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ColleenRae

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  1. Like
    ColleenRae reacted to Karen_L in How active are you in the real world these days?   
    Just today I picked up an article about impacts of Covid on the brain. “One of Long Covid’s “Worst Symptoms Is Also Its Most Misunderstood” is about so-called “brain fog.” It’s sobering. From the article: 
    A neuro-oncologist at Stanford thinks Covid damages the brain without infecting it directly. She and her team showed that “when mice experience mild bouts of COVID, inflammatory chemicals can travel from the lungs to the brain.”
     
    We all know how much lung cancer likes the brain…the parallels between brain mets and Covid are interesting. 
    I can’t begin to imagine the long term damage Covid does to the lungs. I do not need to be coping with anything more than lung cancer. No concerts for me, for sure!
    https://www.theatlantic.com/health/archive/2022/09/long-covid-brain-fog-symptom-executive-function/671393/
     
     
  2. Like
    ColleenRae reacted to BridgetO in How active are you in the real world these days?   
    Yep, no concerts for me this season either!
  3. Like
    ColleenRae reacted to Karen_L in How active are you in the real world these days?   
    LilyMir, 
    Thank you so much for sharing. It helps me ground my instinctive response with perspectives from a scientific viewpoint. I've passed your info to my husband and will pass on attending concerts this season. 
    Karen
  4. Like
    ColleenRae reacted to LilyMir in How active are you in the real world these days?   
    I agree with you Tom that personal responsibility is very important but feel that such an approach makes more sense in other kinds of risks than a novel serious respiratory virus that spreads in the air (we have no jurisdiction on the air we breath). When someone eats unhealthy heart clogging diet, they only affect themselves. If someone goes skiing in marked avalanche back country, they only affect themselves (although even then, it breaks my heart how they often put rescue personnel in harms way). When someone deliberately spreads a terrible virus in the air publicly, things are not the same anymore as personal responsibility cannot protect you anymore.
    I totally support consent in vaccinations but also worry a lot that anti-facts are becoming so mainstream that polio (polio! the only disease humans managed to totally eradicate) is making it back as a measurable virus in the sewage of the richest city on earth. If society is not careful, I fear extreme individualism will be the end of civilization.  Whether it is crumbling eco systems or novel and re-emerging pandemics, we have to be very careful about supporting public health and public measures. We restrict so many public behaviours that are dangerous to public health, e.g., we "prohibit" someone with Cholera to leave quarantine, we "do not allow" people with hepatitis to handle our food, we "force" drivers to wear seatbelts, we "force" kids to be in car seats, we "force" cities to treat drinking water so it is safe... We do so because all these public measures are proven life saving measures.
    So it pains me that schools where I live send kids who have lice home, but not if they have COVID! This is insane. COVID is a neurotropic disease with coagulopathy capabilities; it is not "just a cold". The disconnect in society is sobering and may have tremendous implications if indeed COVID turns out to be a long term mass disabling event. I sincerely hope it won't be but hope is not a good public health policy, harm reduction and the cautionary principle is. I personally believe that as humans stopped drinking untreated water that used to kill millions, we need to stop breathing pathogen laden air. We can do it easily with indoor ventilation and CO2 monitoring, breaking infection cycles, and taking care of earth so that the quality of air outside is not continuously pushed to toxic levels. Sorry if this topic is a tangent to our typical lung cancer discussions.
    Keep safe everyone while enjoying life too.
  5. Like
    ColleenRae reacted to LilyMir in How active are you in the real world these days?   
    Hi Karen, as I am new to this whole lung cancer thing and just recovering from surgery and chemo and will start tag soon, my family is very conservative. However, we have been the same since the pandemic began as I was protecting my mom who is high risk and we decided that cutting her from our life is not an option (little did I know then that I am the one who is extreme risk). We have already lost my grandfather to COVID, an uncle, another uncle's wife, and an uncle of my husband's (who all lived in different countries) so we know this disease can be a brutal killer.
    We always mask outside home with N95 now, do not go anywhere indoors unless critical, enjoy curb-side pickup and home deliveries, do not go to restaurants (luckily I am a cook and a foodie), and we keep all our activities outdoors (still masked as no one respects distancing around here). Only recently did we start our kid in in-person school and he keeps an N95 on and we sign him out for quick lunch in the car. His school has MERV 13 and a commercial grade HEPA in each class. We are still worried but decided the risk vs reward given our precautions is worth it for his sake. 
