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Kleo

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    Kleo reacted to BridgetO in Cisplatin/Alimta chemo rounds done...on to Taxol/Carbo/radiation   
    Hi Kleo. 
    Go YOU for sure! Congratulations on getting through it!  And it's working!
    Those platinum drugs are really no joke. They do work, though. Prior to my lung cancer, I had a stage 3, aggressive gynecologic cancer. After surgery  (which included removal of 27 lymph nodes)  I had 5+ weeks of concurrent radiation and chemo. The chemo was cisplatin and was "half-strength". Because stomach and intestines were being radiated, I had big digestive issues and had to severely restrict my diet. The issues with chest radiation/chemo will probably be different, but the platinum drugs are  notorious for causing nausea. Subsequently I had 3 rounds of full strength carboplatin and taxoterre (close relative of taxol). I had a bunch of interesting side effects of treatment.  THe good thing is that I'm alive and well today, after being given a "dismal prognosis".  I'm NED on that cancer, as well as the subsequent lung cancer and the prior breast cancer (both of those were stage 1).  
    Hang in there with the treatment, even when it's hard. (Seems like it's always hard, it's just a matter of degree). 
    Bridget O
  2. Like
    Kleo reacted to Tom Galli in Cisplatin/Alimta chemo rounds done...on to Taxol/Carbo/radiation   
    Kleo,
    I can't quantify the concentration of chemotherapy I received prior to surgery.  Both my doctor and chemo nurse told me it was "low dose".  How low? Perhaps some analogous information might help you understand. During my pre-surgical Taxol and Carboplatin therapy, I received one dose per week and the total infusion time was less than 3 hours.  I had a total of four infusion cycles.  During this treatment, I did not lose my hair, did not have any join pain, and had the slightest twinge of nausea.
    After tumors metastasized to my remaining lung after surgery, I received the full strength chemotherapy (again Taxol and Carboplatin) and the infusion time was almost 8 hours. I was told infusion need to be slower because of the higher toxicity of the medication.  I lost my hair a day after the 2nd infusion, experienced severe joint pain in every joint of my body lasting for about 3 days, and had real nausea symptoms but nausea was controlled by medication.  I had a total of 6 infusions, one every three weeks, for a total of 18 weeks of treatment.  A second period of chemotherapy given about a year later with the same drugs yielding the same side effects.
    I did not experience thrush during my chemotherapy treatments but know those that did.  They spent a lot of time gargling and rinsing their mouth with baking soda as I recall.
    From my understanding and experience, one can remove an "active" tumor and lymph node safely.  Your metastatic levels are trending down and that is good.  However, you may find you'll have a post surgical chemotherapy routine scheduled to sweep up any cancer cells in the blood stream.  This treatment is vital and although uncomfortable, it is very necessary.
    Stay the course.
    Tom
  3. Like
    Kleo reacted to Judy M. in Cisplatin/Alimta chemo rounds done...on to Taxol/Carbo/radiation   
    Kleo
    I also had the 4 rounds of Cisplatin/Alimta combo and heartily agree it was no fun. And I also gained weight. Don't know about you, but they gave me steroids with it and I blame them for the weight gain. Lost it after. Hope you don't. Sounds like you need it. Not a doctor, but going to chime in on possibility for why another biopsy. I had SBRT on my lung tumors and one was a 2.5 "SUV after. Oncologist said he was no longer worried about those tumors. I think a 2.5 is considered to usually be below cancer level. Glad to hear you got good news. 
    Judy M. 
     
  4. Like
    Kleo got a reaction from Tom Galli in Cisplatin/Alimta chemo rounds done...on to Taxol/Carbo/radiation   
    Thank you all for the replies! It helps just to be able to talk cancer with people who understand and are going through it or have been there!
     
    LexieCat....I'm so nervous about the lung/lobe removal surgery. I think I've somehow managed to only read the horror stories. It's so good to hear a positive success to it! thank you for sharing!
     
     
    I should probably not google this stuff so much. I'm just freakin myself out. LOL 
     
  5. Like
    Kleo got a reaction from Judy M. in Cisplatin/Alimta chemo rounds done...on to Taxol/Carbo/radiation   
    Thank you all for the replies! It helps just to be able to talk cancer with people who understand and are going through it or have been there!
     
    LexieCat....I'm so nervous about the lung/lobe removal surgery. I think I've somehow managed to only read the horror stories. It's so good to hear a positive success to it! thank you for sharing!
     
     
    I should probably not google this stuff so much. I'm just freakin myself out. LOL 
     
  6. Like
    Kleo got a reaction from Tom Galli in New to the forum..and the cancer fight!   
    Hi Susan and thank you for the welcome and the link. My chemo nurse actually gave me good info sheets that explain each drug and their side effects. They BOTH can cause mouth sores or thrush plus the steroids can too I think! I'm going to ask tuesday for fluconazole and I'm going to have that "magic yet nasty" mouthrinse on hand and just hope I can catch it fast if it decides to return! I'm trying to be proactive anyway. 
     
    Hi Tom!
    Appetite and weight loss was one of my biggest worries with chemo!
    Other than the thrush I did pretty well for the first round I think. Was nauseous at times but the meds seemed to keep it in control. I got fluids on my 1 week check-up and that really seemed to boost me. My appetite came back and even got a little better it seems. Weird. But I started craving cannolis for some reason! Is that not the silliest thing? Whoever heard of chemo causing cannoli cravings?  
    I lost 3 lbs from the thrush/chemo the first week. Got them back now these last 2 weeks thank goodness plus maybe even an extra pound...we will see Tuesday... but that's why I really want to keep that thrush away! I'm trying!
    Thank you all for the replies and the welcome! It's good to talk to others who've been through it!
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