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Seventhson

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Posts posted by Seventhson


  1. When they started to give me meds to put me asleep that’s the last I recall in surgery. My blood pressure dropped and I had a swollen upper lip and very sore throat from a quick intubation. But it has cleared up . I hope yours does as well. Good to know you are still recovering as well. I have more pain. I think it is probably nerve pain. If it persists or worsens I will go to out pts and get a chest exray. But overall I am doing really good. I found I have overall had much less pain than I expected. I think in time we will both heal totally and do great. So glad you doing good and getting out being active. Good for you. 


  2. On 4/5/2019 at 7:50 PM, Curt said:

    Hi Seventhson. I had a right upper lobe lobectomy on Feb 26 of this year.  I’m glad to hear you are doing well.  

    Wow cool. Well maybe not cool but good that you are here chatting. I had mine on the 28th . I am doing good and hope you are as well. I have some discomfort when I do anything but not unbearable. Are you short of breath.?. So glad you are here chatting. If we can do this so can others. 


  3. Thank you for the kind words. Loosing someone close and someone you see everyday is never easy. However as is often the case in life , the big picture shows a lot more detail and makes more sense. Dad has bilateral lung cancer of two different types that were not diagnosed until in their very late stages. He denied having pain. Just a nagging cough and congestion. He was to the garage with his pickup hours before. Had tea with his best friend of many years. And passed very quickly. The bigger picture could have been a lot worse, more painful, suffering, and lasted for an extended period of time. God was merciful and generous in taking him home. 

         As for me God has given me absolutely minimal pain from surgery. I had surgery Thursday and came home Sunday. I had pain . I am not completely numb.lol. But I think is was very comparable to my biopsy. It snowed Saturday night here and again yesterday. So I have not filled my prescription for pain meds yet. I am doing fine. I have a slightly upset stomach now and some pinching pain on the opposite side of my chest. Doctor says it is nerve pain and usually in time goes away. Today I will change my dressing to the smaller bandages that peel and stick like a bandaid. I will be able to fully examine my surgery sites and check them. This has gone much better than anyone including doctors and nurses could have hoped for.

    I am greatful for all the kind words here. 

    I am trying to think of information to write here that might help someone. 

    I was able to drink water after surgery in small sips. Slightly short of breath only when I moved around or drank water. That was very quickly gone away. I ate the same night. Had a banana and it was soft and cold on the throat. Throat was and is very sore. I talk less to let it heal . I walked several times a day but stopped and completely rested when I was tired. I ate all my hospital food. I got up everyday and cleaned up and got dressed and ready to face the day. I rested after cleaning up. After resting I walked. I tried not to over eat any stuff me full type of meals. Smaller amounts over the day. The amount of hospital food was about right. Surgery was Thursday around noon. I had my first bowel movement Monday . I had been taking peg and stool softener in hospital so there was no strain. Some nerve pains in stomach after but better this morning. I was told on here to buy a wedge pillow for home. Very sound advice. I could not be laying flat. Not sure humans should ever sleep flat. That’s all I can think of to tell you right now. Hope this helps someone. 

    Before surgery doctors told me very little. I search credible sites including this one for guidance. I thought I may be hooked to a respirator when I awoke. Who knows. But it was a much better experience. Maybe cause I expected the worse. But I am totally honest here. This is my experience and in as much real time as I could to be as accurate as I could. I did this. You can do this. You experience will not be exactly like anyone else’s experience. But info from many people here will make it much better by you being prepared. May God almighty bless everyone who is here helping others with their support. I got to vent, ask questions and get directions here. Thank you to everyone. 

        Best of luck to all here sharing their information, support and love. May God help you during your trip through this. 


  4. I am doing very well. I was prepared for the worse. I got the best. I should note my room mates are awesome and nurses are like old time friends. 

    I had surgery on the 28 and got to my room on that evening. I stood next to my bed that night. Had catheter removed next day. Had chest tube removed yesterday. May go home today or tomorrow. No rush . Whatever doctor thinks. I have walked and done breathing exercises constantly. 

    If I can do this so can any of you. 

    On another note. Mom came to visit me day of surgery and stayed overnight. I visited before she went home the following day. It’s a three hour drive. Yesterday mom went to buy dad track pants for hospital as we thought he would be going here for testing on the 5th. When she returned home she found dad on the kitchen floor in blood. He had passed away. We thought we would loose him soon to cancer but not this soon or this way. It’s hard in here. I usually take care of things. I can’t this time. Everything will be more real when I get home. 

    I am sorry for not posting more last night but it’s been a busy time. Anyone who is worried about surgery and needs to talk I am here and will answer your questions. 

    I will go home today or tomorrow but honestly my biopsy was more painful. I have been cutting my pain meds back cause I don’t need them. I stopped dilaudid and took katorolac but stopped that at supper time last night. I took half dose at midnight with Tylenol to help me sleep but it didn’t work. I really am doing very well. I have great colour. Best in mths.  

