Kleo

All my Durva friends are doing so good! Yay! I may not be taking the durva anymore but I still get to hang out here cause I had some....right? 😁
So I'm only at half way thru this chemo/immuno thing they are doing. Had to stop and do some tests on my digestive stuff because it's actin up. If it aint one thing, it's another.
My onc is a lovely Indian lady....love her. But holy COW does she talk fast. And that accent....I usually just kinda nod at her. LOL
This last time she was doing the exam and she kept saying...your balls are full. Said it 2 or 3 times...your balls are really full. I piped up...I don't have BALLS silly. She said no no...your balls...they are full. I just kinda stared at her funny...said ok...and went on my way.
Got home and thought...do you think she was saying BOWELS?
 
🤣🤣
 

Michelle...I can't drink that much! Yuck! I'm just taking ex-lax. I think it's their dang drugs...backed up my pipes with all that stuff they give.
Lovely conversations we have eh? LOL    Hi Barb!! 😘
Bob I can't believe your treatment is almost over already! You've done pretty good on the durva! Well it's had some side effects but they all seem to have something.
Hey maybe that was a side effect they forgot to tell me about.
Redbull gives you wings. Tecentriq gives you balls.😄
 
 

All my Durva friends are doing so good! Yay! I may not be taking the durva anymore but I still get to hang out here cause I had some....right? 😁
So I'm only at half way thru this chemo/immuno thing they are doing. Had to stop and do some tests on my digestive stuff because it's actin up. If it aint one thing, it's another.
My onc is a lovely Indian lady....love her. But holy COW does she talk fast. And that accent....I usually just kinda nod at her. LOL
This last time she was doing the exam and she kept saying...your balls are full. Said it 2 or 3 times...your balls are really full. I piped up...I don't have BALLS silly. She said no no...your balls...they are full. I just kinda stared at her funny...said ok...and went on my way.
Got home and thought...do you think she was saying BOWELS?
 
🤣🤣
 

All my Durva friends are doing so good! Yay! I may not be taking the durva anymore but I still get to hang out here cause I had some....right? 😁
So I'm only at half way thru this chemo/immuno thing they are doing. Had to stop and do some tests on my digestive stuff because it's actin up. If it aint one thing, it's another.
My onc is a lovely Indian lady....love her. But holy COW does she talk fast. And that accent....I usually just kinda nod at her. LOL
This last time she was doing the exam and she kept saying...your balls are full. Said it 2 or 3 times...your balls are really full. I piped up...I don't have BALLS silly. She said no no...your balls...they are full. I just kinda stared at her funny...said ok...and went on my way.
Got home and thought...do you think she was saying BOWELS?
 
🤣🤣
 

All my Durva friends are doing so good! Yay! I may not be taking the durva anymore but I still get to hang out here cause I had some....right? 😁
So I'm only at half way thru this chemo/immuno thing they are doing. Had to stop and do some tests on my digestive stuff because it's actin up. If it aint one thing, it's another.
My onc is a lovely Indian lady....love her. But holy COW does she talk fast. And that accent....I usually just kinda nod at her. LOL
This last time she was doing the exam and she kept saying...your balls are full. Said it 2 or 3 times...your balls are really full. I piped up...I don't have BALLS silly. She said no no...your balls...they are full. I just kinda stared at her funny...said ok...and went on my way.
Got home and thought...do you think she was saying BOWELS?
 
🤣🤣
 

All my Durva friends are doing so good! Yay! I may not be taking the durva anymore but I still get to hang out here cause I had some....right? 😁
So I'm only at half way thru this chemo/immuno thing they are doing. Had to stop and do some tests on my digestive stuff because it's actin up. If it aint one thing, it's another.
My onc is a lovely Indian lady....love her. But holy COW does she talk fast. And that accent....I usually just kinda nod at her. LOL
This last time she was doing the exam and she kept saying...your balls are full. Said it 2 or 3 times...your balls are really full. I piped up...I don't have BALLS silly. She said no no...your balls...they are full. I just kinda stared at her funny...said ok...and went on my way.
Got home and thought...do you think she was saying BOWELS?
 