    As a scientist, I read papers coming out on COVID as they come and there is disturbingly mounting and clear evidence of (common) long term serious damage to vital organs even with very mild initial illness in the 1-2 years after infection (and we have no data beyond that), including sudden cardiac events, clots, brain disease which extends to pediatric patients etc. Before things become clearer or actual treatments are here, I think our family's life will be restricted long term as we hope to avoid infection, or at least, to limit viral loads and re-infections, which seem to be the real problem now as each re-infection seems to compound long term risks. Our family was the only one masked when we went to school the first day (a couple more kids wore cloth masks) but that does not deter us and we continue to turn down sit down dinner invitations etc although we know this is not making us any friends. Society has been misinformed that COVID is as benign as a cold and thus they act like the pandemic is over. It is definitely not the case and as my oncologist put it the other day, COVID is in the water now, meaning everywhere, as he was advising me to try my best not to catch it!
    Checking COVID deaths in North America shows the horrifying toll stands to this day. Vaccinations seem to have reduced death risk by a lot but not infections nor long term complications. I still intend to get the bivalent vaccine when it arrives here in 2 weeks (had 2 doses + booster so far) but know that current vaccines have limitations and should be part of wider mitigation steps.
    People are extremely different in their balancing of risk/reward so very hard to give advice. Just one more data point for you from a fellow lung cancer survivor. Wishing you a safe and enjoyable Fall season!
  6. Like
    ColleenRae reacted to Judy M2 in How active are you in the real world these days?   
    Karen, it is inevitable that kids in school will get Covid, the flu and a bunch of other weird infections. My sister (who does not have cancer) got Covid last year from kids in the pre-school she is director of, despite all the cleaning and disinfecting--I don't think they wore masks anymore. She was fine but then she's healthy with no underlying conditions. She doesn't really understand why I still isolate, and I don't think that most healthy people can.
  7. Like
    ColleenRae reacted to Karen_L in How active are you in the real world these days?   
    Tom, Lou, Judy, Pstar,
    How helpful your comments are. It's interesting to see how differently we are all approaching it.
    I wish there were more clearcut guidelines. Recently on vacation, a friend was pushing for all of us to go out to dinner. I said I'd go, but only if it were outside. A whole commentary ensued about air circulation and open windows, until I shut it down. I thanked our friend and then said, "I do not eat in restaurants. Period. As I said, I'll be happy to sit outside." 
    Tom, I appreciate how you must miss concerts. Lou, I think it's the high-risk places that are of greatest concern to me, too. 
    Long Covid scares the pants off of me too, Judy. It sounds like my husband and I are handling things much the same way as you and yours, except mine is getting itchy to do what he loves. I've decided against returning to my work with teachers this year. I can't imagine not doing it, but when the paper runs a story about how anyone with a kid in school will get Covid and how to deal with it, I'm pretty persuaded. 
    Thanks!
     
    Karen
  8. Like
    ColleenRae reacted to Judy M2 in How active are you in the real world these days?   
    I'm vaxxed and boosted and will be scheduling the new booster with my flu shot very soon because I'm 6 months out from my last booster. 
    My husband and I have never had Covid to our knowledge. We have strict safety practices. We only socialize indoors with a small group of friends and family who are vaxxed, boosted and test negative. If someone who visits is coming off a plane, the visit is outdoors only. I've been to one restaurant in the last year and it was outdoor dining. Our biggest disappointment was having to cancel our attendance at an annual NFL reunion last month because we'd be indoors with too many people whose status we don't know. 
    My biggest worry would be getting long Covid. I have fought hard to be healthy and am very risk-averse now. The thought of being in a crowd fills me with anxiety, and in fact my skin crawls when I have to go to Costco (even with a good mask). 
  9. Like
    ColleenRae reacted to Tom Galli in How active are you in the real world these days?   
    Karen,
    I'm also "vaxxed" and boosted but like Lou, I avoid high-risk activity indoors. I also love classical music, having studied classical piano for years but I didn't attend the last 2 years of concerts at the Dallas Symphony and I won't attend this season either. 
    I'm a little vexed at the medical community telling us we have a COVID "vaccine". Obviously, they really stretched the definition of the word vaccine because it does not stop COVID. I have about 30-percent of total pulmonary capacity. A bad chest cold could kill me and COVID would plain do me in. So I isolate to stay alive.
    Stay the course.