    Well that’s my post and I hope it encourages someone to fight forward and not be afraid to face tomorrow. I will get more tests etc in the future but for now I am healing and living nicely. Thanks to those that encourage us and reach out through their pain to help. I love you all. Thks 

     

     


  5. Doing good. Surgery went well. Had some issues with my blood pressure dropping but I had already spoken to anesthesia about that so med was kept in operating room with me. In recovery same concerns about blood pressure. I was in recovery about an hour longer than expected. The pain was not as bad as I thought. It is a lot of pain but somewhat comparable to having my biopsy in lung. I am on Tylenol and delaudid. I choose the lowest amount and will increase amounts today as I get up to walk. Will post another update soon. All in all I am feeling positive and good with less pain than I expected. I had Lobectomy approximately 12 hrs ago. 


  6. On 11/20/2018 at 10:27 AM, Mamma Om said:

    Hi Seventhson. I had a neuroendocrine carcinoid. Long story, but I had been followed for a few years watching a nodule in my right lower lobe. Lat Jan. it showed it had grown so a biopsy was done (I've previously have two separate breast cancers and thyroid cancer). It was malignant, but was a fibroadenoma, a type of NSCLC. So I had the surgery, which was only just possible because I also have COPD and asthma. When the lobe was sent to pathology a second tumor was found, and originaly diagnosed at SCLC. Plans were made immediately for me to get a IV port put in my chest, and to start chemo and radiation, 3 days in a row, every 3 weeks. But my oncologist had some questions so she sent the pathology to a tumor board which is affiliated with a large cancer center, and they decided it was not SCLC, but the nueroendocerine carcinoid. I understand these are fairly rare. But the good news is that removing it (and the lobe it was in) is all the treatment needed. A couple of months later I had the IV port removed as it never worked properly even for a blood draw, and was forming clots. So I feel OK from the lung surgery, though I have slightly diminished lung capacity. But now they've been watching another nodule in my right middle lobe, and just also discovered a suspicious lump in my left breast. So I am having mammogram and ultrasound on that tomorrow. But I am a survivor of all this! Best wishes with your carcinoid. You should be fine,

    Just wanted to check in with you and see how everything is going. Hope all is well. 


  7. Thanks Tom . It is never easy watching someone slip away at any age. But dad is 85 yo and been able to drive and get around so far. So there are more blessings here than hardship. And who knows he may be around awhile yet. Timing could be better with all us sick at the same time . But we work with what we are delt. Thanks for always being there and being honestly supportive. It is appreciated. 


  8. Thanks for the kind words. I guess I will have to contact my doctor and set up an appointment. My type of cancer likes to use protein. It prefers protein from sources such as almonds etc . On my PET scan there was only low grade minimum uptake in the nodule itself. Neuroendocrine cancer does not show well on PET scans. I have had pain in my arms last yr similar to this so it is possible something else is going on or I have had this cancer for longer than anyone is aware  . I am concerned for my farther. He has a good day then a bad one. He doesn’t follow simple conversations well. I have noticed this for several mths now. It’s just worse now. Today He went to get up off the sofa and fell and mom hurt her hand helping him up. Have not received results from his brain scan yet but will be surprised if they are clear. Me and my brother talked and think he may get worse quickly. He and mom have been married 63 yrs. I am not sure if mom can take this or not. Anyway that is where that’s at. That  is me right now. I hope you all are doing fine and here’s wishing you the best of news . Love you all . Thanks for all the kind words. 


  9. I have been having pain in my right are and shoulder. Been telling myself it is just sore. It is not. I know it is not normal pain. I think the cancer has spread to my bones. Was my right arm but today my left shoulder and arm hurt a lot. I am afraid if I go to the family doctor then they will check and not operate on my lung. Not sure they should operate anyway. 


  10. Thanks for the kind words and advice. Seldom in my life , but sometimes , I need to just vent. I am very thandful I can do that here safely without judgement or feeling I have slighted someone. Now that I vented I feel better. It is what it is. Thanks for your encouragement. I am alive today right now. Mom is dad is and my brothers are. Today I am thankful for today. I am thankful for this site and the safe space it gives me. Thanks to all of you. For me the worse part by far is I am not well enough to look after everyone else. I am use to fixing and taking care of things for others. Guess I have to get use not doing as much. Thanks again for letting me vent and being so encouraging. Better today impart cause of you all. Thanks. 


  11. Thanks for the kind words and advice. Seldom in my life , but sometimes , I need to just vent. I am very thandful I can do that here safely without judgement or feeling I have slighted someone. Now that I vented I feel better. It is what it is. Thanks for your encouragement. I am alive today right now. Mom is dad is and my brothers are. Today I am thankful for today. I am thankful for this site and the safe space it gives me. Thanks to all of you. For me the worse part by far is I am not well enough to look after everyone else. I am use to fixing and taking care of things for others. Guess I have to get use not doing as much. Thanks again for letting me vent and being so encouraging. Better today impart cause of you all. Thanks. 


