sept. 26. That puts me at the end of October then for my first treatment. By then you'll have had several treatments so you're gonna be like my Yoda   guide through this stuff! 😏

Kleo
I meet with Oncologist  November- 8th to review the results and make a decision to continue or cancel this treatment I will have had five infusions prior to the scan on October-29. I like quick results one way or another.
Bob

We do also have compassionate care drugs available in the U. S that have not yet been approved. I know because my last Oncologist who wanted to try the Opdivo/Yervoy combo next said that was the way he could get that. 
Judy M. 

Oh, I know it is.  I just meant it's great when anyone who needs these drugs has a way to get them.  Anyone eligible for such a program is fortunate.  
I know that R&D of new drugs is expensive, but some of the pricing really is off the charts.

Funny had my  CT  July-25  Four weeks later August-27 had first treatment. 

Wow! Expensive stuff! I'm lucky as well I get it covered under a local charitable organization called Baycare.
I STILL don't have my start date though! Saw my onc today and she's ordering a CT first, follow up in 4 weeks...THEN I start. I think she's going on vacation so that's probably why I'm delayed. I guess there's no rush huh? October it is.... LOL
And YAY for no funky side effects Bob! 

And the clinic I use is Bayshore just a coincidence I doubt it.  Just buy good laxative and your good to go.  lol

Thank you Bob for the update!  
 
And thank you Lexie for the well wishes! 😘 
 

Best of luck to the two of you!  Please keep us posted on how you are making out--you guys are like the intrepid pioneers.  Love your attitudes.  

Hi Kleo
The infusion took one hour and then the usual 15minute flush. I was in private clinic for the first time and the paper work and also the mixing  of the drug for the infusion as it does not come in bag that took about another hour and that looks like the norm in and out two hours. No other drugs or medication as far as i know. Felt bit tired this afternoon exactly 24 hours after the infusion other than that if Wednesday is good  with no side effects piece cake. They require I get blood work done and meet with doctor prior to each new infusion same as the last Chemo treatment, And I also have CT scan scheduled for October -29 and meet with the Oncologist November-8 That will tell the story if it is working or not.   The life of a cancer patient  Appointments.  lol

Bob!
Come tell me how the first treatment went! 😜
How long did infusion take? Did they give any steroids or any other stuff too? How ya feeling? 
 
 

Hi Kleo
I Do not worry about wonders I will be very happy to complete the full year of treatment as planned. Right now CT scan  in November and meet the doctor so go from there, They were happy with my previous treatment so I see no reason this will be any different but each individual can be very different in this game of medicine. I am very fortunate as all the treatment cost are covered at no charge to me and that is very substantial over the course of this type of treatment. The doctor did go over the side effects and seem no different from the previous chemo so the way I look at it  Que sera sera    lol
Bob