    Tom
  10. Like
    ColleenRae got a reaction from Justin1970 in LexieCat/Teri Updates   
    Heartfelt condolences to you Step and your family.  Your description of her passing helped... That she wasn't alone, wasn't in pain and never has to suffer again.
    Sending you huge hugs.
    Colleen
  11. Like
    ColleenRae got a reaction from Susan Cornett in NED!   
    VERY happy to hear this, Susan ❤️
  12. Like
    ColleenRae got a reaction from Justin1970 in NED!   
    VERY happy to hear this, Susan ❤️
  13. Like
    ColleenRae got a reaction from Tom Galli in NED!   
    VERY happy to hear this, Susan ❤️
  14. Like
    ColleenRae got a reaction from LouT in NED!   
    VERY happy to hear this, Susan ❤️
  15. Like
    ColleenRae reacted to RJN in NED!   
    Fantastic - just loving hearing these positive outcomes. It gives me so much hope and joy!
  16. Like
    ColleenRae reacted to Susan Cornett in NED!   
    I received my 6 month scan results today and I'm happy to say that I'm NED. I've been NED for almost 4 years. Scanxiety still gets the best of me - no sleep last night. In the past, my results were not available to me online but there's been a change at Super Doc's office so they're posting online now. I got the alert last night but I couldn't look! Maybe next time...
  17. Like
    ColleenRae reacted to LouT in Well, just damn.   
    I'm with Karen on this.  You need to get your Oncologist to earn their money and push back for you.  Please don't let them delay.
    Lou
  18. Like
    ColleenRae reacted to Karen_L in Well, just damn.   
    Your oncologist needs to get his or her butt on the phone and have a long conversation with Dr. Anonymous. I know my radiologist had to, in order to give the more advanced treatment she preferred. 
    Are you bound to the oncologist or can you find someone different? 
    I'm sure other folks will have more thoughts....
    Don't quit-- 
  19. Sad
    ColleenRae reacted to G.A.M. in Well, just damn.   
    I received a letter from Blue Cross/Blue Shield today denying both a PET and CT scan. My Oncologist hasn't proven that there is a medical necessity to the anonymous Doctor who has never examined me. I don't know how long its will be now.
    I'm trying to remain calm. 
  20. Like
    ColleenRae reacted to Tom Galli in Well, just damn.   
    GAM,
    Well, this situation just sucks!
    You can choose to be "good to go" but you might want to consider locking and loading and proceeding purposefully down range to engage and destroy your lung cancer again. You've got choices!
    Stay the course.
    Tom
  21. Sad
    ColleenRae reacted to G.A.M. in Well, just damn.   
    I was NED in early Feb, and my subsequent CT was scheduled for late July.
    I've been getting light-headed when standing lately and passed out Tuesday evening, hitting the floor hard. I broke my right wrist, my eye socket fractured, badly bruised my right hip, and a tiny brain bleed. A CT also revealed a 2.5cm mass in my right lung and 2 impacted lymph nodes.
    So here I am again.
    Hearing it now was easier than the first time, but it stripped me of my hope, which really hurt. When I first heard the news, I asked for two things. To see my grown son again and to watch my baby daughter graduate from college with her engineering degree. Both happened in May, and I'm good to go if I must.
     
  22. Like
    ColleenRae got a reaction from ChiMama in Starting SBRT this week   
    Just a check-in. I'm finally taking steps to address this second lung nodule (LUL) we've been watching since my lobectomy in Oct 2018 (RUL).  It's highly suspicious for another adenocarcinoma in-situ. Still smallish, but didn't want to miss a window of opportunity to get it before it spreads or grows.  PET scan did not light up, but consensus is it's the same as my last tumor.  I thought I was mentally ready for this, but I'm not. Finding sleep is not very restful   I was told I could choose another surgery or SBRT.  With COVID, I was concerned about a hospital stay, and I really didn't want to undergo another surgery, so I didn't even go for a surgical consult. SBRT just seems like the right choice to make. (Tom Galli's posts made me feel confident in SBRT!) 
