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Kleo

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  1. Like
    Kleo got a reaction from Charles in Durvalumab   
    All my Durva friends are doing so good! Yay! I may not be taking the durva anymore but I still get to hang out here cause I had some....right? 😁
    So I'm only at half way thru this chemo/immuno thing they are doing. Had to stop and do some tests on my digestive stuff because it's actin up. If it aint one thing, it's another.
    My onc is a lovely Indian lady....love her. But holy COW does she talk fast. And that accent....I usually just kinda nod at her. LOL
    This last time she was doing the exam and she kept saying...your balls are full. Said it 2 or 3 times...your balls are really full. I piped up...I don't have BALLS silly. She said no no...your balls...they are full. I just kinda stared at her funny...said ok...and went on my way.
    Got home and thought...do you think she was saying BOWELS?
     
    🤣🤣
     
  2. Haha
    Kleo got a reaction from BridgetO in Durvalumab   
    Michelle...I can't drink that much! Yuck! I'm just taking ex-lax. I think it's their dang drugs...backed up my pipes with all that stuff they give.
    Lovely conversations we have eh? LOL    Hi Barb!! 😘
    Bob I can't believe your treatment is almost over already! You've done pretty good on the durva! Well it's had some side effects but they all seem to have something.
    Hey maybe that was a side effect they forgot to tell me about.
    Redbull gives you wings. Tecentriq gives you balls.😄
     
     
  3. Haha
    Kleo got a reaction from BridgetO in Durvalumab   
    All my Durva friends are doing so good! Yay! I may not be taking the durva anymore but I still get to hang out here cause I had some....right? 😁
    So I'm only at half way thru this chemo/immuno thing they are doing. Had to stop and do some tests on my digestive stuff because it's actin up. If it aint one thing, it's another.
    My onc is a lovely Indian lady....love her. But holy COW does she talk fast. And that accent....I usually just kinda nod at her. LOL
    This last time she was doing the exam and she kept saying...your balls are full. Said it 2 or 3 times...your balls are really full. I piped up...I don't have BALLS silly. She said no no...your balls...they are full. I just kinda stared at her funny...said ok...and went on my way.
    Got home and thought...do you think she was saying BOWELS?
     
    🤣🤣
     
  4. Like
    Kleo got a reaction from Tom Galli in Durvalumab   
    Michelle...I can't drink that much! Yuck! I'm just taking ex-lax. I think it's their dang drugs...backed up my pipes with all that stuff they give.
    Lovely conversations we have eh? LOL    Hi Barb!! 😘
    Bob I can't believe your treatment is almost over already! You've done pretty good on the durva! Well it's had some side effects but they all seem to have something.
    Hey maybe that was a side effect they forgot to tell me about.
    Redbull gives you wings. Tecentriq gives you balls.😄
     
     
  5. Haha
    Kleo got a reaction from Tom Galli in Durvalumab   
    All my Durva friends are doing so good! Yay! I may not be taking the durva anymore but I still get to hang out here cause I had some....right? 😁
    So I'm only at half way thru this chemo/immuno thing they are doing. Had to stop and do some tests on my digestive stuff because it's actin up. If it aint one thing, it's another.
    My onc is a lovely Indian lady....love her. But holy COW does she talk fast. And that accent....I usually just kinda nod at her. LOL
    This last time she was doing the exam and she kept saying...your balls are full. Said it 2 or 3 times...your balls are really full. I piped up...I don't have BALLS silly. She said no no...your balls...they are full. I just kinda stared at her funny...said ok...and went on my way.
    Got home and thought...do you think she was saying BOWELS?
     
    🤣🤣
     
  6. Like
    Kleo got a reaction from Rower Michelle in Durvalumab   
    Michelle...I can't drink that much! Yuck! I'm just taking ex-lax. I think it's their dang drugs...backed up my pipes with all that stuff they give.
    Lovely conversations we have eh? LOL    Hi Barb!! 😘
    Bob I can't believe your treatment is almost over already! You've done pretty good on the durva! Well it's had some side effects but they all seem to have something.
    Hey maybe that was a side effect they forgot to tell me about.
    Redbull gives you wings. Tecentriq gives you balls.😄
     
     
  7. Like
    Kleo got a reaction from Tomm in Durvalumab   
    All my Durva friends are doing so good! Yay! I may not be taking the durva anymore but I still get to hang out here cause I had some....right? 😁
    So I'm only at half way thru this chemo/immuno thing they are doing. Had to stop and do some tests on my digestive stuff because it's actin up. If it aint one thing, it's another.
    My onc is a lovely Indian lady....love her. But holy COW does she talk fast. And that accent....I usually just kinda nod at her. LOL
    This last time she was doing the exam and she kept saying...your balls are full. Said it 2 or 3 times...your balls are really full. I piped up...I don't have BALLS silly. She said no no...your balls...they are full. I just kinda stared at her funny...said ok...and went on my way.
    Got home and thought...do you think she was saying BOWELS?
     
