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ColleenRae

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  1. Like
    ColleenRae got a reaction from Roz in 1st Scan Post Surgery on Wednesday   
    Hi Debbie,
    Completely share in your anxiety... My 2nd post-op CT is scheduled for 08/27 and I'm having a very difficult time containing my anxiety / fears.  Fortunately I will have the CT and meet with my surgeon an hour later for the results, so I am grateful I won't have to wait.  It will be a long day. Over a two hour drive there and then back again. I'm just hoping I don't cry while driving!
    I had my right upper lobe removed in October 2018; no chemo or radiation. First follow-up scan was in February. My surgeon and another cancer clinic both felt the scan looked fine but my local pulmonologist is certain there's been a change in a couple of nodules in the upper left lung and said he believes it's another slow growing malignancy... So, I am very anxious to find out what the consensus will be this time. I hate every minute of this, believe me - as I'm sure all of us do.  I have tried very hard to ignore my fear, but I've found this past month, as the CT date draws near, that I have been much crabbier, more negative in my thoughts (oh how I hate that!), restless, etc.
    I have not had a problem with my insurance and the CT's... My first one was only 4 months following surgery; this one we're waiting exactly 6 months.
    I don't blame you re: the MRI... I had one many years ago and did okay with it. Most recent one I had was very difficult... I had a serious panic attack and they had to stop. They wanted to reschedule with me being semi-medicated, but I insisted we try again, that I could handle it. I found that the trick for me was to keep my eyes closed the entire time and focus on the music... When I open my eyes I really freak out due to the tight, enclosed space.
    Good luck with this. Glad you can get your results soon and hoping you get good news. Will keep you in my thoughts / sending positive wishes your way...
     
  2. Like
    ColleenRae reacted to Deb W in 1st Scan Post Surgery on Wednesday   
    Hi everyone,
    Thanks so much for your thoughtful comments and advice.  It means a lot to me.  So, I spoke to a health advocate and they believe this MRI is the best way to go.  I'm going ahead with the MRI, but now I won't be having it until 8/28.  Colleen, thanks for sharing and I am hoping for a NED result for you, please keep us posted.  I have also been crabby and impatient lately which I think is due to upcoming scan.  Xanax and a mask it is for scan day!  It's just a very different way to live - thoughts drifting to the worry of recurrence.   Tom, 15 years of scans...you're a warrior!
     
  3. Thanks
    ColleenRae reacted to BridgetO in 1st Scan Post Surgery on Wednesday   
    Deb, hang in there. The anxiety of the wait for results is universal or nearly so.
    Colleen Rae, Good to hear from  you again. I wish you all the best with your CT scan .
     
  4. Thanks
    ColleenRae reacted to Tom Galli in 1st Scan Post Surgery on Wednesday   
    ColleenRae,
    If your doctor believes the nodes are malignant, don't forget precision radiation as a treatment method. Surgeons are sometimes reluctant to 
    "pluck" lymph nodes depending on their location but radiation oncologists have and easier route and recovery is much faster.
    I do hope your scan is NED.
    Stay the course.
    Tom
  5. Thanks
    ColleenRae got a reaction from Deb W in 1st Scan Post Surgery on Wednesday   
    Hi Debbie,
    Completely share in your anxiety... My 2nd post-op CT is scheduled for 08/27 and I'm having a very difficult time containing my anxiety / fears.  Fortunately I will have the CT and meet with my surgeon an hour later for the results, so I am grateful I won't have to wait.  It will be a long day. Over a two hour drive there and then back again. I'm just hoping I don't cry while driving!
    I had my right upper lobe removed in October 2018; no chemo or radiation. First follow-up scan was in February. My surgeon and another cancer clinic both felt the scan looked fine but my local pulmonologist is certain there's been a change in a couple of nodules in the upper left lung and said he believes it's another slow growing malignancy... So, I am very anxious to find out what the consensus will be this time. I hate every minute of this, believe me - as I'm sure all of us do.  I have tried very hard to ignore my fear, but I've found this past month, as the CT date draws near, that I have been much crabbier, more negative in my thoughts (oh how I hate that!), restless, etc.
