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Kleo

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  1. Like
    Kleo reacted to Barb1260 in Durvalumab   
    Hi Kleo. Any updates on your treatment?  
    Thank you. The article was definitely interesting. 
  2. Like
    Kleo got a reaction from DFK in Durvalumab   
    Bob....that is exactly what happened to me! Went right to my brain!
    I still say I had WAY too many steroids with my Durva.
    And as far as this possible recurrence...maybe they will zap it! 
    Zapping works!
    Keep us posted....I still pop in and read up!
     
     
     
  3. Like
    Kleo got a reaction from Rower Michelle in Durvalumab   
    Bob....that is exactly what happened to me! Went right to my brain!
    I still say I had WAY too many steroids with my Durva.
    And as far as this possible recurrence...maybe they will zap it! 
    Zapping works!
    Keep us posted....I still pop in and read up!
     
     
     
  4. Like
    Kleo got a reaction from Robert Macaulay in Durvalumab   
    Bob....that is exactly what happened to me! Went right to my brain!
    I still say I had WAY too many steroids with my Durva.
    And as far as this possible recurrence...maybe they will zap it! 
    Zapping works!
    Keep us posted....I still pop in and read up!
     
     
     
  5. Like
    Kleo reacted to Robert Macaulay in Durvalumab   
    Tom
    She mentioned  radiation option in that area again and she will discuss that option with the team next week, If i get anymore radiation i might be candidate for Los Alomos  New Mexico. I am fine with what ever plan they come up with and that the cancer has never spread thanks to Durvalumab and feel in very good health as the side effects are in decline from that drug. .Seven hours straight sleep last night.
    Bob
  6. Like
    Kleo reacted to Robert Macaulay in Durvalumab   
    Opal
    My thoughts are the Durvalumab done one excellent job of stopping any progression and they have caught this possible  recurrence at the original site early so i have no concerns there and from what i read there are lots of treatment options for recurrence at the original site.Thinking her plan is to let this settle take another CT then needle Biopsy  followed by pet scan and then hopefully targeted therapy depending on the results, Those decisions are up to the doc and as long as the are giving me treatment i am happy. The break is just fine by me.
    Bob
  7. Like
    Kleo reacted to Tom Galli in Durvalumab   
    Ron,
    I understand the saga of the long needle! But, I see goodness regardless of biopsy result: stereotactic radiation. I’m a fan and love the idea of frying tumors. 
    Stay the course. 
    Tom
  8. Like
    Kleo reacted to Robert Macaulay in Durvalumab   
    Tom
    Is that valid at Wallmart for discount. lol
    I would like to take this opportunity to thank Imfinzi for supplying me the drug and clinic at no charge. I never thought this thread would become so popular this last year thanks to the people on this forum who contributed and all those that viewed over this time.
    Special thanks to Kleo  who was a great support in the beginning of this journey and alas had to stop the drug.I believe it was because she did not receive the Durvalumab goody bag.😎 Thank you Kleo and all the best on your new path.
    Going forward thanks to everyone and it is my hope we all can benefit from this drug in the coming months and years. Going to take a break now and will update on my future scans ,The  word is it could take up to eight weeks for the side effects of the drug to wear off.
    Bob
  9. Like
    Kleo got a reaction from Charles in Durvalumab   
    All my Durva friends are doing so good! Yay! I may not be taking the durva anymore but I still get to hang out here cause I had some....right? 😁
    So I'm only at half way thru this chemo/immuno thing they are doing. Had to stop and do some tests on my digestive stuff because it's actin up. If it aint one thing, it's another.
    My onc is a lovely Indian lady....love her. But holy COW does she talk fast. And that accent....I usually just kinda nod at her. LOL
    This last time she was doing the exam and she kept saying...your balls are full. Said it 2 or 3 times...your balls are really full. I piped up...I don't have BALLS silly. She said no no...your balls...they are full. I just kinda stared at her funny...said ok...and went on my way.
    Got home and thought...do you think she was saying BOWELS?
     
    🤣🤣
     
  10. Haha
    Kleo got a reaction from BridgetO in Durvalumab   
    Michelle...I can't drink that much! Yuck! I'm just taking ex-lax. I think it's their dang drugs...backed up my pipes with all that stuff they give.
    Lovely conversations we have eh? LOL    Hi Barb!! 😘
    Bob I can't believe your treatment is almost over already! You've done pretty good on the durva! Well it's had some side effects but they all seem to have something.
    Hey maybe that was a side effect they forgot to tell me about.
    Redbull gives you wings. Tecentriq gives you balls.😄
     
     
  11. Haha
    Kleo got a reaction from BridgetO in Durvalumab   
    All my Durva friends are doing so good! Yay! I may not be taking the durva anymore but I still get to hang out here cause I had some....right? 😁
    So I'm only at half way thru this chemo/immuno thing they are doing. Had to stop and do some tests on my digestive stuff because it's actin up. If it aint one thing, it's another.
    My onc is a lovely Indian lady....love her. But holy COW does she talk fast. And that accent....I usually just kinda nod at her. LOL
    This last time she was doing the exam and she kept saying...your balls are full. Said it 2 or 3 times...your balls are really full. I piped up...I don't have BALLS silly. She said no no...your balls...they are full. I just kinda stared at her funny...said ok...and went on my way.
    Got home and thought...do you think she was saying BOWELS?
     
