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Rower Michelle

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  1. Like
    Rower Michelle reacted to RonH in Durvalumab   
    For all that routinely post or read this forum, while I hope I am not making a mistake posting it here, but a fellow former Durvalumab member isabelle49 who posted in here several times I believe is apparently nearing the end of her fight and chosen to enter home hospice. You may want to read her update posted in "member updates" over the last several days and send her your thoughts and prayers. Forgive me if I shouldn't post this here, but felt that everyone should know.
  2. Like
    Rower Michelle reacted to Isabelle49 in Negative changes.   
    Much appreciated. I’m home Saturday. Night. Hemoglobin was low, so was transfused with one unit of blood.  Had to twist a resident’s finger to get him to put in an order for the blood. My daughter who is also an RN was on him like white on rice when he indicated he didn’t think it was a good idea, said something about blood leaking into my lungs (Whaaat???  - never heard of that unless it was a trauma. Got the blood feeling like ihave more endurance (Duh, of course). Resident really got on my last nerve,but that’s how they learn.   Blessings to all.
  3. Like
    Rower Michelle got a reaction from Susan Cornett in The results are in...   
    Well Susan- Here it goes!  WHOO HOO!  That’s so awesome!  After all you’ve been through, what an inspiration you’ve been to all of us. 
    Such wonderful news!!!
  4. Like
    Rower Michelle got a reaction from hope16 in Scan Time Again   
    Thank you all for the continued support! Tom Petty had to right-  but I won’t back down, stand my ground. 
    MB we’ll be in this together on the 25th.  I think there’s something about these “anniversary” scans.  For me it’s one year on targeted therapy. 
    I’m moving through the packing list this week which helps the time go by.  Lobsters and lighthouses for me next week! We’re celebrating our 25th wedding anniversary where we honeymooned in Maine. It will be a great trip! 
    Today it’s the Living with Lung Cancer Support Group, we’ve got the FOX News 4 health and Wellness expert to come and talk with us.  Then I’m off to yoga  🧘‍♀️ 
    I’m so glad to have you guys! Happy weekend!
    Michelle
     
     
  5. Like
    Rower Michelle got a reaction from DFK in Durvalumab   
    Barb-
    Glad to seen the Jersey spirit alive and well. Skip the opiates onward with  roids .  Get some rest- no working through this one... hang tight.  
     