🤣🤣
 

All my Durva friends are doing so good! Yay! I may not be taking the durva anymore but I still get to hang out here cause I had some....right? 😁
So I'm only at half way thru this chemo/immuno thing they are doing. Had to stop and do some tests on my digestive stuff because it's actin up. If it aint one thing, it's another.
My onc is a lovely Indian lady....love her. But holy COW does she talk fast. And that accent....I usually just kinda nod at her. LOL
This last time she was doing the exam and she kept saying...your balls are full. Said it 2 or 3 times...your balls are really full. I piped up...I don't have BALLS silly. She said no no...your balls...they are full. I just kinda stared at her funny...said ok...and went on my way.
Got home and thought...do you think she was saying BOWELS?
 
🤣🤣
 

JaneLee….that is wonderful news! Go Durva go! Partially collapsed lung not included in celebration...but hopefully that'll resolve!

Yes Rower Michelle!.... This is the new protocol now....just as the durva was. 
Gotta wonder..... how similar are Tecentriq and durvalumab considering they target the same thing? Just like Keytruda and durvalumab….🤔 
 

Tecentriq is alot like Durva...targets PDL1. I don't have any PDL1 expression. Why am I taking a medicine that targets something I don't even have!?? Seems silly to me. I said that to my onc last time and she said sometimes it works even without PDL1. So does Durva apparently….that's why they give it to everyone regardless! But it didn't work on me... 
I don't know I just feel like the PDL1 immunos are not my thing. I guess we will battle it out tomorrow...LOL
 
JaneLee….my onc told me the bad shoulder pain I got during durva was probably bursitis..? couldn't lift my arm at all. Then it went completely away after I stopped the durva.
That's just ME though...I'm pretty weird! 😏
 
 

Wow that's FANTASTIC!!! Woo!

Wow that's FANTASTIC!!! Woo!

Jane Lee, you're not being naive! You're living with hope and optimism. Good for you!  It's great that your tumor is dead.

Jane Lee,
 
Magnificent news !!!!

Jane  Lee   ..  great news to hear your tumor is dead 

Jane Lee
Sorry to hear about the New condition. The good news is the doctors are letting you continue with Durvalumab as its main purpose is to halt the spread of cancer. I get blood work every two weeks prior to my infusion. The key is the three month scans when on this drug and if no progression you continue to the next three months CT.Walking is great way to get excercise everyday as i do with my dog seven days week.Bed time and bloodwork in the morning and docs in the afternoon.
Bob

Hi Dura recipients
Just thought I would give an update.  I can hardly believe this.  My lung specialist and the radiation specialist both consider that the tumour in the bottom lobe of the right lung has died from the radiation and chemo.  But the radiation has caused that lobe to collapse so they can't actually see the tumour.  I am assuming that because there is no sign that the tumour has spread or progressed that they think it is dead.  Apparently. they do not do anything about the partially collapsed lung because it is too damaged from the radiation.  Accordingly, the Dura kills any new tumours that might try to form because there is a very high likelihood of re-occurrence.  At this stage, I refused to think about re-occurrence.  What a shock, I read all these things on Dr Google about syringes and tubes to try to extrapolate the air or fluid in the lung to help it re-inflate and they don't do any of that in radiation cases - they just simply leave it alone.  Wow, no oncologist for six weeks and the radiation specialist doesn't want to see me again.  Only have to do the Dura once a fortnight and a blood test once every four weeks.   It feels so surreal.  I feel I am getting a second chance at life so I am staying on my current regime - no alcohol, no cigarettes, keeping processed foods to a minimum and as much walking as possible.  They have even told me I can begin to lose weight (need it especially after putting on so much with the predisone).  I actually wondering whether as a beginner to this lung cancer stuff that I am just being naive??????
Thank you all for your love, support and encouragement.  It is so lovely to hear from people in the same predicament as yourself.  I must have a look at all of the ASCO abstracts.
Kind regards
 
Jane Lee

Kleo-never hit send on that one. Just found it. You made me choke on my boring turkey sandwich. Your doc must wait for your appointments, you’re the only bright spot in her day probably. Keep up your humor. 