    I'm very grateful for and pleased with the radiation oncologist from Univ of WA Med Center / Seattle Cancer Care Alliance.  My "team" has been outstanding. I can really see the difference in having a "team" in this process (I did not have that with the lobectomy... NOW I get it / why it's so beneficial to have a medical oncologist, etc.!) The RO has taken the time to understand my living situation (being out-of-town, single parent of an adult child with Autism). I feel fortunate I will only need 4 SBRT treatments, and he has scheduled them for Tuesday/Thursdays for two consecutive weeks. This will allow me to stay in Seattle for a couple of nights, drive home for a few days, and then return for the final two treatments. Perfect situation for driving and including the ability to care for my son.  The RO does not anticipate I'll have any major side effects. Possibly fatigue. Maybe a cough and some SOB. I hope that's all. I'm not afraid of the actual radiation. I know it won't hurt while being done.  I think I'm more afraid of side effects / impact on quality of life - should that occur... and, I'm just afraid of cancer, in general.  I have to fight hard not to think "okay, then what comes after this?" I want to believe that SBRT will zap this guy out of the ballpark and I can have a few years of NED if all goes well.  I am not foolish enough to believe that I won't be dealing with lung cancer again in the future.  I am 63. I am sure it will rear its ugly head again, but reading the bravery of others here in this forum is very inspiring and helpful in coping with that fear.
    When I came to this forum over 3 years ago, I was terrified. This "place" and the people who participate, has really been my sole source of support and education (apart from my own research).  Thanks to you all!  When I had my lobectomy, I was very frightened about the future and my son.  We still live together - just bought a house together - and I'm praying I can stay at least as strong as I am to enjoy our home and fix it up with my son. 
    SBRT will be a very different experience from surgery, I'm sure.  This time we are staying at the SCCA house during my treatment. Last time I had to leave my son alone in a hotel while I was in the hospital. At least we can be together this time.  He has been incredibly supportive and loving.
    I am scared and yet - at the same time - I feel like I'm in a bit of denial, like this isn't that big of a deal (the SBRT - not the cancer. I know that's big). All I want to do is have the SBRT get rid of this tumor. I find myself worrying about things like: Will I be able to get up the stairs after SBRT without shortness of breath? Will I be able to garden? Will I be able to go for long hikes/walks up steep hills) with my son?  It's rainy and cold today and I felt mad - afraid that my days of doing these things might be numbered due to cancer or SBRT.  I wanted to get out and walk all day.
    I'll check back after my treatments are completed.  The RO said he is comfortable in waiting 6 months following SBRT for my next scan, or we could do it in 3 months if that would make me feel better. I'll likely go with a 3 month scan.
    Thanks for letting me vent and express my worries here on the keyboard.  It just helps to have a place to get some of these thoughts out!  Best to all of you. Colleen
  23. Like
    ColleenRae got a reaction from LouT in Starting SBRT this week   
    Just a check-in. I'm finally taking steps to address this second lung nodule (LUL) we've been watching since my lobectomy in Oct 2018 (RUL).  It's highly suspicious for another adenocarcinoma in-situ. Still smallish, but didn't want to miss a window of opportunity to get it before it spreads or grows.  PET scan did not light up, but consensus is it's the same as my last tumor.  I thought I was mentally ready for this, but I'm not. Finding sleep is not very restful   I was told I could choose another surgery or SBRT.  With COVID, I was concerned about a hospital stay, and I really didn't want to undergo another surgery, so I didn't even go for a surgical consult. SBRT just seems like the right choice to make. (Tom Galli's posts made me feel confident in SBRT!) 
    I'm very grateful for and pleased with the radiation oncologist from Univ of WA Med Center / Seattle Cancer Care Alliance.  My "team" has been outstanding. I can really see the difference in having a "team" in this process (I did not have that with the lobectomy... NOW I get it / why it's so beneficial to have a medical oncologist, etc.!) The RO has taken the time to understand my living situation (being out-of-town, single parent of an adult child with Autism). I feel fortunate I will only need 4 SBRT treatments, and he has scheduled them for Tuesday/Thursdays for two consecutive weeks. This will allow me to stay in Seattle for a couple of nights, drive home for a few days, and then return for the final two treatments. Perfect situation for driving and including the ability to care for my son.  The RO does not anticipate I'll have any major side effects. Possibly fatigue. Maybe a cough and some SOB. I hope that's all. I'm not afraid of the actual radiation. I know it won't hurt while being done.  I think I'm more afraid of side effects / impact on quality of life - should that occur... and, I'm just afraid of cancer, in general.  I have to fight hard not to think "okay, then what comes after this?" I want to believe that SBRT will zap this guy out of the ballpark and I can have a few years of NED if all goes well.  I am not foolish enough to believe that I won't be dealing with lung cancer again in the future.  I am 63. I am sure it will rear its ugly head again, but reading the bravery of others here in this forum is very inspiring and helpful in coping with that fear.