  6. Like
    Rower Michelle reacted to Road bum in So scared & trying to be brave...   
    Linda, we all have been where you are right now. Some of us more than once. You can’t let it win without trying to beat it. 
    I have been diagnosed for three years now. Been through 3 different rounds of chemo and radiation and I’m still here.
    i will keep trying as long as I have breath. None of us know when they might find just the right combination of treatments that will get us a NED ( no evidence of disease).
    That is the goal around here. One day at a time and never give up. 
    We here are all behind you and will help in any way we can.
    Don't forget, you are never alone.
    Ron
  7. Like
    Rower Michelle reacted to LouT in Not Sleeping since DX   
    Darla,
    Like the rest of my Lungevity Family, let me assure you that anxiety is part and parcel of this darned disease.  The testing, diagnosis, treatment plans and (worst of all) fear of the future all play a apart in keeping us anxious and scared.  But, you are already over some of the worst times (diagnosis, confirmation of cancer and surgery), so now you need to participate in your recovery (yes I did say recovery), you can and will return to health and in doing so you will feel less anxiety over time.  Mindfulness, breathing and a Xanax can surely help.  But also learning about your disease, asking any and all questions you have about your disease and staying away from Google will surely help reduce your feeling of uncertainty.  Many of the folks here have gone through chemo and will give you better input on that than I can as I had the surgery only.  Feel free to ask questions; especially about the things that frighten you the most.  We've all had those "wee hours of the morning" fears and feelings of isolation, but your not alone anymore.  There are great stories of survival here and remember that someone here has traveled the same path you will and can provide guidance.  The rest of us will provide our support.  
    Lou
  8. Like
    Rower Michelle got a reaction from LouT in Not Sleeping since DX   
    Hi Darla-
    Sleep is pretty much elusive to everyone in the beginning for a variety of reasons with anxiety being the most common culprit.   It’s so hard to get a good nights sleep because your head is spinning all day and at night your body is tired but your brain is on still on over drive.  How to slow down those thoughts????  For me it was a YouTube video by Dr Andrew Weil on the 4-7-8 breathing exercise. It triggers a parasympathetic response to slow the brain down.  It does take some time to kick in however it was effective for me.  
    Bridget gave some good advice to have some meds available for the short term.  
    You might also try diffusing essential oils or downloading the Insight Timer app (free)..
    Each passing day will get a little easier, sleep will come.   Hang in there take it one day at a time, remember not to punish or judge yourself.  This is all very normal.  I’m glad you found us. Welcome to the family. 
    Michelle
  9. Like
    Rower Michelle reacted to Barb1260 in Durvalumab   
    Not convinced what sent me to the ER last weekend was/is pleuritis. Saw the onc’s PA on Monday, put me on 10mg prednisone for 7 days and a muscle relaxer. Seemed to think the pain is muscle pain. Except for the pain being gone when I inhale and the muscle spasms gone, still hurts when I move upper right shoulder/arm and back. Heat helps temporarily. Anybody have muscle pain issues as a side effect?  I almost want to take a vacation from Imfinzi to see if all this goes away. CT and X-ray were all negative at the ER 😶 
  10. Like
    Rower Michelle got a reaction from Tom Galli in Direction needed   
    Ron-
    So good to hear from you!  Please don’t feel like you have to apologize. You’ve been an inspiration here.  My prayers for you on the 14th-  each time I go for the scan I try to lock & load mentally. I keep saying it’s not what  if there’s a clinical change but what comes next.  So glad you’ve got a doc that’s willing to use whatever is in the arsenal.  Hugs to you. Michelle
  11. Like
    Rower Michelle got a reaction from Tom Galli in Not Sleeping since DX   
    Hi Darla-
    Sleep is pretty much elusive to everyone in the beginning for a variety of reasons with anxiety being the most common culprit.   It’s so hard to get a good nights sleep because your head is spinning all day and at night your body is tired but your brain is on still on over drive.  How to slow down those thoughts????  For me it was a YouTube video by Dr Andrew Weil on the 4-7-8 breathing exercise. It triggers a parasympathetic response to slow the brain down.  It does take some time to kick in however it was effective for me.  
    Bridget gave some good advice to have some meds available for the short term.  
    You might also try diffusing essential oils or downloading the Insight Timer app (free)..
    Each passing day will get a little easier, sleep will come.   Hang in there take it one day at a time, remember not to punish or judge yourself.  This is all very normal.  I’m glad you found us. Welcome to the family. 
    Michelle
  12. Like
    Rower Michelle got a reaction from Katum31 in Coughing/chest pain resolved once immunotherapy is started?   
    Most welcome Katum!  Sounds like your Mom might wang to consider another oncologist-a curious one. Tom’s right about the pulmonologist, it’s definitely worth a shot. 
    I forgot I had a few doses of Albuterol in the beginning too. 
    I never had allergies but now the KC summer is just nuts with all the pollen so I’ve got Flonase on board- it’s been helpful. One of the nurses at my clinic put together an essential oil diffuser cocktail for me with Frankincense, lavender & orange.  That helps to ease the congestion at night too.  
    Patience and persistence pays off in the long run. Please let us know how it goes! 
  13. Like
    Rower Michelle reacted to Roz in Scan Time Again   
    Michelle,
    I hope all goes well with your scan and that it shows that your targeted therapy continues to work!!
    Sending you positive vibes and support!!
    Waiting is so hard-Sounds like your trip will allow for a wonderful distraction. Enjoy every second!!

    Best, 
    Ro
  14. Like
    Rower Michelle got a reaction from Roz in Scan Time Again   
    Hi All,
    The summer just flew by! Now I’m in that three week window for the next scan on 10-24. I see the onc on 10-25, good not to have to wait for results. 
    We’re heading to Maine next week for vacation so hopefully will be a nice distraction, upon return it’s the usual pre scan spa week. 
    Its been almost one year on targeted therapy, praying the happy pills continue to keep the brakes  on the cancer  
    It seems I’m pretty good at holding it together for eight weeks however the last three weeks is nerve wracking.  I will not let it wreck me-next vacation is already planned to Amelia Island in late January.  
     
