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Kleo

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  1. Like
    Kleo got a reaction from Faith&Hope in Durvalumab   
    Ok....OWWWWWW! That one hurt!  And even though I was on all the drugs...I still said...OWWWWW. LOL Felt like I was in Pulp Fiction where they stab Uma in the chest.😯
    Doc just put me on steroids...my whole shoulder and arm are on fire now. Plus my chest where they stabbed me with the needle!! Didn't sleep much last night. Everything hurts. 
     
    Oh and biopsy results are in...negative. Not cancerous. 😀 
     
  2. Like
    Kleo got a reaction from Tom Galli in Durvalumab   
    I had the bronchoscopy. They knocked me out for that. I had the fentanyl for the port installation. I was awake... or so I thought...for that. Really I must've passed out because it was like I laid down, the put a blue drape over me.... and the guy said...ok you're done. Huh? But I barely got on the table! LOL
  3. Like
    Kleo got a reaction from Roz in Durvalumab   
    I had the bronchoscopy. They knocked me out for that. I had the fentanyl for the port installation. I was awake... or so I thought...for that. Really I must've passed out because it was like I laid down, the put a blue drape over me.... and the guy said...ok you're done. Huh? But I barely got on the table! LOL
  4. Like
    Kleo got a reaction from Robert Macaulay in Durvalumab   
    Roz...that's exactly why I asked the doc about it. They didn't mention the size of this in the pet scan-the active node that they are going to biopsy- so I wondered if it was big enough that they could get a sample from it. I guess it is! 🤨
    Sooo...who has had the needle biopsy on a lung? Doesn't that puncture your lung though? Wonder which way they'll go in....front or back? Guess whichever way is closest..? Will they knock me out? Yikes.....this is some freaky stuff.
    Please let em knock me out... LOL 
  5. Like
    Kleo got a reaction from Roz in Durvalumab   
    No way man they better knock me completely out! Yeow!
  6. Like
    Kleo got a reaction from Robert Macaulay in Durvalumab   
    No way man they better knock me completely out! Yeow!
  7. Like
    Kleo reacted to Robert Macaulay in Durvalumab   
    Just got power back on after 36 hour outage that was not fun and another wind storm coming for today 
  8. Like
    Kleo reacted to Eagle13 in Durvalumab   
    Took ~2 weeks for my biomarker test to come back.  Absolutely a game changer for me.  I take a Tagrisso pill once a day since I am EGFR.  No more infusions since Tagrisso started and my port is being removed next week.  This is working for me.  I pray you get the right treatment to fight your mutation.
    Biomarker test was done on my fluid from the thoracentisis.  It was essentially blood.
    BTW - I would ask for a bronchoscopy to check to make sure your lymph nodes are normal.  Thats what they biopsied the first time for me.  They didn’t make it to the small nodule that they were after because the lymph node looked abnormal.
    Merry Christmas and Happy Holidays! 🌲🎅🏻☃️❄️
    🦅
  9. Like
    Kleo reacted to Roz in Durvalumab   
    Kleo,
    I was asking because I have been told that the 5 new nodules in my lower right lobe are too small to biopsy. I was curious about the size of yours. Sure wish there was a way to keep these nodules from popping up..How are you doing otherwise? You and Bob certainly have a great sense of humor!!
     
    Ro
  10. Like
    Kleo got a reaction from Robert Macaulay in Durvalumab   
    Upper left lobe. There's 2 new nodules in my upper left lobe and 2 in my right. Only that one registered on the activity scale though.
     
