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Kleo

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  1. Sad
    Kleo got a reaction from MBinOregon in Durvalumab   
    Hi Durvalumabers!
    I have been extremely MIA. but I was kinda busy....LOL 
    Well unfortunately, the Durva ended up NOT working for me. Found out I have NO specific markers... no PDL1...so it did nothing. Dang it.
    Started having really bad headaches...terrible. Went to ER and they found I was growing tumors in my head. Did a Craniotomy to get one of em...some more Radiation on the other stuff....and now I start yet another chemo/immuno on Tuesday. Blehhh….
    ...on a positive note...my lung/chest cancer has cleared up nicely! 🤣 
    Hope everyone here is good! 
     
  2. Like
    Kleo got a reaction from Robert Macaulay in Durvalumab   
    Hiya Fellow Durva folks! Anybody miss me? 🤣
    How's everyone doing? I started working again...supposed to be part time but...well...they keep increasing my hours. LOL
    Doing much better now...back at my durva infusions. Caught that nasty bug that was going around but a quick dose of antibiotics fixed it.
    All the muscle pains in my side and back went away with the steroids. Now I just have a sore shoulder thing. I'm looking into physical therapy for that I guess. Doc says it's just me...not cancer related. I get the weirdest stuff. 😁
    Hope everyone here is doing good! I don't get to drop in as much as before with all the working. Meh
     
  3. Like
    Kleo got a reaction from PaulaC in Durvalumab   
    Hiya Fellow Durva folks! Anybody miss me? 🤣
    How's everyone doing? I started working again...supposed to be part time but...well...they keep increasing my hours. LOL
    Doing much better now...back at my durva infusions. Caught that nasty bug that was going around but a quick dose of antibiotics fixed it.
    All the muscle pains in my side and back went away with the steroids. Now I just have a sore shoulder thing. I'm looking into physical therapy for that I guess. Doc says it's just me...not cancer related. I get the weirdest stuff. 😁
    Hope everyone here is doing good! I don't get to drop in as much as before with all the working. Meh
     
  4. Like
    Kleo got a reaction from Rower Michelle in Durvalumab   
    Hiya Fellow Durva folks! Anybody miss me? 🤣
    How's everyone doing? I started working again...supposed to be part time but...well...they keep increasing my hours. LOL
    Doing much better now...back at my durva infusions. Caught that nasty bug that was going around but a quick dose of antibiotics fixed it.
    All the muscle pains in my side and back went away with the steroids. Now I just have a sore shoulder thing. I'm looking into physical therapy for that I guess. Doc says it's just me...not cancer related. I get the weirdest stuff. 😁
    Hope everyone here is doing good! I don't get to drop in as much as before with all the working. Meh
     
  5. Like
    Kleo got a reaction from BridgetO in Durvalumab   
    Hi My fellow Durva people! 
    Saw my onc yesterday. Looks like she's decided that ALL the activity in the scan...the ribs too...is inflammation. All because that one lil nodule showed inflammation in the biopsy? Seems presumptious to me but....whatever. Another stronger round of steroids for me...yuck. Then I will resume the durva. I do have another MRI scheduled for the end of January so...will see what that says. I have still been having weird muscle and joint pains...they kinda move around week by week. Could be treatment/inflammation related (as doc thinks). Could be cancer related. Could be old age related! Who knows man I get weird stuff all the time.
     
    How's everybody here doin? 😁
  6. Haha
    Kleo got a reaction from BridgetO in IMRT   
    Hi Barb!
    Everyone tolerates radiation so differently. Hoping it's an easy one for you... I ended up going to the beach for the last week of my radiation...I called it my Radiation Staycation....ran around the beach here with my cousin the whole time. I had very little side effects. I got tired easily but it didn't stop me much...just rested a bit more often than I usually would. I think how you do depends alot on the area they are aiming at too. I was told I might not be able to swallow and I'd get a sore throat and all that. Luckily I didn't get any of it!
    And the weeks actually go pretty fast!
    They tattooed me too...I have actually DONE tattoos...two on myself and a few on friends. They REALLY need to invest in a tattoo machine at my radiation center. That old school jail tattooing with a needle dipped in ink is pretty ridiculous. 🤨
     