    🤣🤣
     
  8. Like
    Kleo got a reaction from Robert Macaulay in Durvalumab   
    Michelle...I can't drink that much! Yuck! I'm just taking ex-lax. I think it's their dang drugs...backed up my pipes with all that stuff they give.
    Lovely conversations we have eh? LOL    Hi Barb!! 😘
    Bob I can't believe your treatment is almost over already! You've done pretty good on the durva! Well it's had some side effects but they all seem to have something.
    Hey maybe that was a side effect they forgot to tell me about.
    Redbull gives you wings. Tecentriq gives you balls.😄
     
     
  9. Haha
    Kleo got a reaction from DFK in Durvalumab   
    All my Durva friends are doing so good! Yay! I may not be taking the durva anymore but I still get to hang out here cause I had some....right? 😁
    So I'm only at half way thru this chemo/immuno thing they are doing. Had to stop and do some tests on my digestive stuff because it's actin up. If it aint one thing, it's another.
    My onc is a lovely Indian lady....love her. But holy COW does she talk fast. And that accent....I usually just kinda nod at her. LOL
    This last time she was doing the exam and she kept saying...your balls are full. Said it 2 or 3 times...your balls are really full. I piped up...I don't have BALLS silly. She said no no...your balls...they are full. I just kinda stared at her funny...said ok...and went on my way.
    Got home and thought...do you think she was saying BOWELS?
     
    🤣🤣
     
  10. Haha
    Kleo got a reaction from Barb1260 in Durvalumab   
    All my Durva friends are doing so good! Yay! I may not be taking the durva anymore but I still get to hang out here cause I had some....right? 😁
    So I'm only at half way thru this chemo/immuno thing they are doing. Had to stop and do some tests on my digestive stuff because it's actin up. If it aint one thing, it's another.
    My onc is a lovely Indian lady....love her. But holy COW does she talk fast. And that accent....I usually just kinda nod at her. LOL
    This last time she was doing the exam and she kept saying...your balls are full. Said it 2 or 3 times...your balls are really full. I piped up...I don't have BALLS silly. She said no no...your balls...they are full. I just kinda stared at her funny...said ok...and went on my way.
    Got home and thought...do you think she was saying BOWELS?
     
    🤣🤣
     
  11. Haha
    Kleo got a reaction from Rower Michelle in Durvalumab   
    All my Durva friends are doing so good! Yay! I may not be taking the durva anymore but I still get to hang out here cause I had some....right? 😁
    So I'm only at half way thru this chemo/immuno thing they are doing. Had to stop and do some tests on my digestive stuff because it's actin up. If it aint one thing, it's another.
    My onc is a lovely Indian lady....love her. But holy COW does she talk fast. And that accent....I usually just kinda nod at her. LOL
    This last time she was doing the exam and she kept saying...your balls are full. Said it 2 or 3 times...your balls are really full. I piped up...I don't have BALLS silly. She said no no...your balls...they are full. I just kinda stared at her funny...said ok...and went on my way.
    Got home and thought...do you think she was saying BOWELS?
     
    🤣🤣
     
  12. Haha
    Kleo got a reaction from PaulaC in Durvalumab   
    All my Durva friends are doing so good! Yay! I may not be taking the durva anymore but I still get to hang out here cause I had some....right? 😁
    So I'm only at half way thru this chemo/immuno thing they are doing. Had to stop and do some tests on my digestive stuff because it's actin up. If it aint one thing, it's another.
    My onc is a lovely Indian lady....love her. But holy COW does she talk fast. And that accent....I usually just kinda nod at her. LOL
    This last time she was doing the exam and she kept saying...your balls are full. Said it 2 or 3 times...your balls are really full. I piped up...I don't have BALLS silly. She said no no...your balls...they are full. I just kinda stared at her funny...said ok...and went on my way.
    Got home and thought...do you think she was saying BOWELS?
     
    🤣🤣
     
  13. Thanks
    Kleo got a reaction from Robert Macaulay in Durvalumab   
    All my Durva friends are doing so good! Yay! I may not be taking the durva anymore but I still get to hang out here cause I had some....right? 😁
    So I'm only at half way thru this chemo/immuno thing they are doing. Had to stop and do some tests on my digestive stuff because it's actin up. If it aint one thing, it's another.
    My onc is a lovely Indian lady....love her. But holy COW does she talk fast. And that accent....I usually just kinda nod at her. LOL
    This last time she was doing the exam and she kept saying...your balls are full. Said it 2 or 3 times...your balls are really full. I piped up...I don't have BALLS silly. She said no no...your balls...they are full. I just kinda stared at her funny...said ok...and went on my way.
    Got home and thought...do you think she was saying BOWELS?
     
