Kleo

Tomm,
While THC may provide pleasant sensations, I’ve not found scientific evidence that it effects lung cancer tumors. In fact the claim is THC kills all kinds of cancer and that would make it a miracle drug. Sadly there are no miracle cures. 
Stay the course. 
Tom

Hi Tomm!
Thank you for the kind words!
I actually have the license I can have the cannabis oils. I just don't like em. Oil tastes like crap. And I accidentally took one that wasn't CBD. I took a THC one. Ended up trying to make myself a Steak-Umm but got distracted because I thought my mayo looked like butter. Spent half the day staring and comparing... trying to figure that one out. Duh....
I don't do well stoned apparently.🤣

Hi Kelo,
your positive attitude helped me make the decision to take Durvalumab. The posts you make offer all of  us hope to keep taking what gets thrown at us and fight back with a forward attitude.  I a few years ago when I was getting chem/radiation I also ate CBD/THC oil and killed 4 tumors with the combo.
There is a lot of research and some clinical trials using CBD/THC for brain cancer. I did a google search and found a few links that offer hope.
This link is from us gov. site  https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5964193/
and  https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6200872/
a lot of articles from this search  ..cannabis brain tumor drug hope
CBD's Role in Beating Deadly Disease Uncovered in Blood-Brain Barrier Study
https://www.inverse.com/article/55030-cbd-could-help-deliver-chemotherapy-drugs
wishing you the best on your travels... 
 
 
 

Definitely ask about the full panel biomarker. What if you had the rare ROS-1?  

Kleo
Anybody wanna come shave my head????? I already half bald anyway 🤣
Been there done that and it has grown back in my new style.😎

Hi Durvalumabers!
I have been extremely MIA. but I was kinda busy....LOL 
Well unfortunately, the Durva ended up NOT working for me. Found out I have NO specific markers... no PDL1...so it did nothing. Dang it.
Started having really bad headaches...terrible. Went to ER and they found I was growing tumors in my head. Did a Craniotomy to get one of em...some more Radiation on the other stuff....and now I start yet another chemo/immuno on Tuesday. Blehhh….
...on a positive note...my lung/chest cancer has cleared up nicely! 🤣 
Hope everyone here is good! 
 

Well they are starting me on Taxol, Carbo, Tecentriq, And Avastin. I mean...that's ALOT! they say chemo can't get to the brain supposedly because of the blood-brain barrier. And the immunos all work with PDL1...which I apparently don't even have.  Soooo....am I taking all this just for fun or what!?? LOL
Bob I'm soooo glad you are doing good on this durva! I think it just all depends on what markers ya got... or don't. 😉
Eagle...I can see the pathology report so I see where they actually tested for the genes...BRAF and EFGR and ALK and all that......but I still can't find the part about PDL1. Doc just TOLD me I don't have it...I haven't actually seen it. I'll ask tomorrow.
Anybody wanna come shave my head????? I already half bald anyway 🤣 

Hi Kleo. I’m sorry to read that you have had to deal with this setback. But with your spunky determination you got this. My thoughts are with you. Stay tough 

Hi Kleo, I've been wondering what was up since we hadn't heard from  you in  a while. I'm glad you're back, but I wish is was with better news. You really were "kinda busy"! Whoo!  Hang in there and keep posting when you can. We're all thinking about you and pulling for you.
Bridget O

Welcome Home Kleo!
So glad to hear from you, however, sorry to learn about this update.  You’ve been such an inspiration to me with steadfast spunk and determination.   We’re all here for you.  As Eagle says- prayer works. So here we go- a worldwide prayer from this circle of your family.  Sending a big hug. 
Michelle 

Kleo,
Did they do the full biomarker tests?   I think I would ask for another full test.  It can be done with blood.
https://www.ncbi.nlm.nih.gov/m/pubmed/29413057/
praying for the best 
🦅
 

Kleo
I guess you were kind of busy with a little Craniotomy  on the side and you were concerned about needle biopsy😀 .I have no idea about my specific markers bit late to find out now as i go for #22 on Wednesday this week and finish Durvalumab on August-14 then scan late August now the proof of the pudding is it working will come clear in the next six months. Did they say what type of  chemo/immuno  you will receive. ? There is always  some type of setback in persons cancer treatment and as long as your getting treatment you will handle it.
Bob

Hi Durvalumabers!
I have been extremely MIA. but I was kinda busy....LOL 
Well unfortunately, the Durva ended up NOT working for me. Found out I have NO specific markers... no PDL1...so it did nothing. Dang it.
Started having really bad headaches...terrible. Went to ER and they found I was growing tumors in my head. Did a Craniotomy to get one of em...some more Radiation on the other stuff....and now I start yet another chemo/immuno on Tuesday. Blehhh….
...on a positive note...my lung/chest cancer has cleared up nicely! 🤣 
Hope everyone here is good! 
 

Hi Durvalumabers!
I have been extremely MIA. but I was kinda busy....LOL 
Well unfortunately, the Durva ended up NOT working for me. Found out I have NO specific markers... no PDL1...so it did nothing. Dang it.
Started having really bad headaches...terrible. Went to ER and they found I was growing tumors in my head. Did a Craniotomy to get one of em...some more Radiation on the other stuff....and now I start yet another chemo/immuno on Tuesday. Blehhh….
...on a positive note...my lung/chest cancer has cleared up nicely! 🤣 
Hope everyone here is good! 
 

