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Candi

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  1. Thanks
    Candi got a reaction from suecris in Newbie   
    That is info I hadn’t yet found, thank you suecris. I am definitely not saying game over, I was just reading on a cancer website and their prognosis for treatment when spread to the brain is pretty grim. I apologize for being gullible to all that I read, I do usually take things at face value but a quitter I’m not. 😊
  2. Like
    Candi reacted to suecris in Newbie   
    From what I've been reading the past few weeks, it's not "game over" until you decide it is. They almost always have something to throw at it.
    All my life I've admired people who can continue to hang in there even when things look rough. There may be tailored therapies suited to the DNA of your tumor that will bite it back without making you too sick. That's a thing, now. 
  3. Like
    Candi reacted to Judy M. in Newbie   
    Thanks for sharing with us. Glad you're feeling good. Oncologist should have a plan of attack. 
    Judy M. 
  4. Like
    Candi got a reaction from Roz in Newbie   
    Thank you suecris and Judy. I did have the PET scan yesterday and an appointment with my dr today. The preliminary report states the cancer has spread in my lung to additional lymph nodes and there are 2 spots on my brain. I see the oncologist tomorrow to see if there is a plan of attack. I’m feeling good (not that that can’t go south quick) but for now I’m doing good.  Thank you so much for asking ❤️
  5. Like
    Candi got a reaction from Judy M. in Newbie   
    Thank you suecris and Judy. I did have the PET scan yesterday and an appointment with my dr today. The preliminary report states the cancer has spread in my lung to additional lymph nodes and there are 2 spots on my brain. I see the oncologist tomorrow to see if there is a plan of attack. I’m feeling good (not that that can’t go south quick) but for now I’m doing good.  Thank you so much for asking ❤️
  6. Like
    Candi reacted to LexieCat in Newbie   
    One tip--ask when the results will be back, and when/how you will be advised of them; then, once you've met with your doctors, ask for copies of reports of any tests or imaging.  Even if your treatment turns out to be very simple, there will be a LOT of them, and no way to remember what they all said.  I keep all my reports in a folder, which my cancer center provided me with.  Every so often I want to refer back to previous scans (e.g., to track the nodules that do/don't appear on my various scans).  
  7. Like
    Candi reacted to Judy M. in Newbie   
    Me too Candi. Thinking of you and wondering how it went. We're all pulling for you. 
    Judy M
  8. Like
    Candi reacted to suecris in Newbie   
    Hi Candi - I was wondering how your PET scan yesterday went, and if you have heard any results yet? Thinking of you.
  9. Like
    Candi got a reaction from Tom Galli in Newbie   
    Thank you so much Tom,
    All of this still so new to me, I am absorbing everything being said like a sponge. I will be going over the notes in your essay many times, what a brilliant gift you have shared. I have seen the Shawshank Redemption, powerful movie and message. As I said, I am just beginning, I have not even met with an oncologist yet, however, my concern is the “wild ride” you speak of in treatment and the copious amounts of notes and calendars. This is not a way of life I would desire, not even for the sake of remaining in this life one more day. I cherish life and those I love, but this at least by description does not sound like any quality of life at all. I will cross that bridge when I come to it and who knows, I may feel completely different at that time? Yours will be a message I will refer to often as I wait to take my turn. You have been somewhere I have never been, so I will in faith read and consider all that you have shared. Thank you so much Tom. God Bless.
  10. Like
    Candi got a reaction from Judy M. in Newbie   
    Judy and Susan,
    I was just speaking with an RN at my insurance company who also is a breast cancer survivor and she said exactly what you have,  to have family and friends beside you is so important but there is something special about sharing these journeys with others who have been right where you are. I loved your stories Susan, they sound like things I would do lol. I am thankful that through most everything I remain positive and trying to my best here as well. One of my issues with positivity is long story short, my husband passed unexpectedly 2 years ago, I battled my way through court hell for a year and a half with some of his family and just as I was nearly wiped out financially and ready to fold under the weight, I won the court case and thought FINALLY I can begin again and start putting my life back together and now THIS??!! Good grief, I’m worn out from fighting!!! lol The pneumonia I had Judy was rare and there really isn’t an exact treatment in place so it was a rough go, 12 days in the hospital most of which on a respirator. The combination of all of the antibiotics knocked it out though they tell me but yes you are right, I am still very weak, a bit short on breath and need to relax often, hard for me to get used too   I got a phone call a short while ago and I’m scheduled for a brain scan at 1:15 so I guess the diagnosing fun begins. I’ll let ya know if they happen to tell me anything.