    I have not had a problem with my insurance and the CT's... My first one was only 4 months following surgery; this one we're waiting exactly 6 months.
    I don't blame you re: the MRI... I had one many years ago and did okay with it. Most recent one I had was very difficult... I had a serious panic attack and they had to stop. They wanted to reschedule with me being semi-medicated, but I insisted we try again, that I could handle it. I found that the trick for me was to keep my eyes closed the entire time and focus on the music... When I open my eyes I really freak out due to the tight, enclosed space.
    Good luck with this. Glad you can get your results soon and hoping you get good news. Will keep you in my thoughts / sending positive wishes your way...
     
  6. Like
    ColleenRae got a reaction from LouT in 1st Scan Post Surgery on Wednesday   
    Hi Debbie,
    Completely share in your anxiety... My 2nd post-op CT is scheduled for 08/27 and I'm having a very difficult time containing my anxiety / fears.  Fortunately I will have the CT and meet with my surgeon an hour later for the results, so I am grateful I won't have to wait.  It will be a long day. Over a two hour drive there and then back again. I'm just hoping I don't cry while driving!
    I had my right upper lobe removed in October 2018; no chemo or radiation. First follow-up scan was in February. My surgeon and another cancer clinic both felt the scan looked fine but my local pulmonologist is certain there's been a change in a couple of nodules in the upper left lung and said he believes it's another slow growing malignancy... So, I am very anxious to find out what the consensus will be this time. I hate every minute of this, believe me - as I'm sure all of us do.  I have tried very hard to ignore my fear, but I've found this past month, as the CT date draws near, that I have been much crabbier, more negative in my thoughts (oh how I hate that!), restless, etc.
    I have not had a problem with my insurance and the CT's... My first one was only 4 months following surgery; this one we're waiting exactly 6 months.
    I don't blame you re: the MRI... I had one many years ago and did okay with it. Most recent one I had was very difficult... I had a serious panic attack and they had to stop. They wanted to reschedule with me being semi-medicated, but I insisted we try again, that I could handle it. I found that the trick for me was to keep my eyes closed the entire time and focus on the music... When I open my eyes I really freak out due to the tight, enclosed space.
    Good luck with this. Glad you can get your results soon and hoping you get good news. Will keep you in my thoughts / sending positive wishes your way...
     
  7. Like
    ColleenRae got a reaction from BridgetO in Change or Role   
    Bridget,
    I have not been online here for a while and just read the posts... Geez! I'm so sorry to hear about your wife's dx and what you both are facing in this. You've been so encouraging and helpful when I asked questions / needed support... Please know that I'll be thinking of you both and sending hope and positivity your way.  I want to reciprocate and all I feel I can do is to let you know you are being thought of and I'm making my appeals to the Universe on your behalf!  From what you've written, the news does sound hopeful. We'll hang onto that. You DO have a lot of people here who will support you in this... Colleen
  8. Like
    ColleenRae got a reaction from Rower Michelle in 1st Scan Post Surgery on Wednesday   
    Hi Debbie,
    Completely share in your anxiety... My 2nd post-op CT is scheduled for 08/27 and I'm having a very difficult time containing my anxiety / fears.  Fortunately I will have the CT and meet with my surgeon an hour later for the results, so I am grateful I won't have to wait.  It will be a long day. Over a two hour drive there and then back again. I'm just hoping I don't cry while driving!
    I had my right upper lobe removed in October 2018; no chemo or radiation. First follow-up scan was in February. My surgeon and another cancer clinic both felt the scan looked fine but my local pulmonologist is certain there's been a change in a couple of nodules in the upper left lung and said he believes it's another slow growing malignancy... So, I am very anxious to find out what the consensus will be this time. I hate every minute of this, believe me - as I'm sure all of us do.  I have tried very hard to ignore my fear, but I've found this past month, as the CT date draws near, that I have been much crabbier, more negative in my thoughts (oh how I hate that!), restless, etc.