  12. Thks. Just feeling tired of dealing with cancer. 

    Dad is 85 yrs old and today was told he has cancer in both lung that is not operable. Each lung has a different cancer. One is from smoking. He will go for a PET scan soon and a brain scan Friday. Has a good appetite today. Coughs up blood. Seems worse at night. But doing O.K . So far. Has lost about 35 lbs. mom is really worried even though she is trying to hide it. She is still waiting for her appointment date for her biopsy of nodule in thyroid. Brother had a scope to check for cancer and will have bladder checked right away and other tests. Not sure why doctors ordered that right away. Went to visit friends tonight cause their brother is returning home from hospital tomorrow. He has entered into the palliative care program. So much cancer here around me and everywhere. Just wish I could get away from it for a week but not the time to be away from parents right now. 

    Thanks for the kind words. It will be what it will be. Nothing I can do about it anyway. Just wait and see what comes. 

     

     


  13. 16 hours ago, Tom Galli said:

    Seventhson,

    I am so sorry I missed your post yesterday.

    There are many benefits to a national health care system but you've just encountered the biggest problem -- getting in line.  I can't give you ideas for how to motivate officials in your country to accelerate your surgery, but I know Canadians who've crossed the border to obtain out-of-pocket health care.  Unless your pockets are deep enough to cover surgical recovery cost and further treatment, crossing the border is a bad idea.

    But, here is my point: cancer cells grow fast, but not that fast.  A surgery date in February, even late February, ought to get the job done.  As for enjoying life, you should be doing that regardless of cancer.  That is the point of life, so do indeed live a little.  Go to Cuba for vacation (really inexpensive I hear) and come back for treatment.

    Stay the course.

    Tom 

    Thks Tom. Always good to hear your advice. Guess really I am not expecting to get my surgery in Feb.  Have little faith in our health system. If I leave the country on vacation or to seek treatment I will loose my benefits and probably my job. But not sure they are reason enough not to go anymore. I might regret working about that and wish I had just gone. I hope you are right about the cancer growing slow. Everything my shoulder or arm hurt I think it might have spread. Doing some renovating to my old house and that helps occupy my mind. Thks again. 


  14. 16 hours ago, Tom Galli said:

    Seventhson,

    I am so sorry I missed your post yesterday.

    There are many benefits to a national health care system but you've just encountered the biggest problem -- getting in line.  I can't give you ideas for how to motivate officials in your country to accelerate your surgery, but I know Canadians who've crossed the border to obtain out-of-pocket health care.  Unless your pockets are deep enough to cover surgical recovery cost and further treatment, crossing the border is a bad idea.

    But, here is my point: cancer cells grow fast, but not that fast.  A surgery date in February, even late February, ought to get the job done.  As for enjoying life, you should be doing that regardless of cancer.  That is the point of life, so do indeed live a little.  Go to Cuba for vacation (really inexpensive I hear) and come back for treatment.

    Stay the course.

    Tom 

     

    20 hours ago, Rower Michelle said:

    Thanks for sharing your update.  I don’t think there’s anything more terrible than knowing a treatment is available but not accessible.  

    I don’t like it when meaningful people give useless advice but here is my two cent attempt: DON’T GIVE UP!  I think you’re onto something by reaching out to other facilities in Canada.  Trust but Verify as Ron Reagan used to say.   My mother taught us to really advocate for ourselves & not take no for an answer.  She made good use of the elected officials & when lodging a complaint this lady didn’t believe in a shot across the bow- she went to the big guns first.  Starting at the top of the organization & then worked down.   

    When I worked for insurance companies here the fastest way to get a claim appealed was when a Senator’s office or the media came calling. 

    Think about how to use the big guns in Canada. Your life is worth fighting for! 

    Yes you are right we have to fight here. I am lucky to be in a position to fight. Well enough to fight. Thanks for the encouragement. Was discouraged by my conversation with ,Dr's office but alright now and ready to fight. Thks. 


  15. I lost two older brothers to cancer. One to lung cancer. It was an extremely difficult time . Mainly cause of navigation difficulties within the health care system. Now I have lung cancer. But luckily this site gives me tons of information to prepare me for the next step. As a cancer pt I worry about ageing parents and how this will effect them and my family. As the brother of someone with cancer I wanted to help make life easier for them. I felt helpless not be able to do something. Here you can ask anything, express anything and get support in your journey. Very sorry for your situation. A lot on this site have been there and will be a great help. There is a great deal of options for care and hope. How is your brother doing mobility wise. What are his signs and symptoms?. Look forward to chatting more. 

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