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  • City
    San Francisco
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  • Status
    Lung cancer patient/survivor
  • Interests
    MET EXON 14

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  1. Hi my name is Teresa. I have MET exon 14 skipping with MET amplification. I had a 15 cm tumor in my right lung. I went straight to crizotinib and within months it shrunk my huge tumore to 9.7 cms. I had a right pneumonectomy on 4/9/2018. I am currently NED on treatment. I was able to bypass any chemotherapy. An article was written on my case. Pathologic Complete Response to Neoadjuvant Crizotinib in a Lung Adenocarcinoma Patient with a MET Exon 14 Skipping Mutation. Crizotinib and Tepotinib (which as of Feb. 2021 received FDA approval) are two current targeted therapies as well as Capmatinib (Tabrecta). I belong to MET Crusaders. If you have MET, they have a lot of information on MET exon 14 skipping, MET amplification and MET protein expression. I am a 3.5 year survivor. I was given my life back. I originally was a Stage 4 patient and then it was upgraded to Stage 3 B.
  2. Looking for others with MET EXON 14 skipping. I have stage IV now stage IIIA nsclc, adenocarcinoma. Had a 15 cm tumor with all right side mediastinum lymph nodes involved and a few nodules in the right pleura. MET Amplification. SUV max pre-treatment 25.9. Poorly differentiated adenocarcinoma. Was treated with crizotinib, had excellent results with 60 % shrinkage after a few months. I had a right pneumonectomy in April 2018 and had a pathologic complete response. Crizotinib was my only treatment. I didn't have chemotherapy. I stopped taking crizotinib one month post pneumonectomy and a few cancerous nodules reappeared on my right side between two ribs.. I had SBRT True Beam radiation and apparently, it was also successful. I went back on crizotinib and so far my scans have been clear. There is a group called MET CRUSADERS and they can be found at METcrusaders.org and on facebook for anyone who would like more information on the latest treatments and to discuss with others with MET exon 14... I have continued working and still work full time, apart from the surgery and post surgery. I was basically given my life back.. From some of the literature I seem to find that you get better results with targeted therapy with higher amplification... am I wrong?
  3. Thanks for your reply. I’m glad to hear you are a long term survivor. How long? Do you have MET exon 14? I hear it is rare.
  4. Hi! I was told to repost as newcomer. I hope it is here. Last year in June 2017 they found a 16 cm mass (yes, cms!) in my right lung. Met exon 14 adenocarcinoma. I am a never smoker! It spread to lymph nodes and showed signs of pleural effusion so stage IV, now stage IIIa. With crizotinib my tumor shrunk to 6cms. They did a pneumonectomy and the reports show complete response. Of course, I realize that I am incredibly lucky and thank the great surgeons, oncologists and research team at UCSF. They are the best!! Are there any long term survivors with MET exon amplification out there? I hope everyone on this site to have good outcomes, hope and on a path that leads to healthy living with our cancers!
  5. I’m new on this site. I have nsclc adenocarcinoma. I’m doing well. I was diagnosed July 2017 with a 16cm mass in right lung, lymph nodes, pleura. I took crizotinib only- no chemo. It shrunk tumor- it was stage 4-met exon 14. I had a pneumonectomy of the right lung. I’m looking for long term survivors with Met exon 14. I know I am lucky and I thank God and my great doctors at UCSF . I wish love, hope and healing to all here.
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