    I have not had a problem with my insurance and the CT's... My first one was only 4 months following surgery; this one we're waiting exactly 6 months.
    I don't blame you re: the MRI... I had one many years ago and did okay with it. Most recent one I had was very difficult... I had a serious panic attack and they had to stop. They wanted to reschedule with me being semi-medicated, but I insisted we try again, that I could handle it. I found that the trick for me was to keep my eyes closed the entire time and focus on the music... When I open my eyes I really freak out due to the tight, enclosed space.
    Good luck with this. Glad you can get your results soon and hoping you get good news. Will keep you in my thoughts / sending positive wishes your way...
     
  9. Like
    ColleenRae reacted to Isabelle49 in CT results   
    CT done Friday, results online today. Shows a reduction in width of mass from 8.3 cm to 5. Keeping my excitement contained until I see the doc tomorrow, since I’m not sure what the expectation were. Happy it is smaller though. Blessings to all.
  10. Like
    ColleenRae reacted to BridgetO in Change or Role   
    Update: My wife is set for lumpectpmy on August 28. It will be a day surgery. The tumor appears to be small and "garden variety", so we're optimistic about a good outcome. Afterwards, she'll  have radiation.
  11. Like
    ColleenRae reacted to BridgetO in Change or Role   
    .Thank you to all of my sisters and brothers on the forums. Your support, hugs, positive thoughts and ju-ju are coming through loud and clear. They mean a lot. I'll keep you posted.
  12. Like
    ColleenRae reacted to Rower Michelle in Change or Role   
    Spooling up the prayers for your wife Bridget.  I'm so sorry you're having to deal with this now.  One of the hardest things for me to deal with when hubby had an unplanned surgery late last year is how helpless I felt.  I can control my feelings and how I respond to my lung cancer.  I can choose my attitude.  I'm assertive enough to bully my way through just about anything.  But when it comes to a spouse, gosh, it's just soooo hard.   You've been through this to pave the way for your wife.  You're very creative, witty and know how to deal with the train wreck of this healthcare delivery system, plus you've got a tried and true hippie protocol.   Keep us posted so we can go through this with you, the scans, tests and waiting.  Your wife has just inherited the family here.   Be strong, lean on us.  We'll be here for you just like you're here for us.  
    A big hug to you and your wife.   
    Michelle 
  13. Like
    ColleenRae reacted to BridgetO in Change or Role   
    My wife has just been diagnosed with breast cancer, so now I'm a caregiver. She had a biopsy about 10 days ago. She has a history of back issues. During the biopsy she had to be in an odd, twisted position and shortly afterwards she began having back pain, which got worse over a couple of days until she was incapacitaed by pain. I managed to get her in to urgent care where she was diagnosed with muscle spasms. With conventional medicine and accupunture she's now functional again, though still has some pain. Hopefully this "pre-treatment" pain will be the worst she'll experience. 
    She has seen me through  treatment for 3 cancers, including breast, and the most  recent being the lung cancer. So now it's my turn. I think my  cancer experience has made it a little easier for both of us. We know something  about cancer and cancer treatment. Also I'm NED on all 3 cancers. I'm 11 years out on the breast cancer, so this helps her be optimistic. 
     I'll be going with her for a consultation with a surgeon later this week.  All  prayers and positive thoughts welcome here!
    Bridget O
  14. Like
    ColleenRae reacted to PaulaC in Radiation Side Effects - husband suffering   
    Georgia, I went through the exact thing your husband is experiencing. The radiologist referred me to a doctor that did the procedure you talked about with the balloon. I ended up having it done twice to stretch my esophagus. I lost almost 40 pounds before I got it figured out. 
    Hopefully he can talk to the radiologist or oncologist about seeing a specialist. 
  15. Like
    ColleenRae reacted to Tom Galli in 1st Scan Post Surgery on Wednesday   
    Debbie,
    Sometimes, I think about a medical insurance CEO diagnosed with lung cancer and being denied a scan. Now that might change things!