  11. Like
    Candi got a reaction from Roz in Newbie   
    Thank you so much Roz, I promise to. This has been such an amazing forum, I’m so happy I found all of you ❤️
  12. Like
    Candi reacted to Roz in Newbie   
    Being healthy prior to your lung cancer diagnosis is a huge plus. It will help your body recover from whatever course of treatment is decided on.
    Please ask if you have any questions...we are all here to support you as best we can!
     
    Ro
  13. Like
    Candi reacted to BridgetO in Newbie   
    Hi Candi,
    I also second what LexieCat said about lung cancer not being a punishment. I've never been a smoker and i've had it. I've also had breast cancer and cervical/endometrial cancer. I suppose some of my actions (like bad diet and being overweight) may have increased my rsk. But cancer isn't my fault. It's just the luck of the draw.  Might be related to my chromosomes  and/or environmental factors, who knows? A lot of people with similar chromosomes and environmental factors never have it. It isn't my fault, and it isn't your fault either!  Take it easy on yourself. You need your energy for dealing with this thing and for living. Don't waste any of it on guilt. Cancer is just an illness. Hang in there. We're all in this together.
    Briget O
  14. Like
    Candi got a reaction from Judy M. in Newbie   
    It does now that you put it that way Judy. I sincerely do not believe I am in denial, I have abused my body with smoking and am one that has always accepted punishment for my actions (even when it broke my heart with repentance) but something about this just doesn’t seem right to me? All would have had to have been with me to hear the progressive conversations between myself and the doctors involved but I will just wait and see what the PET scan tells me on Wednesday. Thank you so much for the clarification Judy, I’m not sure what I would do without you ❤️
  15. Like
    Candi got a reaction from Tom Galli in Newbie   
    Thank you to both of you! I will be sure to utilize both at my visit. This forum has been so helpful and uplifting to me, I cannot thank all of you enough! God Bless.
  16. Like
    Candi got a reaction from Tom Galli in Newbie   
    Yes the PET scan is my fear also however I will face whatever the results with as much positive determination as I can. I wish you well on yours also.
  17. Like
    Candi reacted to Judy M. in Newbie   
    Candi
    If someone hasn't alerted to you to this already Lungevity has a list of questions you can print out to take to your Oncologist. All this is so overwhelming that it's hard to even think about what to ask let alone remember it. I know my reaction when I first read the list was,' Oh yeah, I want to know, or need to know, that."Lexie will probably hop on and send you a link. She's so ready and willing to help. We love her. She's our go-to-girl
    . Also, I put a good recording app on my phone and recorded my visits with my Oncologist. You will  be overwhelmed by information when he starts talking to you too. This way you can play it again whenever you need to remember something. And I just emailed those early recordings to my family who of course all want to know what the doctor said. That way I knew I was getting it right. 
    Judy M. 
  18. Like
    Candi reacted to BridgetO in Newbie   
    About aggressiveness: my adenocarcinoma was so slow growing and small that it didn't light up the PET scan at all, so I think mine, anyway, wasn't very aggressive. I was told that thr is  a high rate of recurrence. I hope if it recurs it's as sluggish as the first one.
    Bridget O
  19. Haha
    Candi reacted to LexieCat in Newbie   
    The term is "adenocarcinoma," not "adrenal carcinoma" (which would refer to a cancer of the adrenal glands).  Even though lung cancer sometimes metastasizes to the adrenal glands, it's still considered lung cancer, not adrenal cancer.  LOL, Judy can tell you I'm our resident spell-checker, but I just want to be sure you have it right so you're looking up the right thing.
    Adenocarcinoma can, indeed, be aggressive, though it isn't considered the most aggressive type of lung cancer.  How aggressive it is varies from person to person.  Not all recur, nor do they spread, if surgery can remove it at an early stage.  
    2.7 cm isn't tiny (it was large enough to biopsy) but it's small enough that there's a good chance of removing it by surgery (lobectomy), unless it's in a dangerous location or your lung function would not permit surgery.  Still, if the PET scan should show that it has spread, you might get chemo before any surgery.  It really does depend on a lot of factors.  