    🤣🤣
     
  12. Like
    Kleo got a reaction from Tom Galli in Durvalumab   
    Michelle...I can't drink that much! Yuck! I'm just taking ex-lax. I think it's their dang drugs...backed up my pipes with all that stuff they give.
    Lovely conversations we have eh? LOL    Hi Barb!! 😘
    Bob I can't believe your treatment is almost over already! You've done pretty good on the durva! Well it's had some side effects but they all seem to have something.
    Hey maybe that was a side effect they forgot to tell me about.
    Redbull gives you wings. Tecentriq gives you balls.😄
     
     
  13. Haha
    Kleo got a reaction from Tom Galli in Durvalumab   
    All my Durva friends are doing so good! Yay! I may not be taking the durva anymore but I still get to hang out here cause I had some....right? 😁
    So I'm only at half way thru this chemo/immuno thing they are doing. Had to stop and do some tests on my digestive stuff because it's actin up. If it aint one thing, it's another.
    My onc is a lovely Indian lady....love her. But holy COW does she talk fast. And that accent....I usually just kinda nod at her. LOL
    This last time she was doing the exam and she kept saying...your balls are full. Said it 2 or 3 times...your balls are really full. I piped up...I don't have BALLS silly. She said no no...your balls...they are full. I just kinda stared at her funny...said ok...and went on my way.
    Got home and thought...do you think she was saying BOWELS?
     
    🤣🤣
     
  14. Like
    Kleo got a reaction from Rower Michelle in Durvalumab   
    Michelle...I can't drink that much! Yuck! I'm just taking ex-lax. I think it's their dang drugs...backed up my pipes with all that stuff they give.
    Lovely conversations we have eh? LOL    Hi Barb!! 😘
    Bob I can't believe your treatment is almost over already! You've done pretty good on the durva! Well it's had some side effects but they all seem to have something.
    Hey maybe that was a side effect they forgot to tell me about.
    Redbull gives you wings. Tecentriq gives you balls.😄
     
     
  15. Like
    Kleo got a reaction from Tomm in Durvalumab   
    All my Durva friends are doing so good! Yay! I may not be taking the durva anymore but I still get to hang out here cause I had some....right? 😁
    So I'm only at half way thru this chemo/immuno thing they are doing. Had to stop and do some tests on my digestive stuff because it's actin up. If it aint one thing, it's another.
    My onc is a lovely Indian lady....love her. But holy COW does she talk fast. And that accent....I usually just kinda nod at her. LOL
    This last time she was doing the exam and she kept saying...your balls are full. Said it 2 or 3 times...your balls are really full. I piped up...I don't have BALLS silly. She said no no...your balls...they are full. I just kinda stared at her funny...said ok...and went on my way.
    Got home and thought...do you think she was saying BOWELS?
     
    🤣🤣
     
  16. Like
    Kleo got a reaction from Robert Macaulay in Durvalumab   
    Michelle...I can't drink that much! Yuck! I'm just taking ex-lax. I think it's their dang drugs...backed up my pipes with all that stuff they give.
    Lovely conversations we have eh? LOL    Hi Barb!! 😘
    Bob I can't believe your treatment is almost over already! You've done pretty good on the durva! Well it's had some side effects but they all seem to have something.
    Hey maybe that was a side effect they forgot to tell me about.
    Redbull gives you wings. Tecentriq gives you balls.😄
     
     
  17. Haha
    Kleo got a reaction from DFK in Durvalumab   
    All my Durva friends are doing so good! Yay! I may not be taking the durva anymore but I still get to hang out here cause I had some....right? 😁
    So I'm only at half way thru this chemo/immuno thing they are doing. Had to stop and do some tests on my digestive stuff because it's actin up. If it aint one thing, it's another.
    My onc is a lovely Indian lady....love her. But holy COW does she talk fast. And that accent....I usually just kinda nod at her. LOL
    This last time she was doing the exam and she kept saying...your balls are full. Said it 2 or 3 times...your balls are really full. I piped up...I don't have BALLS silly. She said no no...your balls...they are full. I just kinda stared at her funny...said ok...and went on my way.
    Got home and thought...do you think she was saying BOWELS?
     
