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Kleo

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  1. Like
    Kleo reacted to LexieCat in Cisplatin/Alimta chemo rounds done...on to Taxol/Carbo/radiation   
    Here's an article about lung cancer surgery--note that surgery provides the best chance for a complete cure of lung cancer: https://www.cancer.org/cancer/non-small-cell-lung-cancer/treating/surgery.html
  2. Like
    Kleo got a reaction from Tom Galli in Cisplatin/Alimta chemo rounds done...on to Taxol/Carbo/radiation   
    Well they did say I showed signs of emphysema and COPD. But I did have the pulmonary test already so I must've passed. LOL  Thank you for the info LexieCat! 
     
     
  3. Like
    Kleo got a reaction from LexieCat in Cisplatin/Alimta chemo rounds done...on to Taxol/Carbo/radiation   
    Thank you all for the replies! I'm actually heading in to the surgeon today to discuss my options so it's good to have read your experiences. 
    Susan....I'm about to do the carbo/taxol combo I guess combined with the radiation if we don't go the surgery route. It'll be weekly so I am concerned about maintaining my weight. And the dang persistent thrush....lol But I guess if I can manage to do it on cisplatin, this one shouldn't be as tough! I hope. They are telling me that radiation will get bad though about 3 weeks in due to the location of the lymphnode. It's by my esophogus so they say it will likely cause me some swallowing issues. Rats.
    Pretty sure this surgeon doesn't do the vats but I'll ask him about it today. But perhaps I could find one that does! Sounds like it'd be worth looking into at least.
     
     
     
  4. Like
    Kleo reacted to Steff in Cisplatin/Alimta chemo rounds done...on to Taxol/Carbo/radiation   
    Kleo,
    My mom has old-style open surgery.  She had some issue with her chest tube (doc took it out too early) and ended up having to be in the hospital a few days longer than anticipated.  Of course with any surgery, there is some pain/discomfort, but nothing my mom couldn't easily handle once she was home.  I will agree with the other folks, my mom says it wasn't as big of a deal as we all anticipated.  You will do great! 
    Take care,
    Steff
  5. Like
    Kleo reacted to Susan Cornett in Cisplatin/Alimta chemo rounds done...on to Taxol/Carbo/radiation   
    Kleo,
    I started on this path with a lobectomy  (open surgery - not VATS) followed by Cisplatin and Alimta.  Surgery was rough but, for me, worth it. I was back at work 4 weeks post surgery but now think one more week at home would have been better.  For my recurrence, I had the Carboplatin and Taxol, with radiation.  Each combo has its unique challenges.  I lost weight with Cisplatin because of the nausea, but I more than made up for it while on Carboplatin and Taxol.  I was looking at pictures from last summer when I was on the Carboplatin/Taxol and my face was SWOLLEN thanks to steroids.  Ugh.  
    Keep us posted!
  6. Like
    Kleo reacted to BridgetO in Cisplatin/Alimta chemo rounds done...on to Taxol/Carbo/radiation   
    Hi Kleo,
    I also had VATS to remove the lower lobe of my right lung. Mine was fairly easy also. I was released from the hospital the following day with a chest tube in place. The tube stayed for about 10 days because I had a smalll air leak. I was up and walking around the neighborhood in a couple of days,, with a big raincoat on to cover the tube and drain bag. I am doing fine with one fewer lobe!  It's natural to be scared of something you haven't experienced, and any surgery with general anesthesia is serious. But for many of us, as Lexicat says, this one is a piece of cake.
    Bridget O
  7. Like
    Kleo reacted to LexieCat in Cisplatin/Alimta chemo rounds done...on to Taxol/Carbo/radiation   
    Compared to what I've heard about chemo, my surgery was virtually a walk in the park.  I was back at work in less than three weeks and I had three tiny incisions--it's called VATS (video-assisted thoracic surgery), and it's done laparoscopically.  They can't do it in EVERY case, but it seems to be the common procedure these days.  I find it amazing they can remove a whole lobe of a lung through such a tiny opening, but they can.  The "open" surgery (the traditional, old way) is a bit more daunting to go through, but the results are similar.  
    So see what the doctor says--if you go the surgery route, there are a lot of tips we can give you to make it easier. 
  8. Like
    Kleo reacted to LexieCat in Cisplatin/Alimta chemo rounds done...on to Taxol/Carbo/radiation   
    Hey, Kleo,
    Looks like the treatment plan is working!  I don't think low uptake in a lymph node necessarily means there is cancer that's active there.  But, of course, your surgeon will be in a better position to explain his thought process.  
    Incidentally, surgery doesn't usually involve just cutting out the tumor--usually the entire affected lobe of the lung is removed.  I was told that's so the surgery removes any pathways by which the tumor could continue to send out any cancerous cells.  You will probably be given a pulmonary function test to be sure you can tolerate that kind of surgery.   I've noticed zero effect on my breathing from having my upper left lobe removed.  I feel a twinge every now and then when I inhale sharply, but no pain and I'm not short of breath.  The rest of the lung(s) pretty much take over the function of the lobe that is removed.  
    Hope you get good news from the surgeon--from what I understand, surgery is always the best course unless there's a reason it cannot be done.  As Tom mentioned, there might be some additional chemo to "clean up," but it would be good to get that tumor out of there and to confirm that the lymph node is history.  
  9. Like
    Kleo reacted to BridgetO in Cisplatin/Alimta chemo rounds done...on to Taxol/Carbo/radiation   
    Hi Kleo. 
    Go YOU for sure! Congratulations on getting through it!  And it's working!
    Those platinum drugs are really no joke. They do work, though. Prior to my lung cancer, I had a stage 3, aggressive gynecologic cancer. After surgery  (which included removal of 27 lymph nodes)  I had 5+ weeks of concurrent radiation and chemo. The chemo was cisplatin and was "half-strength". Because stomach and intestines were being radiated, I had big digestive issues and had to severely restrict my diet. The issues with chest radiation/chemo will probably be different, but the platinum drugs are  notorious for causing nausea. Subsequently I had 3 rounds of full strength carboplatin and taxoterre (close relative of taxol). I had a bunch of interesting side effects of treatment.  THe good thing is that I'm alive and well today, after being given a "dismal prognosis".  I'm NED on that cancer, as well as the subsequent lung cancer and the prior breast cancer (both of those were stage 1).  
    Hang in there with the treatment, even when it's hard. (Seems like it's always hard, it's just a matter of degree). 
    Bridget O
  10. Like
    Kleo reacted to Tom Galli in Cisplatin/Alimta chemo rounds done...on to Taxol/Carbo/radiation   
    Kleo,
    I can't quantify the concentration of chemotherapy I received prior to surgery.  Both my doctor and chemo nurse told me it was "low dose".  How low? Perhaps some analogous information might help you understand. During my pre-surgical Taxol and Carboplatin therapy, I received one dose per week and the total infusion time was less than 3 hours.  I had a total of four infusion cycles.  During this treatment, I did not lose my hair, did not have any join pain, and had the slightest twinge of nausea.
    After tumors metastasized to my remaining lung after surgery, I received the full strength chemotherapy (again Taxol and Carboplatin) and the infusion time was almost 8 hours. I was told infusion need to be slower because of the higher toxicity of the medication.  I lost my hair a day after the 2nd infusion, experienced severe joint pain in every joint of my body lasting for about 3 days, and had real nausea symptoms but nausea was controlled by medication.  I had a total of 6 infusions, one every three weeks, for a total of 18 weeks of treatment.  A second period of chemotherapy given about a year later with the same drugs yielding the same side effects.
    I did not experience thrush during my chemotherapy treatments but know those that did.  They spent a lot of time gargling and rinsing their mouth with baking soda as I recall.
    From my understanding and experience, one can remove an "active" tumor and lymph node safely.  Your metastatic levels are trending down and that is good.  However, you may find you'll have a post surgical chemotherapy routine scheduled to sweep up any cancer cells in the blood stream.  This treatment is vital and although uncomfortable, it is very necessary.
    Stay the course.
    Tom
  11. Like
    Kleo reacted to Judy M. in Cisplatin/Alimta chemo rounds done...on to Taxol/Carbo/radiation   
    Kleo
    I also had the 4 rounds of Cisplatin/Alimta combo and heartily agree it was no fun. And I also gained weight. Don't know about you, but they gave me steroids with it and I blame them for the weight gain. Lost it after. Hope you don't. Sounds like you need it. Not a doctor, but going to chime in on possibility for why another biopsy. I had SBRT on my lung tumors and one was a 2.5 "SUV after. Oncologist said he was no longer worried about those tumors. I think a 2.5 is considered to usually be below cancer level. Glad to hear you got good news. 
    Judy M. 
     