    Yes it is scanziety season for me. My scan is September 9th and I'll wait a week for results. I've had so many scans in 15+ years that I believe I'm radioactive! Since there is no cure for scanziety...
    Stay the course.
    Tom
  16. Like
    ColleenRae reacted to Blossomsmom in My how things have changed   
    I am so thankful to have found this site and so appreciate everyone on it. Here’s why. On 1/14/91, my 63 year old father was diagnosed with Small cell lung cancer with brain mets after being hospitalized with what they thought was a heart problem. I was devastated. He lived only 5 months. Heartbroken and shell shocked don’t even begin to describe how I felt. And at that time, there was no online support, there were barely any in person support groups for adult children dealing with the horrors of what I had experienced. I truly thought I was going to lose my mind. It took me years to work through my grief. 
    Fast forward to 11/4/18. I took my 89 year old Mom to the ER for what I thought was severe dehydration from “the flu”. Things began to happen very rapidly once we arrived. Within about 30 minutes the  ER doctor told me that my Mom was either having or had just had a heart attack and as an added complication, her kidneys were shutting down. Ok, that explains all the activity in & out of her room I thought. While I was trying to process that, they did a chest X-ray which I thought was odd and then took her for a chest CT which again I thought was odd but at that point didn’t question. Shortly after that, the ER doctor gave me the news. My mom had a mass in her right lung & enlarged lymph nodes all of which they thought meant lung cancer. Wait, what? I thought I was going to throw up or pass out or both. I was thrown immediately back to 1991 and thought this can’t be happening again! But no time to process that, immediate concern was back to her heart & kidneys. Over the next week in the hospital slowly she began to recover.  Oncologist came in the last day she was in the hospital & explained the CT scan results again and the tests that would follow. But none of the tests could be done until she was recovered from the heart attack. Finally in January they biopsied her lymph nodes, came back inconclusive. We then waited & waited for the lung biopsy to be scheduled. It wasn’t until I called the surgeons office and told them if they didn’t get it scheduled in the next week that my Mom had decided she wasn’t going to have the biopsy at all and just get on with her life. She had the biopsy the following week.  From November through mid March I couldn’t help going back to 1991 and feeling terrified for what I thought was the death sentence my Mom was about to get. And of course Dr. Google didn’t help my preconceived notion of what was going to happen. We finally received the biopsy results on 3/28 and stage 4 small cell/non small cell lung cancer combo was diagnosed. I went into panic mode and thought back to when my mom took care of my dad over his last 5 months. How will I do all that, can I do what it takes, am I strong enough to do it, what will she go through, what about her quality of life and on and on for weeks. Then I just happened across a website called Lungevity.org and began to read the forums. I couldn’t believe what I was reading, people posting that they are LIVING with lung cancer, people posting HOPE, people posting ENCOURAGEMENT! I felt like I’d hit the lottery! Having gone down this road once before with nothing available, I feel incredibly lucky to have a place where people are sharing their first hand, boots on the ground real life experiences with everything related to lung cancer.  This site is helping me dig my way out of the very deep black hole and is giving me the strength to get through whatever we face for which I will always be grateful for. 
  17. Like
    ColleenRae reacted to KatieB in Lung Cancer & Antioxidants: New Research   
    Interestingly enough after this study came out I contacted my liver specialist about it.  I take very high doses of Vitamin E because 5 years ago there was a small study that showed taking 800 dose pill or more a day kept people with liver disease stable.
    Anyway- after this study came out I contact my hepatologist about it since I am someone at risk for lung cancer too.  He told me I should stop taking it because it has little benefit anyway and most supplements provide very little benefit and some all natural and synthetic supplements can actually cause more harm than good.  He recommends getting nutrients from foods when possible.
    Doesn't really answer the question about whether it promotes metastasis but I definitely suggest chatting with your oncologists about the pros and cons of it.
    Oh, and after 5 yrs I've made the decision to stop my vitamin E.  
