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Kleo reacted to LexieCat in Durvalumab
Kleo,
Great news! Hope you feel better, soon (I'm sure the result helps with the pain!).
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Kleo reacted to Tom Galli in Durvalumab
My oh my. A great way to end the year with a negative biopsy. I feel a special New Year's Eve celebration in the works.
Stay the course.
Tom
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Kleo reacted to Opal in Durvalumab
Kleo, SO glad to hear negative! And I'm sure you are glad that's over
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Kleo reacted to BridgetO in Durvalumab
Yow! That one sounds traumatic enough to make up for the prior not to traumatic ones!
I'm thrilled to hear your biopsy results!
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Kleo got a reaction from Faith&Hope in Durvalumab
Ok....OWWWWWW! That one hurt! And even though I was on all the drugs...I still said...OWWWWW. LOL Felt like I was in Pulp Fiction where they stab Uma in the chest.😯
Doc just put me on steroids...my whole shoulder and arm are on fire now. Plus my chest where they stabbed me with the needle!! Didn't sleep much last night. Everything hurts.
Oh and biopsy results are in...negative. Not cancerous. 😀
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Kleo got a reaction from Tom Galli in Durvalumab
Ok....OWWWWWW! That one hurt! And even though I was on all the drugs...I still said...OWWWWW. LOL Felt like I was in Pulp Fiction where they stab Uma in the chest.😯
Doc just put me on steroids...my whole shoulder and arm are on fire now. Plus my chest where they stabbed me with the needle!! Didn't sleep much last night. Everything hurts.
Oh and biopsy results are in...negative. Not cancerous. 😀
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Kleo got a reaction from Robert Macaulay in Durvalumab
Ok....OWWWWWW! That one hurt! And even though I was on all the drugs...I still said...OWWWWW. LOL Felt like I was in Pulp Fiction where they stab Uma in the chest.😯
Doc just put me on steroids...my whole shoulder and arm are on fire now. Plus my chest where they stabbed me with the needle!! Didn't sleep much last night. Everything hurts.
Oh and biopsy results are in...negative. Not cancerous. 😀
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Kleo got a reaction from Tom Galli in Durvalumab
I had the bronchoscopy. They knocked me out for that. I had the fentanyl for the port installation. I was awake... or so I thought...for that. Really I must've passed out because it was like I laid down, the put a blue drape over me.... and the guy said...ok you're done. Huh? But I barely got on the table! LOL
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Kleo got a reaction from Roz in Durvalumab
I had the bronchoscopy. They knocked me out for that. I had the fentanyl for the port installation. I was awake... or so I thought...for that. Really I must've passed out because it was like I laid down, the put a blue drape over me.... and the guy said...ok you're done. Huh? But I barely got on the table! LOL
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Kleo got a reaction from Robert Macaulay in Durvalumab
Roz...that's exactly why I asked the doc about it. They didn't mention the size of this in the pet scan-the active node that they are going to biopsy- so I wondered if it was big enough that they could get a sample from it. I guess it is! 🤨
Sooo...who has had the needle biopsy on a lung? Doesn't that puncture your lung though? Wonder which way they'll go in....front or back? Guess whichever way is closest..? Will they knock me out? Yikes.....this is some freaky stuff.
Please let em knock me out... LOL
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Kleo got a reaction from Robert Macaulay in Durvalumab
No way man they better knock me completely out! Yeow!
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Kleo reacted to Robert Macaulay in Durvalumab
Just got power back on after 36 hour outage that was not fun and another wind storm coming for today
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Kleo reacted to Eagle13 in Durvalumab
Took ~2 weeks for my biomarker test to come back. Absolutely a game changer for me. I take a Tagrisso pill once a day since I am EGFR. No more infusions since Tagrisso started and my port is being removed next week. This is working for me. I pray you get the right treatment to fight your mutation.
Biomarker test was done on my fluid from the thoracentisis. It was essentially blood.
BTW - I would ask for a bronchoscopy to check to make sure your lymph nodes are normal. Thats what they biopsied the first time for me. They didn’t make it to the small nodule that they were after because the lymph node looked abnormal.
Merry Christmas and Happy Holidays! 🌲🎅🏻☃️❄️
🦅
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Kleo reacted to Roz in Durvalumab
Kleo,
I was asking because I have been told that the 5 new nodules in my lower right lobe are too small to biopsy. I was curious about the size of yours. Sure wish there was a way to keep these nodules from popping up..How are you doing otherwise? You and Bob certainly have a great sense of humor!!
Ro
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Kleo got a reaction from Robert Macaulay in Durvalumab
Upper left lobe. There's 2 new nodules in my upper left lobe and 2 in my right. Only that one registered on the activity scale though.
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Kleo got a reaction from Robert Macaulay in Durvalumab
Roz- this biopsy is just for the new nodule that recently showed up. It's not very big I don't think...and they didn't report a size measurement on it. I asked the doc if it was big enough to get a sample and she said yes so....we will see!
My first biopsy via bronchoscopy of my lymphnode said adenocarcinoma.
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Kleo reacted to Rower Michelle in Durvalumab
Yay for the sample size! Takes a few weeks for the biomarker tests to come back. That testing is a game changer. Stay on top of the insurance coverage for it. I’ve been appealing my Foundation One testing for a month. Wasn’t cheap but totally worth it!
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Kleo reacted to Eagle13 in Durvalumab
Originally I was told needle biopsy was the only option. Except for me, the nodule was too close to my heart so serious surgery was needed. I declined. After monitoring for almost a year, I was told there was a procedure called a navigational bronchoscopy. I opted for that since it was minimally invasive. I am now almost 1 year to the day a cancer patient/survivor stage 4 metastatic adenocarcinoma lung primary from my biopsy via the navigational bronchoscopy in 2017.
My CT this week showed results that the targeted therapy is working for me and has shut down the cancer compared to my last CT in October. I am convinced the genetic testing is the right approach, at least for me. Stay positive and never underestimate the power of prayer.
🦅
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Kleo reacted to Robert Macaulay in Durvalumab
Kleo
I had four biopsy including the needle biopsy and for me was the least invasive and no pain whatsoever, The bad news was the sample was no good and had to get another full blown scope.
I sometime think radiation doctors are on different wavelength, The one i had kept asking me how i thought about the radiation. I am still thinking about that answer. lol
Bob
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Kleo reacted to Opal in Durvalumab
Kleo, or shall I say Dr Kleo, you are too funny but you were right on, it seems about flu shot and infusion too much at the same time.
Sending prayers and all good thoughts for you on your needle biopsy. You won't feel a thing!
Eagle13, wonderful to hear about your CT results and targeted therapy!!
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Kleo reacted to Roz in Durvalumab
Kleo,
So you are having a biopsy on the 27th? How large did they think your mass is that they are going in with a needle biopsy?
I hope you get some answers. What is your specific cancer mutation?
Ro
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Kleo got a reaction from Rower Michelle in Durvalumab
See!? That's a lot for your system to take all at once imo. I think your poor system was like WHAAAAA.....??
Well my doc postponed my durva treatment. Didn't get it today. She only suspended this one treatment pending the results of my biopsy the 27th. She's not totally convinced this isn't some post treatment activity she said...because the activity is relatively low. And EWWW it's a needle biopsy this time! Better knock me out for this! Yikes.😨
She seems relatively unconcerned about the glowing rib. Said radiation would take care of it.
Well ok then. LOL