  15. Like
    Rower Michelle got a reaction from RonH in Scan Time Again   
    Thank you all for the continued support! Tom Petty had to right-  but I won’t back down, stand my ground. 
    MB we’ll be in this together on the 25th.  I think there’s something about these “anniversary” scans.  For me it’s one year on targeted therapy. 
    I’m moving through the packing list this week which helps the time go by.  Lobsters and lighthouses for me next week! We’re celebrating our 25th wedding anniversary where we honeymooned in Maine. It will be a great trip! 
    Today it’s the Living with Lung Cancer Support Group, we’ve got the FOX News 4 health and Wellness expert to come and talk with us.  Then I’m off to yoga  🧘‍♀️ 
    I’m so glad to have you guys! Happy weekend!
    Michelle
     
     
  16. Like
    Rower Michelle got a reaction from Curt in Scan Time Again   
    Thank you all for the continued support! Tom Petty had to right-  but I won’t back down, stand my ground. 
    MB we’ll be in this together on the 25th.  I think there’s something about these “anniversary” scans.  For me it’s one year on targeted therapy. 
    I’m moving through the packing list this week which helps the time go by.  Lobsters and lighthouses for me next week! We’re celebrating our 25th wedding anniversary where we honeymooned in Maine. It will be a great trip! 
    Today it’s the Living with Lung Cancer Support Group, we’ve got the FOX News 4 health and Wellness expert to come and talk with us.  Then I’m off to yoga  🧘‍♀️ 
    I’m so glad to have you guys! Happy weekend!
    Michelle
     
     
  17. Like
    Rower Michelle got a reaction from PaulaC in Scan Time Again   
    Thank you all for the continued support! Tom Petty had to right-  but I won’t back down, stand my ground. 
    MB we’ll be in this together on the 25th.  I think there’s something about these “anniversary” scans.  For me it’s one year on targeted therapy. 
    I’m moving through the packing list this week which helps the time go by.  Lobsters and lighthouses for me next week! We’re celebrating our 25th wedding anniversary where we honeymooned in Maine. It will be a great trip! 
    Today it’s the Living with Lung Cancer Support Group, we’ve got the FOX News 4 health and Wellness expert to come and talk with us.  Then I’m off to yoga  🧘‍♀️ 
    I’m so glad to have you guys! Happy weekend!
    Michelle
     
     
  18. Like
    Rower Michelle got a reaction from Robert Macaulay in Scan Time Again   
    Thank you all for the continued support! Tom Petty had to right-  but I won’t back down, stand my ground. 
    MB we’ll be in this together on the 25th.  I think there’s something about these “anniversary” scans.  For me it’s one year on targeted therapy. 
    I’m moving through the packing list this week which helps the time go by.  Lobsters and lighthouses for me next week! We’re celebrating our 25th wedding anniversary where we honeymooned in Maine. It will be a great trip! 
    Today it’s the Living with Lung Cancer Support Group, we’ve got the FOX News 4 health and Wellness expert to come and talk with us.  Then I’m off to yoga  🧘‍♀️ 
    I’m so glad to have you guys! Happy weekend!
    Michelle
     
     
  19. Like
    Rower Michelle reacted to MBinOregon in Scan Time Again   
    Hey, Michelle,
    My first 6 month scan is on 10/25 - fortunately, no waiting for me as I get to learn the result the same day.
    I'd be lying if I said I'm not getting nervous at all 😀 Inhale, exhale, ohmmmm 🙏🤞
    I'll be thinking of you - you got this! 👊🤛 (I'm fist-bumping you, if the emojis are too small)
    MB
  20. Like
    Rower Michelle reacted to Tom Galli in Scan Time Again   
    Michelle,
    I like your parallel planning: vacation then scan.  Add one step next scan to the series: vacation, scan and another vacation....
    My fingers and toes are crossed for NED.
    Stay the course.
    Tom
  21. Like
    Rower Michelle reacted to PaulaC in Scan Time Again   
    Sending relaxing positive thoughts your way! 
  22. Like
    Rower Michelle reacted to Susanrae in Scan Time Again   
    Michelle,
    Your input is much appreciated and valued on this site--thank you!  
    Enjoy the vacation and try not to stress about the upcoming scan; although, we all know it is easier said than done.  You take care now,
    Susan Rae
  23. Like
    Rower Michelle reacted to Susan Cornett in Scan Time Again   
    Michelle,
    Keep busy and keep those positive thoughts going. Enjoy your trip to Maine!
  24. Like
    Rower Michelle reacted to Lisa L in Scan Time Again   
    My travel sis, I’m planning another get away in December.  I find it’s the best way for me to not think about scans.  You got this my friend 💪 
    Love and Light ❤️
  25. Like
    Rower Michelle reacted to Curt in Scan Time Again   
    Don’t let it steal a minute of joy.  Enjoy Maine.  Positive thoughts.  
     
    Take the ferry to Cumberland Island if you have a chance while in Amelia Island.  Even stay there for a night if you can.  It’s a beautiful place.  My wife and I got engaged there.  
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