     
    Keep us posted!
     
  18. Like
    ColleenRae reacted to Diana in Non-small Cell - 4.5 years later small cell - anybody?   
    I haven't had genetic testing done.  I wasn't sure if this would be considered transformed to SCLC after NSCLC since there was such a period of time with NED.  The term transformed has not been used for my case as I was told this is a new cancer 4.5 years after my previous cancer was removed, but maybe I need to ask more questions and I will. 
    Yes, initial pathology reports indicated no cancer, but my slides were sent for further testing at Mayo which is where the SCLC was diagnosed. 
    Thank you all of you for your responses.  Right now I am just swimming in a lack of information for situations such as mine.  While I can find adequate information on both SCLC and NSCLC, I am finding basically nothing on cases similar to mine. 
  19. Like
    ColleenRae reacted to Diana in Non-small Cell - 4.5 years later small cell - anybody?   
    Thus far, I have had no luck connecting with anybody that has had NSCLC and following a period of NED, diagnosed with SCLC.  I have joined several different forums hoping to connect with somebody.  The best I have come up with is that this is not unheard of, but I am getting the feeling it is relatively rare.   Since I have reached out to multiple organizations with no fellow NSCLC survivors later diagnosed with SCLC, I am starting to wonder if I am an oddity! 
    That said, I welcome the support of this SCLC community and am hoping to hear from you all with tips and tricks!  I officially lost my hair and had a shaving party last night.  No tears as I have been through it before and knew what to expect!  Onward!!!
     
  20. Like
    ColleenRae got a reaction from Diana in Non-small Cell - 4.5 years later small cell - anybody?   
    Diana,
    I'm sorry for your news... I can only imagine how upsetting the diagnosis was. That's understandable. I don't have experience in this to share with you (recent lobectomy only)  but hope that someone can share info with you. I'd be curious - as I have been curious if this type of situation arises very often.  It sounds as if your follow-up care  has been thorough which is a good thing, as well as getting immediate treatment to address this.  Thinking of you and hope you'll get some answers here...
  21. Like
    ColleenRae got a reaction from LouT in Introduction - Isabelle49   
    Isabelle,
    Just read all of the posts for this thread and wanted to let you know one more of "us" is thinking of you and wishing you well. 
    I, too, am a lung cancer survivor (although I'm still grappling with this) but have only undergone lobectomy (right upper lobe last October). My second scan is approaching (late August). My first post-op scan was in February... The radiologist from the imaging center reported a tumor on the left upper lobe that he believes to be "another slow growing malignancy". My surgeon did not agree and believes it is benign and unchanged for the past two years. Another cancer center reviewed the February scan and they agree with my surgeon. But my local pulmonologist agrees with radiology and is convinced this is another cancerous tumor. I'm not sure who to believe, so basically trying to ignore all of this until the next scan... I had to wait and watch for almost two years with the first nodule. You'd think I'd be used to this!
    I'm glad to see you have utilized this site and the support of some great people here... It was / has been a blessing for me. I am not as knowledgeable like so many others here... They have probably been one of the best resources / sources of help that I've found in my cancer journey.
    I'd just like to throw my two bits in regarding telling family about your "new"... My father is now deceased.  In the mid-1990's I believe it was suspected that he had lung cancer and/or esophageal cancer. I never did find out.  He kept this information private. The only way I found out something was up was that he called me very early one morning from a hospital in Seattle to tell me he was having surgery in a matter of hours and might not be able to speak with me again.  I was upset and I was pissed at him for not letting me know in advance. To make a long story a bit shorter, all went well from what I could gather. He did not lose his ability to speak. Outwardly, he seemed fine when I was able to see him again - although I saw the red "burn" from radiation on his neck. He refused to talk about the situation. I suspected he possibly had throat cancer but I never knew if they found lung cancer. Whatever treatment he had appeared to be quite brief and he had resumed his regular activities.  He passed away about 10 years later from a stroke.  I'm not sure why he chose to keep his medical information private from me (and the rest of my siblings; I was the only one he called from the hospital). I was pregnant at the time - this would have been the first grandchild - so maybe that had something to do with it. 