  7. Like
    Kleo got a reaction from Roz in Durvalumab   
    Hi My fellow Durva people! 
    Saw my onc yesterday. Looks like she's decided that ALL the activity in the scan...the ribs too...is inflammation. All because that one lil nodule showed inflammation in the biopsy? Seems presumptious to me but....whatever. Another stronger round of steroids for me...yuck. Then I will resume the durva. I do have another MRI scheduled for the end of January so...will see what that says. I have still been having weird muscle and joint pains...they kinda move around week by week. Could be treatment/inflammation related (as doc thinks). Could be cancer related. Could be old age related! Who knows man I get weird stuff all the time.
     
    How's everybody here doin? 😁
  8. Like
    Kleo got a reaction from Robert Macaulay in IMRT   
    Hi Barb!
    Everyone tolerates radiation so differently. Hoping it's an easy one for you... I ended up going to the beach for the last week of my radiation...I called it my Radiation Staycation....ran around the beach here with my cousin the whole time. I had very little side effects. I got tired easily but it didn't stop me much...just rested a bit more often than I usually would. I think how you do depends alot on the area they are aiming at too. I was told I might not be able to swallow and I'd get a sore throat and all that. Luckily I didn't get any of it!
    And the weeks actually go pretty fast!
    They tattooed me too...I have actually DONE tattoos...two on myself and a few on friends. They REALLY need to invest in a tattoo machine at my radiation center. That old school jail tattooing with a needle dipped in ink is pretty ridiculous. 🤨
     
  9. Haha
    Kleo got a reaction from Rower Michelle in IMRT   
    Hi Barb!
    Everyone tolerates radiation so differently. Hoping it's an easy one for you... I ended up going to the beach for the last week of my radiation...I called it my Radiation Staycation....ran around the beach here with my cousin the whole time. I had very little side effects. I got tired easily but it didn't stop me much...just rested a bit more often than I usually would. I think how you do depends alot on the area they are aiming at too. I was told I might not be able to swallow and I'd get a sore throat and all that. Luckily I didn't get any of it!
    And the weeks actually go pretty fast!
    They tattooed me too...I have actually DONE tattoos...two on myself and a few on friends. They REALLY need to invest in a tattoo machine at my radiation center. That old school jail tattooing with a needle dipped in ink is pretty ridiculous. 🤨
     
  10. Like
    Kleo got a reaction from Tom Galli in Durvalumab   
    Hi My fellow Durva people! 
    Saw my onc yesterday. Looks like she's decided that ALL the activity in the scan...the ribs too...is inflammation. All because that one lil nodule showed inflammation in the biopsy? Seems presumptious to me but....whatever. Another stronger round of steroids for me...yuck. Then I will resume the durva. I do have another MRI scheduled for the end of January so...will see what that says. I have still been having weird muscle and joint pains...they kinda move around week by week. Could be treatment/inflammation related (as doc thinks). Could be cancer related. Could be old age related! Who knows man I get weird stuff all the time.
     
    How's everybody here doin? 😁
  11. Like
    Kleo got a reaction from Tom Galli in IMRT   
    Hi Barb!
    Everyone tolerates radiation so differently. Hoping it's an easy one for you... I ended up going to the beach for the last week of my radiation...I called it my Radiation Staycation....ran around the beach here with my cousin the whole time. I had very little side effects. I got tired easily but it didn't stop me much...just rested a bit more often than I usually would. I think how you do depends alot on the area they are aiming at too. I was told I might not be able to swallow and I'd get a sore throat and all that. Luckily I didn't get any of it!
    And the weeks actually go pretty fast!
    They tattooed me too...I have actually DONE tattoos...two on myself and a few on friends. They REALLY need to invest in a tattoo machine at my radiation center. That old school jail tattooing with a needle dipped in ink is pretty ridiculous. 🤨
     