Kleo
I been called lots names in my day but Yoda is not one of them.😁 Now i do like the statement your Doc made  Said I'm in alot better shape than I think I am. Got to love female doctors I am biased as i have two😎.One other thing you mentioned I am NOT typical for Durvalumab! It works wonderfully for most people! But  you were the norm rather than the exception but who is going to refuse a excellent drug even with the percentages.
Now that you have given up studying Oncology you can enjoy the summer between treatments.
Bob

Bob....you were right!😏 You called it! My onc won our little battle. and she basically told me I was being an idiot. 🤣 Said she is revoking my doctor's license, and having my google/internet cancelled. I tried saying...but the immunos all target the same thing that I don't even have...why bother? durva didn't work for me! She said that they are all entirely different drugs...using different pathways...and she really thinks this combo will stop my head stuff. Said I'm in alot better shape than I think I am. 
I said...but it's so toxic...you gave me 2,766 mg of drugs in 8 hours. Her eyes got real big and she said...you mean you actually sat there and added up the milligrams?!! Geeez. 😁
Yes I did. LMAO.
Anyway...she's reducing my chemo doses since I really haven't any active cancer in the lung- and chemo is what makes me feel so crappy....so I'm gonna try it again.
Bob was right....he's like Yoda.
 And as said by tomm here.....I am NOT typical for Durvalumab! It works wonderfully for most people! 

Bob....you were right!😏 You called it! My onc won our little battle. and she basically told me I was being an idiot. 🤣 Said she is revoking my doctor's license, and having my google/internet cancelled. I tried saying...but the immunos all target the same thing that I don't even have...why bother? durva didn't work for me! She said that they are all entirely different drugs...using different pathways...and she really thinks this combo will stop my head stuff. Said I'm in alot better shape than I think I am. 
I said...but it's so toxic...you gave me 2,766 mg of drugs in 8 hours. Her eyes got real big and she said...you mean you actually sat there and added up the milligrams?!! Geeez. 😁
Yes I did. LMAO.
Anyway...she's reducing my chemo doses since I really haven't any active cancer in the lung- and chemo is what makes me feel so crappy....so I'm gonna try it again.
Bob was right....he's like Yoda.
 And as said by tomm here.....I am NOT typical for Durvalumab! It works wonderfully for most people! 

Kleo
If this makes sense please let me know😎
Atezolizumab (Tecentriq®)
Atezolizumab (Tecentriq, Genentech USA, Inc, San Francisco, CA, USA) is a monoclonal antibody that binds to PD-L1 and blocks its interaction with PD-1, thereby enhancing T-cell activity against tumor cells.21
Durvalumab (Imfinzi®)
Durvalumab (Imfinzi, AstraZeneca, Cambridge, UK) is a human IgG1κ monoclonal antibody that blocks the interaction of PD-L1 with the PD-1 and CD80 (B7.1) molecules.25

Yes Rower Michelle!.... This is the new protocol now....just as the durva was. 
Gotta wonder..... how similar are Tecentriq and durvalumab considering they target the same thing? Just like Keytruda and durvalumab….🤔 
 

Yes Rower Michelle!.... This is the new protocol now....just as the durva was. 
Gotta wonder..... how similar are Tecentriq and durvalumab considering they target the same thing? Just like Keytruda and durvalumab….🤔 
 

Yes Rower Michelle!.... This is the new protocol now....just as the durva was. 
Gotta wonder..... how similar are Tecentriq and durvalumab considering they target the same thing? Just like Keytruda and durvalumab….🤔