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LOVEMAMA

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  1. Like
    LOVEMAMA got a reaction from Judy M. in The Journey Continues   
    Hope the surgery goes great for you Judy
  2. Like
    LOVEMAMA got a reaction from LexieCat in The Journey Continues   
    Hope the surgery goes great for you Judy
  3. Like
    LOVEMAMA reacted to Roz in Hello everyone, My mom was diagnosed with non-small cell lung cancer in March 2018   
    Wishing your mom all the best with the treatment and hope for positive results from the Keytruda!!
     
    Ro
  4. Like
    LOVEMAMA got a reaction from DDOT in my mother was diagnosed with lung cancer adenocarcinoma Stage 4   
    Thank you so much Roz, we will go to see he Dr tomorrow for the blood test and will start the IMMUNE PD1 Keytruda on Friday.
    Hope we all get good response
  5. Like
    LOVEMAMA reacted to Mally in my mother was diagnosed with lung cancer adenocarcinoma Stage 4   
    Hi Lovemuma. Sorry to hear about your mum and we all know about the earthquake feeling but we also know how things can settle down once we get treatment started...I had surgery Jan last year and was stage 3A and followed up with 4 rounds of chemo which worked for 6 months and then some lymph nodes were seen to be enlarged in my chest on the next scan and largest measured 26mm so I'm currently on opdivo which is an immunotherepy and today I got the results of my latest scan showing it's only 2mm so I'm hoping next scan that it cant be seen at all so you have a good reason to be hopeful with the new treatments available today ...
  6. Like
    LOVEMAMA reacted to Steff in my mother was diagnosed with lung cancer adenocarcinoma Stage 4   
    Anytime, I can offer some hope when you need, I definitely will.  I understand your fear and stress...I am an only child too and my mom is the caregiver for my disabled father. But even through all of this we still make it.  You and your mom will too.  BTW, the concert photo was taken when my mom was actively on chemo and Keytruda. Her face was round because she was finishing up a stint of steroids, but as you can see, she's happy and loving life.  You will get through this.
  7. Like
    LOVEMAMA got a reaction from Tom Galli in my mother was diagnosed with lung cancer adenocarcinoma Stage 4   
    Thank you so much Steff, as you said, the cancer does shake all involved and there are aftershocks for forever.
    I love my mother and I am the only child (son) of the family. I will be the one who take care of her and let her feel happy everyday.
    And as you mentioned, we are together, there is hope...
    Hope your mother feels better about the arm... she is so lucky to have such a great daughter like you!
    BTW I saw the photo of you and your mother after the concert! She looks great and so happy!
    I can tell you that I cry when I saw that photo because I am so happy for you and your mother and I saw HOPE for my mother and our family too!
    Take care Seff and thank you again for your comment...
  8. Like
    LOVEMAMA got a reaction from Roz in my mother was diagnosed with lung cancer adenocarcinoma Stage 4   
    Thank you so much Roz, we will go to see he Dr tomorrow for the blood test and will start the IMMUNE PD1 Keytruda on Friday.
    Hope we all get good response
  9. Like
    LOVEMAMA reacted to Roz in my mother was diagnosed with lung cancer adenocarcinoma Stage 4   
    Hi,
    So sorry to hear about your mother's diagnosis. She is lucky to have you there to support her.I  found that my daughter was my greatest source of support and she came with to all of my appointments. My son was supportive as well but as he lives out of the state, couldn't come with to appointments.  I was diagnosed in Aug. 2017 and had two surgeries, Sept and Oct 17.  They call it stage 4 and I did some chemo from Jan thru end of Feb. I have CT scans every three months and there is NED. Continue to believe and know there are lots of us out here that are moving forward with our lives in the face of lung cancer. These forums have such wonderful and supportive people so that if you have any questions, don't be afraid to ask. Sending you and your mom tons of positive energy!!
     