    I'd suggest you start making a list of questions for the doctor.  He might not be able to answer them all till more testing is done, but over time and with more information, the path forward will be clearer.  This really is one of those "one step at a time" things, which can be frustrating while you are waiting for tests and results.  Ultimately, though, that's the best way for the doctors to figure out the most appropriate treatment.
  20. Like
    Candi reacted to Judy M. in Newbie   
    I sometimes wonder if they shouldn't call cancer (or at least lung cancer) the healthy person's disease. I also was very healthy and had nothing but a dry cough. Felt great. Once had a doctor tell me that barring accident I should live to be 100. Having been around this forum and reading posts for almost 2 years now, so many of us are exactly like that-very healthy. Wonder if there's a clue there?
    Judy M
  21. Like
    Candi reacted to BridgetO in Newbie   
    ouHi Candi,
    Welcome to the club nobody wants to join. I'm sorry to hear about your diagnosis. Cancer is really a hard thing to get your head around. Your doctor is wise in recommending you not Google at this point. It's hard to know what information is reliable and also to understand some of the technical stuff that is reliable. If you want basic and relaiable info, a good place to start is Lung Cancer 101 at the main Lungevity site. Here's the link: https://lungevity.org/for-patients-caregivers/lung-cancer-101. Later on, you may want to Google, but I agree not now. When looking at any lung cancer info (or thinking about lung cancer), here are a couple of things to keep in mind. First, treatment is changing and improving by leaps and bounds. There have been 17 new treatments approved in the last couple of years. Statistics are typically based on 5 year  periods, so by the time we see them, they're outdated.Secondly, statistics are based on large numbers of people and everybody is an individual. So they don't tell how YOU will do.
    A lot of us do just fine-- you'll undoubtedly hear from many of them here.
    I'm 72, had my lower right lobe removed in Novermber 2016, My cancer was small and slow growing and I didn't need treatmenr other than the surgery. Like LexieCat,  I recovered quickly and am doing well.
    Hang in there and let us know what questions you have and how we can support you.
    BTW,  I see you're from Oregon. I'm in Portland. Not many of us Oregonians on these forums.
    Bridget O 
  22. Like
    Candi reacted to LexieCat in Newbie   
    Well, one thing I think you may not be correct about is the size of the "mass"--a term referring to a tumor that usually is 3 cm or greater--which would be 10 times as large as a 3 mm tumor (which would typically be referred to as a "nodule," rather than a "mass").  So you might want to get clarification on the size.  
    And I think what he meant when he was trying to discourage you from googling is not to get hung up on survival statistics--which for any lung cancer can be pretty scary.  The thing is that those stats are based on people diagnosed over five years ago (with advances being made every day), plus they are averages--there's no reason not to assume you'll be on the long-term end of the curve.    With so many variables, I found it VERY important to google and research online, as long as you are looking at reliable sources.  Lungevity has a "Lung Cancer 101" section here: https://lungevity.org/for-patients-caregivers/lung-cancer-101.  
    Lung cancer is nothing to mess around with.  There are times when you will have choices to make, but those should be informed choices.  For instance, my cancer was Stage Ib, which happens to be the only stage for which chemo or other drug therapy is considered optional.  For 1a, it's generally NOT recommended because it actually does more harm than good.  For Stage II or greater, drug therapy is almost always recommended (and/or radiation, depending).  I opted to forego chemo, and instead go for scans every six months to monitor for any recurrence.  Lung cancer is very tricky, and it often recurs or spreads after first-line treatment, so even if you have "curative" treatment that appears successful, you have to continue to be vigilant.  
    All that said, depending on what your further tests show, treatment may not impact your life all that dramatically.  Every case/patient is different.  
    So I wouldn't be casual about it, but you certainly don't need to hit the panic button at this point.  You DO need to inform yourself, though, and treat lung cancer as the worthy adversary that it is.
  23. Like
    Candi reacted to LexieCat in Newbie   
    Oh, and incidentally, adenocarcinoma is the most common type of lung cancer--my surgeon refers to it as "garden-variety."  It's neither the least nor most aggressive type, but it's probably the most well-studied, and there are a lot of types of treatments available.
  24. Like
    Candi got a reaction from Judy M. in Newbie   
    Hi Judy,
    I would love to believe there is something positive to being healthy in spite of the diagnosis, it would seem there would be benefits. Having cancer is one thing, my biggest struggle right now is not being able to breathe comfortably. Hopefully that isn’t a negative indication. Thank you for your information and replying, God Bless.
    Candi
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