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Susan N.

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  1. Like
    Susan N. got a reaction from Steff in Newly joined.   
    Hi Cannedy,
    Thanks for asking. I am feeling a lot better than a few weeks ago, no more fever and cough.
    I am taking Tagrisso. After 45 days of taking it, my tumor went down from 2.5cm to 1.5 cm.
    Susan.
  2. Like
    Susan N. got a reaction from Judy M. in Newly joined.   
    Hi Cannedy,
    Thanks for asking. I am feeling a lot better than a few weeks ago, no more fever and cough.
    I am taking Tagrisso. After 45 days of taking it, my tumor went down from 2.5cm to 1.5 cm.
    Susan.
  3. Like
    Susan N. got a reaction from Roz in Newly joined.   
    Thank you Lexiecat. Now I can eat and still enjoy my life then:).
  4. Like
    Susan N. got a reaction from Mally in Newly joined.   
    Dear All,
    My name is Susan. I got diagnosed with stage 4 lung cancer that met to the spine over the memorial weekend. Never smoke, never drink, and only 41 years old. We cried out loud,cried with no tears, feeling like the life stops for me, no more will to live. But then I found this forum where I can find myself not alone. Please keep me in your prayers. Thanks everyone.
     
  5. Like
    Susan N. reacted to Murphette214 in Newly joined.   
    Susan,
    At this time I am not aware of any targeted therapy. Still new at all these terms and what is used for the different types of cancer. I have had 2ncycles of chemo -- carboplatin and taxol. I start 10 days radiation in my lower spine tomorrow and 1 day on my brain mets. Then we'll see. As someone else posted a healthy diet is more important. Even after only a month, I find that my appetite is not what it used to be. I went from everyone telling me I was obese to telling me i'm not allowed to lose any more weight. I believe you'll find just as many articles noting that sugar "feeds" cancer is a myth. Lots of our cells need sugar. As Tom says, I wouldn't put much stock in Doctor Google. So, don't be afraid to eat. You won't actually be doing our body any good by that. Get a notebook and write down your questions for your doctor. We also wrote questions about nutrition and diets and restrictions. As I mentioned, most of my doctors were more concerned about bacteria causing problems than whether I ate a popsicle or bread for dinner.
    Good luck on your journey. There's lots of info thrown at you so fast it can seem overwhelming. Just take it one day at a time.
    Hugs and prayers!
  6. Like
    Susan N. reacted to BridgetO in Newly joined.   
    Hi Susan,
    Here are some thoughts about diet. The restrictions that Murphette describes are typical for people who are at risk for neutropenia from chemo. Neutrophils are a type of white blood cells that fight infections. Many chemo drugs cause neutrophil levels to go really low, which is called neutropenia. This  puts a patient at a big risk of infection. I don't know whether Tagrisso, which isn't chemo, has a risk of neutropenia. I recommend that you ask your doctor this, and if there is this risk, ask about diet and other precautions to reduce  the possiblity of infection.  Otherwise,  eat a healthy normal diet.  Drastic diet changes are probably not really helpful. It is important  to eat enough and to get enough protein, which is important for any kind of healing. Restricting your food intake won't  help with your healing from surgery or with cancer treatment.  
    Hang in there,
    Bridget O
  7. Thanks
    Susan N. reacted to Murphette214 in Newly joined.   
    Yes Bridget O.,
    It had to do with being on chemo and neutrophils. Forgot about that...so much to absorb.
    Laura
  8. Like
    Susan N. reacted to Donna G in Newly joined.   
    Hi Susan, 
    Welcome, and I am so glad you found us.  Boy you have made a lot of friends here already.  glad they tested for EGRF.
    Spine surgery is challenging to get over.  Keep working at it.   So you have pills and radiation to look forward to.  When I  had
    treatment with chemo I had a lot of problems with nausea, and I lost weight.  They encouraged me to eat.  They would give me pudding, ice cream,
    jello etc.  I made it  --------   but all those sweets really gave me a bad habit.  After treatment I continued eating !   I gained weight and finally began to watch 
    what I ate and start an exercise program to get it off..  I still go to LA fitness here in Minnesota.  
    Keep us posted. 
    Donna G
     
     
  9. Thanks
    Susan N. reacted to LaurenH in Newly joined.   
    Hi, Susan,
    You are not alone! I am glad to see that you've already connected with several moderators and members on this site. This is a great place to find support, information, and hope! Please continue to post updates and ask questions.
    I am happy to provide you with information about LUNGevity's support and education resources. If you have nutrition specific questions, I'd recommend reaching out to the experts at Savor Health, who have partnered with LUNGevity on our Experts Nutrition blog. Here is the link to submit a question: https://lungevity.org/savor-health-nutrition-blog-questions
    With gratitude,
    Lauren
    --
    Digital Community Manager
    LUNGevity Foundation
  10. Like
    Susan N. got a reaction from LexieCat in Newly joined.   
    Thank you Lexiecat. Now I can eat and still enjoy my life then:).
  11. Like
    Susan N. got a reaction from BridgetO in Newly joined.   
    Thank you Lexiecat. Now I can eat and still enjoy my life then:).
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