    In any case, there are many reasons why I wish he would have let me know about his diagnosis... I was his daughter. I loved him and would have wanted to help in any way I could if he needed it.  Now that I have experienced cancer myself, I wish I knew what kind of cancer he had... what doctors he went to, etc.  I completely understand the reasons why you weren't going to tell your family. I think we've all learned that cancer does not wait for an invitation and there will never be a good time for it to show up. Our own lives and those of our loved ones will all be affected by this. I have one child, an adult disabled son who lives with me. I had to tell him right away due to our living situation. It was difficult but sharing this experience together brought us even closer in many ways.  I needed his support more than I realized
    Hoping you obtain the best care and support possible, Isabelle...
  22. Like
    ColleenRae got a reaction from Tom Galli in Introduction - Isabelle49   
    Isabelle,
    Just read all of the posts for this thread and wanted to let you know one more of "us" is thinking of you and wishing you well. 
    I, too, am a lung cancer survivor (although I'm still grappling with this) but have only undergone lobectomy (right upper lobe last October). My second scan is approaching (late August). My first post-op scan was in February... The radiologist from the imaging center reported a tumor on the left upper lobe that he believes to be "another slow growing malignancy". My surgeon did not agree and believes it is benign and unchanged for the past two years. Another cancer center reviewed the February scan and they agree with my surgeon. But my local pulmonologist agrees with radiology and is convinced this is another cancerous tumor. I'm not sure who to believe, so basically trying to ignore all of this until the next scan... I had to wait and watch for almost two years with the first nodule. You'd think I'd be used to this!
    I'm glad to see you have utilized this site and the support of some great people here... It was / has been a blessing for me. I am not as knowledgeable like so many others here... They have probably been one of the best resources / sources of help that I've found in my cancer journey.
    I'd just like to throw my two bits in regarding telling family about your "new"... My father is now deceased.  In the mid-1990's I believe it was suspected that he had lung cancer and/or esophageal cancer. I never did find out.  He kept this information private. The only way I found out something was up was that he called me very early one morning from a hospital in Seattle to tell me he was having surgery in a matter of hours and might not be able to speak with me again.  I was upset and I was pissed at him for not letting me know in advance. To make a long story a bit shorter, all went well from what I could gather. He did not lose his ability to speak. Outwardly, he seemed fine when I was able to see him again - although I saw the red "burn" from radiation on his neck. He refused to talk about the situation. I suspected he possibly had throat cancer but I never knew if they found lung cancer. Whatever treatment he had appeared to be quite brief and he had resumed his regular activities.  He passed away about 10 years later from a stroke.  I'm not sure why he chose to keep his medical information private from me (and the rest of my siblings; I was the only one he called from the hospital). I was pregnant at the time - this would have been the first grandchild - so maybe that had something to do with it. 
    In any case, there are many reasons why I wish he would have let me know about his diagnosis... I was his daughter. I loved him and would have wanted to help in any way I could if he needed it.  Now that I have experienced cancer myself, I wish I knew what kind of cancer he had... what doctors he went to, etc.  I completely understand the reasons why you weren't going to tell your family. I think we've all learned that cancer does not wait for an invitation and there will never be a good time for it to show up. Our own lives and those of our loved ones will all be affected by this. I have one child, an adult disabled son who lives with me. I had to tell him right away due to our living situation. It was difficult but sharing this experience together brought us even closer in many ways.  I needed his support more than I realized
    Hoping you obtain the best care and support possible, Isabelle...
  23. Like
    ColleenRae reacted to Curt in Mom Just Diagnosed   
    Hi Kiera.  Welcome.  I’m sorry to hear of your moms diagnosis.  Steff has provided some great advice and encouragement.  She’s right regarding current treatments and prognosis.  I can tell from your post you are ready to confront whatever is required for your mom.  Your mom is lucky to have support like that.  