    When I came to this forum over 3 years ago, I was terrified. This "place" and the people who participate, has really been my sole source of support and education (apart from my own research).  Thanks to you all!  When I had my lobectomy, I was very frightened about the future and my son.  We still live together - just bought a house together - and I'm praying I can stay at least as strong as I am to enjoy our home and fix it up with my son. 
    SBRT will be a very different experience from surgery, I'm sure.  This time we are staying at the SCCA house during my treatment. Last time I had to leave my son alone in a hotel while I was in the hospital. At least we can be together this time.  He has been incredibly supportive and loving.
    I am scared and yet - at the same time - I feel like I'm in a bit of denial, like this isn't that big of a deal (the SBRT - not the cancer. I know that's big). All I want to do is have the SBRT get rid of this tumor. I find myself worrying about things like: Will I be able to get up the stairs after SBRT without shortness of breath? Will I be able to garden? Will I be able to go for long hikes/walks up steep hills) with my son?  It's rainy and cold today and I felt mad - afraid that my days of doing these things might be numbered due to cancer or SBRT.  I wanted to get out and walk all day.
    I'll check back after my treatments are completed.  The RO said he is comfortable in waiting 6 months following SBRT for my next scan, or we could do it in 3 months if that would make me feel better. I'll likely go with a 3 month scan.
    Thanks for letting me vent and express my worries here on the keyboard.  It just helps to have a place to get some of these thoughts out!  Best to all of you. Colleen
  24. Like
    ColleenRae got a reaction from Deb W in Starting SBRT this week   
    Just a check-in. I'm finally taking steps to address this second lung nodule (LUL) we've been watching since my lobectomy in Oct 2018 (RUL).  It's highly suspicious for another adenocarcinoma in-situ. Still smallish, but didn't want to miss a window of opportunity to get it before it spreads or grows.  PET scan did not light up, but consensus is it's the same as my last tumor.  I thought I was mentally ready for this, but I'm not. Finding sleep is not very restful   I was told I could choose another surgery or SBRT.  With COVID, I was concerned about a hospital stay, and I really didn't want to undergo another surgery, so I didn't even go for a surgical consult. SBRT just seems like the right choice to make. (Tom Galli's posts made me feel confident in SBRT!) 
    I'm very grateful for and pleased with the radiation oncologist from Univ of WA Med Center / Seattle Cancer Care Alliance.  My "team" has been outstanding. I can really see the difference in having a "team" in this process (I did not have that with the lobectomy... NOW I get it / why it's so beneficial to have a medical oncologist, etc.!) The RO has taken the time to understand my living situation (being out-of-town, single parent of an adult child with Autism). I feel fortunate I will only need 4 SBRT treatments, and he has scheduled them for Tuesday/Thursdays for two consecutive weeks. This will allow me to stay in Seattle for a couple of nights, drive home for a few days, and then return for the final two treatments. Perfect situation for driving and including the ability to care for my son.  The RO does not anticipate I'll have any major side effects. Possibly fatigue. Maybe a cough and some SOB. I hope that's all. I'm not afraid of the actual radiation. I know it won't hurt while being done.  I think I'm more afraid of side effects / impact on quality of life - should that occur... and, I'm just afraid of cancer, in general.  I have to fight hard not to think "okay, then what comes after this?" I want to believe that SBRT will zap this guy out of the ballpark and I can have a few years of NED if all goes well.  I am not foolish enough to believe that I won't be dealing with lung cancer again in the future.  I am 63. I am sure it will rear its ugly head again, but reading the bravery of others here in this forum is very inspiring and helpful in coping with that fear.
    When I came to this forum over 3 years ago, I was terrified. This "place" and the people who participate, has really been my sole source of support and education (apart from my own research).  Thanks to you all!  When I had my lobectomy, I was very frightened about the future and my son.  We still live together - just bought a house together - and I'm praying I can stay at least as strong as I am to enjoy our home and fix it up with my son. 
    SBRT will be a very different experience from surgery, I'm sure.  This time we are staying at the SCCA house during my treatment. Last time I had to leave my son alone in a hotel while I was in the hospital. At least we can be together this time.  He has been incredibly supportive and loving.