  12. Like
    Kleo got a reaction from Tom Galli in Cisplatin/Alimta chemo rounds done...on to Taxol/Carbo/radiation   
    Thank you all for the replies! It helps just to be able to talk cancer with people who understand and are going through it or have been there!
     
    LexieCat....I'm so nervous about the lung/lobe removal surgery. I think I've somehow managed to only read the horror stories. It's so good to hear a positive success to it! thank you for sharing!
     
     
    I should probably not google this stuff so much. I'm just freakin myself out. LOL 
     
  13. Like
    Kleo got a reaction from Judy M. in Cisplatin/Alimta chemo rounds done...on to Taxol/Carbo/radiation   
    Thank you all for the replies! It helps just to be able to talk cancer with people who understand and are going through it or have been there!
     
    LexieCat....I'm so nervous about the lung/lobe removal surgery. I think I've somehow managed to only read the horror stories. It's so good to hear a positive success to it! thank you for sharing!
     
     
    I should probably not google this stuff so much. I'm just freakin myself out. LOL 
     
  14. Like
    Kleo got a reaction from Tom Galli in New to the forum..and the cancer fight!   
    Hi Susan and thank you for the welcome and the link. My chemo nurse actually gave me good info sheets that explain each drug and their side effects. They BOTH can cause mouth sores or thrush plus the steroids can too I think! I'm going to ask tuesday for fluconazole and I'm going to have that "magic yet nasty" mouthrinse on hand and just hope I can catch it fast if it decides to return! I'm trying to be proactive anyway. 
     
    Hi Tom!
    Appetite and weight loss was one of my biggest worries with chemo!
    Other than the thrush I did pretty well for the first round I think. Was nauseous at times but the meds seemed to keep it in control. I got fluids on my 1 week check-up and that really seemed to boost me. My appetite came back and even got a little better it seems. Weird. But I started craving cannolis for some reason! Is that not the silliest thing? Whoever heard of chemo causing cannoli cravings?  
    I lost 3 lbs from the thrush/chemo the first week. Got them back now these last 2 weeks thank goodness plus maybe even an extra pound...we will see Tuesday... but that's why I really want to keep that thrush away! I'm trying!
    Thank you all for the replies and the welcome! It's good to talk to others who've been through it!
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