  11. Like
    Kleo got a reaction from Robert Macaulay in Durvalumab   
    Roz- this biopsy is just for the new nodule that recently showed up. It's not very big I don't think...and they didn't report a size measurement on it. I asked the doc if it was big enough to get a sample and she said yes so....we will see!
    My first biopsy via bronchoscopy of my lymphnode said adenocarcinoma.
  12. Like
    Kleo reacted to Rower Michelle in Durvalumab   
    Yay for the sample size!  Takes a few weeks for the biomarker tests to come back.   That testing is a game changer.  Stay on top of the insurance coverage for it.  I’ve been appealing my Foundation One testing for a month.  Wasn’t cheap but totally worth it!  
  13. Like
    Kleo reacted to Eagle13 in Durvalumab   
    Originally I was told needle biopsy was the only option.  Except for me, the nodule was too close to my heart so serious surgery was needed.  I declined.  After monitoring for almost a year, I was told there was a procedure called a navigational bronchoscopy. I opted for that since it was minimally invasive.  I am now almost 1 year to the day a cancer patient/survivor stage 4 metastatic adenocarcinoma lung primary from my biopsy via the navigational bronchoscopy in 2017.
    My CT this week showed results that the targeted therapy is working for me and has shut down the cancer compared to my last CT in October.  I am convinced the genetic testing is the right approach, at least for me.  Stay positive and never underestimate the power of prayer.
    🦅
  14. Like
    Kleo reacted to Robert Macaulay in Durvalumab   
    Kleo
    I had four biopsy including the needle biopsy and for me was the least invasive and no pain whatsoever, The bad news was the sample was no good and had to get another full blown scope.
    I sometime think radiation doctors are on  different wavelength, The one i had kept asking me how i thought about the radiation. I am still thinking about that answer.  lol
    Bob
  15. Like
    Kleo reacted to Opal in Durvalumab   
    Kleo, or shall I say Dr Kleo, you are too funny but you were right on, it seems about flu shot and infusion too much at the same time. 
    Sending prayers and all good thoughts for you on your needle biopsy. You won't feel a thing!
    Eagle13, wonderful to hear about your CT results and targeted therapy!! 
  16. Like
    Kleo reacted to Roz in Durvalumab   
    Kleo,
    So you are having a biopsy on the 27th? How large did they think your mass is that they are going in with a needle biopsy?
     I hope you get some answers. What is your specific cancer mutation?
    Ro
  17. Like
    Kleo got a reaction from Rower Michelle in Durvalumab   
    See!? That's a lot for your system to take all at once imo.  I think your poor system was like WHAAAAA.....??
     
    Well my doc postponed my durva treatment. Didn't get it today. She only suspended this one treatment pending the results of my biopsy the 27th. She's not totally convinced this isn't some post treatment activity she said...because the activity is relatively low. And EWWW it's a needle biopsy this time! Better knock me out for this! Yikes.😨
    She seems relatively unconcerned about the glowing rib. Said radiation would take care of it.
    Well ok then. LOL
  18. Like
    Kleo got a reaction from Roz in Durvalumab   
    Just got in from radiation doc. She said likely I'll have to do another biopsy on the rib that's lighting up. Said she will get with my onc and they are going to take it to the tumor board but she may want to try stereotatic radiosurgery on my initial tumor. Didn't think you could do radiation again to the same area but what do I know. 😕
    Now I gotta wait to see onc on the 19th to see what the plan is now.
    Que sera and Fa La La La La!
  19. Like
    Kleo got a reaction from Robert Macaulay in Durvalumab   
    See!? That's a lot for your system to take all at once imo.  I think your poor system was like WHAAAAA.....??
     
    Well my doc postponed my durva treatment. Didn't get it today. She only suspended this one treatment pending the results of my biopsy the 27th. She's not totally convinced this isn't some post treatment activity she said...because the activity is relatively low. And EWWW it's a needle biopsy this time! Better knock me out for this! Yikes.😨
    She seems relatively unconcerned about the glowing rib. Said radiation would take care of it.
    Well ok then. LOL
  20. Like
    Kleo reacted to Tom Galli in Radiation again?!   
    Yes. 
  21. Like
    Kleo reacted to Robert Macaulay in Durvalumab   
    Kleo
    Could be they are communicating by email and she is the messenger. ?
    Dec-27 is my next blood work for infusion on Jan-2 .
    Bob
  22. Like
    Kleo got a reaction from Robert Macaulay in Durvalumab   
    Just got a call from the radiation doc...she's scheduled a biopsy for me of the new nodule for Dec. 27..
     
    Kinda weird my radiation doc did that and not my oncologist.... I haven't even seen my onc yet! 🤨 
  23. Like
    Kleo reacted to Tom Galli in Radiation again?!   
    Kleo,
    Conventional Radiation then precision radiation to the same tumor, yes. The reason is the precision radiation can be precisely administered in both area and duration. 
    Stay the course. 
    Tom
  24. Like
    Kleo reacted to Steff in Radiation again?!   
    Kleo-
    My mom had an option to have her most recent tumor radiated, which was in the original field of radiation (which she received 1 year prior to her recurrence).  Her tumor is on the back of her trachea.  Her radiologist stated that although it is not ideal to radiate an area twice, it is possible.  However, in my mom's case, there would like be permanent side effects like sore throat, trouble swallowing, etc.  His suggestion was to keep radiation for a second option if immunotherapy did not work because of the side effects and because the tumor came back in a spot that had already been radiated (so radiation and chemo were probably not the best option for treatment, but it was all that was available at the time).  Your case is a bit different since the tumor did not disappear completely.  So, my long answer is yes a spot can be radiated more than once, in certain situations.  My suggestion is to speak with your radiologist to see what/if any chance of increased side effects could occur from radiating the tumor again.
    Take Care,
    Steff
  25. Like
    Kleo got a reaction from Robert Macaulay in Radiation again?!   
    Next week...19th. durva day. LOL My onc is outta town this week so it fell to the radiation onc to give me results of the PET and what would possibly be next. 
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