    🤣🤣
     
  14. Like
    Kleo got a reaction from Charles in Durvalumab   
    JaneLee….that is wonderful news! Go Durva go! Partially collapsed lung not included in celebration...but hopefully that'll resolve!
  15. Like
    Kleo got a reaction from Charles in Durvalumab   
    Yes Rower Michelle!.... This is the new protocol now....just as the durva was. 
    Gotta wonder..... how similar are Tecentriq and durvalumab considering they target the same thing? Just like Keytruda and durvalumab….🤔 
     
  16. Like
    Kleo got a reaction from Charles in Durvalumab   
    Tecentriq is alot like Durva...targets PDL1. I don't have any PDL1 expression. Why am I taking a medicine that targets something I don't even have!?? Seems silly to me. I said that to my onc last time and she said sometimes it works even without PDL1. So does Durva apparently….that's why they give it to everyone regardless! But it didn't work on me... 
    I don't know I just feel like the PDL1 immunos are not my thing. I guess we will battle it out tomorrow...LOL
     
    JaneLee….my onc told me the bad shoulder pain I got during durva was probably bursitis..? couldn't lift my arm at all. Then it went completely away after I stopped the durva.
    That's just ME though...I'm pretty weird! 😏
     
     
  17. Like
    Kleo got a reaction from Roz in BRAF Mutation   
    Wow that's FANTASTIC!!! Woo!
  18. Like
    Kleo got a reaction from LexieCat in AWOL, but back with good news   
    Hurrayyy!!! 
  19. Like
    Kleo got a reaction from Shelkay1 in BRAF Mutation   
    Wow that's FANTASTIC!!! Woo!
  20. Like
    Kleo reacted to Golfman in Tecentriq- Is really working for anyone?   
    Was diagnosed with sclc on Feb 14 and began chemo almost immediately. What was different. however, is that they included Tecentriq in all my chemo sessions, and I’ve begun Tecentriq infusions every 3 weeks since the end of chemo. My June scan showed no brain met and a clear lung! I’m very happy indeed!! I’ll continue my infusions and have periodic scans to look for the return of sclc, but for now I’m a happy guy 
  21. Like
    Kleo reacted to BridgetO in Durvalumab   
    Jane Lee, you're not being naive! You're living with hope and optimism. Good for you!  It's great that your tumor is dead.
  22. Like
    Kleo reacted to Charles in Durvalumab   
    Jane Lee,
     
    Magnificent news !!!!
  23. Like
    Kleo reacted to Tomm in Durvalumab   
    Jane  Lee   ..  great news to hear your tumor is dead 
  24. Like
    Kleo reacted to Robert Macaulay in Durvalumab   
    Jane Lee
    Sorry to hear about the New condition. The good news is the doctors are letting you continue with Durvalumab as its main purpose is to halt the spread of cancer. I get blood work every two weeks prior to my infusion. The key is the three month scans when on this drug and if no progression you continue to the next three months CT.Walking is great way to get excercise everyday as i do with my dog seven days week.Bed time and bloodwork in the morning and docs in the afternoon.
    Bob
  25. Like
    Kleo reacted to Jane Lee in Durvalumab   
    Hi Dura recipients
    Just thought I would give an update.  I can hardly believe this.  My lung specialist and the radiation specialist both consider that the tumour in the bottom lobe of the right lung has died from the radiation and chemo.  But the radiation has caused that lobe to collapse so they can't actually see the tumour.  I am assuming that because there is no sign that the tumour has spread or progressed that they think it is dead.  Apparently. they do not do anything about the partially collapsed lung because it is too damaged from the radiation.  Accordingly, the Dura kills any new tumours that might try to form because there is a very high likelihood of re-occurrence.  At this stage, I refused to think about re-occurrence.  What a shock, I read all these things on Dr Google about syringes and tubes to try to extrapolate the air or fluid in the lung to help it re-inflate and they don't do any of that in radiation cases - they just simply leave it alone.  Wow, no oncologist for six weeks and the radiation specialist doesn't want to see me again.  Only have to do the Dura once a fortnight and a blood test once every four weeks.   It feels so surreal.  I feel I am getting a second chance at life so I am staying on my current regime - no alcohol, no cigarettes, keeping processed foods to a minimum and as much walking as possible.  They have even told me I can begin to lose weight (need it especially after putting on so much with the predisone).  I actually wondering whether as a beginner to this lung cancer stuff that I am just being naive??????
    Thank you all for your love, support and encouragement.  It is so lovely to hear from people in the same predicament as yourself.  I must have a look at all of the ASCO abstracts.
    Kind regards
     
    Jane Lee
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