    I am scared and yet - at the same time - I feel like I'm in a bit of denial, like this isn't that big of a deal (the SBRT - not the cancer. I know that's big). All I want to do is have the SBRT get rid of this tumor. I find myself worrying about things like: Will I be able to get up the stairs after SBRT without shortness of breath? Will I be able to garden? Will I be able to go for long hikes/walks up steep hills) with my son?  It's rainy and cold today and I felt mad - afraid that my days of doing these things might be numbered due to cancer or SBRT.  I wanted to get out and walk all day.
    I'll check back after my treatments are completed.  The RO said he is comfortable in waiting 6 months following SBRT for my next scan, or we could do it in 3 months if that would make me feel better. I'll likely go with a 3 month scan.
    Thanks for letting me vent and express my worries here on the keyboard.  It just helps to have a place to get some of these thoughts out!  Best to all of you. Colleen
  25. Like
    ColleenRae got a reaction from Scruboak in Starting SBRT this week   
    Just a check-in. I'm finally taking steps to address this second lung nodule (LUL) we've been watching since my lobectomy in Oct 2018 (RUL).  It's highly suspicious for another adenocarcinoma in-situ. Still smallish, but didn't want to miss a window of opportunity to get it before it spreads or grows.  PET scan did not light up, but consensus is it's the same as my last tumor.  I thought I was mentally ready for this, but I'm not. Finding sleep is not very restful   I was told I could choose another surgery or SBRT.  With COVID, I was concerned about a hospital stay, and I really didn't want to undergo another surgery, so I didn't even go for a surgical consult. SBRT just seems like the right choice to make. (Tom Galli's posts made me feel confident in SBRT!) 
    I'm very grateful for and pleased with the radiation oncologist from Univ of WA Med Center / Seattle Cancer Care Alliance.  My "team" has been outstanding. I can really see the difference in having a "team" in this process (I did not have that with the lobectomy... NOW I get it / why it's so beneficial to have a medical oncologist, etc.!) The RO has taken the time to understand my living situation (being out-of-town, single parent of an adult child with Autism). I feel fortunate I will only need 4 SBRT treatments, and he has scheduled them for Tuesday/Thursdays for two consecutive weeks. This will allow me to stay in Seattle for a couple of nights, drive home for a few days, and then return for the final two treatments. Perfect situation for driving and including the ability to care for my son.  The RO does not anticipate I'll have any major side effects. Possibly fatigue. Maybe a cough and some SOB. I hope that's all. I'm not afraid of the actual radiation. I know it won't hurt while being done.  I think I'm more afraid of side effects / impact on quality of life - should that occur... and, I'm just afraid of cancer, in general.  I have to fight hard not to think "okay, then what comes after this?" I want to believe that SBRT will zap this guy out of the ballpark and I can have a few years of NED if all goes well.  I am not foolish enough to believe that I won't be dealing with lung cancer again in the future.  I am 63. I am sure it will rear its ugly head again, but reading the bravery of others here in this forum is very inspiring and helpful in coping with that fear.
    When I came to this forum over 3 years ago, I was terrified. This "place" and the people who participate, has really been my sole source of support and education (apart from my own research).  Thanks to you all!  When I had my lobectomy, I was very frightened about the future and my son.  We still live together - just bought a house together - and I'm praying I can stay at least as strong as I am to enjoy our home and fix it up with my son. 
    SBRT will be a very different experience from surgery, I'm sure.  This time we are staying at the SCCA house during my treatment. Last time I had to leave my son alone in a hotel while I was in the hospital. At least we can be together this time.  He has been incredibly supportive and loving.
    I am scared and yet - at the same time - I feel like I'm in a bit of denial, like this isn't that big of a deal (the SBRT - not the cancer. I know that's big). All I want to do is have the SBRT get rid of this tumor. I find myself worrying about things like: Will I be able to get up the stairs after SBRT without shortness of breath? Will I be able to garden? Will I be able to go for long hikes/walks up steep hills) with my son?  It's rainy and cold today and I felt mad - afraid that my days of doing these things might be numbered due to cancer or SBRT.  I wanted to get out and walk all day.
    I'll check back after my treatments are completed.  The RO said he is comfortable in waiting 6 months following SBRT for my next scan, or we could do it in 3 months if that would make me feel better. I'll likely go with a 3 month scan.
    Thanks for letting me vent and express my worries here on the keyboard.  It just helps to have a place to get some of these thoughts out!  Best to all of you. Colleen
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