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ColleenRae

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Everything posted by ColleenRae

  1. This was just lovely, Tom. I loved seeing her enlarged photo as well! Teri was very helpful in sharing her experience with VATS Lobectomy prior to my own in October 2018. She was amazing in all that she contributed here on this forum. I am not on the forum often (I'd like to be more), so I was not on top of her condition and learned later that she had been dx'd again. It really hurts to lose someone like her. Amazing gifts she gave during her lifetime. I know I will never be able to respond as fast, rattle info off so quickly or deal with cancer as gracefully as she did, but she is really a beacon to follow. Thank you for posting this, Tom.❤️
  2. ColleenRae

    Covid and me

    Thank you for sharing your story, Lisa...
  3. Shelkay, I'm glad to hear you've made contact with someone helpful who can be of benefit to you. I worked with a lung nurse navigator locally and she was fantastic. I ended up going outside of my community for surgery but she still keeps in touch with me and is working with my pulmonologist. She has been a great 'hand holder" in guiding me towards information and resources and just made me feel like I wasn't completely alone. I know you've been steered in different directions, so hope this will help you! My surgeon did not do any biomarker or genetic testing, so no use with the BRAF V600E mutation info you need - I hope you'll get responses from others here. I'm sure that would help to have others to discuss it with. You hang in there... thinking of you and hope these new connections can steer you in the right directions.
  4. Hello Larry... Looks like you were the OP. I'm sorry I don't know much at this point about BRAF, but I hope you'll get some info here from others. Shelkay - Very sorry to hear what you're dealing with and the need to dive into more research. You've got this down; you've proven that! I hope your oncologist will work diligently with you on this. Thinking of you! Thank you, Michelle, for the YouTube Addario Foundation link... It's post like yours that offer so much info to all of us out here. I've bookmarked that site and will view it as I'm interested in all of this treatment / research info. Thank you!
  5. Loved seeing this Susan... Sorry for being late in congratulating you. I admire you and want you to know that it does inspire others, like me...
  6. Tom, Thank you for this link (you provided in a reply to my post yesterday). Very well-written and beneficial - encompassing so much more than what clinic or med school the practitioner has attended. Thank you for reminding me to keep that perspective as well in this journey. Your surgeon sounds wonderful. I can't imagine the mutual bond you both must have as a result of your experiences and history, and the help he provided for your daughter as well. That was uplifting to read. Really enjoying your posts, information and willingness to help others on this path. Thank you.
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