Hiya Fellow Durva folks! Anybody miss me? 🤣
How's everyone doing? I started working again...supposed to be part time but...well...they keep increasing my hours. LOL
Doing much better now...back at my durva infusions. Caught that nasty bug that was going around but a quick dose of antibiotics fixed it.
All the muscle pains in my side and back went away with the steroids. Now I just have a sore shoulder thing. I'm looking into physical therapy for that I guess. Doc says it's just me...not cancer related. I get the weirdest stuff. 😁
Hope everyone here is doing good! I don't get to drop in as much as before with all the working. Meh
 

Hiya Fellow Durva folks! Anybody miss me? 🤣
How's everyone doing? I started working again...supposed to be part time but...well...they keep increasing my hours. LOL
Doing much better now...back at my durva infusions. Caught that nasty bug that was going around but a quick dose of antibiotics fixed it.
All the muscle pains in my side and back went away with the steroids. Now I just have a sore shoulder thing. I'm looking into physical therapy for that I guess. Doc says it's just me...not cancer related. I get the weirdest stuff. 😁
Hope everyone here is doing good! I don't get to drop in as much as before with all the working. Meh
 

Hiya Fellow Durva folks! Anybody miss me? 🤣
How's everyone doing? I started working again...supposed to be part time but...well...they keep increasing my hours. LOL
Doing much better now...back at my durva infusions. Caught that nasty bug that was going around but a quick dose of antibiotics fixed it.
All the muscle pains in my side and back went away with the steroids. Now I just have a sore shoulder thing. I'm looking into physical therapy for that I guess. Doc says it's just me...not cancer related. I get the weirdest stuff. 😁
Hope everyone here is doing good! I don't get to drop in as much as before with all the working. Meh
 

Hi My fellow Durva people! 
Saw my onc yesterday. Looks like she's decided that ALL the activity in the scan...the ribs too...is inflammation. All because that one lil nodule showed inflammation in the biopsy? Seems presumptious to me but....whatever. Another stronger round of steroids for me...yuck. Then I will resume the durva. I do have another MRI scheduled for the end of January so...will see what that says. I have still been having weird muscle and joint pains...they kinda move around week by week. Could be treatment/inflammation related (as doc thinks). Could be cancer related. Could be old age related! Who knows man I get weird stuff all the time.
 
How's everybody here doin? 😁

Hi My fellow Durva people! 
Saw my onc yesterday. Looks like she's decided that ALL the activity in the scan...the ribs too...is inflammation. All because that one lil nodule showed inflammation in the biopsy? Seems presumptious to me but....whatever. Another stronger round of steroids for me...yuck. Then I will resume the durva. I do have another MRI scheduled for the end of January so...will see what that says. I have still been having weird muscle and joint pains...they kinda move around week by week. Could be treatment/inflammation related (as doc thinks). Could be cancer related. Could be old age related! Who knows man I get weird stuff all the time.
 
How's everybody here doin? 😁

Hi My fellow Durva people! 
Saw my onc yesterday. Looks like she's decided that ALL the activity in the scan...the ribs too...is inflammation. All because that one lil nodule showed inflammation in the biopsy? Seems presumptious to me but....whatever. Another stronger round of steroids for me...yuck. Then I will resume the durva. I do have another MRI scheduled for the end of January so...will see what that says. I have still been having weird muscle and joint pains...they kinda move around week by week. Could be treatment/inflammation related (as doc thinks). Could be cancer related. Could be old age related! Who knows man I get weird stuff all the time.
 
How's everybody here doin? 😁

Hi My fellow Durva people! 
Saw my onc yesterday. Looks like she's decided that ALL the activity in the scan...the ribs too...is inflammation. All because that one lil nodule showed inflammation in the biopsy? Seems presumptious to me but....whatever. Another stronger round of steroids for me...yuck. Then I will resume the durva. I do have another MRI scheduled for the end of January so...will see what that says. I have still been having weird muscle and joint pains...they kinda move around week by week. Could be treatment/inflammation related (as doc thinks). Could be cancer related. Could be old age related! Who knows man I get weird stuff all the time.
 
How's everybody here doin? 😁

I agree Eagle...it should be just SOP at this point to get the biomarker testing right away in my opinion. 
I've now had 2 biopsy procedures and STILL did not have biomarker testing! 🤨
 
 

I agree Eagle...it should be just SOP at this point to get the biomarker testing right away in my opinion. 
I've now had 2 biopsy procedures and STILL did not have biomarker testing! 🤨
 
 

That’s great news about your results, Kleo! We’re sorry you had to go through such a traumatic experience though! Thank you for sharing your good news. We hope you have a very Happy New Year!
With gratitude,
Lauren
—
Digital Community Manager
LUNGevity Foundation

Kleo,
Thank God they are NOT cancerous!!!  Praise God!!!  I am so happy for you, girl!!!  The "negative" is such a beautiful word!!!