    Ro
  10. Thanks
    LOVEMAMA reacted to Roz in my mother was diagnosed with lung cancer adenocarcinoma Stage 4   
    Hi,
    So sorry to hear about your mother's diagnosis. She is lucky to have you there to support her.I  found that my daughter was my greatest source of support and she came with to all of my appointments. My son was supportive as well but as he lives out of the state, couldn't come with to appointments.  I was diagnosed in Aug. 2017 and had two surgeries, Sept and Oct 17.  They call it stage 4 and I did some chemo from Jan thru end of Feb. I have CT scans every three months and there is NED. Continue to believe and know there are lots of us out here that are moving forward with our lives in the face of lung cancer. These forums have such wonderful and supportive people so that if you have any questions, don't be afraid to ask. Sending you and your mom tons of positive energy!!
     
    Ro
  11. Thanks
    LOVEMAMA reacted to Steff in my mother was diagnosed with lung cancer adenocarcinoma Stage 4   
    Hi there,
    My mom, too, has adenocarcinoma, advanced stage. Her original diagnosis was 3A in 2015.  She had a lobectomy then follow up chemo and radiation.  Lung cancer did what it does and it came back within 1 year. Now, my mom has been on Keytruda for nearly a year.  Her NSCLC recurrence showed up in a mass on the back of her trachea.  It's been a tough year, I'm not going to lie. But the easiest part of it all has been Keytruda.  She began the treatment with Keytruda + chemo combo that is standard of care now.  The chemo was really tough on her, but when she started receiving Keytruda only, things got so much better.  After nearly a year, the only issue she is having that can be directly contributed to Keytruda is very itchy skin on her arms.  We are working on getting that under control.  Cancer-wise, all looks good. My mom is not the only success story for Keytruda.  Immunotherapy is very common place now and tons of late stage lung cancer patients are benefiting from Keytruda even if they have a low expression of PD-L1 cells (my mom is over 90%). 
    When my mom was first diagnosed with her recurrence, I looked EVERYWHERE for hope.  It was hard to find. That is until I found Lungevity and these forums.  We are here for you, we are here for your mom.  My main takeaway from conversing with the members of this group is that there is hope, lung cancer is not only survivable, but you can LIVE with it.  I recommend checking out the immunotherapy information on Lungevity's website to read up on the drug, it's common side effects, and other pertinent info.  You can also enroll in weekly emails from the makers of Keytruda that sometimes have helpful tips and they have a nurses line too (I've never used it, but it's available). 
    I like your reference to lung cancer being an earthquake...it does shake all involved and there are aftershocks for forever.  Not knowing next steps at this point is pretty normal and being nervous about that is okay.  Once the routine of Keytruda is established and you see that she is handling the drug well, things seem to calm down so you can ready yourself for the next battle.  Hopefully Keytruda will be the thing that knocks your mom's lung cancer is back. 
    Take care,
    Steff
  12. Like
    LOVEMAMA reacted to Helpingmom in Keytruda   
    My mom's scan was amazing! They actually showed her all her scans for the last year so she was able to really see the progress keytruda has made. The spot in her liver is almost gone and can barely be seen. The spot in her lung which had looked as she put it" like a giant hole" is now the size of a pencil eraser smudge. She said it was 1.2cm. On her last scan 4 months ago it was 1.6!  There is also no new activity in the lymph nodes or anywhere else. I'll take that! I honestly don't know how this all works as far as how much more time this will mean for her though, but as there has been no progression, I take it as a win. Prayers as always for all of you!
  13. Haha
    LOVEMAMA reacted to Helpingmom in Keytruda   
    My mom's scan was amazing! They actually showed her all her scans for the last year so she was able to really see the progress keytruda has made. The spot in her liver is almost gone and can barely be seen. The spot in her lung which had looked as she put it" like a giant hole" is now the size of a pencil eraser smudge. She said it was 1.2cm. On her last scan 4 months ago it was 1.6!  There is also no new activity in the lymph nodes or anywhere else. I'll take that! I honestly don't know how this all works as far as how much more time this will mean for her though, but as there has been no progression, I take it as a win. Prayers as always for all of you!
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