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HelenHJ

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Everything posted by HelenHJ

  1. Seventhson, Thank you so much for your kind words. They literally brought tears to my eyes. Even though I have a loving family and many, many wonderful friends, I feel so alone fighting this battle sometimes. It is reassuring to be in touch with people who have "been there, done that" and I truly appreciate your message. Hugs, Helen
  2. Thank you Lauren H. and Tom Galli. You are correct, Tom. I have stage IIIA adenocarcinoma, EGFR positive, negative PD-L1 in the primary tumor. Supposedly ineligible for immunotherapy and frankly extremely anxious about potential side effects of Tarceva. Seeing the oncologist on Monday, immediately following the stent pre-op. Wish me luck! Thanks to both of you for your responses.
  3. You are so kind, Bridget! Thanks for your positive and uplifting reply. You do give me hope.
  4. Thanks, ladies. Yes, I am taking Wellbutrin. I'm going to focus on one thing at a time. Have to have a stent placed in my right coronary artery next Tuesday, the 13th, and I may not have to worry about my silly old cancer after all! hehehe
  5. Thank you Bridget0 and LexieCat. I am getting increasingly depressed. I don't feel strong enough to weather the storm as it were. Maybe after I have the stent placed in my right coronary artery on Tuesday -- if I survive that -- I will feel better, but right now I am overwhelmed. I am very anxious about starting Tarceva and the prospect of becoming even more tired and nauseated. Also, I'm not sure if I can qualify for payment assistance from the drug manufacturer and I darned sure can't afford to pay a $4,000 monthly co-pay. I'm not the type for pity parties, believe me, but I'm about ready to throw in the towel. Should I try to enroll in a clinical trial, assuming there is one available nearby to where I live? I am currently running a small animal rescue organization by myself and I need to continue working at my paralegal job in order to afford my supplemental private insurance. Sigh.
  6. I'm new to this site and to such forums in general, but I'll give it a try. In July I was diagnosed with lung cancer. At the time a bronchoscopy was unsuccessful with respect to typing and staging the cancer, so I underwent a right lower lobectomy. It was determined that I have (or had) Stage IIIA adenocarcinoma. The tumor was successfully removed, together with numerous lymph nodes, many of which were malignant. The tumor was negative for PD-L1, although the immune cells were 5% positive for PD-L1. Regardless, the oncologist said I was not eligible for immunotherapy based on the PD-L1 results. He wants me to start a regimen of Tarceva and I am hesitant to do so based on the reported side effects. I am a 68-year-old caucasian female and the results of a recent CEA rest showed 1.0. The test indicated that anything less than 2.5 in a non-smoker is "normal" and I am taking that to mean "cancer free." I am so confused and overwhelmed. Any advice?
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