  12. Like
    Kleo got a reaction from Robert Macaulay in Durvalumab   
    Hi My fellow Durva people! 
    Saw my onc yesterday. Looks like she's decided that ALL the activity in the scan...the ribs too...is inflammation. All because that one lil nodule showed inflammation in the biopsy? Seems presumptious to me but....whatever. Another stronger round of steroids for me...yuck. Then I will resume the durva. I do have another MRI scheduled for the end of January so...will see what that says. I have still been having weird muscle and joint pains...they kinda move around week by week. Could be treatment/inflammation related (as doc thinks). Could be cancer related. Could be old age related! Who knows man I get weird stuff all the time.
     
    How's everybody here doin? 😁
  13. Like
    Kleo got a reaction from BridgetO in Durvalumab   
    I agree Eagle...it should be just SOP at this point to get the biomarker testing right away in my opinion. 
    I've now had 2 biopsy procedures and STILL did not have biomarker testing! 🤨
     
     
  14. Sad
    Kleo got a reaction from Rower Michelle in Durvalumab   
    I agree Eagle...it should be just SOP at this point to get the biomarker testing right away in my opinion. 
    I've now had 2 biopsy procedures and STILL did not have biomarker testing! 🤨
     
     
  15. Thanks
    Kleo got a reaction from Rower Michelle in The First Official CT Results   
    Hurray!!!😁
  16. Like
    Kleo reacted to LaurenH in Durvalumab   
    That’s great news about your results, Kleo! We’re sorry you had to go through such a traumatic experience though! Thank you for sharing your good news. We hope you have a very Happy New Year!
    With gratitude,
    Lauren

    Digital Community Manager
    LUNGevity Foundation
  17. Like
    Kleo reacted to Faith&Hope in Durvalumab   
    Kleo,
    Thank God they are NOT cancerous!!!  Praise God!!!  I am so happy for you, girl!!!  The "negative" is such a beautiful word!!!  
  18. Like
    Kleo reacted to Eagle13 in Durvalumab   
    Kleo,
    That is wonderful news! Congratulations! 
    🦅
  19. Like
    Kleo reacted to LexieCat in Durvalumab   
    Kleo,
    Great news!  Hope you feel better, soon (I'm sure the result helps with the pain!).
     
  20. Like
    Kleo reacted to Tom Galli in Durvalumab   
    My oh my. A great way to end the year with a negative biopsy.  I feel a special New Year's Eve celebration in the works.
    Stay the course.
    Tom
  21. Like
    Kleo reacted to Opal in Durvalumab   
    Kleo, SO glad to hear negative!  And I'm sure you are glad that's over
  22. Like
    Kleo reacted to BridgetO in Durvalumab   
    Yow! That one sounds traumatic enough to make up for the prior not to traumatic ones!
    I'm thrilled to hear your biopsy results!
  23. Like
    Kleo reacted to Rower Michelle in Durvalumab   
    Yippee!  
  24. Like
    Kleo got a reaction from Faith&Hope in Durvalumab   
    Ok....OWWWWWW! That one hurt!  And even though I was on all the drugs...I still said...OWWWWW. LOL Felt like I was in Pulp Fiction where they stab Uma in the chest.😯
    Doc just put me on steroids...my whole shoulder and arm are on fire now. Plus my chest where they stabbed me with the needle!! Didn't sleep much last night. Everything hurts. 
     
    Oh and biopsy results are in...negative. Not cancerous. 😀 
     
  25. Like
    Kleo got a reaction from Tom Galli in Durvalumab   
    Ok....OWWWWWW! That one hurt!  And even though I was on all the drugs...I still said...OWWWWW. LOL Felt like I was in Pulp Fiction where they stab Uma in the chest.😯
    Doc just put me on steroids...my whole shoulder and arm are on fire now. Plus my chest where they stabbed me with the needle!! Didn't sleep much last night. Everything hurts. 
     
    Oh and biopsy results are in...negative. Not cancerous. 😀 
     
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