    🤣🤣
     
  18. Haha
    Kleo got a reaction from Barb1260 in Durvalumab   
    All my Durva friends are doing so good! Yay! I may not be taking the durva anymore but I still get to hang out here cause I had some....right? 😁
    So I'm only at half way thru this chemo/immuno thing they are doing. Had to stop and do some tests on my digestive stuff because it's actin up. If it aint one thing, it's another.
    My onc is a lovely Indian lady....love her. But holy COW does she talk fast. And that accent....I usually just kinda nod at her. LOL
    This last time she was doing the exam and she kept saying...your balls are full. Said it 2 or 3 times...your balls are really full. I piped up...I don't have BALLS silly. She said no no...your balls...they are full. I just kinda stared at her funny...said ok...and went on my way.
    Got home and thought...do you think she was saying BOWELS?
     
    🤣🤣
     
  19. Haha
    Kleo got a reaction from Rower Michelle in Durvalumab   
    All my Durva friends are doing so good! Yay! I may not be taking the durva anymore but I still get to hang out here cause I had some....right? 😁
    So I'm only at half way thru this chemo/immuno thing they are doing. Had to stop and do some tests on my digestive stuff because it's actin up. If it aint one thing, it's another.
    My onc is a lovely Indian lady....love her. But holy COW does she talk fast. And that accent....I usually just kinda nod at her. LOL
    This last time she was doing the exam and she kept saying...your balls are full. Said it 2 or 3 times...your balls are really full. I piped up...I don't have BALLS silly. She said no no...your balls...they are full. I just kinda stared at her funny...said ok...and went on my way.
    Got home and thought...do you think she was saying BOWELS?
     
    🤣🤣
     
  20. Haha
    Kleo got a reaction from PaulaC in Durvalumab   
    All my Durva friends are doing so good! Yay! I may not be taking the durva anymore but I still get to hang out here cause I had some....right? 😁
    So I'm only at half way thru this chemo/immuno thing they are doing. Had to stop and do some tests on my digestive stuff because it's actin up. If it aint one thing, it's another.
    My onc is a lovely Indian lady....love her. But holy COW does she talk fast. And that accent....I usually just kinda nod at her. LOL
    This last time she was doing the exam and she kept saying...your balls are full. Said it 2 or 3 times...your balls are really full. I piped up...I don't have BALLS silly. She said no no...your balls...they are full. I just kinda stared at her funny...said ok...and went on my way.
    Got home and thought...do you think she was saying BOWELS?
     
    🤣🤣
     
  21. Thanks
    Kleo got a reaction from Robert Macaulay in Durvalumab   
    All my Durva friends are doing so good! Yay! I may not be taking the durva anymore but I still get to hang out here cause I had some....right? 😁
    So I'm only at half way thru this chemo/immuno thing they are doing. Had to stop and do some tests on my digestive stuff because it's actin up. If it aint one thing, it's another.
    My onc is a lovely Indian lady....love her. But holy COW does she talk fast. And that accent....I usually just kinda nod at her. LOL
    This last time she was doing the exam and she kept saying...your balls are full. Said it 2 or 3 times...your balls are really full. I piped up...I don't have BALLS silly. She said no no...your balls...they are full. I just kinda stared at her funny...said ok...and went on my way.
    Got home and thought...do you think she was saying BOWELS?
     
    🤣🤣
     
  22. Like
    Kleo got a reaction from Charles in Durvalumab   
    JaneLee….that is wonderful news! Go Durva go! Partially collapsed lung not included in celebration...but hopefully that'll resolve!
  23. Like
    Kleo got a reaction from Charles in Durvalumab   
    Yes Rower Michelle!.... This is the new protocol now....just as the durva was. 
    Gotta wonder..... how similar are Tecentriq and durvalumab considering they target the same thing? Just like Keytruda and durvalumab….🤔 
     
  24. Like
    Kleo got a reaction from Charles in Durvalumab   
    Tecentriq is alot like Durva...targets PDL1. I don't have any PDL1 expression. Why am I taking a medicine that targets something I don't even have!?? Seems silly to me. I said that to my onc last time and she said sometimes it works even without PDL1. So does Durva apparently….that's why they give it to everyone regardless! But it didn't work on me... 
    I don't know I just feel like the PDL1 immunos are not my thing. I guess we will battle it out tomorrow...LOL
     
    JaneLee….my onc told me the bad shoulder pain I got during durva was probably bursitis..? couldn't lift my arm at all. Then it went completely away after I stopped the durva.
    That's just ME though...I'm pretty weird! 😏
     
     
  25. Like
    Kleo got a reaction from Roz in BRAF Mutation   
    Wow that's FANTASTIC!!! Woo!
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