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ColleenRae

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Posts posted by ColleenRae

  1. Dear Steph,

    I can't find the right words to say other than I am heartbroken and so sorry that your mom and your family are going through this.  You sound like such an amazing young person; obviously your mother's kid!  Just feel sick reading this. Your mom has given so much of herself on this forum (and I suspect in all aspects of her life); it's really hard knowing there is nothing I can do but praise you for your love and care for her and wish her the peace and comfort she deserves.  I lost a brother years ago (HIV) and it was the most painful and yet  one of the most intimate and powerful experiences of my life caring for him. Thank you for taking the time to post. As you can see - Teri truly means a lot to this community.  Your mom really is fortunate to have you. Please know you are all in my thoughts here out west in WA state.  Love to Teri always... Colleen

  2. I have been away for a long time - trying to catch-up on some posts tonight and saw the topic...  I was so sorry to read of Teri's troubles but hopeful to hear things are getting better. She amazes me! I will definitely be sending good vibes her way. She has helped so many of us on this forum and she means a lot to each of us. Thank you for letting us know. She is fortunate to have you!

  3. Shelkay,

    I'm glad to hear you've made contact with someone helpful who can be of benefit to you.  I worked with a lung nurse navigator locally and she was fantastic.  I ended up going outside of my community for surgery but she still keeps in touch with me and is working with my pulmonologist.  She has been a great 'hand holder" in guiding me towards information and resources and just made me feel like I wasn't completely alone.  I know you've been steered in different directions, so hope this will help you! My surgeon did not do any biomarker or genetic testing, so no use with the BRAF V600E mutation info you need - I hope you'll get responses from others here. I'm sure that would help to have others to discuss it with.  You hang in there... thinking of you and hope these new connections can steer you in the right directions.

  4. Hello Larry... Looks like you were the OP. I'm sorry I don't know much at this point about BRAF, but I hope you'll get some info here from others.

    Shelkay - Very sorry to hear what you're dealing with and the need to dive into more research. You've got this down; you've proven that!  I hope your oncologist will work diligently with you on this.  Thinking of you!

    Thank you, Michelle, for the YouTube Addario Foundation link... It's post like yours that offer so much info to all of us out here. I've bookmarked that site and will view it as I'm interested in all of this treatment / research info.  Thank you!

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