    I can relate regarding differing opinions on treatments.   It can be confusing and upsetting for all involved.  The only advice I can give is to focus on what your mom wants.  Her feelings and wishes are the most important.  
    Hang in there.  The initial part after diagnosis, before a treatment plan is in place, holds a lot of uncertainty and stress.  That all consuming feeling will start to pass as a treatment plan is settled on.  I’m the meantime plan some things with your mom that don’t have anything to do with her diagnosis.  Don’t push life aside because of it.  Enjoy the moments in between doctor visits and treatments.  Whether your mom survives five years or fifty you won’t regret those times. 
  24. Like
    ColleenRae reacted to Steff in Mom Just Diagnosed   
    Kiera,
    It's not wrong to feel hopeful, although I understand the feeling.  I too have been the main caregiver/advocate for my mom with advanced stage NSCLC adenocarcinoma.  I was feeling very hopeless when my mom was originally diagnosed but was even more hopeless when she was diagnosed with her recurrence.  My mom's mom, brother, and best friend all died from lung cancer.  We had not seen any positive outcomes after treatment, so I was very scared.  But, here we are nearly 4 years later.  
    I originally reached out to these forums in the search for hope and found it.  My goal now is to (hopefully) provide hope to others.  See, just 5 years ago, your mom's Stage IV diagnosis was a likely death sentence.  Now it is not.  With advancements in lung cancer treatment, for many, lung cancer is being treated as a chronic disease.  Radiation and chemo are no longer the only option and in fact, sometimes it's not even the first line of treatment.  You may find that your mom will have a couple of treatment options, depending on her biomarker testing.  
    It's great that you are keeping a notebook full of questions.  Continue to do that. Keep everything in one place and take it to every doctor's appointment. As your mom progresses in treatment this notebook will be able to demonstrate if there has been any health changes that are cause for alarm.  With no regular documentation, small health changes are hard to identify.  LUNGevity has some great questionnaires for folks in different phases of their journey, I used them to help me frame my thoughts.  You can find the questionnaires  here.
    I could go on and on, but I will leave you with this...I wish I had a magic wand for you, but I don't.  But know that you are not alone - we are here for you.  Please reach out to us whenever you need.  You will gain a lot of helpful information from the warriors here and you will also see that there is hope.
    Take care,
    Steff
     
  25. Like
    ColleenRae reacted to Kiera626 in Mom Just Diagnosed   
    My mom was just diagnosed with Stage IV Metastatic Adenocarcinoma by her pulmonologist.  She had a thoracentesis and the fluid they drained tested positive for metastatic cells.  We meet with her oncologist for the first time next Wednesday.  I am terrified.  It feels like just two months ago she was healthy and we were having our Saturday shopping and dinner dates.  We lost my dad very suddenly 14 years ago from a stroke, so she and I are all we have left.  I will be the sole caregiver and she is currently staying with me.  I am determined to face this head on with her and attack this with as much vigor as I can.  I've been doing research, keeping a notebook full of questions so I can make sure that I am asking the right questions, and reading up on supplements and meal planning.  I've bought a few books that have recipes and ideas for battling side effects of treatment, as well as foods that supposedly starve cancer cells.  My mom looks so frail and it scares me.  I guess I just wanted to see if anyone had any advice or hopeful information to help me help her through this.  I breakdown often when I am in bed at night, where she can't see me.  I feel like I need to be the strong one for her, but the thought of possibly losing my mom, who is my absolute best friend, is the worst feeling I have ever experienced.  It's also difficult because our friends and family are firmly divided in their views regarding treatment.  We have those who are anti-doctor/chemotherapy and  want us to focus on holistic care and those who are in the medical field and encourage treatment.  I know the risks associated with treatment, but if they explain that chemo is the only option and my mother wants to move forward with that, I will support her.  I'm just looking for any advice and support anyone may have.  It feels wrong to be hopeful right now, considering such a serious situation, but I want to find hope and encouragement for mom to fight this with all of her.
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